52.Teed Talk's - Motor Neurone Disease, Diagnosis MND ALS Story - living while dying

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  • Опубликовано: 28 дек 2024

Комментарии • 40

  • @LJ-jj5vn
    @LJ-jj5vn 2 года назад +19

    I can definitely see the difference in your breathing in this video. Air hunger sounds very distressing so I'm glad "they have something for that". I love seeing this lovely friendship. We love you, Teed ❤🫂🙏

  • @kimphelps3590
    @kimphelps3590 2 года назад +9

    I loved the story about "I love you!" Cherishing your friendship, memories, gratitude, and having someone to do the "shitty little jobs." Love you!

  • @amazonblonde65
    @amazonblonde65 2 года назад +3

    So glad that you haven’t lost your voice. Praying for your comfort.

  • @HauntinglyAsh
    @HauntinglyAsh 2 года назад +5

    I know things are getting more difficult, which is of course to be expected. But it is SO LOVELY to see that smile on your face. To see you enjoying your best pal and their company. Wether it leads to laughing or crying I’m so happy you’re surrounded by good people and good nurses ❤

    • @HauntinglyAsh
      @HauntinglyAsh 2 года назад

      (Been following your TikTok for a while, but just discovered this channel!)

  • @lb1775
    @lb1775 2 года назад +3

    I’m so happy they can give you meds for agitation and anxiety; it’s a terrible feeling not getting enough air. You have such a beautiful friendship, I loved seeing you together. There is nothing like best friends that stay by your side through the good and the bad times. I’m glad you both say “I love you” it’s so important. ❤

  • @kathleenelliott986
    @kathleenelliott986 2 года назад +1

    Dearest Teed, I love you. I love your spirit. I love your family and your extended family. Your posts on social media are helping so many others. Hugs and kisses and love and prayers coming your way! What a wonderful soul.

  • @dawniedawn7228
    @dawniedawn7228 2 года назад +2

    Sending so much love. You have reduced my fear of going in to a hospice. God bless xxx

  • @imolakiss1579
    @imolakiss1579 2 года назад +1

    Dear Teed, I came across your videos on TikTok, and at first I didn`t realise you are living with MND/ALS. This topic is very close to me, as I`ve lost my husband last year, due to ALS. He was just 37, lived approximately 3 years with this disease. I`m happy you are settling in well in hospice. I`m sending you a lot of strength and love. I`m so happy MND did not affect your speech, and you can share your experiences with us. Take big care!

  • @shelbyeet1744
    @shelbyeet1744 2 года назад +1

    u r so strong💓

  • @virginiajensen6133
    @virginiajensen6133 2 года назад +1

    A good friend is a priceless gift ♥️❤️

  • @teresawinters2052
    @teresawinters2052 2 года назад +1

    Love you Teed!❤️ Thank you for sharing your life with all of us.

  • @masonmead7152
    @masonmead7152 2 года назад +2

    You’re kicking butt!

  • @elizabethconroy7665
    @elizabethconroy7665 2 года назад

    Yes,I agree
    Tell people close to you that you love them

  • @karenbourke1783
    @karenbourke1783 2 года назад

    Hello Therese and Bron. I'm happy that you are comfortable Therese. It sounds like you've landed in a nice place which is comforting. Sending lots of love, Karen xxx

  • @robingiacomelli3246
    @robingiacomelli3246 2 года назад

    Sending out 🙏🏼❤️…to you Teed …your such a beautiful soul…love you ..

  • @delladonn9448
    @delladonn9448 2 года назад +2

    I have Mnd and am refusing pump feeding as I don’t want to prolong the suffering xx

    • @elizabethconroy7665
      @elizabethconroy7665 2 года назад

      All the best,Delia
      May you peaceful and comfortable
      Warm Hugs 🤗

  • @alyssajoyblack5007
    @alyssajoyblack5007 2 года назад

    Sending so much love your way. You are so right that life is a delicate balance of the right meds!! I love your top Teed too!

  • @adanoid
    @adanoid 2 года назад +1

    I had air hunger for 3 weeks and would stand into the wind with mouth open but it didn't work. Then I was pulling at my chest to try to get my lungs to open to no avail. It took up to 5 min to get a real breath for one second then starve for air again for next cycle. I feel your suffering.

  • @elizabethconroy7665
    @elizabethconroy7665 2 года назад

    Nice to meet your Bestie
    A long and beautiful friendship
    Love your pretty nightdress
    It’s good to cry and perfectly normal
    Lovely Family
    Great Friends
    Warm and gentle Hugs 🤗

  • @hw932
    @hw932 2 года назад

    What a beautiful friendship you girls have ❤

  • @BecD1983
    @BecD1983 2 года назад +1

    Nice to see you Teed ❤

  • @hidingid
    @hidingid 2 года назад

    Beautiful strong ladies ❤️ long friendships are everything ❤

  • @rileyjones4187
    @rileyjones4187 2 года назад

    Hi teed I came from tik tok I hope you are doing well

  • @isabelleisabelle2480
    @isabelleisabelle2480 2 года назад

    Sending love from paris.

  • @tylercurrey2280
    @tylercurrey2280 2 года назад

    sending love ❤❤❤

  • @MrSachie
    @MrSachie 2 года назад

    we love you teed ❤❤

  • @kimberleyhughes8447
    @kimberleyhughes8447 2 года назад

    So glad you are comfortable 💜 Is it morphine may I ask gently? It works wonders xxx

  • @dawniedawn7228
    @dawniedawn7228 2 года назад

    How long will you be in the hospice for?

    • @teedtalks774
      @teedtalks774  2 года назад +1

      Not sure but until I pass 💛

    • @dawniedawn7228
      @dawniedawn7228 2 года назад

      Oh so sorry, didn't realise. Can I ask why you chose a hospice and not home? Only asking as I too have mnd and I can't make up my mind. Sending love and thinking of you xxx

    • @teedtalks774
      @teedtalks774  2 года назад +1

      @@dawniedawn7228 I don't want my kids to have to deal with my body at home. Plus my disability is too much for home now 💛

    • @dawniedawn7228
      @dawniedawn7228 2 года назад

      I can understand that. I hope I'm as brave and dignified as you when it comes to my time. I wish you well with your journey xxx

  • @LJ-jj5vn
    @LJ-jj5vn 2 года назад +1

    Sorry me again lol but I went back to look again and just had to ask, is that a big bug above Bron's shoulder on the wall?

  • @killianrichards7323
    @killianrichards7323 2 года назад

    ❤❤❤