I feel for you so much having been through this with my parents. When you are not feeling great yourself it makes it even harder. The one thing I would say is get more care in place. Even with myself who works full time and not living in the area and helped as much as I could and my sister who went in everyday we still needed more help. When Dad went wandering that was the turning point and we were lucky that we had a family friend who was a retired carer who lived across the road and came in first thing to help with the morning routine and then again later in the day. Dad also had a key safe by the front door so people could get in easily. We used to put out Dad's clothes the night before so he got dressed himself ok for a while. It is so difficult as it really does change every day. If you can get more help in place then you will not worry so much when you're not there. Sending lots of love .
Sorry to hear you’ve experienced similar with your loved ones and yes, it does seem to change daily at the moment. One day at a time but I agree that the extra help is going to be needed very soon 🙏❤️
The invisible chef's dish looked so delicious, and the flat bread looked fantastic. Very good plan in this new phase to work with Nancy one day at a time. My mom had dementia, and I ended up just making it through each day. Good idea to unplug the washing machine! So sorry to learn Nancy had that fall and the washing machine door fell off... I was in similar pain as you when I was caring for my mom, and it was so difficult and painful. But it is just so great Nancy has you and your family!
Hi polly,I feel for you and Nancy so much,it was awful when my mum had her dementia,she went into a home and the guilt is awful I still feel it,but as a family we couldn't look after her 24/7,you really need time foryourself,it won't get any easier,especially as your not feeling right,take care X
Morning Polly. What a worrying time for you along with relentless pain. So hard to cope when your sleep pattern is broken as well. Hopefully a week away will give your body a chance to rest. Such an emotional time for you - Nancy is so well looked after by you. xx
Good evening Polly , I'm so sad to hear about Nancy's fall and how she's been feeling , very tuff and very emotional for you & all the family , a holiday will do you good & Nancy will be well cared for .....thank you for the lovely vlog the Persian food looked delicious wow Paul is very talented . Sending your beautiful mum much Love & a big hug all the way from Canada .....You take good care of yourself too Hugs always xoxo
Oh polly I feel your pain I did a bit of pottering in garden this morning needless to say I’m in bed at7 with a brew 🙄my parents are gone but never suffered what your mum has thank the lord I feel for you,but you must go on holiday and rest your children will do shift work to look after her I’m sure do take care much love god bless mum 🙏🏻❤️🫂
Oh Polly I know exactly what you're going through. It's such an emotional time but you will get through this ❤. You winge and moan as much as you dam well like on here.... Theres a lot of us here that have walked the path your on and we know how your feeling. If we could all give you a big hug we would in a heartbeat. Sending love to you and mum 🩵
Hi Polly,I shed tears for you while watching this, I know first hand what you are going through. Nancy aka Mum is going down the same path as my own mum did, the clothes situation especially, my mum had a new fridge freezer installed but because it was a self defrost she thought it wasn't working so popped her home delivery of groceries in the bath to keep them cool, sadly everything had gone off when I arrived a few days later, it's just heartbreaking. Like you I wasn't always feeling great myself which makes it even harder to cope with, especially knowing the situation will get worse instead of better. I suggest you get all of the help you deserve in place now, so you are able to spend as much time with her and make a few more special memories. without sounding harsh start looking at nursing homes as she will struggle to be at home eventually and you are not able to offer 24 hour care as much as your head and heart tells you that you will cope whatever. Sending you a huge hug and lots of love... take care, you are a wonderful daughter xx
Bless you - what a beautiful and kind message. I’m so sorry you’ve been through this also - it is heartbreaking and your words of advice are appreciated very much. Sadly yes a care home may eventually be required - as you say, it won’t get any easier. Sending you love and hugs and huge appreciation x
Hi polly it’s so sad o c u so upset we have been through all this and she will m Not remember about her necklace as my mum did the same thing she never put it on but she remembered other things so u can not work it out u r a brilliant daughter and u will get through this as for the fibromyalgia I have had that for years it was a sad affair who I got it and stress is so bad for it so u r getting more pain as the weeks go on so I think it could be it’s not a nice thing to have but u need to know so sorry u r going through all this u really need this holiday have a good week take care hi to wonderful Nancy from Jackie 💕🤗🌈
Hi Polly, It's nearly 3am , I can't sleep 😢 so I'm watching you x I lost my husband on 2nd September at 1.20am very unexpected?? We picked up our new puppy 🐶 3 wks ago Bonnie (Shihtzu) she was 11 wks last Sunday....he ADORED her. Little Bonnie is keeping my mind busy, she's so adorable 🐶 Ohh Polly... my heart is broken 💔 aching, I'm lost?? 😟 Unexpected heart attacks. .out the blue??? I know your a good listener😊 Ohh my goodness I'm 57 & a Widow? ? Thanks for always being there for us xx Hugs Alison 🤗
Oh my god Alison, I’m so sorry and so sad to read this message this morning. My sincere condolences to you and your family at this difficult time. What a terrible tragedy and shock for you. Sending you huge virtual hugs and love. Feel free to email me at any time. You’ve been thrown into a new world you were not expecting and your grief must be felt. One hour at a time, don’t put any pressure on yourself to do anything! Take all the help and support you can and yes I’m here anytime - albeit feeling awful for you and awful there is nothing I can do to make this any easier for you. God bless you and thank goodness for Bonnie. Pets can be very therapeutic especially at times like this. Thinking of you deeply 🙏💙🙏
Hi Polly the Persian food looked delicious Paul certainly pull it out of the bag. I am so sorry to hear that Nancy had a fall and you don't know what to expect when you get there. You are actually grieving Polly as you are seeing your mum fade. As you know I have been there with my mother in law. Some tough decisions may be on the way. You also have to start looking after yourself first as I have always said. Practical advice Just put outfits as you have been doing in the wardrobe for 7 days. Put other clothes in another room. This will cut down on the washing for you and sorting out each time you visit. Get the alarm put on a wrist band my mum has this now and she does wear it. Get the kids on board to go round at various times of the day when they are able to give you peace of mind. Age uk is a really good organisation to approach - they give support to families too. Check your mums footwear to make sure that was not the reason for the fall. Say hi to Nancy and giving you all a big hug. xx
Super advice thank you so much and I totally agree with everything you said. Yes slippers worn at the time of the fall have been binned! Clothes are being narrowed down this week big time - just want to be able to keep her in her own home for as long as possible so I hopefully can adapt to her needs as they change. Thank you for being there- have a lovely week ❤️
One day at a time Polly and you'll get there. You're juggling so much right now, but give yourself a gentle pat on the shoulder for doing so. Nancy is so lovely and that's because you're looking after her. Every moment is precious just take a breather and do your best. Xxxxx
Hi Polly, I really missed seeing ypur post on Sunday which i usually watch before i get up as i had things to do so had to wait until today Monday to watch you and your lovely mum. I think the previous poster who mentioned that stress could be making your symptoms worse. I am so sorry to see you so upset about your lovely lively kind mum but try and just take one day at a time and if you get chance try and get in touch with age concern for their advise on what to do for yourself and your mum. Try not to worry as I am sure your son and daughter will look after Nancy while you are away on your much needed break. Sendi g you much love.xx
Sending you a virtual hug, Polly. What with everything with Nancy and all the pain your going through (physical and emotional) Keep nagging your Dr for some answers xx
Weird didnt get notification today so i looked for it, never happened b4, hopefully you're all ok polly, it's my late dad's birthday today but I'm glad it's my favourite month, besides Christmas obviously 😂❤
Polly 🫂 Oh my friend I wish I could hop on a plane and just give you the biggest hug. My heart goes out to you more then words can say.🫂 Watching this video brought me back to when I was where you were several years ago and my heart just overflows with love and empathy for you. ❤ All I can say from past experience is there came a day when we realized that if our loved one was going to be able to stay in her home like she wanted to she needed a 24 hour live in aide; because it wasn’t safe for her or sustainable for us any longer. Trying to care for her at the level she required prevented us from being there to support her as her family if that makes any sense and it became unhealthy for her and all of us. Once we got the care in place it still was extremely challenging, but it also allowed us to spend quality family time with her while at the same time knowing she was being cared for by actually beautiful people that grew to love her so deeply as well. I call them our earth angels to this day. 😇 These carers became part of our family and will forever remain as heroes in my heart.😇❤️🕊️ They not only allowed her to stay in her home and live her life but they allowed us to live ours as well.🎁 I’m praying for all of you Polly. 🙏Changes at this stage are rapid but that doesn’t mean your mom won’t still be here for a long time even at 94. 🙏 Please take care of yourself as well. Stress causes inflammation and pain throughout the body. Please try to take one day at a time and get some rest. You have had so many monumental changes in your life in such a short period of time so please remember to be kind to yourself.🫂 Definitely try to pace yourself and know that you are loved, seen, heard, respected, valued and cared about more then words could ever say. 🫂 Please allow yourself to feel it at all and whenever you need to cry remember that our tears help to cleanse the mind, body and soul.🙏
Thank you Christine. Your words of support and encouragement are always accepted gratefully and thank you from the bottom of my heart for being here - it truly inspires me and I take your wonderful advice on very sincerely. It will be necessary to look at further care paths for mom I'm sure but initially there are a few steps to take first, namely getting her to the doctors soon for a full check up - its been suggested that the sudden deterioration might be down to an infection that may not necessarily be visible. UTI maybe? and she is getting blood tests too next week. I will, indeed, take care of myself and also you could be very right about stress making my pain worse - I hadn't considered that. Much love as always. P. xxx
@@pollyjohnson-allthingsgood I have been thinking of you all week my friend.🙏 It sounds like you have a really good plan in place and you will know when the time is right to proceed forward with additional care. It was a very hard decision in my situation as well and then one day we were left with no other choice; which although it didn’t feel like it at the time was a blessing in disguise. I know your time is so limited but if your able to get out and walk in the morning before you start your day it may help you to reduce the stress and possible inflammation. It does wonders for me and I think you may find it beneficial as well. 🙏 Sending you prayers of strength, peace and healing. I hope your mom is doing good and yes UTIs can definitely cause a mental status alteration very quickly so it’s good to rule that out.🙏 If you ever need anything you know how to reach me. 🫂
As you say it’s one day at a time with Nancy as her world is changing without her knowing, hope that makes sense. My mums slippers went in the bin like Nancy’s and replaced with some Skechers which she loved because they were light, non slippy and she felt safe in them and at 84 wondered why she hadn’t found them earlier. Take care of yourself and Nancy. X
Hi Polly you can get a wrist strap for the community alarm and also ask for an alarm with a fall detector in it . The help would come if your mum falls without her needing to press the alarm.
Morning Polly,hearing about Nancy has brought memories back when I was caring for mum who had dementia we had the cooker door of twice ,putting stuff out of freezer into cupboards,washing piling up ect,mum had a necklace alarm but kept taking it off we had notes all over the house telling her not to open door to anyone but didn't make any difference it's a problem,I was waiting to have major surgery myself and kept putting it off to care for her in the end had to put her in care while I had it done I feel for you take care❤
Hi Polly, so sad to see Nancy deteriorating, Could you have a care package for her, I had one for my Mum before she passed as she had Parkinson’s and I work, and have a back problem so couldn’t do things for her. You have to look after yourself too!❤❤❤xx
Good Morning Polly ,I am so sorry your in so much pain huni I hope you manage to get it under control because it just makes life so difficult . Aww poor Nancy I am so glad she was not badly hurt in her fall ,it’s just so worrying when your not with her all the time ,you really need your wee holiday and I am sure Adam & Grace will look after Nancy just fine while your away ,sending you all my love and virtual hugs see you next week ,Katie 💕🌸💕
Thank you Katie. Your words of support are appreciated greatly and I hope you have a great week - hopefully I will get on that holiday and I think it will be very beneficial. Hope you are doing ok this week? Love and hugs 🥰 ❤️
What a worry for you ❤ big hugs Polly My mum had dementia She disconnected the gas cooker ( with a hammer ) thank goodness the neighbours smelt gas, and all was ok 👌 but I feel for you xxxx
Hello Polly, just came across your channel , what a lovely positive person you are. As the saying goes , “ do not worry / be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is it own trouble “ Matthew 6 v 34. Just take every day as it comes and live for the present. If you look back on all the issues you had , they have all been sorted 😂. Anyway I do love your content. I will be watching more. 💖
I am in a similar boat to yours and I understand the anxiety and worry that you are feeling..Maybe it wouldn't be a bad idea to get Nancy checked at G.P...My Mother was a bit more confused than normal last month and it turned out she had a kidney infection even though she showed no other symptoms apart from sudden increased confusion..
O polly I feel for you. You’re a fantastic person mother and daughter. I don’t know what to say. Sending all my love and best wishes to you and your family. Please take care. Xxxxxxxx
You need your holiday Polly, Nancy has a long way to go yet as this is just the beginning so go away and recharge your batteries. My mum won't wear her necklace or her watch so we have had to install blink cameras so we can see if she falls. I have already grieved for the mother I once had. Dementia sucks xx
Thank you. Yes I know I must have my holiday- I’ll put a plan together before I go for a rota for my two to take care of her. Sorry you are in the same boat ~ as you say, it sucks! In it together eh? I will look into blink cameras - thank you ❤️
Morning Polly, im a little upset after watching this weeks vlog. I can see Nancy has changed. You need to think about a care package. As much as you want to take care of her yourself, you physically can't do it all. The pain you're feeling this week in your upper body is stress. Week by week, the deterioration in Nancys' behaviour will change & that's hard to see. I really hope you get away it will do you a lot of good. You'll still worry, but i'm sure the family will look after Nancy 100%. Remember, look after yourself. Say hi to Nancy & give her a hug from me ❤❤
Do you know, I never thought for one minute that the pain could be stress? Maybe yes? Gosh shocking . You are right, I won’t be able to do it all myself and I think it’s time for me to get organised and work out the realistic next steps. Thank you for your help and your support in your lovely message. Have a lovely week ❤️
I feel for you Polly been through it , just a thought maybe Nancy could stay at your house whilst you’re away, if Grace and Adam are there? It’s only a week to put your mind at rest or maybe one of them could stay at her house . Also maybe you could remove a lot of her clothes and just leave the basics ❤
Yes, I will be doing a big sort out of her clothes and just leaving the essentials as you say and yes, my two are taking it in turns to stay with her in my absence. Thank you x
It's very hard watching someone we love slip away with Dementia she is such a sweet lady ( Hello Nancy the weather is changing so it will soon be cosy nights in with the hot chocolate love from Rosa and Snowy Xxxx) Polly you need a break and I'm sure Adam and Grace will jump in and put your mind at ease . Hope you can get your pain control sorted a holiday will help . Love to all of you 🌹🐈Xxxx
Hi Polly My mum & my dad both had dementia. You can request a wrist strap for the necklace alarm. My mum always used to not put the necklace on. Also we had signs everywhere & the Google nest cameras will give you peace of mind - you can speak through them as well. I used to remind my mum to eat her sandwich have a drink Look after yourself too - I had two breakdowns - the sadness and stress / worry. Always the price for loving too much. I have had ten years of dementia in my life and some days I just break
I can totally sympathise and yes, it certainly is not easy. Thank you for your comments and I am definitely looking into those cameras. She does have the option to have her necklace as a bracelet so we might adjust that too. Thank you XXXX
On a separate note, are you taking Gabapentin ? I’ve got the exact pain .. doctor said it’s degeneration on my spine . I’ve also got tarlov cysts on my spine ! Which affect the nerves ! Try and get a full mri xx
Polly you are doing your best and above - could you be referred to a Rheumatologist? Dexa scan? Sending my love to your gorgeous mum - you are not moaning at all - this channel is a good avenue to get your worries out - and we enjoy your chats - could you cut down on your hours at work or work from home a bit at the Solicitors? Take care of yourself - you are looking very well despite your lack of sleep !
Hi Polly so sorry to see-your mum changing with her illness. Do you think it’s time you looked at getting permanent care for her, you could still go and visit her daily and she could be local to where you live but for her own safety and well-being, it must be hard and heartbreaking to have to make a decision like that but I don’t think Id relax if I knew my mum lived on her own and she’s doing the things that she’s doing, I think the clothes and the hoarding thing is part of the dementia cycle, It must be so hard because when we see your mum in the video, she actually looks and acts okay doesn’t she just concerned that her being at home on her own in a 24 hour day period could be quite dangerous. I’m so sorry I’m just giving you my honest opinion. And I know people need privacy but because your mum‘s health is so much more important, couldn’t you put an internal CCTV maybe one in the bedroom? One in the kitchen one in the living room so you can at least see and make sure she’s okay like the fall if you had the cameras up, you would’ve known what happened I hope my advice helps X
Thank you. I can see her house from my house - we live across the street literally but as you say, it’s not the same as living in. This may be the next step but for now, we are just dealing with this new, albeit, difficult phase. She does have me daily - some days for longer than others and she still wants a little independence and times of privacy but again, if that needed to change, we’d adapt x
@@pollyjohnson-allthingsgood good evening Polly I hope you’re well thank you so much for coming back to me. It must be so hard to be in the position that you’re in but you do above and beyond everything for your mum and you truly love her we know that and in terms of independence. I totally get that too. It must be so hard to try and know what to do for the best but you’re all a lovely family and I know you will do the right thing for your mum. Best wishes. X
Sending you and your beautiful mama so much love and all the hugs ❤❤❤❤ xxxx
Oh Polly I could cry for you and poor Nancy. You're a wonderful daughter. Try to take one day at a time. Sending much love to you both ❤️ ❤
Thank you. Love gratefully received. ❤️
I feel for you so much having been through this with my parents. When you are not feeling great yourself it makes it even harder. The one thing I would say is get more care in place. Even with myself who works full time and not living in the area and helped as much as I could and my sister who went in everyday we still needed more help. When Dad went wandering that was the turning point and we were lucky that we had a family friend who was a retired carer who lived across the road and came in first thing to help with the morning routine and then again later in the day. Dad also had a key safe by the front door so people could get in easily. We used to put out Dad's clothes the night before so he got dressed himself ok for a while. It is so difficult as it really does change every day. If you can get more help in place then you will not worry so much when you're not there. Sending lots of love .
Sorry to hear you’ve experienced similar with your loved ones and yes, it does seem to change daily at the moment. One day at a time but I agree that the extra help is going to be needed very soon 🙏❤️
Bless you , your wee mam is so lovely and you are a great daughter xx
You are so kind x
The invisible chef's dish looked so delicious, and the flat bread looked fantastic. Very good plan in this new phase to work with Nancy one day at a time. My mom had dementia, and I ended up just making it through each day. Good idea to unplug the washing machine! So sorry to learn Nancy had that fall and the washing machine door fell off... I was in similar pain as you when I was caring for my mom, and it was so difficult and painful. But it is just so great Nancy has you and your family!
Thank you. One day at a time. xx
Hi polly,I feel for you and Nancy so much,it was awful when my mum had her dementia,she went into a home and the guilt is awful I still feel it,but as a family we couldn't look after her 24/7,you really need time foryourself,it won't get any easier,especially as your not feeling right,take care X
Thank you - I will XX
Morning Polly. What a worrying time for you along with relentless pain. So hard to cope when your sleep pattern is broken as well. Hopefully a week away will give your body a chance to rest. Such an emotional time for you - Nancy is so well looked after by you. xx
Bless you. Thank you 🙏 ❤️
Good evening Polly , I'm so sad to hear about Nancy's fall and how she's been feeling , very tuff and very emotional for you & all the family , a holiday will do you good & Nancy will be well cared for .....thank you for the lovely vlog the Persian food looked delicious wow Paul is very talented . Sending your beautiful mum much Love & a big hug all the way from Canada .....You take good care of yourself too Hugs always xoxo
Thank you. Mom loves to receive your messages from Canada - she has many happy memories of there! Lots of love from us both xx
❤🇨🇦❤@@pollyjohnson-allthingsgood
❤🇨🇦❤@@pollyjohnson-allthingsgood
Oh polly I feel your pain I did a bit of pottering in garden this morning needless to say I’m in bed at7 with a brew 🙄my parents are gone but never suffered what your mum has thank the lord I feel for you,but you must go on holiday and rest your children will do shift work to look after her I’m sure do take care much love god bless mum 🙏🏻❤️🫂
Bless you - thank you. I agree - I think the holiday is a must as long as I have a good plan and rota done for mom whilst I’m away xx
@@pollyjohnson-allthingsgood absolutely 👍🏻❤️
Oh Polly I know exactly what you're going through. It's such an emotional time but you will get through this ❤. You winge and moan as much as you dam well like on here.... Theres a lot of us here that have walked the path your on and we know how your feeling. If we could all give you a big hug we would in a heartbeat.
Sending love to you and mum 🩵
That virtual hug is received with grateful warmth. Thank you! 🙏 have a lovely week ❤️
Hi Polly,I shed tears for you while watching this, I know first hand what you are going through. Nancy aka Mum is going down the same path as my own mum did, the clothes situation especially, my mum had a new fridge freezer installed but because it was a self defrost she thought it wasn't working so popped her home delivery of groceries in the bath to keep them cool, sadly everything had gone off when I arrived a few days later, it's just heartbreaking. Like you I wasn't always feeling great myself which makes it even harder to cope with, especially knowing the situation will get worse instead of better. I suggest you get all of the help you deserve in place now, so you are able to spend as much time with her and make a few more special memories. without sounding harsh start looking at nursing homes as she will struggle to be at home eventually and you are not able to offer 24 hour care as much as your head and heart tells you that you will cope whatever. Sending you a huge hug and lots of love... take care, you are a wonderful daughter xx
Bless you - what a beautiful and kind message. I’m so sorry you’ve been through this also - it is heartbreaking and your words of advice are appreciated very much. Sadly yes a care home may eventually be required - as you say, it won’t get any easier. Sending you love and hugs and huge appreciation x
Hi polly it’s so sad o c u so upset we have been through all this and she will m
Not remember about her necklace as my mum did the same thing she never put it on but she remembered other things so u can not work it out u r a brilliant daughter and u will get through this as for the fibromyalgia I have had that for years it was a sad affair who I got it and stress is so bad for it so u r getting more pain as the weeks go on so I think it could be it’s not a nice thing to have but u need to know so sorry u r going through all this u really need this holiday have a good week take care hi to wonderful Nancy from Jackie 💕🤗🌈
Thank you Jackie. Yes, I must admit, I do seem to have all the symptoms but we shall see - full check up definitely needed. XX
Hi Polly,
It's nearly 3am , I can't sleep 😢 so I'm watching you x
I lost my husband on 2nd September at 1.20am very unexpected??
We picked up our new puppy 🐶 3 wks ago Bonnie (Shihtzu) she was 11 wks last Sunday....he ADORED her. Little Bonnie is keeping my mind busy, she's so adorable 🐶
Ohh Polly... my heart is broken 💔 aching, I'm lost?? 😟
Unexpected heart attacks. .out the blue???
I know your a good listener😊
Ohh my goodness I'm 57 & a Widow? ?
Thanks for always being there for us xx Hugs Alison 🤗
Oh my god Alison, I’m so sorry and so sad to read this message this morning. My sincere condolences to you and your family at this difficult time. What a terrible tragedy and shock for you. Sending you huge virtual hugs and love. Feel free to email me at any time. You’ve been thrown into a new world you were not expecting and your grief must be felt. One hour at a time, don’t put any pressure on yourself to do anything! Take all the help and support you can and yes I’m here anytime - albeit feeling awful for you and awful there is nothing I can do to make this any easier for you. God bless you and thank goodness for Bonnie. Pets can be very therapeutic especially at times like this. Thinking of you deeply 🙏💙🙏
Hi Polly the Persian food looked delicious Paul certainly pull it out of the bag.
I am so sorry to hear that Nancy had a fall and you don't know what to expect when you get there. You are actually grieving Polly as you are seeing your mum fade. As you know I have been there with my mother in law. Some tough decisions may be on the way. You also have to start looking after yourself first as I have always said.
Practical advice
Just put outfits as you have been doing in the wardrobe for 7 days. Put other clothes in another room. This will cut down on the washing for you and sorting out each time you visit.
Get the alarm put on a wrist band my mum has this now and she does wear it.
Get the kids on board to go round at various times of the day when they are able to give you peace of mind.
Age uk is a really good organisation to approach - they give support to families too.
Check your mums footwear to make sure that was not the reason for the fall.
Say hi to Nancy and giving you all a big hug. xx
Super advice thank you so much and I totally agree with everything you said. Yes slippers worn at the time of the fall have been binned! Clothes are being narrowed down this week big time - just want to be able to keep her in her own home for as long as possible so I hopefully can adapt to her needs as they change. Thank you for being there- have a lovely week ❤️
One day at a time Polly and you'll get there. You're juggling so much right now, but give yourself a gentle pat on the shoulder for doing so. Nancy is so lovely and that's because you're looking after her. Every moment is precious just take a breather and do your best. Xxxxx
Thank you so much. Lovely kind words that are greatly needed. Have a wonderful week ❤️
Hi Polly,
I really missed seeing ypur post on Sunday which i usually watch before i get up as i had things to do so had to wait until today Monday to watch you and your lovely mum.
I think the previous poster who mentioned that stress could be making your symptoms worse.
I am so sorry to see you so upset about your lovely lively kind mum but try and just take one day at a time and if you get chance try and get in touch with age concern for their advise on what to do for yourself and your mum.
Try not to worry as I am sure your son and daughter will look after Nancy while you are away on your much needed break.
Sendi g you much love.xx
Thank you for this lovely message of support. It’s very much appreciated. Lots of love to you 🙏❤️
Sending you a virtual hug, Polly. What with everything with Nancy and all the pain your going through (physical and emotional) Keep nagging your Dr for some answers xx
Bless you - thank you 🙏 🙆♀️
Weird didnt get notification today so i looked for it, never happened b4, hopefully you're all ok polly, it's my late dad's birthday today but I'm glad it's my favourite month, besides Christmas obviously 😂❤
Happy heavenly birthday to your dad 🙏 bless you. Thank you, yes I am ok- staying in the boat!! Have a lovely week sweetie ♥️
@@pollyjohnson-allthingsgood thanks polly, that's lovely, hope you all have a good week too x
Polly 🫂 Oh my friend I wish I could hop on a plane and just give you the biggest hug. My heart goes out to you more then words can say.🫂
Watching this video brought me back to when I was where you were several years ago and my heart just overflows with love and empathy for you. ❤ All I can say from past experience is there came a day when we realized that if our loved one was going to be able to stay in her home like she wanted to she needed a 24 hour live in aide; because it wasn’t safe for her or sustainable for us any longer.
Trying to care for her at the level she required prevented us from being there to support her as her family if that makes any sense and it became unhealthy for her and all of us. Once we got the care in place it still was extremely challenging, but it also allowed us to spend quality family time with her while at the same time knowing she was being cared for by actually beautiful people that grew to love her so deeply as well.
I call them our earth angels to this day. 😇 These carers became part of our family and will forever remain as heroes in my heart.😇❤️🕊️ They not only allowed her to stay in her home and live her life but they allowed us to live ours as well.🎁
I’m praying for all of you Polly. 🙏Changes at this stage are rapid but that doesn’t mean your mom won’t still be here for a long time even at 94. 🙏 Please take care of yourself as well. Stress causes inflammation and pain throughout the body. Please try to take one day at a time and get some rest. You have had so many monumental changes in your life in such a short period of time so please remember to be kind to yourself.🫂
Definitely try to pace yourself and know that you are loved, seen, heard, respected, valued and cared about more then words could ever say. 🫂 Please allow yourself to feel it at all and whenever you need to cry remember that our tears help to cleanse the mind, body and soul.🙏
Thank you Christine. Your words of support and encouragement are always accepted gratefully and thank you from the bottom of my heart for being here - it truly inspires me and I take your wonderful advice on very sincerely. It will be necessary to look at further care paths for mom I'm sure but initially there are a few steps to take first, namely getting her to the doctors soon for a full check up - its been suggested that the sudden deterioration might be down to an infection that may not necessarily be visible. UTI maybe? and she is getting blood tests too next week. I will, indeed, take care of myself and also you could be very right about stress making my pain worse - I hadn't considered that. Much love as always. P. xxx
@@pollyjohnson-allthingsgood I have been thinking of you all week my friend.🙏 It sounds like you have a really good plan in place and you will know when the time is right to proceed forward with additional care. It was a very hard decision in my situation as well and then one day we were left with no other choice; which although it didn’t feel like it at the time was a blessing in disguise.
I know your time is so limited but if your able to get out and walk in the morning before you start your day it may help you to reduce the stress and possible inflammation. It does wonders for me and I think you may find it beneficial as well. 🙏 Sending you prayers of strength, peace and healing. I hope your mom is doing good and yes UTIs can definitely cause a mental status alteration very quickly so it’s good to rule that out.🙏 If you ever need anything you know how to reach me. 🫂
As you say it’s one day at a time with Nancy as her world is changing without her knowing, hope that makes sense. My mums slippers went in the bin like Nancy’s and replaced with some Skechers which she loved because they were light, non slippy and she felt safe in them and at 84 wondered why she hadn’t found them earlier. Take care of yourself and Nancy. X
I will - thank you. Lovely words of encouragement and support. Lots of love ❤️
Hi Polly you can get a wrist strap for the community alarm and also ask for an alarm with a fall detector in it . The help would come if your mum falls without her needing to press the alarm.
Yes we have a wrist strap so might see if she handles that a bit better. I will talk to her alarm provider - that’s very helpful- thank you 🙏❤️
Morning Polly,hearing about Nancy has brought memories back when I was caring for mum who had dementia we had the cooker door of twice ,putting stuff out of freezer into cupboards,washing piling up ect,mum had a necklace alarm but kept taking it off we had notes all over the house telling her not to open door to anyone but didn't make any difference it's a problem,I was waiting to have major surgery myself and kept putting it off to care for her in the end had to put her in care while I had it done I feel for you take care❤
Crikey! What a horrible and upsetting disease it is. Bless you, sounds a very similar situation to me and Nancy 🙏❤️
Hi Polly, so sad to see Nancy deteriorating, Could you have a care package for her, I had one for my Mum before she passed as she had Parkinson’s and I work, and have a back problem so couldn’t do things for her. You have to look after yourself too!❤❤❤xx
You are so right and yes, I think we are getting to the stage where new plans need to be put in place x
Good Morning Polly ,I am so sorry your in so much pain huni I hope you manage to get it under control because it just makes life so difficult . Aww poor Nancy I am so glad she was not badly hurt in her fall ,it’s just so worrying when your not with her all the time ,you really need your wee holiday and I am sure Adam & Grace will look after Nancy just fine while your away ,sending you all my love and virtual hugs see you next week ,Katie 💕🌸💕
Thank you Katie. Your words of support are appreciated greatly and I hope you have a great week - hopefully I will get on that holiday and I think it will be very beneficial. Hope you are doing ok this week? Love and hugs 🥰 ❤️
What a worry for you ❤ big hugs Polly
My mum had dementia
She disconnected the gas cooker ( with a hammer ) thank goodness the neighbours smelt gas, and all was ok 👌 but I feel for you xxxx
God! What a worry! What strange and awful disease it is 🙏❤️
Hello Polly, just came across your channel , what a lovely positive person you are. As the saying goes , “ do not worry / be anxious about tomorrow, for tomorrow will be anxious for itself. Sufficient for the day is it own trouble “ Matthew 6 v 34. Just take every day as it comes and live for the present. If you look back on all the issues you had , they have all been sorted 😂. Anyway I do love your content. I will be watching more. 💖
Thank you so much! And welcome! I hope you enjoy more of the channel. Have a lovely week ❤️
I am in a similar boat to yours and I understand the anxiety and worry that you are feeling..Maybe it wouldn't be a bad idea to get Nancy checked at G.P...My Mother was a bit more confused than normal last month and it turned out she had a kidney infection even though she showed no other symptoms apart from sudden increased confusion..
Thank you. Yes, I have considered this and we are booked in for a Doctors review appointment next week. You could well be right x
O polly I feel for you. You’re a fantastic person mother and daughter. I don’t know what to say. Sending all my love and best wishes to you and your family. Please take care. Xxxxxxxx
Thank you so much! Love and best wishes to you too ❤️
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You need your holiday Polly, Nancy has a long way to go yet as this is just the beginning so go away and recharge your batteries. My mum won't wear her necklace or her watch so we have had to install blink cameras so we can see if she falls. I have already grieved for the mother I once had. Dementia sucks xx
Thank you. Yes I know I must have my holiday- I’ll put a plan together before I go for a rota for my two to take care of her. Sorry you are in the same boat ~ as you say, it sucks! In it together eh? I will look into blink cameras - thank you ❤️
Morning Polly, im a little upset after watching this weeks vlog. I can see Nancy has changed. You need to think about a care package. As much as you want to take care of her yourself, you physically can't do it all. The pain you're feeling this week in your upper body is stress. Week by week, the deterioration in Nancys' behaviour will change & that's hard to see. I really hope you get away it will do you a lot of good. You'll still worry, but i'm sure the family will look after Nancy 100%. Remember, look after yourself. Say hi to Nancy & give her a hug from me ❤❤
Do you know, I never thought for one minute that the pain could be stress? Maybe yes? Gosh shocking . You are right, I won’t be able to do it all myself and I think it’s time for me to get organised and work out the realistic next steps. Thank you for your help and your support in your lovely message. Have a lovely week ❤️
I feel for you Polly been through it , just a thought maybe Nancy could stay at your house whilst you’re away, if Grace and Adam are there? It’s only a week to put your mind at rest or maybe one of them could stay at her house . Also maybe you could remove a lot of her clothes and just leave the basics ❤
Yes, I will be doing a big sort out of her clothes and just leaving the essentials as you say and yes, my two are taking it in turns to stay with her in my absence. Thank you x
It's very hard watching someone we love slip away with Dementia she is such a sweet lady ( Hello Nancy the weather is changing so it will soon be cosy nights in with the hot chocolate love from Rosa and Snowy Xxxx) Polly you need a break and I'm sure Adam and Grace will jump in and put your mind at ease . Hope you can get your pain control sorted a holiday will help . Love to all of you 🌹🐈Xxxx
Thank you ! Mom loved your message and said give snowy a kiss from her! Sending love ❤️
Hi Polly
My mum & my dad both had dementia. You can request a wrist strap for the necklace alarm. My mum always used to not put the necklace on.
Also we had signs everywhere & the Google nest cameras will give you peace of mind - you can speak through them as well. I used to remind my mum to eat her sandwich have a drink
Look after yourself too - I had two breakdowns - the sadness and stress / worry. Always the price for loving too much. I have had ten years of dementia in my life and some days I just break
I can totally sympathise and yes, it certainly is not easy. Thank you for your comments and I am definitely looking into those cameras. She does have the option to have her necklace as a bracelet so we might adjust that too. Thank you XXXX
On a separate note, are you taking Gabapentin ? I’ve got the exact pain .. doctor said it’s degeneration on my spine . I’ve also got tarlov cysts on my spine ! Which affect the nerves ! Try and get a full mri xx
I will - thank you. No, not tried that drug - I’m on pregabalin, naproxen and codeine x
Polly you are doing your best and above - could you be referred to a Rheumatologist? Dexa scan? Sending my love to your gorgeous mum - you are not moaning at all - this channel is a good avenue to get your worries out - and we enjoy your chats - could you cut down on your hours at work or work from home a bit at the Solicitors? Take care of yourself - you are looking very well despite your lack of sleep !
Not heard of a Dexa scan ? I will look into that- thank you so much. Thank you for your lovely message of support ❤️
Poor Nancy, could you take away most of her clothes and leave her with just a few outfits to choose from?
Definitely what I will do!
Thank you 🙏 ❤️
Hi Polly so sorry to see-your mum changing with her illness. Do you think it’s time you looked at getting permanent care for her, you could still go and visit her daily and she could be local to where you live but for her own safety and well-being, it must be hard and heartbreaking to have to make a decision like that but I don’t think Id relax if I knew my mum lived on her own and she’s doing the things that she’s doing, I think the clothes and the hoarding thing is part of the dementia cycle, It must be so hard because when we see your mum in the video, she actually looks and acts okay doesn’t she just concerned that her being at home on her own in a 24 hour day period could be quite dangerous. I’m so sorry I’m just giving you my honest opinion. And I know people need privacy but because your mum‘s health is so much more important, couldn’t you put an internal CCTV maybe one in the bedroom? One in the kitchen one in the living room so you can at least see and make sure she’s okay like the fall if you had the cameras up, you would’ve known what happened I hope my advice helps X
Thank you. I can see her house from my house - we live across the street literally but as you say, it’s not the same as living in. This may be the next step but for now, we are just dealing with this new, albeit, difficult phase. She does have me daily - some days for longer than others and she still wants a little independence and times of privacy but again, if that needed to change, we’d adapt x
@@pollyjohnson-allthingsgood good evening Polly I hope you’re well thank you so much for coming back to me. It must be so hard to be in the position that you’re in but you do above and beyond everything for your mum and you truly love her we know that and in terms of independence. I totally get that too. It must be so hard to try and know what to do for the best but you’re all a lovely family and I know you will do the right thing for your mum. Best wishes. X
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