I'm BLIND... What Can I See?
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- Опубликовано: 23 фев 2021
- I'm sure you have been wondering what I can see. It's probably the question I get asked most. In this video, I do my best to explain what I see best. I've been legally blind my entire life, but my vision deteriorated in my pre-teens to the point I'm now considered functionally and medically blind. Without living in my brain, I'm not sure anyone will understand what I'm trying to explain as It's pretty confusing for me, and I live with my vision every day. Sometimes it's nothing, sometimes it's bright, sometimes I do get shadows or movement. But it's so dependent on so many factors I couldn't guess one moment to the next what I will and won't be able to see.
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Thumbnail Description: Tamara points at her eyes as she smiles slightly. She is standing in front of a wash of pastel colours in the background. White text on the left reads: I'm Blind What Can I See?
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This video is so detailed, I really learned a lot
I’m glad you enjoyed it. It was a strange one to try to describe. Vision is so insanely complex. I hope It made sense. What has been your experience with blindness (if you don’t mind me asking)?
@@UnsightlyOpinions as far as I know, mine has been very simple, earlier in my years, people who didn’t understand used to ask me what I could see, some held their hands in front of me and asked me if I can see their hand, you know, things like that other than that, I would get the occasional stairs because I could feel them looking but I didn’t let that bother me as some people would have, that’s all
Hi, Nice to see that you have surpassed your srecent ubscription goal!
It’s amazing how fast things have been growing. Leaps and bounds! I’ve got something really fun planned for the big 500 😉
You did a great job of explaining vision loss. I have retinitis pigmentosa, and could totally identify with so much that you said. Thanks for putting forth this video. It gave me great perspective as well as the words needed to express what I am unable to see. Thanks a bunch.
It can be so complicated explaining vision loss. I'm glad I could help you find words to express what you see. :)
Hello Tamara. I too am legally blind. My visual condition is technically optic atrophy secondary to neurofibromatosis. Basically, I was born with a growth in my head that put pressure on the optic nerves/redness. Said growth damaged my retinas causing scar tissue. Said growth has since drastically decreased in size, however I am still left with the visual condition. My vision has been somewhat stable throughout my life. However, as I am now in my early 40s, I am finding that my vision is starting to fall off considerably. However, I am still able to largely navigate independently without a king. I was told when I was younger that I was a good liar because I could navigate so well without a cane and visibly seem as though I had good vision. I learned ways to kind of work around my visual impairment as you said. Great video. Keep up the great videos.
Thanks Leonard. I’ve heard similar things from a lot of VI folks who have had vision loss from early on. It’s amazing his you can accommodate for vision loss and “fool” the sighted folks into thinking we are more than we do.
You are an inspiration! I wish when I was younger we had RUclips and a way to connect with others with the same conditions. My sister and I both have the same diagnosis as you. For us finding an ophthalmologist willing to work with us to find our best corrected vision was so important. We had Dr’s Tell us they would not offer corrected lenses, “go to a low vision clinic and get on with your life.” My corrected vision is 20/40 in one eye and 20/60 in the other. Without glasses…l the big E is as far as I go. I am blessed enough to be fully independent. I use magnifiers. Thank goodness for the technology we have today. I love the Kindle app for book reading. I grew up with the only option in school were the huge books with large print, that were so embarrassing to use. You are a great inspiration for young people and parents of children with albinism that they can lead a productive full life.
that really hurt me .... you are so sweet ,,, you have the most beautiful eyes ive ever seen , i really wish you a good life .
Thanks for answering my question in such great detail !
I’m glad you enjoyed it. Vision is so complex and hard to explain. Haha it was a tough one to try to get right but I think I was able to get a sense across. I wish I could get people living in my brain sometimes to see what I can see. :)
Thank you for all the details. Got lot of info. Vy the way i have retinitis pigmentosa
Glad you enjoyed it! RP is an interesting disease. Everyone o know seems to have a very different experience with it.
Hi Tamara, I slso have Albinism, i wasnt given much information growing up or when i lost modt of my vision in my left eye a decade ago, in fact. Its only been since watching some of your vodeos that i have been paying attention and to be honest, i think i need a new eye test becsuse everything uou said made sense. I actually found myself purposely looking to see if i have peripheral vision - nope, my brsin has obviously been playing tricks on me, and tge floaters? I thought they were down to the light. You have been incredibly inspirationsl to me and I will definately continue wstching.
I’ve never had an experience where I could see floaters, but if you feel your eyesight is failing or chainring always for the best to go see the ophthalmologist again. Wishing you well. 💜
Hello, Tamara. I'm a sighted subscriber, and glad I found your channel. This particular video popped up on my feed today, so I took time to watch it. I thought you did a very good job of verbalizing how and what you see, and your explanation of why was very informative. I think back over the relationships I've had with VI friends and while they were, I think, positive for us both, I'm realizing how much richer they might have been had I been less shy about learning about the things you talk about on your channel and allowing them to teach me things that would both inform me and be a benefit to them. You do an excellent job of bridging the gap for both your VI subscribers and us sighted ones. Thanks.
Thank you Claudia! You made my day. :) I'm sure any blind/VI person was all the richer to have you in their life. We all talk about what we need at different points, so if it didn't come up, I'm sure you were doing just fine.
Your video is so inspiring!! I really enjoy listening and gaining your perspective of the world. You made me feel very grateful for what people normally take for granted ❤️ Sending a lot of love from London
Thank you so much! That is incredibly thoughtful and kind of you to say. It was always my hope that I can help people explore new possibilities and ideas. :) How are things in London? It’s been quite a while since I’ve visited with the pandemic and all. But I love London! Awesome transport and so many possibilities of things to try. I can’t wait to go back when it’s safe again.
@@UnsightlyOpinions London is under lockdown until April! It's been difficult but it'll get better once we can go out again. London will always welcome you back!!! 😇
Very interesting! Thank you 😊
I’m glad you enjoyed it! 😀
Im so grateful I met you. You give out excellent information.
Thank you! I'm so glad you find it helpful. :)
I also have albinism but I think my eyesight is some better then yours..... I often have work outside I have to read small print ( I use my phone for that) work on solidworksand and pro nest with magnifier on windows 10 I started welding I can do a beautifull job but not In many positions I cant do upside down (never really tried doing upside down) been working with steel for going on 7 years and I love it the 1st 5 I did all the precast steel and now I work for a steel company do all the table plasma cutting (that was hard for me to learn ) opperate the band saw and a press and a sheer.... so yeah my eyes always get exercise also my sister she always works in the garden she puts on some sunglasses and a hat with a wide brim and she loves it.. hardly gets sun burned always wares sunblock.... she does baking cooking and she loves she has a beautiful voice ( honestly the best voice I ever heard ) ( she got that from my old man) who also has albinism he's been working with Hoge the past 4
30 years and a part time painter (like makes sure there's always paint flowing ) and my mom her dad also had albinism he worked with chickens for about 40-50 years and a peddler on the side when we were kids he spoiled the heck out of us 🙂
Fascinating. Great combo of facts and personal experience and very clear
Thank you!
Very informative. Thank you!
Glad you enjoyed it!
The channel subscription link in your video description has an extra space bar between the channel link, and the subscription element part starting with a question mark ?. I hope you can hear this and get it amended 😇
Thanks for letting me know! I’ll get right on fixing that!
very interesting, thank you for sharing
So glad you enjoyed it. It’s a bit of a complicated thing to explain. :)
Hi. I've just subscribed to your fascinating channel like, a day ago. My twin brother and I are both legally blind without our glasses. I'm not sure exactly what his current vision is, but mine is 20/400 without my glasses. With my glasses, my eyes are 20/20. All I know is his vision is a little bit worse. I don't know why. And we can both drive.
Hi, I'm also albino. So glad to find this channel
So glad to have another PWA as a part of the Unsightly crew. 💜
I am also an albino and experience the same blur vision but at the age of 44 my vision become worse i can no longer settings clearly even doctors don't know what's happening to my eyes
I've heard similar things from other PWA who have had stable vision all of their lives. I have a friend who is about 40 going through the same thing. I hope they can figure out what's going on for you. :)
Morning my friend
Morning Ricky. Glad you stopped by :)
@@UnsightlyOpinions I'm always around
Hi I can’t get a license to drive as I have no depth persecution, no perffial vision. Everything is double when I look to the side the objects I see overlap each other. I see roads , sidewalks overlapping each other. I’ve had 3 surgeries I have double vision all the time. I have a right eye turns inward, when I was a child and still to this very day my left eye wonders outward and up. I have strabismus the surgeon can’t fix, at times I have to wear an eye patch. My glasses help abit so when I look straight ahead the double vision is gone for afew seconds. Glasses, prisms in them don’t fix my eyes. I enlarge everything use a magnifying glass. I would look at my school work the words are on top of each other. At school I’d be close to the board I couldn’t do the school work. I have difficulty with everything and it’s very frustrating. I only wear the patch at home, I also had to wear it as a child but kept taking it off. I was 4 years old at the time. The letters get blurry I also have toptic nerve damage from the surgeries and developed catracts in my early 30s. If I look a head with out glasses and with glasses too everything is double. If I wear glasses to much and not the patch every so often my left eye moves more to the left.😢 my eyes don’t work together at the same time. I wear thick glasses and my glasses are very heavy and very thick on the sides of my lenses. Faces get blurry, computer gets blurry, I can’t find my things sometimes for days, months, I have trouble with cracks in the sidewalk, getting on and of a bus. I have just been taking training with my mobility orentation specialist to train me how to use the cane properly. I can now walk without always looking down on the ground when I walk. The cane tells people I
I have had many falls on stairs, running into people. I knew I needed help so my mobility cane helps a lot. I don’t fall flat on my face anymore. Thanks for listening.
That sounds like a lot of stuff that's going on. I hope you can get some support to help accommodate all of those challenges. If you ever want support or have specific questions form an experienced blind gal, always ask away! I'm here to help if I can. :)
Is it some sort of autoimmune reaction causing the optic nerve to atrophy? I'm just curious why it happens.
There are quite a few reasons that can cause an optic nerve to atrophy. At the moment my doctors think it has to do with a genetic mutation. Although auto immune reactions, illnesses, and other things can cause it as well.
@@UnsightlyOpinions
This is unrelated but I drew a character that's albino as well. I titled it Being Emma and she's got two friends with her as well, haha.
Many thanks for your inspiration! 😄
Tamara yu are really nice yu are much beautiful love from Pakistan ♥️
you are so beautiful
Dear I like your videos but my English language is not very good place type in Urdu language in your videos please 🥺
I would love to, but unfortunately I don't have the funds at the moment to translate my videos. I will definitely keep this in mind for the future. Wishing you the best!