Cutting out all sugar from diet has kept my son(16) seizure free for 5 months so far. he used to have tonic/clonic weekly- even when taking Redilev.Have no idea what the sugar connection is,but it seems to be working.He eats normally otherwise (even WHOLE fruits..but no processed fruit like juice/sweets from fruit)
It has been the same for me. My medication works well, but cutting out processed foods and reducing my sugar intake has reduced my side effects, increased my energy, and improved my quality of life. Nutrition is so important for everyone.
Thank you so much! I would check with your doctor to see if it would be good. I am not a physician, I have epilepsy as well. I am on lamotrigine as well and I have not had any complications with my supplements. Glad that you liked the video!
I would seek a appointment with an epileptologist (neurologist that specializes in epilepsy) and request a EEG and MRI. The EEG is used to find any abnormal brain activity and the MRI can see if there is any brain trauma. I would keep a journal and write down any symptoms you are having. I apologize that it took me so long to respond. I normally receive an email when someone comments and I didn't receive this one for some reason. I just came by it now when answering another comment. If you need any information, please let me know. I am happy to help.
@@tekendrabhattarai2898 I would always talk to your physician before making any changes. I take supplements to help with my side effects, but my doctor is aware of everything I take and it is in my records. Vitamin D3 has helped greatly with reducing my depression, calcium to make sure my bone density is good, and magnesium for my headaches. Make sure it is ok with your doctor before making any changes.
@@DefeatingEpilepsyFoundationI don’t know where you are, but here in the UK doctors are only interested in avoiding litigation, and making £commission from prescribing controlled meds. They will ALWAYS steer you away from OTC supplements, coz they don’t make ££ from it. I asked my GP about CBD, Gaba and Vitamins for my absence seizures and he scoffed and tried to make me feel stupid.
I started having symptoms of temporal lobe epilepsy like phantom smells and extreme Deja vu. But my EEG and mri came back normal. So I’m really confused as to whether I have epilepsy or not
Doctors diagnose individuals with epilepsy when they have had at least two unprovoked seizures. I have had epilepsy for 43 years now and there have been times when my EEG was normal. The extreme deja vu and phantom smells are auras. When my seizures were not controlled I would feel very frightened and then lose consciousness. Here is the link for our temporal lobe epilepsy video. Please let me know if you have any questions ruclips.net/video/i6Bxpckv_d4/видео.htmlsi=T-Wd_3C_F9hRDC44
Same here, I started having seizures when I was 24, idky... I've only had 2 black out seizures, the rest where focal seizures but it's odd that my mri was normal and only showed "slowing" a couple times. I'm triggered by music sometimes or even flash 📸 but I've never found out WHY it came to be but I can nearly swear it has something to do with my phyci "cracking" due to family/spouse abuse and years of ptsd.... sometimes my seizures feel like a counter part of me is trying to surface like a separate entity. My computer like mind disappeared after my first seizure plus the feeling of disconnection and projecting occurs. The mind is a VERY fragile thing and if not protected correctly will lead to consequences 😢
I would check with your neurologist/epileptologist to see. Depending on the seizures that you have and the medication you are on, they may suggest something specific. I take magnesium because I get migraines at times. My doctor said that magnesium helps to block signals in the brain that can cause migraines. I get them when the barometric pressure changes and I found since adding magnesium to my care plan, I have fewer migraines and when I do have them, they are not as intense.
@@sanmarzano yes l came across that info a while ago and are it at times.l read some other viewer says she use magnesium chloride whenever she feels a seizure coming and apparently it prevents her getting the seizure...Thanks for the feedback
Well luckily I get Vitamins B3 B6 B12 from what I drink. Then I take Fish Oil/Omega-3, Vitamin E, and Magnesium multi-Vitamins w/ Zinc. Plus I eat more Fish nowadays rather than any other meat.
It is best to speak with your doctor regarding controlling seizures because epilepsy is treated on an individual basis. One thing I have done to keep my seizures under control is to eat well by avoiding processed foods, get a good night's sleep, exercise, and do what I can to reduce stress.
Try non invasive alternate therapy like Sujok, accupuncture, ayurveda head massage, breathing exercises to help remove brain fog. Do this in conjunction with your neurologist or epileptologist prescribed AEDs please.
@@rameshnarayanan2276 thank you for sharing this information and you are right, always talk to your doctor before doing anything. I have had headache therapy massage to alleviate my headaches as well as meditation and yoga. They have helped reduce my brain fog a lot. It is so important to find what works best for you for you to have a good quality of life.
My advice after 30 years of epilepsy, is to always do your research on medication. Just because a doctor prescribes you a drug, it dosent mean they are good at their job and have given you the correct one. Join in with epilepsy action, the advice and support can really help. Take daily multivitamins to help recover from your seizures, we lose these vitamins as we age, so it’s important to boost them, especially after a seizure. Now, doctors don’t tell you this, but a seizure is like a concussion on your brain everytime, varying in strength of course. If you are lethargic or have brain fog after a seizure, this is why. You don’t need to smoke, do illegal drugs, drink alcohol or caffeine, or eat processed meats anymore. You need healthy foods that can promote and support brain health and the bodies recovery from a seizure. No more fast food, exercise more and stay healthy. Doctors can be intimidating, but don’t be afraid to question their decisions they make. It’s your body, your life. Take care. 👍
I'm not a physician so I cannot diagnose. I found an article in Science Direct that explains the changes in the brain resulting in loss of taste. Here is the link: www.sciencedirect.com/science/article/pii/S1059131119307034. When it comes to spitting, I found a brief description in Neurology. They state ictal spitting can last 10-25 seconds and is an automatic behavior such as lip smacking. Both symptoms are tied to temporal lobe epilepsy. The one with spitting is connected to the mesial temporal lobe. Here is the link for you: n.neurology.org/epearls/20160119. We created a new temporal lobe epilepsy video this year and it explains in detail the substructures of the temporal lobe. Watching that may be beneficial for you so you can get more of an idea of the function and complexity of the temporal lobe. If you have any other questions, please let me know, I'm happy to help.
That is so true! When I put this presentation together, I was following what Harvard Health suggested, and looking at the research I reviewed, I'm surprised that they didn't list Vitamin D or Vitamin D3. I found an article that stated in the beginning that there is not much data on the benefits of Vitamin D3 and epilepsy, but they are working to establish it. Here is the link for the article if you are interested: doi.org/10.3389%2Ffneur.2016.00218. Thank you so much for your comment!
What is the link between AED and lower levels of vitamin D3. My son 17 years old is having 8.5ng/ml of D3 when expected levels are between 30 to 100ng/ml
Both are great vitamins! I take calcium and Vitamin D3 to help keep up my bone density and vitamin D3 for reducing depression. Another great way to get Vitamin D is to go outside and enjoy the sun. I go out and do yoga and it has helped my mental health so much.
I would ask your doctor if there is a specific amount they would like you to take. I take 200mg daily (2 100mg capsules) and I buy them through Amazon. Magnesium is good because it reduces headaches.
@@sanmarzano True but Magnesium Glycinate is by far the most absorbed type of magnesium. Our family physican and Epileptologist prefer Magnesium Glycinate as well.
![Noob To Max With DRAGON REWORK In Blox Fruits [FULL MOVIE]](http://i.ytimg.com/vi/LnBMOinoOvA/mqdefault.jpg)
Cutting out all sugar from diet has kept my son(16) seizure free for 5 months so far. he used to have tonic/clonic weekly- even when taking Redilev.Have no idea what the sugar connection is,but it seems to be working.He eats normally otherwise (even WHOLE fruits..but no processed fruit like juice/sweets from fruit)
It has been the same for me. My medication works well, but cutting out processed foods and reducing my sugar intake has reduced my side effects, increased my energy, and improved my quality of life. Nutrition is so important for everyone.
B6 and b12 help with epilepsy .
@@babakgholian3467 Has it helped you?(:
Excellent video!
I have epilepsy and taking Lamotrigine. Can I take NAC?
Thanks!
Thank you so much! I would check with your doctor to see if it would be good. I am not a physician, I have epilepsy as well. I am on lamotrigine as well and I have not had any complications with my supplements. Glad that you liked the video!
@@DefeatingEpilepsyFoundation
Thanks!!!
Just an old and handicapped guy who started having seizures, every 8 to 15 weeks? Thanks for your information
I would seek a appointment with an epileptologist (neurologist that specializes in epilepsy) and request a EEG and MRI. The EEG is used to find any abnormal brain activity and the MRI can see if there is any brain trauma. I would keep a journal and write down any symptoms you are having. I apologize that it took me so long to respond. I normally receive an email when someone comments and I didn't receive this one for some reason. I just came by it now when answering another comment. If you need any information, please let me know. I am happy to help.
GOOD ENOUGH FOR ALL THE PATIENT,DEAR MADAM 🎓🇳🇵
@@tekendrabhattarai2898 I would always talk to your physician before making any changes. I take supplements to help with my side effects, but my doctor is aware of everything I take and it is in my records. Vitamin D3 has helped greatly with reducing my depression, calcium to make sure my bone density is good, and magnesium for my headaches. Make sure it is ok with your doctor before making any changes.
😊
@@DefeatingEpilepsyFoundationI don’t know where you are, but here in the UK doctors are only interested in avoiding litigation, and making £commission from prescribing controlled meds. They will ALWAYS steer you away from OTC supplements, coz they don’t make ££ from it.
I asked my GP about CBD, Gaba and Vitamins for my absence seizures and he scoffed and tried to make me feel stupid.
I started having symptoms of temporal lobe epilepsy like phantom smells and extreme Deja vu. But my EEG and mri came back normal. So I’m really confused as to whether I have epilepsy or not
Doctors diagnose individuals with epilepsy when they have had at least two unprovoked seizures. I have had epilepsy for 43 years now and there have been times when my EEG was normal. The extreme deja vu and phantom smells are auras. When my seizures were not controlled I would feel very frightened and then lose consciousness. Here is the link for our temporal lobe epilepsy video. Please let me know if you have any questions ruclips.net/video/i6Bxpckv_d4/видео.htmlsi=T-Wd_3C_F9hRDC44
Same here, I started having seizures when I was 24, idky... I've only had 2 black out seizures, the rest where focal seizures but it's odd that my mri was normal and only showed "slowing" a couple times. I'm triggered by music sometimes or even flash 📸 but I've never found out WHY it came to be
but I can nearly swear it has something to do with my phyci "cracking" due to family/spouse abuse and years of ptsd.... sometimes my seizures feel like a counter part of me is trying to surface like a separate entity.
My computer like mind disappeared after my first seizure plus the feeling of disconnection and projecting occurs. The mind is a VERY fragile thing and if not protected correctly will lead to consequences 😢
There is so many types of magnesium which one is suitable to aid with seizures
I would check with your neurologist/epileptologist to see. Depending on the seizures that you have and the medication you are on, they may suggest something specific. I take magnesium because I get migraines at times. My doctor said that magnesium helps to block signals in the brain that can cause migraines. I get them when the barometric pressure changes and I found since adding magnesium to my care plan, I have fewer migraines and when I do have them, they are not as intense.
Magnesium threonate is the only version that can pass thru the blood-brain barrier.
@@sanmarzano yes l came across that info a while ago and are it at times.l read some other viewer says she use magnesium chloride whenever she feels a seizure coming and apparently it prevents her getting the seizure...Thanks for the feedback
@@sanmarzano thank you for this information. I'm going to see what information I can find about it.
Well luckily I get Vitamins B3 B6 B12 from what I drink. Then I take Fish Oil/Omega-3, Vitamin E, and Magnesium multi-Vitamins w/ Zinc. Plus I eat more Fish nowadays rather than any other meat.
Manganese and Dimethylglycine, never heard of that, great another supplement. 😅🙄
How can I reduce my epilepsy
It is best to speak with your doctor regarding controlling seizures because epilepsy is treated on an individual basis. One thing I have done to keep my seizures under control is to eat well by avoiding processed foods, get a good night's sleep, exercise, and do what I can to reduce stress.
Try non invasive alternate therapy like Sujok, accupuncture, ayurveda head massage, breathing exercises to help remove brain fog. Do this in conjunction with your neurologist or epileptologist prescribed AEDs please.
@@rameshnarayanan2276 thank you for sharing this information and you are right, always talk to your doctor before doing anything. I have had headache therapy massage to alleviate my headaches as well as meditation and yoga. They have helped reduce my brain fog a lot. It is so important to find what works best for you for you to have a good quality of life.
My advice after 30 years of epilepsy, is to always do your research on medication. Just because a doctor prescribes you a drug, it dosent mean they are good at their job and have given you the correct one. Join in with epilepsy action, the advice and support can really help. Take daily multivitamins to help recover from your seizures, we lose these vitamins as we age, so it’s important to boost them, especially after a seizure. Now, doctors don’t tell you this, but a seizure is like a concussion on your brain everytime, varying in strength of course. If you are lethargic or have brain fog after a seizure, this is why. You don’t need to smoke, do illegal drugs, drink alcohol or caffeine, or eat processed meats anymore. You need healthy foods that can promote and support brain health and the bodies recovery from a seizure. No more fast food, exercise more and stay healthy. Doctors can be intimidating, but don’t be afraid to question their decisions they make. It’s your body, your life. Take care. 👍
My name is lachelle have a seizure epilepsy
Very nice to meet you Lachelle. I have had epilepsy for 42 years now.
Why do seizures leave me with no taste on my tongue? And i spit alot
I'm not a physician so I cannot diagnose. I found an article in Science Direct that explains the changes in the brain resulting in loss of taste. Here is the link: www.sciencedirect.com/science/article/pii/S1059131119307034. When it comes to spitting, I found a brief description in Neurology. They state ictal spitting can last 10-25 seconds and is an automatic behavior such as lip smacking. Both symptoms are tied to temporal lobe epilepsy. The one with spitting is connected to the mesial temporal lobe. Here is the link for you: n.neurology.org/epearls/20160119. We created a new temporal lobe epilepsy video this year and it explains in detail the substructures of the temporal lobe. Watching that may be beneficial for you so you can get more of an idea of the function and complexity of the temporal lobe. If you have any other questions, please let me know, I'm happy to help.
The link doesn’t work. My daughter will spit I’m very curious on this read. Tia
also vitamin d is essential for epilepsy patients
That is so true! When I put this presentation together, I was following what Harvard Health suggested, and looking at the research I reviewed, I'm surprised that they didn't list Vitamin D or Vitamin D3. I found an article that stated in the beginning that there is not much data on the benefits of Vitamin D3 and epilepsy, but they are working to establish it. Here is the link for the article if you are interested: doi.org/10.3389%2Ffneur.2016.00218. Thank you so much for your comment!
@@DefeatingEpilepsyFoundation thank alot for your work
What is the link between AED and lower levels of vitamin D3. My son 17 years old is having 8.5ng/ml of D3 when expected levels are between 30 to 100ng/ml
Vitamin K2 and Vitamin D3
Both are great vitamins! I take calcium and Vitamin D3 to help keep up my bone density and vitamin D3 for reducing depression. Another great way to get Vitamin D is to go outside and enjoy the sun. I go out and do yoga and it has helped my mental health so much.
Take K2 with your Vit D@@DefeatingEpilepsyFoundation
What type of magnesium to take for seizures.🙏🇺🇸🦅🇲🇺🦤
I would ask your doctor if there is a specific amount they would like you to take. I take 200mg daily (2 100mg capsules) and I buy them through Amazon. Magnesium is good because it reduces headaches.
Magnesium Threonate is the only version that is capable of passing thru the blood-brain barrier.
@@sanmarzano
True but Magnesium Glycinate is by far the most absorbed type of magnesium.
Our family physican and Epileptologist prefer Magnesium Glycinate as well.