I think in the moment of treatment there is more a sense of necessity and not any thoughts of being heroic. After my treatment people told me how heroic I was, but I never really felt I was heroic. Perhaps from an outsider’s perspective cancer treatment requires a heroic response, which I suppose is fair to say.
My son was in his last semester of medical school when he found out he had NHL. He had to drop out and go thru the same chemotherapy regimen you went thru. It was a very difficult time, besides Covid going on which my husband got. My son is in remission now and in his first year of residency.
Wow. What an incredible story! Please let me know if he wants to share his story on our platform. That is so wonderful - so glad he's in remission! - Stephanie (stephanie@thepatientstory.com)
Hearing your story makes me feel less anxious. August of this year my husband was diagnosed with primary CNS lymphoma. He was exhibiting some weird behavior before being diagnosed. Hearing about his diagnosis was not an easy thing to hear as I reacted super emotionally while he stayed calm and unaffected. I started googling his diagnosis immediately but the tears just kept pouring down my face. I honestly was a mess at the beginning as compared to currently. My husband just finished his second round of chemo and his symptoms weren’t as bad, except the WBC, RBC and platelets bouncing around. It is extremely difficult for someone going through chemo as there’s a lot of side effects. Remaining positive throughout treatment is key I would say for anyone who has a love one going through chemo. My husband positivity is so inspiring and so are those going through chemo. I will continue to pray for those who are fighting cancer as it is not an easy battle. God bless you all ❤
I just discovered that I have stage 4. None of my family members bothered to wonder the cause of my lumps which are all over my body (crotch, legs, arms, neck, at least 50 of them) but I did a deep research and I check all the boxes. Your video helped me see the horizon and what to expect and how to take up space. Thank you, Arielle.
Hi, I was diagnosed April 12th 2023 with stage 4 non hodgkins lymphoma, got the all clear February 2024. Had intensive chemo and radiotherapy as well as turkey tail mushrooms and cbd oil which I got the go ahead for from my consultant. I'm sure they helped me and the oncology team were amazed with the progress of my recovery.
My Grandad Was Diagnosed with Stage 2 B-Cell Non-Hodgkin Lyphoma 3 Years Ago and the Tumor was in the Left Hand Side of His Neck and it Damaged His Vocal Cords, and His Voice Still Hadn’t Gone Back to Normal After a Year and at That Point They Said it was Very Unlikely That His Voice Would Ever Go Completely Back to Normal, and the Damage was Likely Permanent But Thankfully He’s On Remission Now and He’s Ok and That’s the Most Important Thing
I don't know you but I find your cancer story very inspiring and I have to say I'm so proud of you from one woman to another and I'm so happy you are doing well..your courage is unwavering and it amazes me and I wanted you to know that...Thank you so much for sharing your story with all of us..I know it really helped me to see how you came through this horrible diagnosis with such a positive outlook and you are so graceful and that just says so much about who you are as a person and as a very strong woman...wishing you all the happiness in the world and you and your family are in my thoughts and prayers...sending hugs from Indiana...❤
Positively the most revealing and comprehensive description of this grueling ordeal. You are a remarkable person. Congratulations and here’s to your continued healing and health.
Your video is very encouraging as I was diagnosed with low grade non hodgkin lymphoma in December 2018 I started my chemo in January 2019 I've since had 8 sessions of chemo which finished in August and now I've to get maintenance treatment every 8 weeks for next two years, I've had 2 lots of maintenance treatment so far and things are going ok for now, stay strong my friend sending you lots of love from Scotland
Look for : Alimentation best to heal cancer and other disease - Sleep - Hygiene in habitation - and so on And look for : Psychological Conflicts - Psychological Fears - Psychological Problem : Speak a lot, speak about your problems, don't keep your emotions, speak about, free your body of your blocked-energy blocked-emotion, solve a lot of problems and son on. Look for the link between disease and psychological conflicts-fear-problems-hurts and so on. And look for : Energetic Healing, Tai Chi Qi-Gong and so on And so on Help-Relieve disease-cancer : maxime-sayd.e-monsite.com/pages/informations-ultra-importantes/aider-soulager-cancer-maladie.html For those who whants to recite this continuously : " I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all my problems all my illnesses all my conflicts all my fears all my wounds and others things now on all plans now so be it "
" I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all theproblems the illnesses the conflicts the fears and others things in universe "
" I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all the problems the illnesses the conflicts the fears and others things of firstname+lastname+linkwiththepersonne "
" I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all the problems the illnesses the conflicts the fears and others things of human being "
" Morrnahs Prayer : Divine creator, father, mother, son as one…If I, my family, relatives and ancestors have offended you, your family, relatives and ancestors in thoughts, words, deeds and actions from the beginning of our creation to the present, we ask your forgiveness…Let this cleanse, purify, release, cut all the negative memories, blocks, energies and vibrations, and transmute these unwanted energies into pure light….And it is done. "
" Dear universe, the Super-subconscious and all those who care about me in spirit. Please locate the origin of my feelings and thoughts of [INSERT ISSUE] Take each and every level, layer, area and aspect of my being to this origin. Analyze it and resolve it perfectly with God’s truth. Come through all generations of time and eternity. Healing every incident and its appendages based on the origin. Please do it according to God’s will until I am at the present filled with light and truth. God’s peace and love, forgiveness of myself for my incorrect perceptions Forgiveness of every person, place, circumstance and event that has contributed to these feelings and thoughts. I am sorry, please forgive me, thank you, I love you " *
@@DriveVibes360 still getting my maintenance treatment which finishes in May but overall I'm doing good just trying to avoid getting covid, how's things with yourself
I’m so happy you’re doing well today! Listening to your story, the way you describe things, sounds so similar to my experience with mantel cell NHL. Thank you for sharing your story. You’re not alone! I’ll be praying for you.
Ariel, you have practically explained the way I felt going through chemo & immunotherapy for six months! So many similarities of how I felt it is uncanny. Thank you for your video you made me feel validated with my journey. I have follicular lymphoma. Currently having Rituxan infusions every 8 weeks for two years! It's amazing how cancer changes us for the better. I wish you well❤
I had gone through the same regimen, i was diagnosed in july 2016, doing my chemo till end of october 2018, having the same type of lymphoma, mine is below the diaphragm. i hope you will be getting better each day arielle.
Helena, sending you our very best. We are happy to say Arielle is doing well! Her entire story is on www.thepatientstory.com if it helps to read it, as well.
She is such a beautiful soul. My mother had non-hodgkins. I moved in with her to care for her through it. She was stage 4 and they gave her no chance of survival. She told the doctors that it wasn't her time to go so to figure out a plan. Lol After 6 months she was cancer-free, and she has now been 5 years in remission. My 14 year old daughter just got diagnosed with Ewings Sarcoma. So this is my second time going through cancer without ever having it myself.
So sorry to hear about you dealing with two cancer diagnoses already. First, your mother sounds like an incredible woman - so glad she's on the other side of things. I'm sending you big hugs as you care for your daughter. -Stephanie
I had stage 3 non Hodgkin’s lymphoma. I had a lump on my neck. I thought it was an ingrown hair. I was really sick for 11 days and so I finally went in. They did blood work and the next morning the urgent care called and said that I needed to go into the hospital so I went into the ER and they did blood work and came back and told me that I had cancer. I’m not in remission yet but I am cancer free. I did the r-chop too. I lost my hair after my first treatment. I went through treatment from August to December. My hair is back, but it’s starting to look better. My hair is very curly. I wear headbands
Thank you for sharing this god bless you. My father in law was in remission for 3 years but his lymphoma came back he is now 70 years old he handled his first round well but we are scared.
Currently waiting for blood tests back and just taking some preparative measures in case and this has really helped me. Such a lovely woman who explained her experience so well! She is so right!! Take up space! ask questions! You know your body best.
Isabella, thinking of you! Glad you liked Arielle's story and that it was helpful. More NHL stories here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/
I don't know what you do for a living but you should DEFINITELY be a spokes person for something! You're articulate & funny & the camera loves you. I couldn't stop listening to you. Oh & did I say the camera loves you!
Cold sweats, hot shivers, no get up n go, no energy to spare or stamina Lack of sleep, itchy skin, can be overwhelming, you put on a brave face for the family Stomach bloated and flatulence, without any influence, you fart and you burp uncontrollably Out of breath and tired, in a world of your own, thinking how to keep hold of your sanity It's so surreal, these things that you feel, and friends will show their true colours The ones that you love, will be there for your good, and treat you like they are your mothers Loved ones are worried, is this the end, of the one they love so dearly The fight is on, the battle begins, the future no longer viewed clearly It's just the start, it will take time, test your strength and mental ability At times you may need, to be alone and daydream, finding solace in your own tranquility Your physical strength will pull you through, although it will be diminished Stay mentally strong, for however long, it takes until it's finished The treatment is hard, makes you feel bad, but it's eatng away at the issue Immune system suffers, take care where you go, avoid anyone with a sniffle and tissue And in the end you'll find, your own peace of mind, as your progress is shared periodically The therapy is working, destroying not shirking, eating the problem methodically
I am so sorry to hear about your boyfriend's diagnosis - please know you are not alone, and it is so wonderful that you are there for him. Sending you hugs. -Stephanie
I had non hodgkin's lymphoma also. 22 years ago. 4 kids later totally natural. my husband was diagnosed with hodgkin's 11 months later. Yep never thought I would make it. He did awesome he had abvd i had chop. you speak and explained things so well so how long have u been in remission?
I’m pretty sure you meant Zofran, the anti-nausea medication, instead of Zoloft which is for depression. I’m so happy to hear how well you did. Thank you for sharing!!
Thank you for sharing your story! I was diagnosed with DLBCL, double hit, and am almost done with cycle 3 of DA EPOCH. (Just had my first spinal infusion of methotrexate also). This chemo is so difficult. I kept asking myself why can’t I be stronger. Your story has helped me tremendously, knowing someone else was having exhaustion issues. I hope you are doing well! ❤
Hi Nancy, you will be fine.I went through the 6 cycles last year and am doing great now. Just don't get sick no viral or bacterial infection.. stay safe! When you are done, go out and live life!
Ness, so sorry for this belated reply. Sending you so much love! Please let us know if have other questions (onedavidco@gmail.com). I'm Stephanie, the founder of OneDavid. I had non-Hodgkin's and underwent R-EPOCH, as well. I want to make sure I'm creating a page that is helping people.
@@cruxandcarnage Thank you! We switched to ThePatientStory.com to hopefully be more clear. If you have any other feedback or want to share your own story, please message me (stephanie@thepatientstory.com). Happy holidays.
My oncologist has nurses that informed me and a family member of all the process, the things that you might feel, things that could happen during the process, like constipation...ughhh. The hair falling, weakness and also put everything for me in writing. A Medport was placed, it helps. Also I looked up about the disease. Weakness, bad moods, falling, little or no appetite. The first thing I did was put all of this strange disease in God's hands, and even though it was a terrible experience, God had control. Just a few tips: For constipation: Mineral Oil. When your hair falls off, get satin bed sheets and pillow cases , they are much more comfortable. For loss of appetite, get a nutritionist who specializes in cancer patients. Lots of ensure, shakes made of every green fruit or vegetable you can eat. And of course, Place your soul in God's hands. 😀
Um, for the duration of my illness, I never once thought about god. If you don’t believe in the traditional god, you probably won’t start to when you get your diagnoses. You do you.
I'm a lymphoma non hodkin patient, stage four in my abdomen and chest. Next week is my fifth chemotherapy. The nausea and the vomit is worse as soon I get the chemotherapy. I needed to see this video, it help me a lot. Thank you Arielle for sharing your story. May God bless you always
How can they expect a patient to not have questions or to just have few? It is people you are dealing with doctors, do the right thing and be patient and put them at ease the best way you can
Victoria, we couldn't agree with you more. Unfortunately it seems so many physicians are overwhelmed by having incredible numbers of patients to see. We hope thepatientstory.com can help fill the void by answering questions straight from other patients and caregivers.
You are an inspiration, so articulate and brave and everything laid out so honestly the good the bad and the ugly. Thank you so much it is reassuring to know beforehand what one may be up against and be prepared.
We're happy to say Arielle is still doing so well! Thank you for your message! If you have any feedback on our site or know someone who wants to share their story, please let us know! :)
Beautiful video, it was like watching a good friend speak and I such a perfect order with the approachable questions. Thank you for sharing your experience.
Thank you for your very personal experience with lymphoma. The only thing that perhaps would have been informative would have been your type and grade of lymphoma. So glad you are finished with your chemotherapy. You look wonderful. ❤
Thank you for sharing your story. I will be starting a similar regimen, but before I do I am getting a 2nd opinion. I am hesitant to poison my body with chemo, but if it's the only way, I will do it.
Hi Kiki, we understand how tough these decisions can be. We're thinking of you! If it's at all helpful, there are more stories on www.thepatientstory.com.
Thank you Arielle for sharing your story. I was recently diagnosed with Follicular Indolent 3A Lymphoma. WOW what a lot to take in! But glad I came across your channel, this really helps. I will be doing the Rituxan. so We will see how this goes. Prayers up
Tiffany, first, so sorry that you are having to deal with your own diagnosis but we hope you know you're not alone. www.ThePatientStory.com is trying to grow stories so we can help everyone feel connected and get human answers. Unfortunately we don't yet have a Follicular lymphoma story but if you have any feedback or questions, please message me at stephanie@thepatientstory.com. Also always happy to share new stories, like yours :).
R-EPOCH sounds pretty harsh. My own regiment was Maxi-R-CHOP one day in the out-patient infusion room and three weeks later, it’s high-dose cytarabine in the hospital for two nights. I read that the dose adjusted regimens are not better than the “bolus” regime where they bring you five bags one after the other and then you can go home.
Oh yeah the part about oncologists basically just thinking about chemotherapy is so true. They don't like to answer questions. Which is a big problem. They need to have like some sorta advisor for the patients that knows the history and the drugs and can help u patiently.
So glad you could relate to Arielle. Sometimes the cancer centers/hospitals have social workers or nurses who specialize in this - would be great if that was available everywhere, that's for sure! Thank you for sharing your thoughts. -Stephanie
I really got a lot of useful information from your story. Also you come across as very likeable, very human. I am recently diagnosed & am still doing some testing before starting what I believe will be radiation without chemo. (Who knows at this point?) Thank you for sharing your story & best of luck & good health in the future. ❤
Hi my daughter has it and supose to start chemo next but im thinking cheno coukd be worse, even tho they say it can be cured but i dont trust as shes fine and she will be sick with chemo,, just wondering how you are going are you better
@@alyshaviliamu1795 Hello. I ended up having 12 doses of proton radiation therapy then 3 separate doses of in hospital chemo. My chemo was nauseating, I lost my appetite completely. But I am great now, a year later. I’m just doing follow-up MRIs & doctor visits. Good luck to your daughter, I hope she will be better soon.
Just to help people who may be going through this, I've had it twice, in the early stages a chest x ray and a blood test will not pick up lymphoma, so all clear on those investigations really means nothing. Only the combination of an ultrasound scan and a biopsy will determine it. I'm not trying to be harsh just keeping it real, I know what it's like to have false hope.
When my husbands hair fell out, I also shaved my head, to try and make him feel a bit better. Prior my hair was just below my shoulders. But I did it for him.
Marina, thank you so much for leaving this incredible feedback. We think Arielle's pretty amazing, too! Our mission is to help as many people as possible (www.thepatientstory.com). If you have any feedback for what can help patients and caregivers more and/or have a story of your own to share, please message stephanie@thepatientstory.com. Thank you!
Hi Ashley, Arielle only knew that she was early stage, perhaps stage 1. By the way, her story (and many others) in text is here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/
Your video is scaring the crap out of me. I've thought for months that what I'm going through may be lymphoma but it's been a process getting in with drs. that listen because I have slightly swollen nodes all over my right side of my neck not one or two that are huge. I have an appt with a new primary care Dr Tuesday her PA already ordered me a ton of blood work plus mono test.. Hopefully they'll have results already. I was wondering if you could tell me how swollen your node you had biopsied was? You didn't really say. You're an inspiration💮😊🏵️ thank you so much for sharing this with us!!
@@tameraleonhardt2281 I am literally in the same boat as you. It has been awful and I know it is going to just be even worse with what is to come. I had an ultrasound and it wasn't good, it's been horrible trying to get the biopsy scheduled. I told the doctors for years that I was sick but nobody would listen. Hang in there.
Sorry for such a late reply! We weren't getting notification of comments - can't believe we missed this for so long. Thanks for your kind words and hoping you're doing well today.
Hello Arielle, I have some of the symptoms u mentioned, still on bloodwork and will get results at the end of Jan 2023. I dont have a lump and but the tissue on my left shoulder is swelling. Is it the same with you? Thank you.
Had lymphoma large B cell behind my right knee ..had a golf ball sized tumor..My final sign was my leg began to swell ….It was explained to me lymphoma attacks blood vessels and arteries causing blood clots ...So I had little circulation in my leg ..I had two rounds chemo which shrank the tumor ..and many treatments for blood clots in my leg...dissolving the clots and stints in my thigh and groin ...been 2 yrs and they say so far Im cancer free ..but had to retire because of my problem with blood clots and my leg swelling …. I thank god every day I survived ..it was touch and go for awhile ...But ..Its also hard living expecting the cancer to return …..or maybe losing a leg due to lack of blood circulation ...Its scary everyday
Richard, so glad you are doing well! If you want to share your story, we'd love to get to know you better through this survey: thepatientstory.typeform.com/to/OJfTUC
If you get a diagnosis, do what this woman did: don’t Google your diagnosis. You’ll go down a rabbit hole. Also, let the oncologists adjust the chemo for your body. Just let them do it. Don’t use supplements or essential oils. You need to give chemo the best chance to work without interference. Chemo cured me.
My neck is swoolen up and I had tonsils removed but still have a lump and feel sick I have to go through the diagnosis. I used roundup in my garden and at my neighbors home killing weeds. I hope I can beat this! 😭 I feel sick my face and arm hurt. I am all alone I have no family to help me. I am single and care for myself How can I get through this alone?
Hi I'm currently experiencing all these symptoms and same the doctors can't find anything wrong with me. My lymph nodes don't seem to be getting big or anything but they are painful. I'm getting pain in my abdomen chest and neck. I haven't lost my appetite or feel feverish. But I have been getting night sweats. I got c scan and blood work all negative. I will go tommorow again and actually tell them that I'm worried it could be NHL. Thanks.
What was the option for digestion. And bloating? My wife started her chemo. She is super strong woman. Love her to death. I want to comfort her so badly. So that's why I'm asking how did u cope with bloating and digestive system
We don't feature that connect-to-survivors yet but are planning on something similar. Please join the community at www.thepatientstory.com/registration.
So, how are you doing? What stage of Non Hodgkin’s Lymphoma did you have? What’s your predicted medium survival prognosis. I was just diagnosed with Non Hodgkin’s about 10 days ago and had a bone marrow biopsy today. I am scheduled for a PET scan soon.
Hey Craig, we're sorry to hear about your diagnosis. We're here for you. If you need anything at all, please contact support@thepatientstory.com. If you want more information on NHL, we have a webpage dedicated to it here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma
Mr Chris you said good to eat vegetables how you prepare vegetables so it will taste good to eat.Should you eat veggies in every meal and how much to eat every meal.Can I get a response tips how to go about this procedure eating veggies and fruits.I'm interested for my daughter is on chemo treatment for cancer in ovary.Thanks.
Anyone out there had non hopkyn’s lymphoma and is now completely gone? Anyone living with NHL for 10 years + and general health is still fine? My mum got diagnosed with NHL and its devastating. She is currently on the ‘watch and wait’ treatment. Im just worried, don’t mind me.
We're so sorry to hear about your mom. If you want to read stories from survivors with NHL, you can find more at www.thepatientstory.com/cancers/non-hodgkin-lymphoma. If you need anything, don't hesitate to reach out!
They think my mom has had it for years. She was just diagnosed, so far it has not impacted her organs. She has told me the hematologist said it's very slow progressing, they are also watching and waiting.
Thank you so much for this. My brother was recently diagnosed and I hope your words will help him through his journey. I hope you are continuing to do well and thriving no matter what!
Eliza, we hope this helps him, as well! Our site has more stories like this, though with less video: www.thepatientstory.com. Wishing you and your brother the very best!
that three to four days before feeling almost normal for once and then WHAMO! back to the grind. horrific and seemingly never stops. Finally got finished with Chemo, then my stem cell chemo, then the transplant, finally two months later I feel almost normal. Such a looooong journey. Hope you are doing well
I’m so scared right now. I (14F) have had a lump in my armpit for about a 1 1/2 (April 2021) and it’s grown A LOT like it’s a full chunk of lymph nodes. I went to the pediatrician and she said it was a swollen lymph node. But now it’s grown so much since April like it feels like a cluster of lymph nodes are swollen. And it feels soft and movable. BUT NOW I HAVE SWOLLEN LYMPH NODES IN MY NECK. Some come in clusters, some are left alone, some are not moveable, some are. There’s one under my jaw the size of a pea a little bit bigger. There’s one on the side of my neck and I feel like it’s growing? Like it feels like it’s attaching to other lymph nodes. I have diarrhea and constipation sometimes but mostly normal poops. Also I’m burping a lot? Like it feels like something’s in my throat like a lump. No sore throat just feels like mucus. ALLERGIES? anywho NO night sweats, fatigue. If I do have cancer I hope it’s Hodgkin Lymphoma. Ty if you made it this far lol sorry I have health anxiety and needed to vent. Gonna force my mom to get me a CT scan and biopsy so if I do have cancer we have it at a small stage. 🥹👊
This is very informative. I currently have most symptoms for lymphoma. I finally found someone who will go forward looking for lymphoma instead of thyroid issues, because I have had a swollen lymph node for 4 years in my neck, FOUR YEARS! AFTER THYROID CANCER! I had thyroid cancer in 2011 so when I say any symptoms my NP Thyroid dose gets raised or lowered. It took my collar bone pain and shooting pain in my arm to get them to listen. It shouldn't have to be like this. The last part of the video is BY FAR the most important. BE YOUR OWN ADVOCATE. YOU are the patient, NOT THEM. What you are "supposed to" feel is not always what you will feel. REMEMBER -THE SQUEAKY WHEEL GETS THE GREASE!!!!
Jessy, we are so glad this resonated with you! If it helps, Arielle's story is also up on www.thepatientstory.com under non-Hodgkin lymphoma stories. The best to you!
I’m having stage 4 follicular lymphoma on my bone marrow, I’ve been diagnosed in February 20th ,I’ve lost my dad week before and I went to his funeral exactly on my birthday 😞! I’m undergoing treatment with r-chop chemotherapy and I really believe that I can get through this with the help of treatments and faith in God , and I wish all the other people who are suffering of cancer to stay positive 🫶🏻🙏
Hi darling Adriano. I am so sorry to read about all you’ve been going through on top of the loss of your dad. How are you doing now? Lots of love and healing wishes x
Cancer survivors always impress me. I don't think I could ever be that strong. Cancer survivors are true heroes and an inspiration
Jason, thank you so much for your kind words! Human resilience is an incredible thing, isn't it? :)
@@ThePatientStory your welcome... Yes it is. Truly amazing
Well they dont have a choice. You either fight or you give up
I think in the moment of treatment there is more a sense of necessity and not any thoughts of being heroic. After my treatment people told me how heroic I was, but I never really felt I was heroic. Perhaps from an outsider’s perspective cancer treatment requires a heroic response, which I suppose is fair to say.
thank you for your words. They matter.
My son was in his last semester of medical school when he found out he had NHL. He had to drop out and go thru the same chemotherapy regimen you went thru. It was a very difficult time, besides Covid going on which my husband got. My son is in remission now and in his first year of residency.
Wow. What an incredible story! Please let me know if he wants to share his story on our platform. That is so wonderful - so glad he's in remission! - Stephanie (stephanie@thepatientstory.com)
Whats the reasons nhl, does anyone say to you ? Your son is stresfull one ?
Which stage
@@sheloshelo4884 microbs maybe or carcnogenics, but NOT stress. Stress cannot cause cancer.
She is so articulate & positive. Such a strong woman. I think she meant Zofran for the nausea.
She did in fact mean Zofran. Thank you for your warm words!
Lisa P1 , I am an Emergency Medicine Physician, I am certain that she meant Zofran
BEST INVENTION!!! I ALWAYS HAVE IT ON HAND
Hearing your story makes me feel less anxious. August of this year my husband was diagnosed with primary CNS lymphoma. He was exhibiting some weird behavior before being diagnosed. Hearing about his diagnosis was not an easy thing to hear as I reacted super emotionally while he stayed calm and unaffected. I started googling his diagnosis immediately but the tears just kept pouring down my face. I honestly was a mess at the beginning as compared to currently. My husband just finished his second round of chemo and his symptoms weren’t as bad, except the WBC, RBC and platelets bouncing around. It is extremely difficult for someone going through chemo as there’s a lot of side effects. Remaining positive throughout treatment is key I would say for anyone who has a love one going through chemo. My husband positivity is so inspiring and so are those going through chemo. I will continue to pray for those who are fighting cancer as it is not an easy battle. God bless you all ❤
I just discovered that I have stage 4. None of my family members bothered to wonder the cause of my lumps which are all over my body (crotch, legs, arms, neck, at least 50 of them) but I did a deep research and I check all the boxes. Your video helped me see the horizon and what to expect and how to take up space.
Thank you, Arielle.
How are you now? Are you cancer free?
Hi, I was diagnosed April 12th 2023 with stage 4 non hodgkins lymphoma, got the all clear February 2024. Had intensive chemo and radiotherapy as well as turkey tail mushrooms and cbd oil which I got the go ahead for from my consultant. I'm sure they helped me and the oncology team were amazed with the progress of my recovery.
By my stripes you are healed says JESUS CHRIST.
The prayer of faith will heal the sick.
Praying for your health and healing.
@@premilabenjamin4444 Praying cannot cure it becase stress cannot cause cancer.
My Grandad Was Diagnosed with Stage 2 B-Cell Non-Hodgkin Lyphoma 3 Years Ago and the Tumor was in the Left Hand Side of His Neck and it Damaged His Vocal Cords, and His Voice Still Hadn’t Gone Back to Normal After a Year and at That Point They Said it was Very Unlikely That His Voice Would Ever Go Completely Back to Normal, and the Damage was Likely Permanent But Thankfully He’s On Remission Now and He’s Ok and That’s the Most Important Thing
I don't know you but I find your cancer story very inspiring and I have to say I'm so proud of you from one woman to another and I'm so happy you are doing well..your courage is unwavering and it amazes me and I wanted you to know that...Thank you so much for sharing your story with all of us..I know it really helped me to see how you came through this horrible diagnosis with such a positive outlook and you are so graceful and that just says so much about who you are as a person and as a very strong woman...wishing you all the happiness in the world and you and your family are in my thoughts and prayers...sending hugs from Indiana...❤
Thank you for your wonderful message!
The Patient Story You're very welcome! ❤
Positively the most revealing and comprehensive description of this grueling ordeal. You are a remarkable person. Congratulations and here’s to your continued healing and health.
Your video is very encouraging as I was diagnosed with low grade non hodgkin lymphoma in December 2018 I started my chemo in January 2019 I've since had 8 sessions of chemo which finished in August and now I've to get maintenance treatment every 8 weeks for next two years, I've had 2 lots of maintenance treatment so far and things are going ok for now, stay strong my friend sending you lots of love from Scotland
Look for : Alimentation best to heal cancer and other disease - Sleep - Hygiene in habitation - and so on
And look for : Psychological Conflicts - Psychological Fears - Psychological Problem : Speak a lot, speak about your problems, don't keep your emotions, speak about, free your body of your blocked-energy blocked-emotion, solve a lot of problems and son on. Look for the link between disease and psychological conflicts-fear-problems-hurts and so on.
And look for : Energetic Healing, Tai Chi Qi-Gong and so on
And so on
Help-Relieve disease-cancer :
maxime-sayd.e-monsite.com/pages/informations-ultra-importantes/aider-soulager-cancer-maladie.html
For those who whants to recite this continuously :
" I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all my problems all my illnesses all my conflicts all my fears all my wounds and others things now on all plans now so be it "
" I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all theproblems the illnesses the conflicts the fears and others things in universe "
" I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all the problems the illnesses the conflicts the fears and others things of firstname+lastname+linkwiththepersonne "
" I ask God to heal to clean to cure to purified to released to resolve and to transmute in pure light all the problems the illnesses the conflicts the fears and others things of human being "
" Morrnahs Prayer :
Divine creator, father, mother, son as one…If I, my family, relatives and ancestors have offended you, your family, relatives and ancestors in thoughts, words, deeds and actions from the beginning of our creation to the present, we ask your forgiveness…Let this cleanse, purify, release, cut all the negative memories, blocks, energies and vibrations, and transmute these unwanted energies into pure light….And it is done. "
" Dear universe, the Super-subconscious and all those who care about me in spirit. Please locate the origin of my feelings and thoughts of [INSERT ISSUE] Take each and every level, layer, area and aspect of my being to this origin. Analyze it and resolve it perfectly with God’s truth. Come through all generations of time and eternity. Healing every incident and its appendages based on the origin. Please do it according to God’s will until I am at the present filled with light and truth. God’s peace and love, forgiveness of myself for my incorrect perceptions Forgiveness of every person, place, circumstance and event that has contributed to these feelings and thoughts. I am sorry, please forgive me, thank you, I love you " *
How r u now dear??
@@DriveVibes360 still getting my maintenance treatment which finishes in May but overall I'm doing good just trying to avoid getting covid, how's things with yourself
@@keithmarshall8478 hw r u now
I’m so happy you’re doing well today! Listening to your story, the way you describe things, sounds so similar to my experience with mantel cell NHL. Thank you for sharing your story. You’re not alone! I’ll be praying for you.
Ariel, you have practically explained the way I felt going through chemo & immunotherapy for six months! So many similarities of how I felt it is uncanny. Thank you for your video you made me feel validated with my journey. I have follicular lymphoma. Currently having Rituxan infusions every 8 weeks for two years! It's amazing how cancer changes us for the better. I wish you well❤
I had gone through the same regimen, i was diagnosed in july 2016, doing my chemo till end of october 2018, having the same type of lymphoma, mine is below the diaphragm. i hope you will be getting better each day arielle.
Wow 2 years on Repoch? That’s crazy. How is it going?
Helena, sending you our very best. We are happy to say Arielle is doing well! Her entire story is on www.thepatientstory.com if it helps to read it, as well.
How are you now
She is such a beautiful soul.
My mother had non-hodgkins. I moved in with her to care for her through it. She was stage 4 and they gave her no chance of survival. She told the doctors that it wasn't her time to go so to figure out a plan. Lol After 6 months she was cancer-free, and she has now been 5 years in remission.
My 14 year old daughter just got diagnosed with Ewings Sarcoma. So this is my second time going through cancer without ever having it myself.
So sorry to hear about you dealing with two cancer diagnoses already. First, your mother sounds like an incredible woman - so glad she's on the other side of things. I'm sending you big hugs as you care for your daughter. -Stephanie
@@ThePatientStory thank you for your warmth and kindness. Blessings in your journey!
What plan did u do for ur mom
I had stage 3 non Hodgkin’s lymphoma. I had a lump on my neck. I thought it was an ingrown hair. I was really sick for 11 days and so I finally went in. They did blood work and the next morning the urgent care called and said that I needed to go into the hospital so I went into the ER and they did blood work and came back and told me that I had cancer. I’m not in remission yet but I am cancer free. I did the r-chop too. I lost my hair after my first treatment. I went through treatment from August to December. My hair is back, but it’s starting to look better. My hair is very curly. I wear headbands
Thank you for sharing this god bless you. My father in law was in remission for 3 years but his lymphoma came back he is now 70 years old he handled his first round well but we are scared.
David, we are thinking of you and your father!
Currently waiting for blood tests back and just taking some preparative measures in case and this has really helped me. Such a lovely woman who explained her experience so well! She is so right!! Take up space! ask questions! You know your body best.
Isabella, thinking of you! Glad you liked Arielle's story and that it was helpful. More NHL stories here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/
I don't know what you do for a living but you should DEFINITELY be a spokes person for something! You're articulate & funny & the camera loves you. I couldn't stop listening to you. Oh & did I say the camera loves you!
Arielle is the best! Thanks so much for such kind words, Sheila!
As soon as I feel I need to hear another survivor story, one is posted. Thank you for sharing your story! Much love to you and yours 💕
Cold sweats, hot shivers, no get up n go, no energy to spare or stamina
Lack of sleep, itchy skin, can be overwhelming, you put on a brave face for the family
Stomach bloated and flatulence, without any influence, you fart and you burp uncontrollably
Out of breath and tired, in a world of your own, thinking how to keep hold of your sanity
It's so surreal, these things that you feel, and friends will show their true colours
The ones that you love, will be there for your good, and treat you like they are your mothers
Loved ones are worried, is this the end, of the one they love so dearly
The fight is on, the battle begins, the future no longer viewed clearly
It's just the start, it will take time, test your strength and mental ability
At times you may need, to be alone and daydream, finding solace in your own tranquility
Your physical strength will pull you through, although it will be diminished
Stay mentally strong, for however long, it takes until it's finished
The treatment is hard, makes you feel bad, but it's eatng away at the issue
Immune system suffers, take care where you go, avoid anyone with a sniffle and tissue
And in the end you'll find, your own peace of mind, as your progress is shared periodically
The therapy is working, destroying not shirking, eating the problem methodically
I am trying to prepare to take care of my boyfriend just diagnosed with cancer I want to be positive for him
I am so sorry to hear about your boyfriend's diagnosis - please know you are not alone, and it is so wonderful that you are there for him. Sending you hugs. -Stephanie
Thank you so much Arielle for your honesty and information described so positively Bless you! Xxxx
thank you for your story very similiar to mine im about to make a part 2 to my video with more of my side effects. hugs to another cancer survivor
What a lovely brave lady, thanks for sharing xo
Thank you for your support!
I had non hodgkin's lymphoma also. 22 years ago. 4 kids later totally natural. my husband was diagnosed with hodgkin's 11 months later. Yep never thought I would make it. He did awesome he had abvd i had chop. you speak and explained things so well so how long have u been in remission?
Hi Gail, we're happy to say Arielle has been remission since the end of 2016! So glad you both made it through treatment and had four kids!
Thanks for sharing your story! FNA’s are NOT fun! And waiting is the worst! Much love to you !
Britt, thanks for your kind words. Much love right back!
Omg. You said a phrase that came to me in a reading while seeking for answers. Take up space. Thank you for this.
Amanda, so glad Arielle's story resonated with you!
I’m pretty sure you meant Zofran, the anti-nausea medication, instead of Zoloft which is for depression. I’m so happy to hear how well you did. Thank you for sharing!!
Hi Jennifer, yes, that's right - Arielle meant Zofran. Thank you so much for watching!
Thank you for sharing your story! I was diagnosed with DLBCL, double hit, and am almost done with cycle 3 of DA EPOCH. (Just had my first spinal infusion of methotrexate also). This chemo is so difficult. I kept asking myself why can’t I be stronger. Your story has helped me tremendously, knowing someone else was having exhaustion issues. I hope you are doing well! ❤
Hi Nancy, you will be fine.I went through the 6 cycles last year and am doing great now. Just don't get sick no viral or bacterial infection.. stay safe! When you are done, go out and live life!
Im waiting for biopsy results following recurrence of lump on right side of neck after CHOP chemo Im very anxious to see whats next CartT scares me
I’m going thru the same regimen and lymphoma! I’m going on my 5 cycle soon!
Ness, so sorry for this belated reply. Sending you so much love! Please let us know if have other questions (onedavidco@gmail.com). I'm Stephanie, the founder of OneDavid. I had non-Hodgkin's and underwent R-EPOCH, as well. I want to make sure I'm creating a page that is helping people.
OneDavid it is helping!
@@cruxandcarnage Thank you! We switched to ThePatientStory.com to hopefully be more clear. If you have any other feedback or want to share your own story, please message me (stephanie@thepatientstory.com). Happy holidays.
Hi :) Is the cancer gone?
you are one strong lady
Thank you for your support!
My oncologist has nurses that informed me and a family member of all the process, the things that you might feel, things that could happen during the process, like constipation...ughhh. The hair falling, weakness and also put everything for me in writing. A Medport was placed, it helps. Also I looked up about the disease. Weakness, bad moods, falling, little or no appetite. The first thing I did was put all of this strange disease in God's hands, and even though it was a terrible experience, God had control. Just a few tips: For constipation: Mineral Oil. When your hair falls off, get satin bed sheets and pillow cases , they are much more comfortable. For loss of appetite, get a nutritionist who specializes in cancer patients. Lots of ensure, shakes made of every green fruit or vegetable you can eat. And of course, Place your soul in God's hands. 😀
Liz, these are wonderful tips. Thank you for sharing.
💕💕💕💕💕
Senna is excellent for constipation in cancer patients too.
Um, for the duration of my illness, I never once thought about god.
If you don’t believe in the traditional god, you probably won’t start to when you get your diagnoses.
You do you.
Thankyou for sharing your story. I found your honesty and straight to the point way of explaining very good. X
Thank you so much for your feedback! If you'd like more stories, feel free to visit our website: www.thepatientstory.com.
I'm a lymphoma non hodkin patient, stage four in my abdomen and chest. Next week is my fifth chemotherapy. The nausea and the vomit is worse as soon I get the chemotherapy. I needed to see this video, it help me a lot. Thank you Arielle for sharing your story. May God bless you always
Hi Nannette, so glad you found this helpful. We are thinking of you as you go through your treatment ❤️
How are you now !!:)
@@ThePatientStory at this moment im good. The results of the Petscan on the month of January reflects no signs of cancer but im still in observation.
@@poppygirl5 im good thanks for asking. The Petscan show no evidence of cancer. But im still in observation
@@nannettedejesus154 how r u now any ralaps ?
How can they expect a patient to not have questions or to just have few? It is people you are dealing with doctors, do the right thing and be patient and put them at ease the best way you can
Victoria, we couldn't agree with you more. Unfortunately it seems so many physicians are overwhelmed by having incredible numbers of patients to see. We hope thepatientstory.com can help fill the void by answering questions straight from other patients and caregivers.
You are an inspiration, so articulate and brave and everything laid out so honestly the good the bad and the ugly. Thank you so much it is reassuring to know beforehand what one may be up against and be prepared.
Really good video. Thank you stay well💚
Omgosh! You are my hero!
We're happy to say Arielle is still doing so well! Thank you for your message! If you have any feedback on our site or know someone who wants to share their story, please let us know! :)
EXCELLENT, ARIELLE. Thank you so much for your REAL presentation. It will help me a lot.
Wow thank you for sharing your story my son has been diagnose with T-Cell Lymphoma and your story did give me hope that he will survived
We are so happy to know Arielle's story is giving you hope! Let us know if there's anything we can do for you.
How is r son
Beautiful video, it was like watching a good friend speak and I such a perfect order with the approachable questions. Thank you for sharing your experience.
Yvonne, so glad Arielle's words could be of comfort. Thank you for your kind words!
This is so similar to my story. So far I’m only one 5 day R-EPOCH treatment in and hopefully my mouth sores don’t get that bad.
How r u now
Just did my 1st cycle for R-EPOCH .. let’s fight it blud
@@vogirovottega non hodgkin b cell ?
@@sheloshelo4884 NHPLBCL… complete my first cycle .. pretty ok .. 🙌🏼
@@vogirovottega i will go 4th r chop chemo 2 days later. I m nhl b cell to. Have mediasten mass 10 cm do u have any mass
i loved Zofran, such a savior just when I needed it.
Thank you for your very personal experience with lymphoma. The only thing that perhaps would have been informative would have been your type and grade of lymphoma. So glad you are finished with your chemotherapy. You look wonderful. ❤
God Bless you
Great interview, I appreciate her so much. Thanks
Thanks for sharing your story. This is very insightful. Best of luck to you.
Thank you for such kind words. Best wishes right back to you!
an AMAZING video! Thank you!
Thanks for watching! Glad to help in any way you need!
Thank you for sharing your story. I will be starting a similar regimen, but before I do I am getting a 2nd opinion. I am hesitant to poison my body with chemo, but if it's the only way, I will do it.
Hi Kiki, we understand how tough these decisions can be. We're thinking of you! If it's at all helpful, there are more stories on www.thepatientstory.com.
It’s not the only way though. Please watch Chris Beat Cancer on RUclips. There are clinics which cure cancer through food and detoxing the body
Thank you SO much for sharing! Love and Light to y o u Sister!!
Thank you Arielle for sharing your story. I was recently diagnosed with Follicular Indolent 3A Lymphoma. WOW what a lot to take in! But glad I came across your channel, this really helps. I will be doing the Rituxan. so We will see how this goes. Prayers up
Tiffany, first, so sorry that you are having to deal with your own diagnosis but we hope you know you're not alone. www.ThePatientStory.com is trying to grow stories so we can help everyone feel connected and get human answers. Unfortunately we don't yet have a Follicular lymphoma story but if you have any feedback or questions, please message me at stephanie@thepatientstory.com. Also always happy to share new stories, like yours :).
I just saw this. How are you doing now? Thats exactly what i have . They want me start with just antivodies.
R-EPOCH sounds pretty harsh. My own regiment was Maxi-R-CHOP one day in the out-patient infusion room and three weeks later, it’s high-dose cytarabine in the hospital for two nights. I read that the dose adjusted regimens are not better than the “bolus” regime where they bring you five bags one after the other and then you can go home.
Oh yeah the part about oncologists basically just thinking about chemotherapy is so true. They don't like to answer questions. Which is a big problem. They need to have like some sorta advisor for the patients that knows the history and the drugs and can help u patiently.
So glad you could relate to Arielle. Sometimes the cancer centers/hospitals have social workers or nurses who specialize in this - would be great if that was available everywhere, that's for sure! Thank you for sharing your thoughts. -Stephanie
Yes not listening is a big problem for me with them!!!
I really got a lot of useful information from your story. Also you come across as very likeable, very human. I am recently diagnosed & am still doing some testing before starting what I believe will be radiation without chemo. (Who knows at this point?) Thank you for sharing your story & best of luck & good health in the future. ❤
Hi my daughter has it and supose to start chemo next but im thinking cheno coukd be worse, even tho they say it can be cured but i dont trust as shes fine and she will be sick with chemo,, just wondering how you are going are you better
@@alyshaviliamu1795 Hello. I ended up having 12 doses of proton radiation therapy then 3 separate doses of in hospital chemo. My chemo was nauseating, I lost my appetite completely. But I am great now, a year later. I’m just doing follow-up MRIs & doctor visits. Good luck to your daughter, I hope she will be better soon.
Bless You! I just had CT scan and am Waiting
Brenda, wishing you the very best! If you want to read Arielle's and other people's stories in-depth, check out www.thepatientstory.com.
@@ThePatientStory Thank You!n So Much
How did your CT scan go, please help I have hard lump in my neck
@@alittleofthislittleathat351 Have a sonagram or ct
@@alittleofthislittleathat351 swollen node
I've been do sick and tired of trying to figure out. I'm so weak not bring able to live. I need good dr.
Just to help people who may be going through this, I've had it twice, in the early stages a chest x ray and a blood test will not pick up lymphoma, so all clear on those investigations really means nothing. Only the combination of an ultrasound scan and a biopsy will determine it. I'm not trying to be harsh just keeping it real, I know what it's like to have false hope.
When my husbands hair fell out, I also shaved my head, to try and make him feel a bit better. Prior my hair was just below my shoulders. But I did it for him.
Could you see or feel a swollen lymph node in the shoulder/neck area where you had pain or just had pain only? Did it feel like muscle pain?
How is she doing? Any update? Relapse?
What a Great video. You're So Sweet. I WISH You Perfect Health. This video is Very Helpful & well done. Thank You! :)
Marina, thank you so much for leaving this incredible feedback. We think Arielle's pretty amazing, too! Our mission is to help as many people as possible (www.thepatientstory.com). If you have any feedback for what can help patients and caregivers more and/or have a story of your own to share, please message stephanie@thepatientstory.com. Thank you!
Oh! You are So Welcome. Much Happiness & Success to You... :)@@ThePatientStory
Thank you for your inspiring story. I'm not if you answered this, what stage was your lymphoma?
Hi Ashley, Arielle only knew that she was early stage, perhaps stage 1. By the way, her story (and many others) in text is here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/
I hope you can link us to clinical trials in the USA accepting foreigner like me. 😊
Your video is scaring the crap out of me. I've thought for months that what I'm going through may be lymphoma but it's been a process getting in with drs. that listen because I have slightly swollen nodes all over my right side of my neck not one or two that are huge. I have an appt with a new primary care Dr Tuesday her PA already ordered me a ton of blood work plus mono test.. Hopefully they'll have results already. I was wondering if you could tell me how swollen your node you had biopsied was? You didn't really say.
You're an inspiration💮😊🏵️ thank you so much for sharing this with us!!
I see now this is not her channel. But thanks anyways for the video lol!!
@@tameraleonhardt2281 I am literally in the same boat as you. It has been awful and I know it is going to just be even worse with what is to come. I had an ultrasound and it wasn't good, it's been horrible trying to get the biopsy scheduled. I told the doctors for years that I was sick but nobody would listen. Hang in there.
Sorry for such a late reply! We weren't getting notification of comments - can't believe we missed this for so long. Thanks for your kind words and hoping you're doing well today.
Hello Arielle, I have some of the symptoms u mentioned, still on bloodwork and will get results at the end of Jan 2023. I dont have a lump and but the tissue on my left shoulder is swelling. Is it the same with you? Thank you.
Had lymphoma large B cell behind my right knee ..had a golf ball sized tumor..My final sign was my leg began to swell ….It was explained to me lymphoma attacks blood vessels and arteries causing blood clots ...So I had little circulation in my leg ..I had two rounds chemo which shrank the tumor ..and many treatments for blood clots in my leg...dissolving the clots and stints in my thigh and groin ...been 2 yrs and they say so far Im cancer free ..but had to retire because of my problem with blood clots and my leg swelling …. I thank god every day I survived ..it was touch and go for awhile ...But ..Its also hard living expecting the cancer to return …..or maybe losing a leg due to lack of blood circulation ...Its scary everyday
Richard, so glad you are doing well! If you want to share your story, we'd love to get to know you better through this survey: thepatientstory.typeform.com/to/OJfTUC
How r u now
If you get a diagnosis, do what this woman did: don’t Google your diagnosis. You’ll go down a rabbit hole.
Also, let the oncologists adjust the chemo for your body. Just let them do it. Don’t use supplements or essential oils. You need to give chemo the best chance to work without interference.
Chemo cured me.
Not Zoloft. zofran. Thank you for this video.
My 16 year old cancer was just diagnosed with this :(
Can somebody enlighten me on Indolent MZL stage 4 with liver metastasis, LDH 209. How long do I have to live ? ON BR Chemo (4 cycles done).
My story is so similar up to the point she was diagnosed. I had something pretty big too...
How r u now. R chop ?
It can be cured for ever ?
How long your journey before you actually do a chemo?
Did your lymph nodes not move and were they hard?
Zoloft for nausea? Or zophran
My neck is swoolen up and I had tonsils removed but still have a lump and feel sick I have to go through the diagnosis. I used roundup in my garden and at my neighbors home killing weeds. I hope I can beat this! 😭 I feel sick my face and arm hurt. I am all alone I have no family to help me. I am single and care for myself How can I get through this alone?
How are you now
Zoloft or Zofran for nausea?
Hi I'm currently experiencing all these symptoms and same the doctors can't find anything wrong with me. My lymph nodes don't seem to be getting big or anything but they are painful. I'm getting pain in my abdomen chest and neck. I haven't lost my appetite or feel feverish. But I have been getting night sweats. I got c scan and blood work all negative. I will go tommorow again and actually tell them that I'm worried it could be NHL. Thanks.
Do you mean Zofran? Not Zoloft?
have you ever been on Ofatumumab? was it just the Cytoxan that was killer or was the Rituxan that way too? thanks!
Did ypu try cannabis for nausea?
What was the option for digestion. And bloating? My wife started her chemo. She is super strong woman. Love her to death. I want to comfort her so badly. So that's why I'm asking how did u cope with bloating and digestive system
❣
Zofran. Probably not Zoloft.
i have to go get ck this week im very scared but it must be done i hope all is well but i know its not good my body tells me its not.
We are rooting for you, Larry! Keep us posted!
My mom got what they called the red devil. That was so awful for her
Kesha, I experienced the red devil chemo, as well. Definitely not an easy one. I hope she is through treatment and recovering. ❤️ Stephanie
@@ThePatientStory she unfortunately passed away 15 years ago but she did put up a good fight
How is she now ? What type lymphoma dose she has ?
I think you meant zofran
Hi Cheree, yes, Arielle meant Zofran. Thank you!
Did you mean Zofran not Zoloft for the nausea?
Yes! We had made a note in the transcript but realize it's not that clear - she meant Zofran. Thanks so much for your comment.
What is your stage
Hi Hala, Arielle was not presented with a stage, likely 1 or 2.
Chào bạn,
If Zoloft was $100 a pill do you think you’d be able to to survive with less
Thanks Arielle for sharing your story. Can I reach out to you via email for additional tips .
We don't feature that connect-to-survivors yet but are planning on something similar. Please join the community at www.thepatientstory.com/registration.
You mean zofran, not zoloft 😊
I was windering about that as well. I didn’t think Zoloft was for Nausea?
So, how are you doing? What stage of Non Hodgkin’s Lymphoma did you have? What’s your predicted medium survival prognosis. I was just diagnosed with Non Hodgkin’s about 10 days ago and had a bone marrow biopsy today. I am scheduled for a PET scan soon.
Hey Craig, we're sorry to hear about your diagnosis. We're here for you. If you need anything at all, please contact support@thepatientstory.com.
If you want more information on NHL, we have a webpage dedicated to it here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma
Hi bud how are you doing now, please help I have a hard lump on my right side of my neck.
Mr Chris you said good to eat vegetables how you prepare vegetables so it will taste good to eat.Should you eat veggies in every meal and how much to eat every meal.Can I get a response tips how to go about this procedure eating veggies and fruits.I'm interested for my daughter is on chemo treatment for cancer in ovary.Thanks.
@@alittleofthislittleathat351 how are you now
@@neelamsahani3625 how are you I mean u must have some. Symptoms or u went to doctor??
Anyone out there had non hopkyn’s lymphoma and is now completely gone? Anyone living with NHL for 10 years + and general health is still fine? My mum got diagnosed with NHL and its devastating. She is currently on the ‘watch and wait’ treatment. Im just worried, don’t mind me.
We're so sorry to hear about your mom. If you want to read stories from survivors with NHL, you can find more at www.thepatientstory.com/cancers/non-hodgkin-lymphoma. If you need anything, don't hesitate to reach out!
How is your mom doing lately, please help I have a hard lump on the right side of my neck.
Brian Lives on Hi Brian, i suggest you to get it checked with the doctors and drink a lot of matcha tea for a stronger immune system.
They think my mom has had it for years. She was just diagnosed, so far it has not impacted her organs. She has told me the hematologist said it's very slow progressing, they are also watching and waiting.
U sound soooooooo much like my mother when she went through cancer
Thank you so much for this. My brother was recently diagnosed and I hope your words will help him through his journey. I hope you are continuing to do well and thriving no matter what!
Eliza, we hope this helps him, as well! Our site has more stories like this, though with less video: www.thepatientstory.com. Wishing you and your brother the very best!
that three to four days before feeling almost normal for once and then WHAMO! back to the grind. horrific and seemingly never stops. Finally got finished with Chemo, then my stem cell chemo, then the transplant, finally two months later I feel almost normal. Such a looooong journey. Hope you are doing well
I’m so scared right now. I (14F) have had a lump in my armpit for about a 1 1/2 (April 2021) and it’s grown A LOT like it’s a full chunk of lymph nodes. I went to the pediatrician and she said it was a swollen lymph node. But now it’s grown so much since April like it feels like a cluster of lymph nodes are swollen. And it feels soft and movable. BUT NOW I HAVE SWOLLEN LYMPH NODES IN MY NECK. Some come in clusters, some are left alone, some are not moveable, some are. There’s one under my jaw the size of a pea a little bit bigger. There’s one on the side of my neck and I feel like it’s growing? Like it feels like it’s attaching to other lymph nodes. I have diarrhea and constipation sometimes but mostly normal poops. Also I’m burping a lot? Like it feels like something’s in my throat like a lump. No sore throat just feels like mucus. ALLERGIES? anywho NO night sweats, fatigue. If I do have cancer I hope it’s Hodgkin Lymphoma. Ty if you made it this far lol sorry I have health anxiety and needed to vent. Gonna force my mom to get me a CT scan and biopsy so if I do have cancer we have it at a small stage. 🥹👊
Best wishes
This is very informative. I currently have most symptoms for lymphoma. I finally found someone who will go forward looking for lymphoma instead of thyroid issues, because I have had a swollen lymph node for 4 years in my neck, FOUR YEARS! AFTER THYROID CANCER! I had thyroid cancer in 2011 so when I say any symptoms my NP Thyroid dose gets raised or lowered. It took my collar bone pain and shooting pain in my arm to get them to listen. It shouldn't have to be like this. The last part of the video is BY FAR the most important. BE YOUR OWN ADVOCATE. YOU are the patient, NOT THEM. What you are "supposed to" feel is not always what you will feel.
REMEMBER -THE SQUEAKY WHEEL GETS THE GREASE!!!!
Thank you for sharing, Brandi! Hoping you were able to get the answers you deserve.
How are you now
“Take up space!” I love this and I will use it to guide me through this, thank you
Jessy, we are so glad this resonated with you! If it helps, Arielle's story is also up on www.thepatientstory.com under non-Hodgkin lymphoma stories. The best to you!
I’m having stage 4 follicular lymphoma on my bone marrow, I’ve been diagnosed in February 20th ,I’ve lost my dad week before and I went to his funeral exactly on my birthday 😞! I’m undergoing treatment with r-chop chemotherapy and I really believe that I can get through this with the help of treatments and faith in God , and I wish all the other people who are suffering of cancer to stay positive 🫶🏻🙏
Hi darling Adriano. I am so sorry to read about all you’ve been going through on top of the loss of your dad. How are you doing now? Lots of love and healing wishes x
How r you know r u recovery from cancer
@@radhahb781 today I received the second pet scan results and it’s full remission 🙏