thank you, i'm very glad to hear this news. Btw, me and my brother have haemophilliac B severe and we very tired of these disease meanwhile in Indonesia we still blood transfusion as a main therapy.
guys u dont need to wait for gene therapy i am also severe haemophilia A and i almost never bleed . only bleed if there is a severe joint injury that too very rarely . Mainly due to exercise and weight training. The more muscle you have the lesses bleeds you will face . Trust me.
Guys, I'm a 29 year old with hemophilia type B. They have been saying this to me since i was 13. "Oh we are 4 years out, 6 years, 5 years." I don't think I will see the cure in my lifetime.
Andrew I too have hemophilia and was told promising information years ago and now when I do my Yearly Htc appointments I’m having to fish for information on this..... sucks brutha
I have hemophilia B, too. When I looked up the price tag for this gene therapy, it said $3.5M for one dose. So I don't know how anyone could afford it. Not exactly pocket change.
IAM hemophilia and iam Bangladeshi I suffering hemophilia factor eight . Where are country give permanent treatment gene therapy full well hemophilia freedom please tell me about hemophilia factor eight treatment
This surgeon saved my life in 2003, although not from hemophilia. He removed a stage 4 neuroblastoma tumor from me!
I'm so happy we are getting close I can't wight to get rid of my hemophilia
Sean Doyle hemo b or a? i got hemo b severe
thank you, i'm very glad to hear this news. Btw, me and my brother have haemophilliac B severe and we very tired of these disease meanwhile in Indonesia we still blood transfusion as a main therapy.
glad to see researches being done on haemophilia cure... hope we get this therapy would be made available to the patient's very soon..
Today's 2023 what about it 😞
It's been six years since this video... How much more time will it take to become public??
guys u dont need to wait for gene therapy i am also severe haemophilia A and i almost never bleed . only bleed if there is a severe joint injury that too very rarely . Mainly due to exercise and weight training. The more muscle you have the lesses bleeds you will face . Trust me.
Yes brother you are absolutely right. I've very much reduced it with exercise and Gym.
Add videos in for treatment of hemophilia and gene treatment.
Thank you for this promising information..please keep at it to find a cure!
All of you have done very good. Contaniel Smith
Guys, I'm a 29 year old with hemophilia type B. They have been saying this to me since i was 13. "Oh we are 4 years out, 6 years, 5 years." I don't think I will see the cure in my lifetime.
Andrew I too have hemophilia and was told promising information years ago and now when I do my Yearly Htc appointments I’m having to fish for information on this..... sucks brutha
I have hemophilia B, too. When I looked up the price tag for this gene therapy, it said $3.5M for one dose. So I don't know how anyone could afford it. Not exactly pocket change.
IAM hemophilia and iam Bangladeshi I suffering hemophilia factor eight . Where are country give permanent treatment gene therapy full well hemophilia freedom please tell me about hemophilia factor eight treatment
I know you guys are trying hard, but just come on, hurry up
I just wanted to mention: 7 years have pasted.
I'm a patient of haemophilia b sir u talk about haemophilia b is suitable for gene therapy I want
WE GET ATTENTION YEET i got hemo b severe