my rare diagnosis story: superior mesenteric artery syndrome
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- Опубликовано: 1 апр 2020
- For this video I sat down and talked to you all about my most recent diagnosis: SMA - Superior mesenteric artery syndrome. In this video I talk about how I got diagnosed, my symptoms, experience, story, etc. #SMAS #chronicillness
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I’m 15 years old and I was actually diagnosed with this yesterday and came across your video researching it. I want to thank you for some of the advice you gave and it really makes me feel good to know I’m not the only one! Can’t wait to see the amazing things you will continue to do!
@sam smith a question: did you get the surgery?
Read my comment pls
You are so sweet and kind thank you so much!!
You are so strong, having to wait out the pain must be so excruciating to deal with. I can’t imagine getting used to that kind of eating lifestyle either. On a positive note I’m glad you are bringing a sense of comfort and awareness to people that have the same diagnosis. You truly are strong . Thank you for sharing. Know that we wish nothing but happiness and comfort for you!! ❣️❣️
You are so kind! Thank you so much!! 😭💕 same to you! Stay healthy! 💕✨
I've been fighting for 7 years now sometimes I just wanna give up but sometimes it' does get easier hang in there everybody glad to see your story stay healthy
Read my comment pleasev
I’m so glad I’m not alone, I just got diagnosed a week ago.
My prayers are with you, God Bless!🙏
Thank you so so so much for doing this video. This helps me understand my 13 yr old diagnosis more.
my child just got diagnosed with this through the ER. She had intense vomiting and couldn't keep anything down. If anyone thinks they have this, please get a CT scan done thats how i found out my child had this.
I like most people here just found out i have this as well thank you so much for your information
I feel your pain girl been living with sma for over half my life. You are the first person with it that has the spasms I have them also they are the worst pain ever.
It’s so tough the spasms hurt so dang bad, sending you so so much love! ❤️ I’m so glad you were able to find my channel and hopefully some comfort in knowing your not alone! Xoxo
Thanks for sharing my Sister has the same problem.
Very interesting case.
Bless you
You are amazing ! 🙏🏼❤️
Thank youu ❤️❤️
I’m so glad you’ve gotten a diagnosis. My ‘episodes’ have been happening since I was like 8 and I’m still yet to get a diagnosis at 22 🙄
If you are constantly having vomiting and cant keep anything down go to ER asap, tell them to do a CT scan. That's how I found out my daughter had it. Good luck to you
wow your so strong.
I was just diagnosed with this today. I have become 95 pounds from this because I cant keep my food down. my mom and my sister have to help me walk sometimes because I'm so underweight. I have to stay in the hospital for a few days to be fed through a tube to gain some weight before treatment. And yes the spasms are the worst. Thanks for sharing your experience. I'm glad I'm not alone in this.
I pray you’ve gotten a vascular surgeon and had surgery to correct the problem. I’m 5’9, dropped 80 pounds down to 100 pounds right before surgery. I’m 3 months out from surgery and finally got my life back. Suffered for 2 years. Unfortunately you most likely won’t gain weight because your blockage is not letting your body absorb fat. This is why you’ve lost so much weight
@@lauraw3338 sorry i had a question: how did you get diagnosed?
@@lauraw3338 Hey there. What kind of surgery did you get? Thanks!
Read my comment please
I must have SMA, I have every symptom... Thank you for the vid!
A CT scan is needed for you to be diagnosed. Good luck to you🙏🏼🙏🏼🙏🏼
Had the duodenojejunostomy just before Covid. Still underweight. Still have the accompanied Nutcracker phenomenon. Surgery helped, but isn't a cure. Best wishes to you ❤
Please read my comment
It took my doctors over 10 years to finally diagnose me with SMAS. It started to get better for about 6 months but has just started getting worse again the past 2 months. This video is the first explanation that I feel I can share With others to help explain my pain. You are going to get through this!! Hope you’re doing well 💛
Omg yes! Those are my exact thoughts watching this!
Please read my comment
Fellow warrior here. 10 years strong.
Just diagnosed today,, thanks for info
Please read my comment
I am 16/15 and was diagnosed with this a few days ago...i have feelings of vomiting but i always prevent it..and i can't eat much food...can't sleep well during the night...don't have the feeling of walking or something (ate too less food, not enough nutrition) and the doctors are still finding out what's going on and the solution of it...hope the others out there with SMAS..you can do this!we can fight over this!!💪💗💗
@hui ling sorry, how did you get diagnosed?
Please read my comment
Thankyou for explaininh
I started realizing symptoms of sma about 6 months ago. I went to so many doctors to get diagnosed and most said it was acid reflux and told me to cut out almost everything in my diet which was already healthy... so i did... i lost about 15 lbs putting me at 90lbs. everyone said sma wasn’t why i was sick but the radiologist said it was so i was so confused and in so much pain. smoking weed every day to cope with living in such pain. some doctors thought it was solely my gallbladder when i was complaining of upper right abdominal pain. so after many appointments of no one listening to me etc i had a gallbladder surgery scheduled...then i got into a car accident which i’m lucky to be alive from. the car rolled 6 times in iowa at 70mph. keep that in mind. then my gallbladder surgery got cancelled because i got covid... i had it rescheduled again. it got canceled again because they re- covid tested me again within less than 3 months of my positive, first test. it had turned out the car accident i had been in a month prior broke my 5th and 6th ribs. it was not my gallbladder. nothing was wrong with my gallbladder but they STILL SCHEDULED A SURGERY TO REMOVE IT. The doctors i seen immediately after the car accident did not even xray my head, chest, anything nor my boyfriends who was with me in the crash. only my thumb because i complained of pain there. mind you, THE CAR FLIPPED 6 TIMES. anyway. when we realized it wasn’t the gallbladder after going to the er the DAY THE SURGERY WAS SCHEDULED because i was throwing up everything i ate that day, we were so confused because at that point all i wanted was a diagnosis and i honestly started to think it was in my head. i got told to stop smoking weed which was medical through a dispensary and everything not off of the streets because the doctor really thought weed was doing it... lol yea right. A couple months later after deciding to take matters into my own hands and smoking so much and just forcing myself to eat, i gained about 10 lbs on my own! not everyone is lucky enough to be able to do that so i am so thankful ! i got officially diagnosed 3 days ago in chicago. it took so much to get a diagnosis and i would never wish this kind of pain on anyone. thank you to anyone taking the time to understand this awful condition:( i hope this raises awareness!! thats my story!
Dear Carley, how are you doing right now? Did you undergo any surgery? Best wishes.
Thank you for sharing your story, please read my comment
I just had this surgery...
Had gallbladder surgery over 10 yrs ago...just made it much worse overall. Im in a tiny town, drs kept telling me "tests good, ur fine" as i slowly went from 180 lbs to 150. Last 2 yrs got very extreme, finally went to ER far away and was diagnosed, i was 118 lbs as a 6'1" man...I nearly starved to death. Worst of all, when it got so bad i asked for help with the pain and was labeled a drug addict, so i never got ANYTHING as treatment. Ive been in hosp. many times in last 5 years w pancreatitis, and life has been living torment 24/7
Had surgery 2 months ago, its definitely better than before, but its far from normal. At least i can eat now without throwing it right back up, but the surgery is very difficult recovery, especially when youre already malnourished. Still having bad pain and bowel issues, but they are less frequent vs continuous pain b4 it was done. Hang in there, ill be praying for you.
I see this is an older video, but if by chance you didnt have the surgery but still may need it, by all means ask me any questions about it if thats the case. Hopefully by now you have recovered fully!
I have SMAS, and CVS, as well. My angle is 10%. I feel ya, completely. I'm actually in hospital, right now. Im down to 84 lbs. I was diagnosed 20 years ago but it started acting up really badly, last November and I haven't been able to keep weight on. Tomorrow I get a J-Tube for feeding. Prayers
How are you doing now? I just got diagnosed today and while happy to finally have a diagnosis, I’m pretty nervous.
@@ronnystoepel4589 I am still struggling with my weight. I got a GJ feeding tube and was using the J port. I had my feeding tube for 4 months. I did start gaining weight but my CVS kept acting up , which causes me to vomit. I had to end up getting my tube taken out because I literally would throw it up. They replaced it two times but said they wouldn't continue replacing it, if I kept throwing it up, so I just had them take it out.
Please read my comment ❤️💫
i was diagnosed with smas recently and have a complex case that can't be fixed. i am about 84 pounds now and in excruciating pain every day. nothing i do seems to help with the pain. sometimes not even opioids. thank you for making this video and bringing awareness to this horrible disease.
Hello how much weight you lost?
Mandy I don’t know where you live but I’m in Virginia. I had my mesenteric artery and arteries that feed into my intestines repaired. Yes it’s a hard surgery but my abdomen was a mess and I needed major bypass surgery where I was hospitalized for 8 days. I lost 80 pounds and suffered for 2 years. This diagnosis can kill you if you don’t have the surgery. I’d be more than willing to explain more to you if you’re interested. As you know this is a miserable illness and won’t heal on its own. I’m 5’9 and dropped to 100 pounds. The young lady in this video is not correct when she said there is no guarantee the surgery will work. The removal of the gallbladder does not cause this illness. She is incorrect she’s also incorrect thinking this illness will heal on its on. Forget the GI doctor at this stage. My Bypass surgery was a huge success and I’m 2 months out since my surgery. I actually had my first ultrasound since surgery today making sure all blood arteries and mesenteric artery are working properly. I’ve also gained 15 pounds for the first time in 2 years. I’m a product of genetics. I must say having the surgery saved my life and I feel like a normal person again. No pain, I never thought the pain would go away. Thank God it did. She desperately needs to see a Vascular Surgeon. I pray she has gotten her illness fixed.🙏🏼🙏🏼🙏🏼
@@lauraw3338 i am so happy to hear you are still here and doing well.❤ i am waiting for a surgeon to get back with me actually. who did you see?
@@maddyfaith3106 - My Vascular Surgeon was Dr. Dourgas at Jefferson Surgical Center in Roanoke, VA. He specializes SMAS. He’s amazing and extremely nice. Praying for you because I know this is hard.🙏🏼
Yeah, have SMAS. At least it hasn’t affected me really bad lately. When I was in Basic Training for the Army, I found out I had it. Pains were really painful, and went to the hospital a few times. Eventually I was rushed to the hospital, had my stomach emptied. Was watched for eight days, then I went back to my company. It was hard after, because the military doctors did not know what I needed, they just wanted to get me out of there. I talked to the Drill Sargents and 30 minutes to eat my food, and could eat it at my own pace. Still had painful days, but I toke medication and made it a little easier. I just recently been checked, and my intestine is narrower in that area still, but it no where near as bad as it was when I was in Basic Training. Also found out I had a bacteria in my stomach that causes ulcers, so I am being treated for that. Today I had my CT scan to see how bad my SMAS looks. Looking forward to the appointment where I learn how well I am doing, because being in the dark sucks.
I was planning to Join the Navy, and I started with this pathology :( Did you got better without the surgery?
@@raulhenaine6111 still struggling. Doctor is really pushing surgery
@@tiffanyplacencia2296 sorry Tiffany i ask this to you. So is CT a good way to diagnose SMA syndrome? And has the surgery helped you?
@@raulhenaine6111 right now, do not have any signs. I am now seeing another doctor, who is listening to me. Right now I have more of signs of IBS-C then I have of SMAS.
@@mike0133 CT Scan is a good way to diagnose it. Have not had the fallow up CT Scan to see if I still have it, but sure it will be coming here shortly. Just got new doctor.
Have not had any surgery, doctor pushed it, but that doctor made many questionable decisions. Those decisions made things worse on me, not better. Now I have new doctor that is listening to me, and I have gotten a lot better.
I would find a good doctor that is listening to you, and discus with him the best course of actions for you.
Way I got better is not usual for most with SMAS, because I was one of the few who can eat solids and keep it down, just had to watch portions and what I ate. It is not something I would recommend for many with SMAS.
I'm so sorry you suffer from this sweetie I feel your pain. I mean I literally feel exactly what you have described I even cried after watching your video because for going on 3 years now I've been suffering with this my GI doctor gave me a mesenteric dopplar ultrasound and told me I had 70 percent occlusion and sent me to vascular surgeon. I also had a CT scan done so when I went to see the surgeon she said she didn't see what ultrasound saw and basically laughed and told me I can't have it because I am too young I'm 49 and I should be greatful I don't have it. So another year has gone by in horrific excruciating pain after I eat anything it can be soup,salad,literally anything after a few bites of food I'm lucky to get 3 bites of anything now. My question to you is does your pulse race while this is happening? I feel as though I have a pulse beating in the place where you described your spasms and I also feel it racing so hard and fast in my veins in my neck and head it's horrible I feel like I'm going to have a heart attack or stroke pulse is always high over 130 when I'm having another episode which happens every single day.
fellow SMAS warrior here! i hope you're doing good :)
Read my comment please
@@kaynic0 which one, exactly?
@@sagaandjeremiah589 I just almost died 3 weeks ago from this
@@sagaandjeremiah589 I had the worst case my doctors have seen of a still living person
@@sagaandjeremiah589 we didn’t catch it until I was in full organ failure and 85 lbs
When I was first diagnosed with this my doctor told me that laying on your stomach helps to keep the angle open and I would try be treated with an NJ(nasojejunal tube) to help get the fat pad up that's what did for me 3 times when I younger and I haven't had to have the surgery I was try to avoid this surgery to. But I get spasms like you explained and then my cyclic vomiting acts up.
Please please read my comment 💫❤️
Why are you not on tpn and a picc line?? It prevents the nausea and vomiting, and keeps all your nutrients up!! And will help you gain the fatty tissue ball! I’m on my second one. I’m getting ready to do the surgery soon and really scared! I’ve had a lot worse symptoms. An upper gi and endoscopy will give more answers. Also you can lose blood flow in small intestines. I have no large intestines so we are really in a dangerous area!! Good luck to you love!!!
Im 17 and got diagnosed 1 year ago after getting pancreatitis dues to blockage cause by my angle being so small (my angle is about 7 degrees). My main problem is that the doctors who were supervising me didnt believe that sma existed. Now ive finally got a vascular surgeon to look at me and ive got my second nj tube run starting in a week in prep for bypass surgery in a couple months
Please read my comment
I m not alone
I have SMA syndrome also. I have had three tumors previous and after my lumpectomy I lost 40 lbs. I was having pain before that though and was seeing a GI. My oncologist actually was the one to diagnose me and send me to a vascular surgeon. I’m currently on TPN and have a feeding tube which I cannot use so I don’t recommend a feeding tube I have a g and j tube they suck. Anyways I’m waiting to get to 110 pounds to do my surgery
Please read my comment !
Fresh out of surgery. I finally got a new functioning tummy after 10 years of getting the shit kicked out of me by sma ❤️
What is the name of the surgery you had? Do you feel better now?
Please read my comment
Hi I'm 46 Im in the hospital right now for the same thing you have and I don't know anything about it because I'm still waiting for the doctor to see me but they keeping me here ...
My 14 year old has SMA syndrome, she has a TPT feeding tube just got out of hospital for 8 days.
I've been suffering with these symptoms for over 5 years and no gastrointestinal doctor can figure it out. I've lost so much weight and can't gain either.
I'm curious if you've had the surgery? Interested in the types of surgical options, I've heard that there is a laparoscopic option (not high risk). Still doing research on this.
Do you have SMA syndrome?
I was diagnosed year ago, I was 6 months on TPN, but then my insurance didnt allow to have it anymore. I'm 1 month without TPN and lost already 7 kilos. Now I have 42kilograms on 170cm. No doctor want me treat anymore. So they letting me die. I have around 1-2months maybe. Sending love from Slovakia. Hopefully more smas warrior will have luck. Bye
I was in a car wreck and hurt my liver and while they were looking at that they stumbled across mine and two months later diagnosed me🙃
Hello I just got diagnosed a month ago my symptoms are some times very bad and sometimes it gets better I don’t vomit that much but I feel the food comes back to my throat I also have a pressure in my chest the same way you described it
and a heartburn most of the time
I’m currently trying to gain weight if I couldn’t I’ll have my surgery within a month sending you all love
I also have the same situation as you trying to gain weight if not then the doctors will do surgery
my 19yr old daughter was diagnosed with this. However she has lost a significant amount of weight and I can see how this has made it worse to the point she is in the hospital on a feeding tube.
Please read my comment 👩🏼🦽❤️
I’m going on year 3 of TPN to help me stay at a healthy place bc of my SMAS and Gastroparesis! Sorry your daughter is dealing with it as well, sending you all lots of love! ❤️
Just got diagnosed with this. I vomit all the time I have a nausea patch and have my major surgery Sept 13
I live in fear of eating now. I'm so terrified to eat because of this pain. How could the mesenteric dopplar ultrasound show that there's a blockage but CT scan doesn't? I called my GI doctor and begged him to help me and asked if I could possibly be sent to another vascular surgeon for a second opinion. My GI doctor is putting in a referral to repeat the mesenteric dopplar ultrasound this Fri. What test did you have done to get your diagnosis? I desperately need help because heart specialist say my heart is fine and that there has to be an underlining issue because it's not my heart. Also I've had test after test my stomach endoscopies colonoscopies and countless procedures and surgeries to try to alleviate the pain but nothing has helped and no one can say why I'm suffering.
SMAS patients a nausea patch for the ones who vomit everyday it helps so much
Which medicines do you take for this?
I am suffer 3 years for sma syndrome and my weight is not gaine can i used supplement poweder
Hi I was diagnosed with this about three months ago and I needed a feeding tube (and I couldn't eat or drink anything)to gain weight and since then I've gained 18 lbs which has helped me a lot and my doctor is confident that it will resolve itself as I gain more weight and one day I'll be able to eat again. Did your doctor mention anything about feeding tubes or the need to gain weight??
Yeah I also heard about it
I have the SMAS and my doctor says that if I came later I was going to put the feeding tube and now I can't eat anything so I'm feeding on something that's called "ensure" it's like the milk somehow , but I can't eat anything specially the solid things
And the reason of giving me the ensure is because I need to gain weight
Please read my comment ❤️👩🏼🦽
how are you doing now?
Does this condition make your stomach gurgle like crazy?
I might need a feeding toub
Just vomiting bile and food no other symptoms Reflux no pain ct Abdomen NJ Tube for 6 months no Change 😔 Serious Problem
Dear Madam, what are the typical symptoms you had? my 5yrs kid have abdominal cramping followed by bloating for 3 months after she joining kg school. The Dr suggested SMAS through US visualization. But I expect the problem is associated with habit change of toilet by new environment of schools.
I’m 12 and 60 bounds and very short
Do u do the surgery
I have SMA syndrome
How do you get the doctors to listen to you?? I have done everything they asked me to do shownt x Ray's ultra sounds everything I stay in pain and still not help
CT scan with contrast will diagnose
I found out yesterday that I have SMA I’m very scared😢
Have you done any exam to diagnose SMAS or it was just guessing by the doctor?
Exam, they did several CT scans to look at the angle of the compression which showed SMAS multiple times
I think I have a mild case of this. 18 months ago, I did this very strenuous feat of strength. The day after, I had to drive to Napa from L.A. and back. I got this pain right under my rib cage to my left. I thought I had to use the bathroom, so I stopped. I DIDN'T have to use the bathroom. For the next several weeks, it hurt really bad. I always felt nauseous but never got sick, but I always felt like I could be at any time. I finally went to the doc. Based on what I said, he said, "Oh, you have Diverticulitis." He put me on cipro and flagl for ten days and I lost 35 pounds. Went for a colonoscopy and they did not find ANY diverticulitis. Then they did an ultrasound. Said my gallbladder needs to come out. I said, "Nope" and got a 2nd opinion. THEY said I did not need my gallbladder out. Ok, so what is it? They said it was IBS-C or something and put me on Dicyclomine. It has done nothing for me. I still have the pain, I still have the nausea. When I searched for "abdominals hurt when I sit", I found this. I'm fine when I lay down and I'm fine when I'm standing up. When I sit for leisure or when driving, it hurts and I worry that I'm going to be sick. I hope you get yours sorta out
Me too! It hurts when I sit right under my sternum and across my chest where my bra goes. I can’t even wear one. Went to ER Friday but they found nothing. Reached out to all my team of docs.
@@juliethomas2963 Same. Nothing (minus the bra part). My GI said, "We're not going down this rabbit-hole" when I said I found this on RUclips. I guess I'll just have to live with it
@@juliethomas2963 Yep. We can find nothing. My GI doc says that we're not going to go down that rabbit hole. I asked for a referral for acupuncture
That sounds like MALS pain instead of SMAS 🦄
We're you able to put weight on. I'm having a difficult time with this
I was on TPN for a little over 2 years and that had me at a healthy w which gave me some relief for that time. During early months of year 3 I became intolerant to the tpn & dropped w rapidly and haven’t been able to gain much more back, still struggling w that right now. I just got my j tube to bypass my stomach (gastroparesis) so hopefully my feeds will be able to increase enough, to get me back to a stable place but I’m definitely struggling w that right now as well 💚
Hi...i saw ur youtube channel cause i was looking up sma syndrome, my girl friend has it and i just want to understand and help her as best i can. Her stomach keeps flareing up the doctors dont care they just give her meds and we are in the hospital 2 times a month and sometimes for months at a time. We just want a better quality of life or at least a month out of the hospital. Any help would help thank you, and god bless you ur story gave us alot of good information and most of all hope. Please contact me if u can help
Hi! I was diagnosed with SMA syndrome recently as well! Thankfully I don’t vomit but whenever I eat there would be a pressure in the exact same area you pointed to that will cause me to be breathless. It will gradually subside after within 30min to 1 hour if I lean to my side... Even after that my stomach will feel "heavy" and somehow crampy? However, some days my symptoms are better than the other and some days they are bad and thus I am so confused on how do I know when I am getting better 😂😂😂😂
Oh! I'm currently trying to gain weight to increase the fat pad.
@J LHS how did you get diagnosed?
@@mike0133 CTA scan, with UGI series as a
supporting test
@@jersabellelim5174 thank you. I have done it and i am waiting the results. Is so stressful to wait when you are suffering.
same here my doctors say i need to increase the fat pad too and gain weight, how are you now?
@@nxbun7959 Hey! I gained back 10kg with NJ, but my angle increased only by around 5 degree? It depends person to person though, so it may help for you. I found out that I may not have SMAS too since my distance is at the cut off point of 7.8mm. I have MALS. I'm so sorry you have SMAS though.. How narrow is your aorto-mesenteric distance?
How is this diagnosed ??? Endoscopy or CT scan ??
CT
But even and endoscopy could find a strict duodenum.
CT angiogram, MR angiogram, functional color Doppler ultrasound with measurements of blood flow on inhale and exhale and while on your back and prone.
i ended up being diagnosed with achalasia, not SMAS! i was shocked because i was sure that it was it. i had the poem procedure a few weeks ago and am starting to eat solid foods again.
Hey darl just letting you know having POTS doesn’t make u immunocompromised according to disautonomia int. Unless SMA does/ u are on immunosuppressants? Having a chronic illness doesn’t automatically make u immunocompromised, unless it’s autoimmune or your taking immunosuppressants. Xx
*or have decreased functioning immune system from genetic conditions or AIDS or having chemo etc.
Hey! Thanks for the info! Thats good to know! My doctors have been concerned about my increased amount of hospitalizations and recent developments of illness (aka i keep getting sick so they are worried I have an immunity issue - it is something i'm currently discussing with my doctors!) POTS alone may not, but combined with my other conditions and years of health complications it has slowly run down my immune system. (POTS also impacts my ability to recover and heal from illness at a normal rate) I definitely have a lower threshold for getting sick and contracting any little bug there is. I am not on medication for it however I have kept in close contact with my doctors through all this as they are concerned since I get post syncope convulsions that put me in the hospital and could cause futher complications. SMA can also have malnutrition as a side effect due to the weight loss also making me more succeptible!
Have you ever looked into MALS?
I've never heard of that before!
@@ChronicallyLindsay I am super similar to you so I love watching your videos! I did competitive cheer most my life and 2 years ago I got diagnosed with POTS. In october I got diagnosed with MALS after having a lot of stomach problems. It's also a really rare syndrome and I know it can be common to have with SMA. I just had surgery to fix my MALS 3 months ago and am doing so much better. Just thought it could be something to look into.
@@samanthasaghy919 Wow thats crazy! I did competitive cheer up till hs! Thanks for letting me know I will definitely look into it! Glad to hear you are doing better! sending love and good vibes your way! xoxo
@@ChronicallyLindsay I came here to suggest the same. I have MALS and am in the hospital right now while they look for SMAS.
Hi, anybody that got cured by gaining weight? :(
It's been year I diagnosed SMAS. I am trying to gain weight but it's not happening. Good thing is I don't vomit, only suffering from pain.
Fortisib nutricia or go for dairy or lactose free elemental liquid diet for 3 months small meal for every 2 hours at least 8 meals .. drink plenty of water avoid the whole food for at least 2 months .. pumpkin soup or mashed grounded veg soup make sure low-fad map diet
I have gotten a little bit better of an angle after being stabilized with my TPN for 2+ years & getting back to a more healthy place now but still have the pain from it whenever I eat/exist
Shame on your GI doctor. You do not need to be afraid of abdominal bypass surgery. Yes it’s a big surgery but you are young and have a greater chance of success. I had the surgery at 52 and I got through it and my immune system is shot but my surgery was a success. You don’t have to suffer. Please talk to a vascular surgeon. It can save your life.
You have your entire life to look forward to. Don’t let bypass scare you. If you have any questions please reach out. I’ve been where you are. I don’t suffer anymore. I can eat without my body rejecting it. I remember when my stomach could only hold 8 ounces of fluid. If I gave it more I threw up. I felt like I lived in hell. I spent many days on my bathroom floor in horrible pay. Eating hurt me worse than anything. I also have Polycythemia Vera which is a bone marrow cancer as well as more illnesses. I understand your struggle.
Not rare at all. 😔