My Story: How I Found out I have Gray Zone Lymphoma
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- Опубликовано: 21 окт 2024
- I was recently diagnosed with Gray Zone Lymphoma. Just a video of my story and what made me go see a doctor. First video ever and time on my hands.
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God bless you. I am going through chemo for Hodgkins lymphoma and my last PET scan showed it was all clear. I'm almost half way done with chemo. Good luck everything is going to be ok
Thank you! I hope you are doing well!
Hey Michelle
Doesn't surprise me that you're taking an opportunity during this crisis to help others by sharing your story and your warning.
Clearly what your going through hasn't affected your character.
Keep em comin!
Oh, Shayne! I miss you! Text me when you get a chance, I lost all of my phone numbers
Thank you for sharing your battle with cancer. Stay strong and positive hun. Love XOXO
Know how you feel I have mantle cell lymphoma. Just had first chemotherapy last Thursday. Good luck to you get a strong prayer group.
Hi I’m currently 20 years old and found a lump on my neck 3 months ago. Doctors kept telling me oh it’s probably a small infection, gave me antibiotics and the swelling never went away. This month they are sending me to get a biopsy in 2 weeks. I noticed another lump has appeared and I’m constantly sleeping, itching and I stared getting night sweats They think it’s cancer (lymphoma). The biopsy will tell us. Thanks for sharing your story! I have a feeling I do have cancer but I’m staying positive either way. I can fight it.
Yes you can! Have you gotten your biopsy yet?
GZL Michelle yep! Came back benign but had a few strange cells (not cancerous) they plan to due biopsy’s at lease one a year just Incase because the size of the lumps and my symptoms.
Well at least you're a head of it and aware. That would have saved a lot of my time and energy if I caught it early. I'm so glad to hear the good news! Stay well
sorry I did n't see it before sent it to understand you, no time , I was busy soo much . sorry again.good healthy for you my lady
Thank you!! ❤✌
Love and prayer for you
Thank you! 😍
Hope you recovered.
My daughter was diagnosed with grey zone lymphoma stage III in Dec 2013. Ive recently read an article on a Gardasil and how it has been studied and duplicated and published that it causes autoimmune disorders and LYMPHOMAS. She was 20 at the time. She was also exhausted and having to call in sick a lot. I thought it was a flu because we had all had the flu. the utgent care doc did a chest xray and found an enlargement in her chest so she called me at work and told ne to meet my daughter at the nearest hospital for a CT scan. Then we found it. My dtr had a biopsy and it was sent to Stanford when grey zone lymphoma was the diagnosis. She had RCHOP and 21 days of radiation and is now in remission. But I have always been an antivaxer since I studied virology and immunology in nursing school.
what I want to know is, did you have the Gardasil vaccine?
I don't think I've had Gardasil. I may have. I can't believe the pain to get your medical history!
Yikes, an antivaxer
Did they run a cbc at some point? I would assume the lymphocytes were high.
Hi! I did actually and they had to rule out an infection and then moved on to tissue biopsy. The increase doesn't mean you have lymphoma so the biopsy was to identify what the mass was. They did a needle aspiration which came up negative for lymphoma. The first tissue test identified lymphoma but not a very concentrated amount. So they attempted a second tissue biopsy with the same result
Thank you for sharing.
Hi Heather! I'm sorry to welcome you to the club but happy to see you have found a fellow GZL survivor! Feel free to reach out to me via email or Instagram if you want to chat or have questions for me or anything. gzlmichelle@gmail.com @gzl_michelle
@@gzlmichelle Thank you. If you would like to join, I created a GZL support group on facebook! :)
@@heatherkickscancer6456 thanks! I've taken a break from FB but I'll definitely find you if I decide to jump back on
Michelle, have you had also mosquito bite type skin reactions randomly? I am getting such. Something like hives but one or two only not many little but itchy. Docs say it is in my head 🙃
I did have a skin reaction all over my body. Very itchy to the point I had to be mindful of not scratching until I bled. Find another doctor if this one doesn't take you seriously. It is a major symptom of lymphoma
I hope you are well and sorry for the late reply!
I’m doing the same. Crazy itching on my feet hands and sometimes my arms. Im also sweating on and off all day for no reason. My sister had lymphoma none Hodgkin cancer, and she needed a bone marrow transplants. Out of 4 sisters I was her perfect match. I’m very worried
@@lynngroll1 how are you doing? Any progress getting an answer?
Thank you for sharing your cancer story with us.
Yvette Savo thank you!
Sending healing hugs!
Thank you Mary! Currently cancer free! 💪💜💚
Thank you for sharing your story 🙏🧡
Thank you for watching! 😍
you keep fighting love and pray
how r u now sorry to hear about u ad far as i have checked with online there is dr garson theraphy which can help u naturally but they are very expensive pls try that hope u get well may God bless u amen
Hey!! I loved your video, I noticed a small one hard node on the back of my neck last year oct and thought nothing of it. then about 3 months ago, one on my left neck (1.5 cm ENT said) that was enlarged that gets big-> then smaller. 2 months after that, lymph nodes found on left and right neck I didn’t know about (left side is where the big one is, those are also more prominent Dr. Says) had so many odd symptoms but more relevant ones... lost 27+ lbs QUICK. (Went from 147 to ~ 119) the night sweats, baddd fatigue, itching (it’s all over- is that usual?) and a random rash that went away. I’m 21 and I know somethings up, but I shouldn’t have ignored things for so long, normal CBC’s (anyone else? Super weird) been ruled out for lupus,RA, Mono, etc. So Dr. Said my bloods shouldn’t be normal but we’re waiting on the result for 2 more tests. As of right now today I have first cardiology appt (chest pain, tachycardic, blue nails) halloween ultrasound, then if everything is clear on bloods going to hematology! It comes a point when 2 dr’s say they don’t know what’s going on that your intuition comes in and knows.
So proud of you and your strength!!!! It’s awesome to know you kicked it in the ass and are doing better!!😊
Your symptoms are all of what u had. My pulmonologist found a tumor in my lung and referred me to my oncologist/ hematologist. I hope you get answers quickly! If you dont like the answer you get, get a second opinion! Thanks for watching! 💜💚💪💪
You’re so right!! Thank you!😊
Hope you are doing well!
@@Sugarglid3r How're you doing ? hope all is well. I have had almost same symptoms like you had started 5 months ago. I did ANA profile an autoimmune test also but came up negative. recently I had TB blood test with positive result, but doctor still not sure if TB is all the cause and thinking of I have only latent tb not active by looking at normal CBC. but doctor still prescribed me anti tb med and watch the progress in 1 month. I wish to hear your story if I could.
Alfa Mirza sure! so i actually have been going through this since i made the post above. they’ve diagnosed me with an autoimmune disease “Undifferentiated Connective Tissue Disease”. But, they don’t believe that is my diagnosis-weird. i know, i was labeled as a medical mystery by pretty much all my doctors. i still have very bad night sweats and haven’t started treatment for UCTD. i got a excisional biopsy in Feb that came back as “Dermatopathic Lympadenopathy” and my doctors were worried because without a defined cause, it’s sometimes seen as a precursor to malignancy. so, I got a bone marrow biopsy in April- came back normal. all my bloodwork had been weird. i had one ANA normal, the next i had it, it wasn’t. my Anti-SSA was very elevated and i was just ill and lost a lot of weight. unfortunately being a medical puzzle and being young, there isn’t a lot of doctors who want to be aggressive. I have had recently another lymph node pop up. My advice to you: Demand a CT of your head/neck affected areas, track your symptoms (for some reason everything for worse for me at night.), and don’t give up on finding a doctor whose right for you. it’s easier said than done, im still trying to find mine! your gut speaks for a reason, if you have any other questions, im open!
p.s. hang in there. Use marijuana for nausea (so much more effective than EVERY prescribed anti nausea med) I have said a prayer for you. ! 💕
Rachael May thank you! I don't remember if I did get that or not. I'm leaning toward no though.
I pray that you get better,I have a few questions did you have tow place or more ?did they every do blood work on you ?I'm only asking bc this is the 3rd time that I have had papillary thyroid cancer and iam courious if it could every turn into this ??thank you and God bless you sweetie
Lori Soliven Hi there! Thank you for the well wishes! I'm not sure what you mean by "tow place" but I can tell you I did have blood work done. I tested positive for B Cell Lymphoma and after a tissue biopsy was diagnosed with Gray Zone Lymphoma. I can't say for sure but I wouldn't think your type of cancer would "turn into" my type. Generally speaking, lymphoma is very common in young adults but can happen at any age. I would get another opinion if you are having doubts about your diagnosis or treatment. Thanks for reaching out and I wish you best of luck! ❤
Lori Soliven if you mean 2 places or more, my lymph nodes were enlarged in my neck and collarbone area. I also had a tumor on my right lung.
Still depressed no cough just depression eating wrong trouble swallowing at times others not and weight gain and constipation
Bless you ❤
❤❤❤❤❤❤❤❤
J. chirsky ❤👊
:)