Progeria: A Growing Hope

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  • Опубликовано: 12 янв 2025

Комментарии • 677

  • @baharam98
    @baharam98 Год назад +10

    "Don't let one thing, ruin your life." So much wisdom in that saying. Much love and respect to you and family.

    • @blankahrgovic3435
      @blankahrgovic3435 8 часов назад

      Bolje su,drago mi je ,hvala Bogu ,pozdrav iz 🇭🇷🇭🇷🇭🇷💕💕🌺✋🌟🌟🍀🍀

  • @donkeylvr.1925
    @donkeylvr.1925 8 лет назад +61

    If we all just had an ounce of her attitude and energy this world would be such a better place

  • @savannahmathis9381
    @savannahmathis9381 9 лет назад +35

    I've watched this video a million times and cry each time. Haters are so heartless its unreal, they need to be put in their place. These girls are so amazing and their positive outlook on life inspires me.

    • @scarbarber2129
      @scarbarber2129 7 лет назад

      Savannah Mathis I like how she looks like an alien. Aliens are cool!!!

  • @viccy8609
    @viccy8609 9 лет назад +56

    Y'all need to stop being mean. This made me cry tears of joy because of what she wishes. You an amazing, young and beautiful girl😘.

    • @devoncheng5563
      @devoncheng5563 5 лет назад +5

      Literally no one was mean

    • @softy4803
      @softy4803 8 месяцев назад

      area 51 creature

    • @joeyduberules
      @joeyduberules 3 месяца назад

      @@devoncheng5563 lmao, i think there's a word for that or a term...

    • @joeyduberules
      @joeyduberules 3 месяца назад

      @@softy4803 we'll assume youre 12.

  • @lashawnablanton4649
    @lashawnablanton4649 6 лет назад +31

    God bless all children with progeria! God bless all children! #CureProgeria

  • @jorgealvidrez589
    @jorgealvidrez589 4 года назад +60

    Who’s here in 2020
    Tell me if you want her tik tok

  • @a1sauce374
    @a1sauce374 10 лет назад +16

    So cute and brave....so proud of this little angel that came from heaven...god bless you all who love this child of hope and confidence ;)

  • @troyswife71
    @troyswife71 10 лет назад +111

    Thumbs up if u think she is cute,awesome,and most of all brave!!!!👍💪☀

  • @alilamberson8275
    @alilamberson8275 8 лет назад +170

    She is 9 now?
    I follow her on musically she is so sweet

  • @allishaolsen1644
    @allishaolsen1644 9 лет назад +75

    She is sooo cute she is a diva

  • @phillipmedeiros3962
    @phillipmedeiros3962 10 лет назад +87

    Soooo Cute! Jesus please try and do something with this disease. I am soooo lucky to not have this disease but she got struck with such a horrible..... Horrible..... Horrible disease ;(

  • @jackycook64
    @jackycook64 9 лет назад +16

    I am so glad they are finally offering the drug trials to all of the kids with Progeria. These kids deserve every opportunity available!

    • @carolyoung9269
      @carolyoung9269 9 лет назад +1

      YAY Jackie!How are you? It's been a while my friend!
      🌈🐨

    • @carolyoung9269
      @carolyoung9269 9 лет назад +1

      To all of you wishing harm on these precious Souls. SHAME ON YOU! God gave them life with his ETERNAL Love just like everyone. They are more worthy of a place in his Kingdom of Heaven than the likes of you spewing hatred! You have obviously deluded yourself with your claims of not being a sinner but YOU CAN'T LIE TO HIM! By claiming you don't sin you are saying you are equal to him & we all know what happened to Satan & his lot.So keep going with your grandiose claims & lies but leave these little ones & everyone with a firm understanding of & grip on- reality, alone.You are CLOWNS!Don't take your anti-psychotics so you fast-track your final judgement.
      The sooner you are gone the better. Who did Jesus declare more worthy at the place where John was baptizing? The rich man who gave a bag of coins - a pitance for him;or the lady who gave a single coin-her wages for a full week & all she possessed?Now-GO AWAY! 🌈🐨
      

    • @jackycook64
      @jackycook64 9 лет назад +1

      Carol YOUNG​ Hi Carol! It has been awhile. Haven't been on much. Not doing well. Have to have another surgery. Dr said at least a 8-12hr surgery and possibility of losing more of both my large and small intestine. I know it will be fine. Have an outstanding surgeon that has done over 30 of my other surgeries. How have you been?

    • @carolyoung9269
      @carolyoung9269 9 лет назад +2

      jackycook64​​ There you are~ FINALLY!Missed you! YAY!! You really should donate your body to science~ YOU ARE PHENOMENAL!! I"m getting there,thankyou for asking.My hip is great~Just a bit wobbly still.Getting a brand knew shoulder within a few months.
      Pain is a bloody nuisance but you know that better than me.
      Do you have a colostomy/ileostomy? I'm surprised you have much left to play with. Wish I could make you all better forever! Hang in there honey~I value my friends! Mwwaaaahhh

    • @jackycook64
      @jackycook64 9 лет назад +2

      Carol YOUNG​ Thank you so much for your kind words! so glad your hip is doing so well. Praying that your shoulder does just as well. The pain is really a nuisance!!! I am surprised I have as much left to play with as I do. No colostomy yet. Just a j-tube. The tract for the tube, like the rest of my GI tract keeps breaking down. I will definitely donate my body. It is one crazy contraption!!! Wish I could make you better as well. But even with all these issues, I would have to say I have a very good life. Was so good to hear from you! Take care and keep in touch! I value my friends so much!

  • @crybaby9800
    @crybaby9800 8 лет назад +21

    Those kids are so happy,and we have everything and not happy even tho we are healthy!
    I AM SO SHAME OF MYSELF,I HAVE EVERYTHING I EEVER WANTED,AND NEVER HAPPY!

  • @edwardramsey527
    @edwardramsey527 7 лет назад +1

    She's so bubbly happy. Just beautiful, funny the whole family is awesome. Kaylee your a shining star.

  • @carolyoung9269
    @carolyoung9269 9 лет назад +1

    Dear God I love Barbara! Who better for this interview?!😀 I certainly pray for these little angels & their families. PLEASE LORD HELP MANKIND TO FIND WAYS TO HELP ALL WHO SUFFER. 🌈 🐨

  • @tosh7989
    @tosh7989 8 лет назад +5

    5:04 is the mother of Sam Berns. Sam Berns Had Progeria as well but he died at the age of 17. To be honest he is very lucky to live the age of 17.

  • @elizabethmacy1643
    @elizabethmacy1643 11 лет назад +11

    "Dont let one thing ruin your life." So true keep fighting for progeria.

  • @chainsawkitten3766
    @chainsawkitten3766 7 лет назад +19

    Why should they have to pay when they are in a drug research/trial?? One would think it would be free for them.

  • @mrsub4subb
    @mrsub4subb 9 лет назад +11

    They are such cuties. I wish they could grow their own hair too, something we all take for granted. ♥

  • @rainstorm.
    @rainstorm. 8 лет назад +33

    I love her they were right she is now a musical.ly star

  • @ruchikakarmakar3545
    @ruchikakarmakar3545 9 лет назад +6

    She has that awesome thing "Confidence"...Stay Blessed sweetie...

  • @mariareneecurry1073
    @mariareneecurry1073 8 лет назад +20

    To be honest SHE'S GORGEOUS!!!😍😍❤️❤️💠🌀

  • @bdahmartlangte5551
    @bdahmartlangte5551 4 года назад +1

    Why they all are so special.. active.. funny .. kind ..etc.. everything nice.. omg.. they are really a Gift.. 🥰🥰🥰

  • @Zumbagirl517
    @Zumbagirl517 6 лет назад +4

    She’s so brave! She more mature than a lot of kids her age!

  • @homerminor8024
    @homerminor8024 4 года назад

    Really inspires me with the angels and their bravery, as they face this disease daily and have the best outlook!! Watch these videos and it changes my perspective on how to face adversity. These sweet babies are brave heroes...In Jesus name,heal them!!

  • @Jaadaaxoxo
    @Jaadaaxoxo 4 года назад +8

    I remember when I use to see her on musically all the time💞😩 she’s about to be 17 !💕 on July 21st

    • @mariahsrobloxyt
      @mariahsrobloxyt 5 месяцев назад +2

      Her golden birthday is today! (She turned 21!)

    • @Jaadaaxoxo
      @Jaadaaxoxo 5 месяцев назад +1

      @@mariahsrobloxyt that is so crazy to meee and no way i commented this 4 years ago lmao

  • @troyswife71
    @troyswife71 10 лет назад +59

    God bless her thumbs up if u agree!👍

  • @jovanisis7050
    @jovanisis7050 9 лет назад +25

    I love like they dont even care about their looks, they are really brave :) I mean really.

    • @EmPurple
      @EmPurple 3 года назад

      Yup. The happiest people don't have vanity. I know I don't, I never bother with make up. I will brush my hair and wear casual clothes. I just want to live life and have adventures like these people with projeria.

  • @anniemac7625
    @anniemac7625 9 лет назад +15

    I love how sassy and cute she is

    • @scarbarber2129
      @scarbarber2129 7 лет назад +1

      Ånnëka Cat queen I really like how she looks like an alien. Aliens are cool!!!

  • @estherharrison3786
    @estherharrison3786 2 месяца назад +1

    Bless all these children 🙏

  • @theresarivera5369
    @theresarivera5369 10 лет назад +13

    Awwww... I love her 😊

  • @QueenPenelope19
    @QueenPenelope19 4 года назад +2

    Omg she was so young and now she’s a grown up🥺🥺🥺🥺❤️❤️❤️❤️

  • @EnviousWingDings
    @EnviousWingDings 7 лет назад +2

    I think this lovely child is just so beautiful. She is just the sweetest girl I have ever seen. I really hope we can find a way to let these people live long and comfortable lives.

  • @chubbsthebunny9437
    @chubbsthebunny9437 11 лет назад +11

    she's so cute!!!!!!!!! Thumbs up if u agree!

  • @patriciajgreen2995
    @patriciajgreen2995 8 лет назад +3

    It is more than a growing hope it is a so much more. I Love these children with all my heart

  • @sgtpepper915
    @sgtpepper915 11 лет назад +1

    What a beautiful child! The world is better because she is in it.

  • @rockylosco5596
    @rockylosco5596 5 лет назад

    Folks,”don’t let one thing ruin your life”,wisest statement I ever heard,from the mouths of babes God has perfected praise!

  • @DunkeePlzSubscribe
    @DunkeePlzSubscribe 8 лет назад +2

    0:50

  • @sanmiguel3827
    @sanmiguel3827 11 лет назад +15

    thumbs up if u think shes the bravest 6yr old ever! so cute :)

  • @iturgirltaetae3773
    @iturgirltaetae3773 8 лет назад

    yeah I almost burst out in tears watching this video she is so cute and I love her voice

  • @rockylosco5596
    @rockylosco5596 5 лет назад

    What a sweet girl,what a personality,Lord Jesus let this precious precious girl live a long life,let her shock this world Lord,amen

  • @xavierjoell5814
    @xavierjoell5814 8 лет назад +6

    her voice makes me smile

  • @kylir6399
    @kylir6399 9 лет назад +3

    you guys stop being mean to her she's too beautiful just the way she is

  • @nofomama9205
    @nofomama9205 7 лет назад +1

    How can people even Dislike such a Beautiful And Inspiring video?!?

  • @_sashitheedreamangel24_
    @_sashitheedreamangel24_ 9 лет назад

    She is so adorable, I will keep her in my prayers!!!

  • @christonrodriguez3374
    @christonrodriguez3374 9 лет назад +1

    I give props .. GOD SHOULD BLESS her ..she is an amazing girl.

  • @kay6521
    @kay6521 7 лет назад +1

    awww they're voices are adorable

  • @myfz6
    @myfz6 12 лет назад

    They r such precious little ones. These families need our love and support not just words buy they need us to act and donate what u can even if its just $1

  • @San47di
    @San47di 10 лет назад +1

    This beautiful child simply touches your heart!! :-)

  • @BlessUPkinFOLK
    @BlessUPkinFOLK 4 года назад +1

    I watch this video so many times and still can't stop crying 😭

    • @Thevoices1
      @Thevoices1 8 месяцев назад

      Do you still watch it?!

  • @simonepowell906
    @simonepowell906 8 лет назад

    she is so beautiful and confident and doesn't let things stop her

  • @giadamagala3995
    @giadamagala3995 2 месяца назад

    E un piacere vedere che i genitori riescono interagire con loro riuscendo a tirare fuori la loro intelligenza!!! Bravissimi ❤❤❤❤

  • @sevenfuntasticdolls5154
    @sevenfuntasticdolls5154 8 лет назад

    my fave is when she said she's a star but really when she said yeah, mhm😍😍😘😍😍😍😍😘😘😘😘😘😂😍💓😘😘💓😘😂😍😘💓😘💓😘💓💓😘💓😘💓😘😘💓😂😍😂😍😂😍😂😍😂😍😍😂😂😍😍😂😍💓😍💓😍😍😂😍😂😍😂😍💓😍💓😍💓😘😂😍😂😍😍😂😍😂😍😂😘😘😘😂😍😂😍😂😘😂😘😂😘😂😍😂😘😂😂😂😍💓😍💓😍💓😍💓😍💓😍💓💓💓💓💓💓💓😍😍😍😍😍😂😘😘😘😘 and more

  • @bhavitasingh3764
    @bhavitasingh3764 8 лет назад

    Kaylee ,we all have deep regards to u ,it's so nice for a girl living with progeria act live as if she is a normal human being .enjoy your life kaylee.many people in ,India know you ,even I'm 13 years old

  • @emmakateguy9200
    @emmakateguy9200 3 года назад

    I commented just so there wouldn’t be 666 comments... I love how great her personality is!

  • @charitinii2244
    @charitinii2244 8 лет назад +14

    i follow her on musical.ly and she's just the cutest 😍

  • @morito2321
    @morito2321 8 лет назад +8

    she's so cute and funny ☺❤

  • @bonnie4961
    @bonnie4961 9 лет назад +4

    These little girls are precious

  • @Roger9Wilco
    @Roger9Wilco 11 лет назад

    She talks and acts like a young adult. She is indeed amazing.

  • @calynndabarbie9118
    @calynndabarbie9118 9 лет назад

    Bruh this made me cry because she's so beautiful .... like I'll donate my hair for her she's awesome

  • @larman58
    @larman58 11 лет назад

    I love this little lady....stay bless Kaylee!!!!!

  • @twosongs7396
    @twosongs7396 2 года назад

    You are a Star, my Love. I carry you in my heart and always will. I’m so sorry I wasn’t able to pursue my studies. I’d hoped to participate in an effort for a cure… but I couldn’t afford continuing my studies.

  • @juanwani1851
    @juanwani1851 6 лет назад

    May the good lord guide and protect all the children with progeria all over the world

  • @miyaandgrace246
    @miyaandgrace246 12 лет назад

    Pray for these girls. they both are beautiful and hope that doctors find a cure!

  • @clasherfn
    @clasherfn 8 лет назад +6

    Hi actually she is a star on musical.ly who follows kaylee halko on musical.ly

  • @shenitabeck2893
    @shenitabeck2893 10 лет назад

    I can move it she is awesome little girl I love her even though I don't know her she is brave and know how to survive good job boo keep it going

  • @brooklinwebb9546
    @brooklinwebb9546 7 лет назад +3

    love her personality

  • @kellybowen2493
    @kellybowen2493 11 лет назад

    who could not like this.... it made my heart melt god bless you guys also in my prayers...

  • @driptoffen3604
    @driptoffen3604 7 лет назад +1

    What a Smile.....I wish you gonna celebrate your 100 birthday

  • @witchplease9695
    @witchplease9695 12 лет назад

    Such beautiful and bright little girls. God bless the both of them.

  • @amyhammond1005
    @amyhammond1005 10 лет назад

    She is soooooo cute and its sooooooo sad that some kids have this disease and I'm glad they are trying to find cures she is staying really strong and she is saying that one day she will have hair well I bet you she will and that is a positive attitude just stay strong kaylee

  • @kmcghee143
    @kmcghee143 8 месяцев назад

    Absolutely Adorable!!!❤❤❤❤

  • @drippypipes1932
    @drippypipes1932 8 лет назад +2

    Aww she is the sweetest thing ever❤️❤️❤️

  • @makennastoddard2536
    @makennastoddard2536 8 лет назад +3

    Her brother are so kind to her

  • @laurena5769
    @laurena5769 8 лет назад

    such nice girls with good families stay fabulous and dont let one thing ruin ur life follow her motto

  • @beckybojoy
    @beckybojoy 11 лет назад

    Love these strong beautiful souls they inspire and are real gifts

  • @trevorharbolt6293
    @trevorharbolt6293 6 лет назад +1

    I love her voice

  • @renwong6327
    @renwong6327 12 лет назад

    I hope kaylee continues to live a long and healthy life

  • @akritikhanal3243
    @akritikhanal3243 8 лет назад

    she is such a big inspiration for me......

  • @ruvstof
    @ruvstof 9 лет назад

    This touches me, we forget about time.

  • @crystalprados3601
    @crystalprados3601 7 лет назад

    all love this girl in her story she is so beautiful

  • @alexnky2257
    @alexnky2257 8 лет назад

    I love her little squeaky voice it is adorable

  • @wioi
    @wioi Месяц назад

    Oh Ooh Ooh my little dear, If I only had thousands of dollars to spare for you, your family and children like you I swear I would! If I win the big lottery I would spare millions for your medicine. If I only had even millions to spare for you little angels I would. I hope that you can live a long fulfilling life. ❤

  • @marciacarr2054
    @marciacarr2054 8 лет назад +1

    she is so sweet and i wish her all the best💜

  • @Memo-bs6kf
    @Memo-bs6kf 8 лет назад

    she is so sweet and beauitfful and i love her so so so so much and if you dont have a heart your and i love you are an star in my heart ❤❤❤❤❤❤

  • @kelmi412
    @kelmi412 10 лет назад

    "Be fabulous. Don't let one thing ruin your life."

  • @thegaminggirl9960
    @thegaminggirl9960 8 лет назад

    Who other hated this has no heart 😫 Get Well Kaylee And Linsy💖🎗

  • @barbarashanon1473
    @barbarashanon1473 6 лет назад

    Omg her voice IS SO CUTE AND ADORIBLE

  • @Zumbagirl517
    @Zumbagirl517 6 лет назад +1

    Beautiful brave girls!

  • @kyleejo7569
    @kyleejo7569 10 лет назад +3

    The most adorable thing g I have ever seen

  • @sutoeben
    @sutoeben 7 лет назад

    If the US had universal healthcare that would take away the financial stress.

  • @jasminecontreras6998
    @jasminecontreras6998 10 лет назад +4

    Kaly is so cute she looks like adalia:-) !

    • @scarbarber2129
      @scarbarber2129 7 лет назад

      Jasmine Contreras She also look like an alien, aliens are cool!!!

    • @shortstack1101
      @shortstack1101 7 лет назад

      Rwal Son
      ya but don't be rude like dat

  • @kaitlynkaitlyn3076
    @kaitlynkaitlyn3076 8 лет назад

    Their both ADORABLE!

  • @audikeepsdancing5487
    @audikeepsdancing5487 8 лет назад

    I like that she loves the way she is.

  • @daisyj4682
    @daisyj4682 7 лет назад

    oh lovely .. ikeylee...if i would be there ...i must have hugged her.. lovely girl ..may god bless you ...see at 1:38 how cutest she iis .... love you keyleee
    i literally cried at the moment during...2:27 and then 3:03 her words....oh !!

  • @sandraevans8354
    @sandraevans8354 10 лет назад +1

    This made me cry ♥

  • @Morethanlife-tw3bh
    @Morethanlife-tw3bh 11 лет назад

    She is loved and will live a happy life

  • @nicolen7094
    @nicolen7094 8 лет назад

    I love her she's so energetic and happy

  • @TheR005ter
    @TheR005ter 8 лет назад

    Does anybody know how we can follow them to know how there doing these little girls are real brave and strong too.

  • @Ceecee123
    @Ceecee123 11 лет назад

    she is definitely verrrrrrrrrrrrry fabulous!! so cute! god bless her!=)