Mantle Cell Lymphoma Survivor Shares All | Sheryl's Story | The Patient Story
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- Опубликовано: 1 ноя 2020
- Sheryl Brian was just days from turning 52 years old when she was diagnosed with mantle cell lymphoma. Now a few years into remission, she dives into the details of her entire treatment journey.
Time codes to come, along with her full story. For other lymphoma and cancer in-depth stories, head to: www.ThePatientStory.com
I have been watching many testimonies from people living with mantle cell... so far survivors.
One observation. I found that the word cancer eliminated so luch noise and contention from life. I have paid more attention to my grandchildren, listened even when they explain Hotwheels cars and what they are making from building blocks. Loving and listening to my wife more. And may I say, a total absence of fear. I cant describe it and I don't want to call it a blessing.
Acceptance and surrendering to God and my doctors. For the first time I've let go. Hard to describe. Content, not afraid, at peace.
Such powerful words! They totally resonate with me. Thank you so much for sharing how you've been able to find so many silver linings. -Stephanie
Unusual to find another woman with mantle cell lymphoma! I loved listening to the similarities in our stories.
Sounds like R-hyper CVAD. Glad to hear Sheryl has made 5 years of remission!
Thanks for your kind words, Eric!
I have been through mantle cell lymphoma, I was stage four when we got started on it, your video inspired me to keep going, thank you x
George, so glad to hear it. Thank you for your kind words for Sheryl!
MCL is just no fun. You need an advocate for all stages of this: The diagnosis, treatment and followup. My wife was diagnosed in May of 2023. Her GP missed her swollen lymph nodes when he saw her. He's now her ex GP. We also fired her first oncologist who wouldn't return my calls. Finally we were able to get quality help and now are 1/2 way through her 6 Rituxan/Bendamustine infusions. Dealing with the low white cell counts and neutropenia. Our experience mirrored Sheryl's story. One other thing, my wife is a type 1 diabetic so I had to be there to look out for her blood sugar levels.
I was diagnosed officially today with mantle cell. Age 61. The same as you I new at a certian time only in 2006 that something in my physiology had changed. I am surrounded by family and being treated at Moffitt Cancer Center-USF in Tampa nearwhere I thankfully live.
Any suggestions on diet would be appreciated. Thank you for your testimony. I will listen many times. Thank you to the Host.
Bob, I am so sorry to hear about your diagnosis and am glad you have family to support you. We have more MCL stories here, if helpful: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/mantle-cell-lymphoma/
She’s fifty-seven???!!! I assumed early forties. And it’s great she’s doing well.
She does look great! Thank you for your kind words :). -Stephanie
Sheryl Warrior award. Not an easy BATTLE♡
Love and light
Take care
Mary
Mind-blowingly good for anyone in any part of the process of serious illness. 'Stay in your lane'
I love this interview❤ She was great and I learned a lot! Ty🙏🌷
Tina, what a wonderful message - thank you so much for sharing such positive feedback, so glad it was helpful. Sheryl is such an incredible person! Sending you my very best. -Stephanie
Thank you for sharing your story. My mother was diagnosed with mantle cell lymphoma today. We are waiting on the bone marrow biopsy to know what stage before treatment begins. I’m happy to see you are doing so well and I wish you continued health!
We're sorry to hear about your mother's diagnosis but glad you were able to watch Sheryl's story! If it helps, all our MCL stories are here: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/mantle-cell-lymphoma/
I take it from her words that she was Stage IV. I may have missed something. I must say that the diagnosis makes you devide what manner of person you will be. Having been in several bad situations I don't feel panicked. I feel like legacy matters. I have five grandchildren five and under. I want to see their children at least. My wife is beside me, faith strong. I laugh and work.
Main question is was she at stage IV?
Happy for her remission.
I am stage iv and having the port installed at Moffitt on March 29th.
Hi Bob, yes, Sheryl was stage 4, as well. It seems many cases of MCL are diagnosed at stage 4 and we've been able to talk to several who are enjoying remission! Here's a link to all their stories: www.thepatientstory.com/cancers/non-hodgkin-lymphoma/mantle-cell-lymphoma/
Thank you for sharing Sheryl’s story! It’s such an inspiration. You do an incredible service by sharing patient’s stories!
Glad to have seen this. Diagnosed Mar 2020 with MCL with leukemia. I am older than this lady but I feel hope now that my remission will last at least for a few years. Also had the tumor lysis after first treatment, that coupled with the leukemia blast made me more fearful of the future. Thanks for the hope!
Jo Anne, so glad Sheryl's story was helpful! Her full story is here → www.thepatientstory.com/cancers/non-hodgkin-lymphoma/mantle-cell-lymphoma-mcl/sheryl-b/
Thank you for sharing. I have new questions for my doctor now.. smiles. Almost want to have them watch this video too.
I love this lady I could listen to her talk all day. 💕
Carol, so glad you found comfort in Sheryl's story. -Stephanie
I hope you’re doing well.
😊😊❤❤
Hello Sheryl , I was diagnosed with stage 4B MCL in January 2009, at that time my prognosis was very grim , I have seen the advancement in treatment options , the message I would like to give all patients , don’t look to far into the future, particularly survival statistics, focus on staying well , medicine is evolving all the time in the treatment of Lymphoma. Thanks for your video, Stephen.
How old are you my friend , I'm asking since one of my family members got diagnosed with this .
@@greedysourceofgod4819 I was 49 when diagnosed.
Nice 👍 story
Hi, i have the same cancer and staging as this young lady and diagnosed in the eye initially too. Can we please arrange privately or in a manner suitable to you, a skype meeting or even an email address for her would be so wonderful. I will not pester. Just to exchange notes.
Thankyou for everything youre doing :)
Leukemia is serious! Acute is a poor prognosis but chronic is so-so.
PS I had a hot pepper hobby years back. I'm back to two habaneros a day for the capsacin.
Blessing from Heaven and Riverview Florida!
How are you doing with your treatments?
did they remove her spleen?
She got it before brukinsa was introduced into treatment