@@iamaj9904skin and eyes color normal for me at least (not significant ). I have bowel irregularity and lethargy so often but i might have irritable bowel syndrome so i am not sure
I always had elevated bilirubin levels in bloodtests. It is a blessing in disguise for people with familial heartblock! I have both so be happy you have this, as it could save your life. The body knows why.
There's nothing to be happy about with this condition. A life of feeling sick, weak , fatigued, and sensitive to everything isn't worth the benefits of this condition.
Just got diagnosed with GS. Things are starting to make sense, I have also struggled with chronic abdominal pain & IBS symptoms for the longest time.Hope everyone adjusts & take care 🤍
Just found out today....had yellow hands and feet for 4 years and developed a rash on lymphnodes when diet was poor alongside fatigue and stomache cramps. Just stopped cannabis and it showed up on bloods but didn't when I was on it. Strange...
This video shows the general opinion of medicine. If there is no medication recommended for an issue they tend to call it benign. It’s ignorant to say the least. There is a wonderful study completed in 2019 published in the Biomed Central country of publication in England. “Jaundice was associated with abdominal pain, dyspepsia (loss of appetite)”. It goes on to say that there is a correlation of higher folate and vit d and less symptoms. Mechanism and cause is unknown. If you have this find the study and make your own adjustments. Don’t expect anyone in the medical field to understand the significance of this condition of the effects it may have on your body.
The medical field is mainly influenced by the pharmaceutical companies. Doctors basically learn to treat using available drugs. There is no profitable drug for GS and consequently no investment in studies to know the impact in patients. We as patients are left to our own devices and even gaslighted by doctors because there is no money to be made from GS and they just robotically repeat what is in their text books
Yeah I can't believe my ears either when they kept saying no treatment I don't know if I have this condition or not but I do have a problem with high bilirubin because of colic be literally colic and stones and I can't deal with it it's awful I can't think straight I can't do anything I'm tired all the time it's horrible
Same I'm tired all the time have no appetite my skin turned yellow and can't stand up for long periods or i feel dizzy and short breath and every doctor i go tells me you are fine like WTF@@getfreeminers
I had jaundice when I was 10 year and I was treated with all sorts of medicine related to jaundice for 3 years at different places because My eyes were yellow all the time and every time I get tested the report says negative. At last I went to doctor who was good at liver function, so he told me it’s Gilbert syndrome and there is no treatment for this and nothing to worry I’m 30 now still my eyes are yellow but I’m fine, this video just rewinds my past. Thanks for this video
I was diagnosed with jaundice few years ago, i started taking medication on prescription for this along with proper diet for a couple of months, and my bilirubin level fell down to normal range, but after several months it returned and the level wouldn’t go down, now it’s been years and my bilirubin level is typically around 2.5-3.5. I’m still in want to treat this but it’s really hard
I have a Gilbert syndrome i experienced worst symthons , i started skipping foods eventually my stress and weakness developed. After consultation with the doctor he told me that i have a Gilbert syndrome and recommended me not to skip foods and eat whatever i like luckily my bilirubin reduced to 1.2. because I ate like king i ate meat goat, chicken,pork,beef
I'm blood type O, I haven't eaten red meat since I was 4 ( I just hate it) and I have very high levels of billirubin. Maybe that since our ancestors were hunters, the fact that we eat too many cereals is affecting our health... I should probably start eating meat again 😭
I got this "diagnosis" today. I started to have like every other year episodes of dizziness and vomiting lasting for 24-36 hours, and they were just disappearing, but this year I had two episodes. I thought initially it is the gallbladder, but what do you know )))
@@valentinmladinescu I have also the same problem of yellow vomiting ( especially when I have flu)that comes after every 15-20 minutes and continue for 20-24 hours . I m 41 yrs of age now and this problem started when i was 25 yrs old . Please let me know if you have any suggestions to treat that
I’ve got this, and don’t get jaundice though I had it as a baby, but I suffer with extreme fatigue and random stomach pains and have trouble retaining iron. My GP said no treatment required. Then I’ve been investigating my health because I’m sick of being depleted all the time, and was referred to a naturopath, and I forgot to say I had this, and she is sitting there listening to my symptoms and kept saying sound like we need to investigate your liver and gallbladder and then I remembered to mention that I had Gilbert’s and she was like Omg, you are presenting like a typical Gilbert’s patient! I was so relieved that someone actually realised that it could be what’s causing my problems. Going through a deeper investigation now to rule anything else out. But yeah it’s a thing and people actually are getting help for it
@@katebridges6214same here! I just had blood tests done and my bilirubin was high (1.6) but everything else looked good. I am about to have an ultrasound done for lower abdominal pain that I can’t pinpoint. I also have always dealt with low iron issues. I wonder why nobody has ever brought this up to me.
I just love the comment section .. everyone here shares there story and there experiences and iam reading each n every comment and every story is very interesting
Went to the doctor 2 years ago for an unrelated reason, had bloodwork, everything was normal except they noticed my bilirubin slightly above normal. Not drastic. So she wanted further bloodwork ordered, and a liver function test done. Got all that done, the second time I got bloodwork everything was normal. They couldn’t find anything wrong with my liver or gallbladder, or anything in that area. Sometimes I have yellowish eye whites, very slight yellow skin tone on occasions. So my doctor said I most likely had Gilbert Syndrome. Not because she could prove it with a test, but because all her other tests couldn’t find any other reason for it. Still happens off and on today usually when I’m extremely tired and haven’t gotten much sleep. Otherwise no other symptoms. And the yellowing isn’t severe, just slight, to the point you may not notice. But I do. Been on the back of my mind but never really looked into it myself, because the doctor told me not to worry about it. But suddenly wanted to learn more. Lol. Lots of sleep and water seem to help the eyes.
Husband has it. I think my son has it. His bilirubin was high on his first blood test at 20 years old. All other lab values are normal. My husband's eyes look yellow when he fasts and exercises a lot.
I've had two different doctors diagnose me for GS and I got very frustrated when they said no treatment is required. While I understand that it's a benign syndrome, the daily episodes of jaundice in my eyes affects my self-esteem really badly and negatively affects my mood and mental health which just triggers the jaundice. People in past thought I was high. It's an endless cycle and I am desperate at this point to stop the jaundice from happening. I sleep well, drink lots of water, I don't fast, I don't take any medications. I recently heard that Phenobarbitol is a drug that can help with the hyperbilirubinemia levels to stop the jaundice from happening. What are your thoughts about that?
I knew that i had Gilbert's syndrome around 2 years back when i had to go through gallbladder surgery. Before the surgery i thought i was suffering from jaundice so i started eating completely boil food and also extremely lowered my suger consumption. I consumed boiled food for almost for a year but my billuribin was still a little bit higher than normal. After the surgery i continued eating boiled food and also through out the time my diet waa extremely healthy with high amount of green vegetables and fiber rich food with good fruits. I usually never consume fast food and i never had alcohol and i never did anything that could cause harm to my liver so it was very unlikely for me to suffer from jaundice and when i reached out to my doctor he run MRCP and also did my LFT and he said that my liver was healthy and i have Gilbert's syndrome. Usually when i take stress or don't get my meals in time my eyes become a bit yellow but it gets to normal when i take rest and take proper meals so if someone ha e Gilbert's syndrome don't worry just eat healthy excercise and don't take too much stress you'll be fine.
gilbert’s syndrome has caused me sm pain. every couple of days i feel like i have a stomach bug and get super nauseous. then it lasts for 1-3 hours. my upper right side always hurts, my eyes are ALWAYS yellow. it stops me from doing so many things. doctors definitely underestimate it.
I was told I had this nearly 20 years ago yet I've never had jaundice. I've put it to the back of my mind. I thought at the time, my GP was taking the piss saying I looked like Gilbert the alien.
I had jaundice right after I was born, but no issues after that. My bilirubin levels are double what they should be, but nowhere close to causing jaundice
Could there be a connection to acid reflux/GERD since it affects the creation of bile? I just got diagnosed with Gilbert’s syndrome and I’m wondering it has anything to do with it. I often get acid reflux when I fast.
I know now why my grandfather died of alcohol poison his liver could not digest alcohol. My uncles, my brothers and now me. I have always wondered why I could not hold my liquor. I would immediately vomit. My body protecting itself. Now another problem I have is I have to be careful of what medication I take so that further liver damage does not occur.
I want to share my experience with you guys. I got diagnosed 1 year ago after feeling very unwell several times like the feeling when you have feve + gi disturbancesr. Many test done everything looks normal except elevated indirect billirubin. Doctor said it’s benign but i was depressed,exhausted all time with nausea and dyspepsia. Luckily things become a bit better gradually. Now after one year, I don’t have the unwell feeling (rarely in severe stress)but still with irregular bowel movements either constipation or diarrhea all the time and it’s annoying(studies suggest the gs is linked to ibs). Extreme fatigue occurs sometimes especially early the day, but it’s less common and milder these days. I don’t have noticed jaundice it’s just mild yellowish discoloration. If anyone complains from abnormal bowel movements please inform me a solution. Hope you all be patient and blessed that this disease is not a disaster❤️🔥
I have Gilbert’s syndrome and also experienced frequent pain by my right ribcage. Ultrasound and labs all came back fine but the pain is still there. Did you find a solution?
I do! Very frequently and was beginning to worry as nowhere states it is a symptom of GS. As far as I am aware, this pain is caused by the liver membrane due to liver inflammation. I notice it reduces when I eat anything spicy/with chillies, not sure why. Looking for answers too.
I was diagnosed with Gilberts Syndrome in 2016 or 18 but i remember being put on mental medication (Lexicpro and Fluxiton) also some meds they give to chemo patience's, after that it was omerprozale and sodium bicarbinate and lanzapro, but literally nothing worked till i moved and finally tried legal pot and that literally help more than anything else. in my opinion, if you live in a legal weed state of any kind then try it for GS. small doses will go far trust me, it helps the feeling of being pukey and helps apitite
I was diagnosed with Gilbert’s after a long run around involving my liver counts. That was about a year ago now. And with all the uproar I’m still not entirely sure that’s the only thing going on with my liver.
Anyone else seeing low WBC’s and neutrophils in their labs due to this condition? I made it to about age 38 with zero signs and normal labs and then my bilirubin started to ramp up, and my WBCs and specifically neutrophils started to tick down to lowest of the range and even slightly lower levels at times, yet I have zero symptoms otherwise. I am active, train resistance strength training via weight training and gymnastics rings regularly, and frequently participate in zone 2 aerobic training. I even fast for 72 hours occasionally and utilize regular sauna usage and cold plunging. But from lab perspective the average doctor assumes my immune system is weak yet I rarely if ever get sick. It’s been an interesting learning experience but until I found this video I’ve found nobody else like me out there with these symptoms. Like other posters I’ve heard this is a blessing in disguise due to cardiovascular disease mitigation, with a few studies in Taiwan where it was frequently observed that patients with high bilirubin, a potent natural antioxidant, also had low WBCs and low instances of CVD. Fascinating stuff. Would love to hear from others with data to support their observations.
I have had gilberts since I was a teen. I also lead a similar life to you and recent blood work shows I have a lower than normal WBC, RBC, and alkaline phosphatase. Is this the same for you?
I am 25. Recently diagnosed with gilbert's. Bilirubin 1,7-2,7. And also WBC's and neutrophils low many times on blood tests. When I was not yet diagnosed with gilbert the doctor said that I should check neutrophils after a meal and if it is normal then it is ok. So it was.
@@monbow921 very similar as you have mentioned, though I don’t have abnormal phosphatase. I will need to look into that one a bit further. I will revert to you if I find anything notable for you.
@@wlotugamer it’s good you’re paying attention at a younger age. So far from my learnings, this is a benign condition with potential upside for cardiovascular health in the long run. I assume that is held true particularly when the person maintains a healthy lifestyle in general, eating well, exercising regularly, managing stress well, sleeping sufficiently well, and practicing regular recovery habits they enjoy. Happy to help anytime if I notice any further questions on here.
I have also skin problems like atopic dermatitis for about 3 years. Mostly on hands and feet. I regularly attend an allergologist but we cannot find a cause for the allergic skin reactions. I am wondering if Gilbert's syndrom is somehow related to the atopic dermatitis because I've heard that high bilirubin levels may cause some itching.
I have noticed stomach pain, ibd etc is closest associated with this. I have a feeling that people with chronic stomach issues will have occasional jaundice I’m guessing due to malabsorption but I’m not sure everyone has this condition. Doctors, please look into the relation with the GIT and Bilirubin.
@@jjmedicinerespected sir I m suffering from Gilbert syndrome . Indirect 3.0+ direct 1.8= total bilirubin 3.8 mg/dl Age36yrs male. Hight 175cm & weight 92kg please give me advise for healthy lifestyle .
I wouldn't say Gilbert's is entirely benign or without treatment. I have Crohn's and my specialist is fairly certain I have Gilbert's also. I have high billirubin about every second blood test. I have been prescribed vitamin B injections by my GP because he suspects my liver is "locked up" , his words. When I have a vitamin B shot I have the most horrible smelling dark urine for a couple days. The same happens with vitamin B supplements but I don't absorb them very well. Afterwards my skin and eyes are much lighter in colour and I begin to feel the fatigue fade and energy come back.
I diagnosed 3 months ago and found Gilbert and my billubrin is 1.59 from 3 months and i feel fatigue, nausea, and gas . Not able to move feel dizzyiness.
The ending to this video is EXTREMELY disappointing. Treatment beyond simply dishing out medication is very possible and necessary for Gilberts. When you've spent most of your life oestrogen dominant and suffering with the resulting consequences of (this such as breast cysts and multiple miscarriages), over-reacting to any form of drug given to you, and years of digestive absorption issues then you can come and tell me this is benign. All are linked to my Gilberts! And through a change of diet, supplements, and an extreme liver support life style everything is better and well. The medical profession have no right to say this is benign just because they don't have a cure or medication that changes the situation.
I have also diagnosed with GS. Recently i also experienced swelling of hands particularly palms and then it will automatically go away within minutes. Sometime swollen lips but, rare
I have Gilbert Syndrome. Male 36. It was diagnosed in 2007 or something. No treatment found. I use drops or pills to lower my bilirubin from time to time. Yellowish eyes and skin are the symptoms. I assume faster fatigue, dark circles under eyes are also the symptoms because of it. Stress - mental (stress at work) and physical (eg. physical work, gym) are probably also play a huge role and increase bilirubin. Doctors I met has a limited (book) knowledge about it and have no recommendations.
so i been researching and from what i've experienced and my next step in my own studies i am going to try bile salts to help and see if that helps i've always had issues taking poops so maybe this will help me get rid of the bilrubin build up since it goes through your bile and helps ur gallbladder
Great info I have always had my bilirubin levels go up and down maybe 1.2 then 1.6 had my liver checked ultrasound it’s all normal.. always had my blood work done every 3 months alt and ast levels good but I stopped taking my pain meds and went threw withdraw’s and I had my blood work looked at again within 7 days of withdrawal’s my bilirubin went to 3.4 so I’m getting tested for it now..
My 17 yr old grandson had this. Dr says not to worries. But from birth he has been only sleeping 2-3 hrs a night. Now, with increased physical activity he is going 2 & 3 nights in a row unable to sleep. He is exhausted all the time. Any suggestions?
Hi! i might wanna share my case too, i have gilbert syndrome as well and i started to see symptoms like jaundice slightly yellowish in my sclera and in my skin as well, i noticed too that its really affecting my performance and daily lifestyle. But im most concerned with my eyes because it is not as pleasant as i should look like, may i just ask what or if ever how do you alter these symptoms, im 19 years of age right now and its affecting my social life and mental health as well. hope you could help, thankyou!
My overall bilirubin is 85,8 µmol/L and my free bilirubin is 24.5 µmol/L at 23 years old. My only symptoms are more or less yellow eyes and after heavy easterneuropean-style drinking I have hangovers for two/three days. Also I have been skinny all my life and with force feeding myself I have been able to gain fat and a lot of muscle in last couple years. Feel free to answer me if you want to share your info
@@Meowmeow26950 no discomfort in everyday life. I sometimes feel tired after eating fast food but I think many people feel that way. Yea sometimes I have mental stress but who doesn't? It can be from million diffrent other reasons
Hi there. I have just had my results back today and have been told my total billirubin levels are 35 umol. Anyone know if we can lower them ourselves. I have worried myself sick all day cc
@@heartmum8517 hi, why worry? it's not like this bilirubin is hamfull. If you have had the syndrom your bilirubin has been high your whole life ;). I guess if you care about your eye whites being slightly more yellow than you can try to lower it but I have no knowladge about that. Just try to live a healthy life :)
@@GOATMENTATOR I think I was worried that it was a sign my liver was failing? I'm a real worrier and so overthink everything!! My skin and eyes arnt yellow..I got bloods taken as I have been feeling dizzy and tired. This showed up aswell as low lymphocytes too. I'm just researching to see what I can find. Looking back through my results my Billirubin levels have been elevated twice before at 22 and 25 but then were fine again and now this is thr highest at 35.
I was told I had Gilberts syndrome about 50 years ago, but not to worry about it. My chronic fatigue, abdominal bloating, and body pains have been so severe, life has been very hard. Nobody has ever told me what to do about it because all my doctors have said nothing can be done !
Are you on medication? I have been taking medicine from Kunphen hospital for two years now and it controls and lowers my bilirubin levels but as soon as I stop taking medicine I start to turn yellow.😐
I'm tired all the time have no appetite my skin turned yellow and can't stand up for long periods or i feel dizzy and short breath and every doctor i go tells me you are fine like WTF
NOT CORRECT. There is genetic testing for GS - UGT1A1 genotyping for Gilbert Syndrome. Also, SIBO, IBS, GLUTEN SENSITIVITY is connected with high billirubin. I was having SIBO, enzyme defect, correct my diet and lowered bilirubin.
What would I have if presenting with isolated direct and indirect hyperbilirubinemia with 30% direct fraction? Conjugated bilirubin is 8 umol/L and unconjugated 19 umol/L
I’m a mindful eater, take good care of my health like nothing else matters, but realized that I have Gilbert’s syndrome because my bili is always high. Most of the time I’m my own doctor
NOT CORRECT, there is GENETICS TEST FOR GILLBERTS SYNDROME - UGT1A1 genotyping for Gilbert Syndrome ! Also, GS is associated with IBS, SIBO, Gluten sensitivity and lots more. So this video is OUTDATED.
Após algumas semanas do parto do meu bebê, fui diagnosticada com Síndrome de Gilbert. Além da pele amarelada, minha urina está oleosa/gordurosa. Percebi q meu bebê tbm tem a pele amarelada
I had blood tests done ten years apart and the only abnormal level was my bilirubin.. As I remember it was like 2 times the normal high end.. The only time I have had yellowish skin is when I stayed up all night or if I drank too much alcohol, otherwise the jauncise was not noticeable.
My doctor said i have gilbert syndrome but my eye and skin remain yellowish always . Its like people ask me sometime do i have jaundice . Is this normal ? Do we have any medicine or treatment that help in reducing this yellowish tint on my face and eye?
I got gs, since I was a teenager. Was told to stay away from fatty or greasy foods. And that it'll go away on its own. I'm almost 50 now. And it has not gone away. I'm tired of people asking me if im sick all the time. I even avoid eye contact with people. Let alone I can't wear eyeshadow or heavy eyeliner. So I just live with it... Hoping someday they'll have treatment for it.
So i am 😭 I have been diagnosed with this syndrome 4 years ago Today i am 20 and i am really worried about it ... I am skinny , with pale skin ,and yellow eyes ..this syndrome has made me sooo ugly 😭 my friends and relatives often troll me ..
I was diagnosed with this when I was about 16 years old and initially was investigating fatigue. However I have never had jaundice.. is this a strange presentation? I’m starting to wonder how accurate the diagnosis is when I’ve never had the main symptom
Same I have it to and always feel tired. Im trying to figure out how to reduce my value back to normal. At the moment im looking into Liver detox and cleanses and lots of sunlight. Anyone can back that up?
I have PCOS and I remember how I felt when the doctor told me it would be hard for me to conceive I now have 4 children very successful pregnancies. God blessed me! with use of herbs 🌿
Hello,my son has gs..we dignosed it when he was 2 months old may be it was by born.. Now i am concerned wheather this same condition will come in my second baby? As it is genetic. ....pls ans me i m worried for planing second baby....
Make sure your pancreas is ok and not assume it’s just your GS !!!! My son has a enlarged pancreas and his dr kept saying his yellow eyes were from the GS! But it’s from his pancreas too !!!!
@@Urmom-gs5wm Calcium d glucarate is good to take, drink water, coffe, zink and have a healthy diet. The yellow can go away but it depends on your bilirubin levels, still the yellow is very mild for people with gilberts so you can’t really see it, so it doesn’t matter.
Got it in Puberty. And it basicly only triggered, when i drank large amounts of alcohol. So Dehydration checks out. First Sign always: Yellow Sclera. My Diagnose was: Yellow Sclera -> My Doctor had a hunch -> Bloodtest -> High Billirubin but any other bloodwork was fine, had it again, same Deal.
Got diagnosed with this in 2019 at the age of 19. Im 21 now Constantly have yellow eyes and somedays yellow skin. I excersise nearly everyday and diet. Somedays i fast a lil I have high levels and get blood tests every three months. As my gp says its the highest shes seen. Kinda seems concered. I feel completely fine, No pains or aches, Occasional dark yellow wee. Tend to goto the toilet frequently and have days when im tired. I feel fine though do get concerned if its leading upto anything worse. I'd let yous know more info on my condition and levels next time i get my bloodtest. should be in the next week or so..
@Memedico I'm still feeling the same, Nothing hasn't changed since I was supposed to see a doctor my GP was referring me to but that was several months ago. Haven't heard anything since. Been meaning to follow this up but have been busy, Haven't had any problems I will book another check-up and see what's going on. I had a ultra sound done a few months ago and said my lower abdomen is fine no damage just having trouble processing the bilirubin.
@Urmom-gs5wm Not 100% It's not much noticeable at times unless I move my eye to the side. Which will have slight yellowing on the whites of my eye. Spoke to my doctor, and he said to keep monitoring my levels. With bloodtests every 3 months. He says the bilirubin is pretty much an anti oxidate and is kinda good for you in a way. Also, no one notices the yellowing of my eyes unless I point it out. Or have high levels of 6 tends to spike if you're doing stuff outta the norm
I just had to go to hospital last week because I turned shade of yellow, they said my bilirubin 10.5, which is very high….. they ran all kinds of test, sent me home with no answer why. They sending me to specialist but I’m embarrassed to go out in public or to work
@@Sa__ya123 they iv me tons of fluids , it took about 2 weeks to get back to normal , I turned yellow again few months after that my billiruben was a 46.7, doctor called me said to go in right away, I was there for another week, same things IV fluids took 2 weeks to get back to normal… they did a liver biopsy and luckily no scarring , it was drug induced by a kind of steroids, it poisoned my liver
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Just got diagnosed with Gilbert's syndrome. Had no idea what it was. Thanks for the very informative video.
Me too
Same buddy
@@Mohbaqeryou guys normal now ? Skin and eyes
@@the.dirt.man.?
@@iamaj9904skin and eyes color normal for me at least (not significant ). I have bowel irregularity and lethargy so often but i might have irritable bowel syndrome so i am not sure
I always had elevated bilirubin levels in bloodtests. It is a blessing in disguise for people with familial heartblock! I have both so be happy you have this, as it could save your life. The body knows why.
There's nothing to be happy about with this condition. A life of feeling sick, weak , fatigued, and sensitive to everything isn't worth the benefits of this condition.
@@tomcanary2593 apparently it has a protection against heart disease....reduced IHD.
Bilirubin IXalpha is recognised as a potent antioxidant.
Can you explain what you mean by this?
@@tomcanary2593 you only feel weak and all i also have this condition, since birth don't feel nothing
What ? Please explain
Just got diagnosed with GS. Things are starting to make sense, I have also struggled with chronic abdominal pain & IBS symptoms for the longest time.Hope everyone adjusts & take care 🤍
I got diagnosed GS in 2004, just relax, have some precautions in your life, try to avoid sugar, fried and bakery items.. Good luck
Hello, is there any treatment ??? I'm having this and severly affecting my qol 😢 will the blood work normalise when lifestyle is adjusted ?
Will the blood test normalise when lifestyle is adjusted ?
I have Gilbert's and was always interested in the molecular pathology behind it! Thanks a lot for the video :)
Mee too
Mee too
Contact with me
@@angelayushi9275 hello....aapka kha se treatment ho rha hai please tell me....or aap kaise ho
Just got diagnosed, with this today.
Thanks for the information 🙂
How do u feel ? Any symptoms besides yellow eyes ?
@@7Jamal8 bit late to answer but I feel normal
Do you have dried lips especially the lower one?
Just found out today....had yellow hands and feet for 4 years and developed a rash on lymphnodes when diet was poor alongside fatigue and stomache cramps. Just stopped cannabis and it showed up on bloods but didn't when I was on it. Strange...
This video shows the general opinion of medicine. If there is no medication recommended for an issue they tend to call it benign. It’s ignorant to say the least. There is a wonderful study completed in 2019 published in the Biomed Central country of publication in England. “Jaundice was associated with abdominal pain, dyspepsia (loss of appetite)”. It goes on to say that there is a correlation of higher folate and vit d and less symptoms. Mechanism and cause is unknown. If you have this find the study and make your own adjustments. Don’t expect anyone in the medical field to understand the significance of this condition of the effects it may have on your body.
The medical field is mainly influenced by the pharmaceutical companies. Doctors basically learn to treat using available drugs. There is no profitable drug for GS and consequently no investment in studies to know the impact in patients. We as patients are left to our own devices and even gaslighted by doctors because there is no money to be made from GS and they just robotically repeat what is in their text books
Also it varies a lot from person to person, for some it probably is benign but not for me
Yeah I can't believe my ears either when they kept saying no treatment I don't know if I have this condition or not but I do have a problem with high bilirubin because of colic be literally colic and stones and I can't deal with it it's awful I can't think straight I can't do anything I'm tired all the time it's horrible
Same I'm tired all the time have no appetite my skin turned yellow and can't stand up for long periods or i feel dizzy and short breath and every doctor i go tells me you are fine like WTF@@getfreeminers
Im feeling the same. Do u have any suggestions for this ? The quality of life goes down the dumps for me. Its terrible. @getfreeminers
I had jaundice when I was 10 year and I was treated with all sorts of medicine related to jaundice for 3 years at different places because My eyes were yellow all the time and every time I get tested the report says negative. At last I went to doctor who was good at liver function, so he told me it’s Gilbert syndrome and there is no treatment for this and nothing to worry I’m 30 now still my eyes are yellow but I’m fine, this video just rewinds my past. Thanks for this video
Same from me
@@robertrosm1149 Is this video about Fibromyalgia, or about Gilbert's Syndrome?
Same here I’m also suffering from last 2 years
I was diagnosed with jaundice few years ago, i started taking medication on prescription for this along with proper diet for a couple of months, and my bilirubin level fell down to normal range, but after several months it returned and the level wouldn’t go down, now it’s been years and my bilirubin level is typically around 2.5-3.5. I’m still in want to treat this but it’s really hard
I have Gilbert syndrome , and I'm underweight ,
How can I solve this problem ?
I have a Gilbert syndrome i experienced worst symthons , i started skipping foods eventually my stress and weakness developed. After consultation with the doctor he told me that i have a Gilbert syndrome and recommended me not to skip foods and eat whatever i like luckily my bilirubin reduced to 1.2. because I ate like king i ate meat goat, chicken,pork,beef
How r u now
Wonder if Blood Type has any impact on this situation...??
I've read that Type 0 is best on meat-heavy diet.
I'm blood type O, I haven't eaten red meat since I was 4 ( I just hate it) and I have very high levels of billirubin. Maybe that since our ancestors were hunters, the fact that we eat too many cereals is affecting our health... I should probably start eating meat again 😭
I have Gilbert syndrome too. Completely vegan, never suffered any symptoms, never experienced jaundice. Anecdotes of this kind are meaningless.
I’ve been diagnosed since birth with this. My uncle also has it too. I get a lil yellow every now and then but that’s about it.
Take homeopathy medicine
1. Sbl kalmegh mother tinture 10 drop
2. Sbl Chelidonium mother tinture 10 drop
3 .Sbl Hydrastis mother tinture 10 drop
It's so benign, it's like HFA. It effects quality of life in an unseen way, difficult to observe and understand the full impact.
Does anyone else get actual pain in the liver that is stabbing/shooting? Also heart palpitations/issues that are unnerving and make you panic?
Yes. You’re not alone.
@@somerandomperson1503 thank you.
Yes, you’re not alone!
What about tenderness of the liver when you press the ribs?
Exactly same things.
Just got diagnosed with this today its been interesting to learn about.
Me too
Me too
Mee too
Me too lmao
howew
I got diagnosed 8 years ago and suddenly I wanted to learn about it today.
What are your symptoms please?
Because i think that i have it but i'm not sure.
@Frank Castle Selem alaykum thank you very much for your advice brother or sister
May Allah bless you
Have a good ramadan and a great year ❤❤❤
What was tour age at the time of diagnosis of Gilbert syndrome?
I got this "diagnosis" today. I started to have like every other year episodes of dizziness and vomiting lasting for 24-36 hours, and they were just disappearing, but this year I had two episodes. I thought initially it is the gallbladder, but what do you know )))
@@valentinmladinescu I have also the same problem of yellow vomiting ( especially when I have flu)that comes after every 15-20 minutes and continue for 20-24 hours . I m 41 yrs of age now and this problem started when i was 25 yrs old . Please let me know if you have any suggestions to treat that
I’ve got this, and don’t get jaundice though I had it as a baby, but I suffer with extreme fatigue and random stomach pains and have trouble retaining iron. My GP said no treatment required. Then I’ve been investigating my health because I’m sick of being depleted all the time, and was referred to a naturopath, and I forgot to say I had this, and she is sitting there listening to my symptoms and kept saying sound like we need to investigate your liver and gallbladder and then I remembered to mention that I had Gilbert’s and she was like Omg, you are presenting like a typical Gilbert’s patient! I was so relieved that someone actually realised that it could be what’s causing my problems. Going through a deeper investigation now to rule anything else out. But yeah it’s a thing and people actually are getting help for it
What does she recommend to alleviate the fatigue?
These are EXACTLY my symptoms and jaundice as a child not now. Are there any recommendations to help?
@@katebridges6214same here! I just had blood tests done and my bilirubin was high (1.6) but everything else looked good. I am about to have an ultrasound done for lower abdominal pain that I can’t pinpoint. I also have always dealt with low iron issues. I wonder why nobody has ever brought this up to me.
I just love the comment section .. everyone here shares there story and there experiences and iam reading each n every comment and every story is very interesting
yeah but nobody seem to have cured or beter it.
Went to the doctor 2 years ago for an unrelated reason, had bloodwork, everything was normal except they noticed my bilirubin slightly above normal. Not drastic. So she wanted further bloodwork ordered, and a liver function test done. Got all that done, the second time I got bloodwork everything was normal. They couldn’t find anything wrong with my liver or gallbladder, or anything in that area. Sometimes I have yellowish eye whites, very slight yellow skin tone on occasions. So my doctor said I most likely had Gilbert Syndrome. Not because she could prove it with a test, but because all her other tests couldn’t find any other reason for it. Still happens off and on today usually when I’m extremely tired and haven’t gotten much sleep. Otherwise no other symptoms. And the yellowing isn’t severe, just slight, to the point you may not notice. But I do. Been on the back of my mind but never really looked into it myself, because the doctor told me not to worry about it. But suddenly wanted to learn more. Lol. Lots of sleep and water seem to help the eyes.
So the more we drink water does it result in reduce yellowing of eyes ?
I feel sleepy most of the time and got dried lower lips?
Yes for me also keeping hydrated and good sleep is paramount. Especially sleep.
Awesomely explained! Keep up the work.
I have this and I dont take any medication since detected in 2018, I dont have any symptoms, this is not fatal, no need for treatment
Husband has it. I think my son has it. His bilirubin was high on his first blood test at 20 years old. All other lab values are normal. My husband's eyes look yellow when he fasts and exercises a lot.
Unfortunately GB syndrome sufferers shouldn't fast. I have it too, it sucks
When anxiety makes it hard to eat and I start turning yellow🥲
I was just diagnosed with this recently knew nothing about it but I will learn more and I didn't even know it was a thing either
I've had two different doctors diagnose me for GS and I got very frustrated when they said no treatment is required. While I understand that it's a benign syndrome, the daily episodes of jaundice in my eyes affects my self-esteem really badly and negatively affects my mood and mental health which just triggers the jaundice. People in past thought I was high. It's an endless cycle and I am desperate at this point to stop the jaundice from happening. I sleep well, drink lots of water, I don't fast, I don't take any medications. I recently heard that Phenobarbitol is a drug that can help with the hyperbilirubinemia levels to stop the jaundice from happening. What are your thoughts about that?
Brother what is the result of phenobarbital medicine of Gilbert syndrome disease
Yes Phenobarbital works but dull brain
@@manojitsmecr7486 it works but not for frequent usage
I see that u said u don’t fast ? Any reason?
I also have it.. and I do fast sometimes..
@@9994L-g3k fasting increase biliurobine level in our body
I knew that i had Gilbert's syndrome around 2 years back when i had to go through gallbladder surgery. Before the surgery i thought i was suffering from jaundice so i started eating completely boil food and also extremely lowered my suger consumption. I consumed boiled food for almost for a year but my billuribin was still a little bit higher than normal. After the surgery i continued eating boiled food and also through out the time my diet waa extremely healthy with high amount of green vegetables and fiber rich food with good fruits. I usually never consume fast food and i never had alcohol and i never did anything that could cause harm to my liver so it was very unlikely for me to suffer from jaundice and when i reached out to my doctor he run MRCP and also did my LFT and he said that my liver was healthy and i have Gilbert's syndrome. Usually when i take stress or don't get my meals in time my eyes become a bit yellow but it gets to normal when i take rest and take proper meals so if someone ha e Gilbert's syndrome don't worry just eat healthy excercise and don't take too much stress you'll be fine.
Why you go to gallbladder surgery?
did u felt any kind of pain and discomfort in your gut?
Did your Gallbladder was removed? I am experiencing the same issu, high level of bilirubin in blood+ 14 mm stone in gallbladder
You have dried lips?
Thank you
gilbert’s syndrome has caused me sm pain. every couple of days i feel like i have a stomach bug and get super nauseous. then it lasts for 1-3 hours. my upper right side always hurts, my eyes are ALWAYS yellow. it stops me from doing so many things. doctors definitely underestimate it.
Age
Yeah, its very depressing after all the sufferings when the doctors say it's nothing
@@joeljose182 how old are you brother?
@@mohammedsafwan8496 19
@@mohammedsafwan8496 why do you ask
Top notch presentation!!
I was told I had this nearly 20 years ago yet I've never had jaundice. I've put it to the back of my mind. I thought at the time, my GP was taking the piss saying I looked like Gilbert the alien.
lol
I had jaundice right after I was born, but no issues after that. My bilirubin levels are double what they should be, but nowhere close to causing jaundice
Sir,Can i go to middlest countries or abroad on a work visa with Gilbert Syndrome diseases?All blood test are normal and i feel well all time
Could there be a connection to acid reflux/GERD since it affects the creation of bile? I just got diagnosed with Gilbert’s syndrome and I’m wondering it has anything to do with it. I often get acid reflux when I fast.
Конечно, у меня так же
I know now why my grandfather died of alcohol poison his liver could not digest alcohol. My uncles, my brothers and now me. I have always wondered why I could not hold my liquor. I would immediately vomit. My body protecting itself. Now another problem I have is I have to be careful of what medication I take so that further liver damage does not occur.
I want to share my experience with you guys. I got diagnosed 1 year ago after feeling very unwell several times like the feeling when you have feve + gi disturbancesr. Many test done everything looks normal except elevated indirect billirubin. Doctor said it’s benign but i was depressed,exhausted all time with nausea and dyspepsia. Luckily things become a bit better gradually. Now after one year, I don’t have the unwell feeling (rarely in severe stress)but still with irregular bowel movements either constipation or diarrhea all the time and it’s annoying(studies suggest the gs is linked to ibs). Extreme fatigue occurs sometimes especially early the day, but it’s less common and milder these days. I don’t have noticed jaundice it’s just mild yellowish discoloration. If anyone complains from abnormal bowel movements please inform me a solution. Hope you all be patient and blessed that this disease is not a disaster❤️🔥
Hello! Does anybody else get right ribcage pain from Gilbert's syndrome? If so, any supplements that can be taken to reduce the pain? Thanks!
I have pain sometime
I have Gilbert’s syndrome and also experienced frequent pain by my right ribcage. Ultrasound and labs all came back fine but the pain is still there. Did you find a solution?
I do! Very frequently and was beginning to worry as nowhere states it is a symptom of GS. As far as I am aware, this pain is caused by the liver membrane due to liver inflammation. I notice it reduces when I eat anything spicy/with chillies, not sure why. Looking for answers too.
Same here. Did you find a solution?
@@nickszabodrums I have felt the pain only when I have been dehydrated. Otherwise its alright.
i got diagnosed with this in July 2024 had no idea about it
It took 5 years but they diagnosed it, symptoms started when I was in puberty and fasting. I also used to collapse as a result
I was diagnosed with Gilberts Syndrome in 2016 or 18 but i remember being put on mental medication (Lexicpro and Fluxiton) also some meds they give to chemo patience's, after that it was omerprozale and sodium bicarbinate and lanzapro, but literally nothing worked till i moved and finally tried legal pot and that literally help more than anything else. in my opinion, if you live in a legal weed state of any kind then try it for GS. small doses will go far trust me, it helps the feeling of being pukey and helps apitite
I was diagnosed with Gilbert’s after a long run around involving my liver counts. That was about a year ago now. And with all the uproar I’m still not entirely sure that’s the only thing going on with my liver.
Anyone else seeing low WBC’s and neutrophils in their labs due to this condition? I made it to about age 38 with zero signs and normal labs and then my bilirubin started to ramp up, and my WBCs and specifically neutrophils started to tick down to lowest of the range and even slightly lower levels at times, yet I have zero symptoms otherwise. I am active, train resistance strength training via weight training and gymnastics rings regularly, and frequently participate in zone 2 aerobic training. I even fast for 72 hours occasionally and utilize regular sauna usage and cold plunging. But from lab perspective the average doctor assumes my immune system is weak yet I rarely if ever get sick. It’s been an interesting learning experience but until I found this video I’ve found nobody else like me out there with these symptoms. Like other posters I’ve heard this is a blessing in disguise due to cardiovascular disease mitigation, with a few studies in Taiwan where it was frequently observed that patients with high bilirubin, a potent natural antioxidant, also had low WBCs and low instances of CVD. Fascinating stuff. Would love to hear from others with data to support their observations.
I have had gilberts since I was a teen. I also lead a similar life to you and recent blood work shows I have a lower than normal WBC, RBC, and alkaline phosphatase. Is this the same for you?
I am 25. Recently diagnosed with gilbert's. Bilirubin 1,7-2,7. And also WBC's and neutrophils low many times on blood tests. When I was not yet diagnosed with gilbert the doctor said that I should check neutrophils after a meal and if it is normal then it is ok. So it was.
@@monbow921 very similar as you have mentioned, though I don’t have abnormal phosphatase. I will need to look into that one a bit further. I will revert to you if I find anything notable for you.
@@wlotugamer it’s good you’re paying attention at a younger age. So far from my learnings, this is a benign condition with potential upside for cardiovascular health in the long run. I assume that is held true particularly when the person maintains a healthy lifestyle in general, eating well, exercising regularly, managing stress well, sleeping sufficiently well, and practicing regular recovery habits they enjoy. Happy to help anytime if I notice any further questions on here.
I have also skin problems like atopic dermatitis for about 3 years. Mostly on hands and feet. I regularly attend an allergologist but we cannot find a cause for the allergic skin reactions. I am wondering if Gilbert's syndrom is somehow related to the atopic dermatitis because I've heard that high bilirubin levels may cause some itching.
I have noticed stomach pain, ibd etc is closest associated with this. I have a feeling that people with chronic stomach issues will have occasional jaundice I’m guessing due to malabsorption but I’m not sure everyone has this condition. Doctors, please look into the relation with the GIT and Bilirubin.
simply explained so thanks sir.
You are most welcome
@@jjmedicinerespected sir I m suffering from Gilbert syndrome . Indirect 3.0+ direct 1.8= total bilirubin 3.8 mg/dl
Age36yrs male. Hight 175cm & weight 92kg please give me advise for healthy lifestyle .
@@satyaprakashbanjare5298 sm yr
Does there have to be intermittent cases of jaundice in order to diagnose one with Gilbert syndrome? What if the jaundice is chronic?
I wouldn't say Gilbert's is entirely benign or without treatment.
I have Crohn's and my specialist is fairly certain I have Gilbert's also. I have high billirubin about every second blood test.
I have been prescribed vitamin B injections by my GP because he suspects my liver is "locked up" , his words.
When I have a vitamin B shot I have the most horrible smelling dark urine for a couple days.
The same happens with vitamin B supplements but I don't absorb them very well.
Afterwards my skin and eyes are much lighter in colour and I begin to feel the fatigue fade and energy come back.
I diagnosed 3 months ago and found Gilbert and my billubrin is 1.59 from 3 months and i feel fatigue, nausea, and gas . Not able to move feel dizzyiness.
How are you now
Same bro nothing fine?
@@Mohbaqer Billiburin is 2 and even I don't eat sugar and spicy good since 4 month
@@bkj-sy4fs r u still dizzy and tired since that?
Sir i have gilbert syndrome diagnosed by the doctor but direct billirubin also comes high sometimes, what could be the problem?
Me too. What was your problem?
@@Mohbaqerme tooo, do you know what is your problem ? I feel nauseous all the time, can't even sleep correctly
The ending to this video is EXTREMELY disappointing. Treatment beyond simply dishing out medication is very possible and necessary for Gilberts. When you've spent most of your life oestrogen dominant and suffering with the resulting consequences of (this such as breast cysts and multiple miscarriages), over-reacting to any form of drug given to you, and years of digestive absorption issues then you can come and tell me this is benign. All are linked to my Gilberts! And through a change of diet, supplements, and an extreme liver support life style everything is better and well. The medical profession have no right to say this is benign just because they don't have a cure or medication that changes the situation.
Do you take calcium d glucarate for it, I’ve been diagnosed with Gilbert’s and this is supposed to help with removal of estrogen
How do you manage it?
Exactly. Thank you!
I have also diagnosed with GS. Recently i also experienced swelling of hands particularly palms and then it will automatically go away within minutes. Sometime swollen lips but, rare
I have Gilbert Syndrome. Male 36. It was diagnosed in 2007 or something. No treatment found. I use drops or pills to lower my bilirubin from time to time. Yellowish eyes and skin are the symptoms. I assume faster fatigue, dark circles under eyes are also the symptoms because of it. Stress - mental (stress at work) and physical (eg. physical work, gym) are probably also play a huge role and increase bilirubin. Doctors I met has a limited (book) knowledge about it and have no recommendations.
What pill you used for yellow eyes??
@@Sa__ya123 ANything that contains phenobarbital. In my case it was Corvalol drops
It can be acquired??
Sir I have same problem Gilbert syndrome intrubin coming up that is my main problem paint stomach pain everything how sir in any treatment
so i been researching and from what i've experienced and my next step in my own studies i am going to try bile salts to help and see if that helps i've always had issues taking poops so maybe this will help me get rid of the bilrubin build up since it goes through your bile and helps ur gallbladder
how did the bile salts work for you?
yes im also interesseted, im think of liver detox and liver cleanses
Great info I have always had my bilirubin levels go up and down maybe 1.2 then 1.6 had my liver checked ultrasound it’s all normal.. always had my blood work done every 3 months alt and ast levels good but I stopped taking my pain meds and went threw withdraw’s and I had my blood work looked at again within 7 days of withdrawal’s my bilirubin went to 3.4 so I’m getting tested for it now..
*Does anyone have severe pain in their left side with severe back lower back pain too?*
Excellent job explaining!. I have been diagnosed with Gilbert's syndrome. I also have low platelets regularly. Is there a correlation between the two?
No
My 17 yr old grandson had this. Dr says not to worries.
But from birth he has been only sleeping 2-3 hrs a night. Now, with increased physical activity he is going 2 & 3 nights in a row unable to sleep. He is exhausted all the time. Any suggestions?
Попробуйте витамин B9 + D3
Does it effect muscle building if yes why or how can i build muscle while having this syndrome
Bro same problem with me my weight was 70kg but now it's 61kg and from last 7-8 months not gaining wait or any muscle
Hi! i might wanna share my case too, i have gilbert syndrome as well and i started to see symptoms like jaundice slightly yellowish in my sclera and in my skin as well, i noticed too that its really affecting my performance and daily lifestyle. But im most concerned with my eyes because it is not as pleasant as i should look like, may i just ask what or if ever how do you alter these symptoms, im 19 years of age right now and its affecting my social life and mental health as well. hope you could help, thankyou!
My overall bilirubin is 85,8 µmol/L and my free bilirubin is 24.5 µmol/L at 23 years old.
My only symptoms are more or less yellow eyes and after heavy easterneuropean-style drinking I have hangovers for two/three days.
Also I have been skinny all my life and with force feeding myself I have been able to gain fat and a lot of muscle in last couple years.
Feel free to answer me if you want to share your info
@@Meowmeow26950 no discomfort in everyday life. I sometimes feel tired after eating fast food but I think many people feel that way. Yea sometimes I have mental stress but who doesn't? It can be from million diffrent other reasons
Hi there. I have just had my results back today and have been told my total billirubin levels are 35 umol. Anyone know if we can lower them ourselves. I have worried myself sick all day cc
@@heartmum8517 hi, why worry? it's not like this bilirubin is hamfull. If you have had the syndrom your bilirubin has been high your whole life ;). I guess if you care about your eye whites being slightly more yellow than you can try to lower it but I have no knowladge about that. Just try to live a healthy life :)
@@GOATMENTATOR I think I was worried that it was a sign my liver was failing? I'm a real worrier and so overthink everything!!
My skin and eyes arnt yellow..I got bloods taken as I have been feeling dizzy and tired. This showed up aswell as low lymphocytes too. I'm just researching to see what I can find. Looking back through my results my Billirubin levels have been elevated twice before at 22 and 25 but then were fine again and now this is thr highest at 35.
@@GOATMENTATOR I don't know if it is Gilbert's syndrome or not as the doctor didn't say. Have you had a conjuc bilirubin done too? X
Do you guys get enlarged liver and spleen and higher values of conjugated bilirubin?
What if I have it but I don’t suffer yellowing? Probably helps that I have hypothyroidism?
I was told I had Gilberts syndrome about 50 years ago, but not to worry about it. My chronic fatigue, abdominal bloating, and body pains have been so severe, life has been very hard. Nobody has ever told me what to do about it because all my doctors have said nothing can be done !
May i ask if shortness of breath or heavy breathing is somehow involved/is a symptom
I don’t think so
I got diagnosed with this last year
I got diagnosed in 2019, my symptoms are extreme fatigue, brain fog, abdominal pain on the right side, depression (sometimes I just want to die).
I have GILBERT'S SYNDROME... NO JAUNDICE... LIVER IS WORKING FINE... PERFECTLY FIT.
Shouldn't treatment include Calcium D Glucarate?
I believe everyone in this comment section have one of those thing including me✌️😅 chill guys you’re not the only one😉
Are you on medication? I have been taking medicine from Kunphen hospital for two years now and it controls and lowers my bilirubin levels but as soon as I stop taking medicine I start to turn yellow.😐
@@secondsun1599 What medicine did you take?
thank you
I'm tired all the time have no appetite my skin turned yellow and can't stand up for long periods or i feel dizzy and short breath and every doctor i go tells me you are fine like WTF
NOT CORRECT. There is genetic testing for GS - UGT1A1 genotyping for Gilbert Syndrome. Also, SIBO, IBS, GLUTEN SENSITIVITY is connected with high billirubin. I was having SIBO, enzyme defect, correct my diet and lowered bilirubin.
Hello, what were your sibo digestive symptoms? Please help 🙏
What would I have if presenting with isolated direct and indirect hyperbilirubinemia with 30% direct fraction? Conjugated bilirubin is 8 umol/L and unconjugated 19 umol/L
I’m a mindful eater, take good care of my health like nothing else matters, but realized that I have Gilbert’s syndrome because my bili is always high. Most of the time I’m my own doctor
Thanks for the information 🤩
NOT CORRECT, there is GENETICS TEST FOR GILLBERTS SYNDROME - UGT1A1 genotyping for Gilbert Syndrome ! Also, GS is associated with IBS, SIBO, Gluten sensitivity and lots more. So this video is OUTDATED.
Após algumas semanas do parto do meu bebê, fui diagnosticada com Síndrome de Gilbert. Além da pele amarelada, minha urina está oleosa/gordurosa. Percebi q meu bebê tbm tem a pele amarelada
I had blood tests done ten years apart and the only abnormal level was my bilirubin.. As I remember it was like 2 times the normal high end.. The only time I have had yellowish skin is when I stayed up all night or if I drank too much alcohol, otherwise the jauncise was not noticeable.
I got yellow eyes from water fasting for 72 hours. Wondered why my eyes turned bit yellow , lol. Turns out nothing to worry about. PS I feel great!
What do you mean of water fasting? you didn’t drink water for almost 3 days?
did it go away??
I got this but also another disorder and sadly I got yellow skin 24/7 and sadly got bullied for this when I was a kid
Did your yellow ski go away?
Does Gilbert syndrome cause elevates uric acid
My doctor said i have gilbert syndrome but my eye and skin remain yellowish always . Its like people ask me sometime do i have jaundice .
Is this normal ? Do we have any medicine or treatment that help in reducing this yellowish tint on my face and eye?
No treatment. Same condition as yours
@@yogesharora_ you have job?
I got gs, since I was a teenager. Was told to stay away from fatty or greasy foods. And that it'll go away on its own. I'm almost 50 now. And it has not gone away. I'm tired of people asking me if im sick all the time. I even avoid eye contact with people. Let alone I can't wear eyeshadow or heavy eyeliner. So I just live with it... Hoping someday they'll have treatment for it.
You go to Dr and check Anima and thalassemia and liver function
Phenobarbitone can reduce the bilirubin levels but can't be obtained without prescription
I've G.S and am skinny too..is there a link?
I also have GS and been skinny all my life. Have never been able to gain much weight, even while pregnant!
@Boris Sagaert I think there is a link between GS and not putting fat.
I have Gilbert Syndrome.I have burning sensation acidity.
I have it too and am 35 years old and always had a hard time to put weight on.. deff a link there
So i am 😭
I have been diagnosed with this syndrome 4 years ago
Today i am 20 and i am really worried about it ...
I am skinny , with pale skin ,and yellow eyes ..this syndrome has made me sooo ugly 😭 my friends and relatives often troll me ..
I have nausea and tiredness plz tell me will it go away with time?😢if someone have this syndrome plz answer me
I feel the exact same I just got blood test today and I got Gilbert syndrome and feel the same as you
@@natanaelcanofans1433do you feel better now?
any one who is suffering form gillbert syndrome with dipression i am facing dipression with gilbert syndrome.
My bilirubin levels are high but I've never had jaundice I was only slightly yellow when I was born apparently but not since then I have ever noticed
How high are your bilirubin levels? They usually have to be at least 2.5 even for slight jaundice.
Does Gilbert Syndrome cause weight loss?
Yes
Yes
I was diagnosed with this when I was about 16 years old and initially was investigating fatigue. However I have never had jaundice.. is this a strange presentation? I’m starting to wonder how accurate the diagnosis is when I’ve never had the main symptom
I have this syndrome and I always feel tired
I’ve never had jaundice also, but get other symptoms. 🤷🏼♀️
Fatigue is a very common symptom. I've never had jaundice either.
Same I have it to and always feel tired. Im trying to figure out how to reduce my value back to normal. At the moment im looking into Liver detox and cleanses and lots of sunlight. Anyone can back that up?
Feelings better no treatment is required
What did you do?
I have PCOS and I remember how I felt when the doctor told me it would be hard for me to conceive I now have 4 children very successful pregnancies. God blessed me! with use of herbs 🌿
The impression of hypoechoic liver is normal for Gilbert syndrome??
Can we buy glucoronic acid? Does it make sense to take it?
need to take the Phenobarbital
Hello,my son has gs..we dignosed it when he was 2 months old may be it was by born.. Now i am concerned wheather this same condition will come in my second baby? As it is genetic. ....pls ans me i m worried for planing second baby....
Make sure your pancreas is ok and not assume it’s just your GS !!!! My son has a enlarged pancreas and his dr kept saying his yellow eyes were from the GS! But it’s from his pancreas too !!!!
Nausea, Vomiting, Abdominal Pain and Fatigue. So "benign". WTF???
However, for me there is no symptoms such as jaundice or something, yellowing of skin but, my indirect billubin is in the higher range always
The jaundice is often mild and unremarkable
thumb down for making an entire video about gilberts syndrome and not mentioning gallstones once
70% of cases are autosomal dominant?
I have Gilbert syndrome and had yellow eyes for like a year, how do I get rid of this yellow color in my eyes? Help!
Eye drops help sometmes
@@honeymeadows22 What eye drops?
Did u ever find out?
@@Urmom-gs5wm Calcium d glucarate is good to take, drink water, coffe, zink and have a healthy diet. The yellow can go away but it depends on your bilirubin levels, still the yellow is very mild for people with gilberts so you can’t really see it, so it doesn’t matter.
Got it in Puberty. And it basicly only triggered, when i drank large amounts of alcohol. So Dehydration checks out. First Sign always: Yellow Sclera. My Diagnose was: Yellow Sclera -> My Doctor had a hunch -> Bloodtest -> High Billirubin but any other bloodwork was fine, had it again, same Deal.
Got diagnosed with this in 2019 at the age of 19. Im 21 now
Constantly have yellow eyes and somedays yellow skin. I excersise nearly everyday and diet. Somedays i fast a lil
I have high levels and get blood tests every three months. As my gp says its the highest shes seen. Kinda seems concered.
I feel completely fine, No pains or aches, Occasional dark yellow wee. Tend to goto the toilet frequently and have days when im tired. I feel fine though do get concerned if its leading upto anything worse.
I'd let yous know more info on my condition and levels next time i get my bloodtest. should be in the next week or so..
hey man how u feeling now?
@Memedico I'm still feeling the same, Nothing hasn't changed since I was supposed to see a doctor my GP was referring me to but that was several months ago. Haven't heard anything since.
Been meaning to follow this up but have been busy, Haven't had any problems I will book another check-up and see what's going on.
I had a ultra sound done a few months ago and said my lower abdomen is fine no damage just having trouble processing the bilirubin.
How high were your levels if you don’t mind? Mine were 44.
does ur yellow eyes go away?
@Urmom-gs5wm Not 100% It's not much noticeable at times unless I move my eye to the side. Which will have slight yellowing on the whites of my eye.
Spoke to my doctor, and he said to keep monitoring my levels. With bloodtests every 3 months.
He says the bilirubin is pretty much an anti oxidate and is kinda good for you in a way.
Also, no one notices the yellowing of my eyes unless I point it out. Or have high levels of 6 tends to spike if you're doing stuff outta the norm
I just had to go to hospital last week because I turned shade of yellow, they said my bilirubin 10.5, which is very high….. they ran all kinds of test, sent me home with no answer why. They sending me to specialist but I’m embarrassed to go out in public or to work
Hi man, what did the specialist say?
@@nickszabodrums going the 14th, skin back to normal though thank god
@@donnyfoster1859how did u get back to the normal skin any diet or medication u used for it?
@@Sa__ya123 they iv me tons of fluids , it took about 2 weeks to get back to normal , I turned yellow again few months after that my billiruben was a 46.7, doctor called me said to go in right away, I was there for another week, same things IV fluids took 2 weeks to get back to normal… they did a liver biopsy and luckily no scarring , it was drug induced by a kind of steroids, it poisoned my liver
Prosím o podrobni vysvětlení Gilbertuv sindrom že játra vylučují byjarubyn prosím co se má Stim dělat a jak se léčit prosím přeložit do češtiny děkuji
Jedná se o bylorubyn jak se léčit gdyš játra vylučují bylorubyn prosím o odpověď a jak to léčit prosím přeložit do českého překladu děkuji
Gdy dostanu odpověd ?????
does any one take protien powder and afterwards showing hyperbilirubemia?
Can eat sugar ?? Rusk ?
I have high bilirubin Serum Bilirubin, (Total)
2.35 mg/dl , Serum Bilirubin, (Indirect)
2.03 its possible to reduce naturally
i have 5mg/dl
@@prathamesh4996 o bhai reduce kaise kare...i have 4mg/dl
But PT...OT are normal
@@kashmiri5217 do u also have gilberts syndrome?
@@prathamesh4996 no bro..my bilrubin is high only
protien powder / whey kabhi liya tha?? uske baad esa hua?