Thank you for a great video. I am almost 64 and was diagnosed with UC ten years ago. I take two mezalazine tablets daily and have been in remission for seven years. My diet is basically whole food plant based so very high in fibre however I realise this would not be appropriate for everyone. Thanks again and wishing you well.
I also have Ulcerative Colitis and I have been on different medications and IV infusions, It is very difficult and challenging to deal with. I’m glad to see other people who are speaking out about it because I personally don’t know anyone who has Ulcerative Colitis. I was diagnosed at 19 and am currently 26 and right now I am currently on prednisone because my current flare up was out of control. I have had to change my diet my lifestyle and besides prednisone I’m also currently on Entyvio and I take Lialda pills to control the swelling of the gut. I have a lot to say about my experience and years of dealing with Ulcerative Colitis, if anyone would like or need to speak to me about your Ulcerative Colitis diagnosis, I am here for you and I can answer any questions that anyone has. Also hearing your stories is truly inspiring. Just remember that I feel your pain and I am here for you.
Diagnosed in 2016 . Gone through 3 colonoscopy. Taking mesalamine from 2016 . But now in 2022 sept-oct i got a flare up. I am mentally stressed. Thought why me? But i am shocked that so many people suffer from same thing. As per now i have started walking 1 hour. Per day, changed my eating habits, left non veg. Eating plain food. How are you now?
Hi I have a relative diagnosed with UC, I would like to know more about the meds you’re taking aside from the steroids. How have you adjusted your diet, lifestyle etc? I’d be so grateful for your response
@@WFasanya hi 👋🏼 yes, I did have to change my dietary lifestyle, I have been eating more anti inflammatory also reduced my sugar intake and that has helped me so much when I’m in flare and has helped me maintain longer periods of remission. If my flare ups are acting up or out of control I eat a low residue diet sometimes only having chicken broth or only liquids. Also green tea especially matcha tea I have been drinking a lot and I’ve noticed my inflammation reduce greatly. I’m just speaking for myself that living this way has greatly improved my health. I also reduced my intake of meat especially pork. When I eat pork I notice that I have abdominal pains and even sometimes have a flare up provoked when consuming pork so I completely eliminated it from my diet all together. Currently I am on Rinvoq I was on Entyvio but my gastroenterologist told me that my blood tests were showing that my body was not responding to the medication, so I am on Rinvoq, but I was on it for a good month, and then I noticed I started to experience symptoms similar to panic attacks and anxiety attacks, tightness in my chest, it scared me and I started to notice that it happened hours after taking Rinvoq, so I told my gastroenterologist that I’m having a reaction to Rinvoq so currently at this moment I’m in the transition of going on Stelara. I can update my progress on how that goes in a month or two. Thank you for your questions and I hope your journey to remission is successful and not too stressful, we can get through this and this doesn’t define us we are more than this disease.
@@justinjjoachin448 thank you so so much for your response. I know being at the mercy of a condition is far from easy and I pray your journey becomes easier and easier as time passes. I have taken note of all you’ve said 🙌🏾 cheers again
Just got diagnosed and I can't tell you how empowering hearing your process and journey with this disease is. Gives me hope to get through this. Thank you
Nice to hear someone in the public eye talking openly about UC. I was diagnosed with UC in May last year. It’s been a huge battle so far. RUclips has helped me connect with so many people and learn so much about my condition
hi Louise, So sorry to hear you have suffered so badly these past few years and hats off to you for getting yourself to such a good place. I have a different kind of colitis but it is every bit as life-limiting as yours. I was mis-diagnosed for the first 8 years as having IBS but was correctly diagnosed a few years ago and am now having a better time of things. A big thank-you to Crohns and Colitis UK for their help and support and for the cards to flash a shop/restaurant to ask to use their loo urgently. Also big applause for their Not Every Disability is Visible campaign. lots of love to all fellow sufferers and let'sdo what we can to make life easier for ourselves and those who come after us.
Thank you Louise for sharing your heartfelt story with us as someone living with Ulcerative Colitis. I've just been diagnosed & your story wrang so true to me. I could relate with it all. You are very brave sharing your story. I'm so glad you did. You have allowed me to connect to another with this. You are very lovely & am so happy you are doing well. I learned a lot from your video today & others I've been watching. I want to learn all I can about this disease so I can live a great life & enjoy a healthy lifestyle, managing my UC. Thank you for opening up about UC. It helps us all to be able to share our stories & encourage & support each other on our journey. ❤️ I feel more empowered after watching you. Thank you for allowing me into your world. I am following your content. Thank you for bringing awareness of UC & for making me feel better about my diagnosis & about the hope that is there for remission & even prolonged periods of remission. Thank you for your honesty & your sweetness. I'm an Aesthetician & I would say your beauty on the inside radiates on the outside. You are very relatable & will help so many. You've already helped me tremendously. Kindly, Katie Coffey
I just got this in June very badly - radically changed my life bc I have significant head vextibular injury which w severe malnutrition I experienced (83lbs!) my brain was starved as well so a lot of brain compensation pathways were lost. I want to heal uc so I don’t have to deal w this as well. I think good posioning started mine plus extreme stress and eating foods I am allergic to ( barely rye in bread).
I just got diagnosed with proctocolitis in March of this year. I've lost around 10 lbs. and on a stupid amount of mesalamine for how many months, I don't know. Trying to stay positive but there's still fear of the unknown. Thanks for sharing your videos and reading the comments helps. My heart goes out to anyone who's dealing with UC.
Taking 3 different medications everyday. But i have cut all non veg , oily, fried, spicy food. Eating veggies , fruits and eggs. Praying to God to heal this disease
I just got diagnosed this week with the same thing. I lost 8lbs. I am also on mesalamine and steroids. The pain is something else. The medicine is helping some. My husband has been a great help and keeps everything positive when I feel down.
Hey Louise. As a 30 year sufferer of Ulcerative Colitis I have been in remission for the last 10 years. I achieved this by strictly following a gluten free diet. 2 months ago I was given a wrong order at a cafe and within 2 days the symptoms returned. With the help of predsol enema I am just starting to get well now. Gf might not work for everyone but it’s certainly worth trying.
I'm in the Pan club also. Almost 7 years. When your in remission, life is good. When you flare, it's a nightmare. Try to stay on a good diet and get exercise. Turmeric and ginger tea works well and what I recently discovered digestive enzymes and curcumin and frankincense combo supplements (bought on amazon) has brought me a lot of relief. Hang in there and good health to you.
Hi Louise, thanks so much for sharing your journey. I'm so sorry for what you've gone through! We were devastated when our daughter, Erin, was diagnosed with Crohn's back in 2001! She had to drop out of college, as she was too sick to continue. It wasn't long until someone told her about the Specific Carbohydrate Diet and she decided she had nothing to lose and wanted to go on it. Since she started it early in her Crohn's journey, she started to feel better quickly and had gained back 9 pounds by her 6 week check up! Her doctor wasn't really in favor of a nutrition approach, but said that she might as well keep doing whatever she was doing as it seemed to be helping. She's still on the diet and is off of all meds and feels great, as long as she stays on the diet 100%. But of course she's totally willing to do that since it's given her her life back. Just like you said, people seemed to come out the woodwork who have Crohn's or Colitis, asking her about her diet, and within a few years Erin and I started a website where we wrote down everything we knew about the diet with lots of recipes, helpful tips, stories, and information, so we could just refer people there! I would love to have you visit our site for yourself and see if it's something you might be interested in. Please feel free to visit us at NoMoreCrohns.com. Thanks, Louise, and blessings!
Hey Robin, I too have done this diet with great success! I completely went into remission with no symptoms and was able to eat anything. Its a fantastic diet which makes you feel very nourished! I discovered the diet in 2001 when I was backpacking in France and met a lovely American girl who told me about the book. I will check out your website. So glad your daughter is doing great!! Xx
Louise, I'm Amanda. I'm trying my best to support a young woman, 27 y o, in my Church. This video of yours is the first one I watched. Very helpful, thank youuu!
Great video, Louise! I was diagnosed with U.C. approximately a year ago. It’s been challenging, to put it as euphemistically as possible. I believe that it’s definitely helpful, psychologically, to hear stories like yours so that people with U.C. know what others are experiencing, and how they’re coping with this unfortunate disease. Thanks again for sharing!
I had diarrhea for 33 straight days. Was not scheduled for colonoscopy until another month. Forced myself to ER, ER doctor wouldn't admit me. Luckily, my brother is a medical director of the hospital and pulled some strings to get me. The colonoscopy revealed that I have Ulcerative Colitis. At least, now I know. I wanted to let others know that you need to take this seriously and not wait 33 days like I did. Bloody stool, flare-ups will cause 30 times of going to the toilet, rapid weight loss, no appetite, and tenderness in the lower left side. I am going to live with this disease and share with others. Thank you for doing this video.
My ulcerative colitis has changed dramatically after I started smoking weed. I used to be so anti weed but it literally has saved me so much. I no longer suffer with inflammation.
Hey Louise, I loved you video. Thanks for sharing. I was diagnosed with UC 10 years ago. I have had a few bad flares up over the years but these past 2 years I have gained control over my UC. I'm glad you are doing well yourself. Glad to know we have a community to talk it over. I was lucky to have found my wife who is a medical assistant and understood my condition but has learned move over the years.
Thank you for your video - excellent. I too am in remission now, however the anxiety aspect of it haunts me every day driven by the occasional ‘accident’. I have learned to deal with it as best I can and it hasn’t stopped me with travelling and sport but all that to the backdrop of anxiety. I hope you continue have a good standard of living with the condition. I certainly intend to not let it beat me. I’m in my 60’s and was diagnosed about 3 years ago! ❤
I was diagnosed two years ago and our stories are so similar!! Thanks for sharing. It’s definitely a life changing disease. Some days are better than others.
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
Louis as a person with UC (but in remission with 6mp) I thank you for having this conversation - I have been through pretty much everything you have so I can relate, I hope that you will continue to post as it helps others around the world know that this disease effects all types of people - switching to Entyvio (Vedolizumab) hopefully soon so we shall see how it goes, wishing you good health
Thank you. I was just diagnosed 27/7/20....my diagnosis pending since 2012 due to failure in paper work not done from my hospital inpatient stay. I was told I would be referred to gastro team. But the paperwork was not done nor was a letter to my GP. My surgery was not aware n they would not chase or refer...the surgery was sold n the new doctors would not refer. I'm glad now I have the answer to my diarrhoea, fatigue, vomiting, unable to eat, bloating, farting, burping, etc. I am waiting for Crohns n colitis society to email me for support...due to covid...delay.
I have been diagnosed with UC for around 5 years, and recently I have just recovered from Uveitis which makes the eye(s) go red and painful. Get this checked out instantly if it happens to you- as it is linked to UC and can cause permanent vision loss.
I was walking my dog a couple of months ago and suddenly had that feeling of dread lol, anyway about 20 seconds later totally had had an accident (shat my self). There was this guy behind me and he said 'are you ok' because he saw me curling over. I just said, yeah don't worry i just shit myself and started running home. Fortunately i was only a 100 yards away from home lol. But seriously itis life changing
I want to say thank you so much for sharing your experience. My husband is currently going thru this and is still undergoing testing for this and crohn's. He was in the ER this last couple of days. He literally had all the same symptoms you shared.
God bless you Doctor Salami On RUclips for curing me from my chronic illness I never believe there was a cure I am indeed very grateful. Hit him up if you suffer from Incurable Disease.
Thank you for making this video. I have Crohn's disease but could relate to all the symptoms you mentioned, especially the fatigue, which is the worst for me. I come out of the loo looking like I have just done ten rounds with Mike Tyson, stagger to my bed and just fall on it cause I dont have the energy to climb in! Lying there you begin to feel the pain creep back and you think "oh no! Oh, no no no, not again!"and so it goes on. It helps so much to hear your story and the others posted here. I also suffer with anxiety and I believe it is strongly connected to the cause of my Crohn's. So pleased to hear you are in remission here's hoping it lasts for many years! Merry Christmas to you and your fam. Thank you again Louise x
I've had cronies for nearly 50 years I'm now 67 and I've only just come to turms with talking sbout it I've always been quite private so good on you your video was great to watch thank you
Thank you for sharing! I’ve been on mesalamine and mesalamine enemas for the last couple years but they’re no longer working for me (the enemas just haven’t really been helping me either!) so trying a biologic for the first time now. I’m hopeful but still scared of the unknown. It’s always so reaffirming and encouraging to hear others’ stories, especially the parts we’re all usually uncomfortable discussing! I feel less alone. Thank you!
Thank you so much for sharing your story. I too had never heard of it until they thought my issues could be the cause of UC. i got diagnosed officially Feb 2020 (this year). I had my symptoms for 4 weeks before I seeked help. Don't be afraid to talk to a doctor. Don't wait as long as I did. Mine started in December (I blamed it on christmas food & my IBS not agreeing with it).
Hope your doing better I follow you on Facebook just seen your update and decided to research a little a bit I had bleeding ulcers last year and spent a week in the hospital getting blood transfusions and endoscopy to fix the problem worst week ever things get better keep up hope man
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
😊Thank you, very informative & as you say, each person is & can have very different symptoms. I needed to have extensive surgery, which I required a Stoma & has helped immensely. Good luck! Kay
Just come across your video louise and want to say a massive thankyou for sharing and explaining about your condition. Ive just got out of hospital after being admitted with severe pain in my lower right flank and towards tummy area. It was so bad i was crying with the pain and was rushed to hospital which is where i first heard colitis mentioned. Ive had diarreah on and off all my life but last week i had a lot of blood in the stools every time i went to the loo. Felt fine in myself but a week later i woke up at 2am in absolute horrific pain felt like something had burst inside my gut. In hospital i was put on a iv drip and given morphine. Got sent home same day and the saturday i was fine but pain came back with a vengeance sunday morning so admitted back to hospital. Had ct scan and nothing found then had to provide stool sample which i needed suppositories and laxative drinks to help get. Theyve fast tracked me in for a colonoscopy in the next 2 weeks hopefully get some answers but listening to your story i can relate so much to your symptoms and anxiety. Thanks again for sharing. Take care joe
Thank you for doing this video and bringing attention to this horrible disease! I got diagnosed with ulcerative colitis on Friday and i currently don’t know much about this disease, I’m unsure where to go from where I am at the moment! I’m hoping my doctor will contact me and hopefully be told what to do next! Is there a fb group or chat room to talk to others that have ulcerative colitis?
I feel your pain. I just got diagnosed today. Ct, stool, and blood work but after all the struggle and pain I feel relieved that I can manage this. I lost 20 lbs during this flare up. Those head torches are amazing! We have 2, hand free. You might just have to wave your hand in front of it.
Well done, thanks for sharing. I have had UC as well for about 3 years, and do the Mesalamine also. Flare ups are ROUGH. People that don't have this have no idea how bad flare ups can make a person feel
Thanks for the video! Your bringing great awareness for crohns and colitis. My main symptoms are the fatigue and joint pain and sometimes it’s really hard to live with. I’ve had crohns for a while now. I’m also a big fan of Made in Chelsea lol.
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
Got diagnosed last year. It was so bad. I was bleeding like hell for two months and the doctor didn't believe me. Eventually I was allowed to deliver a sample, and my calprotectin was skyrocketing. Shirtly after that I got my colonoscopy, but by that time I was already in remission. The horror of going through the cycle with no medications to the point where the body just had to deal with it itself... Currently having a new flare-up. Not as bloody as back then, but I started treating it with steroids when I noticed the blood was back. The worst part is that you can't really eat your way to health either, cause when it comes down to your colon, it's just poop - there's nothing left to react to.. It keeps me from doing things I used to do, because when I have to go, I have to go, and if I'm not at home (or somewhere else I feel safe), I get constipated. So you get bloat, blood and constipation yet it will explode out of your butt when you finally calm down enough to go.. It's such a funny illness..
Firstly Thankyou for your video, your very brave to talk about Ulcerative Colitis. I’m 64 and was diagnosed 30 yrs ago. Everything you have said happened to me. In 2008 I was caring for my Mum 24/7. I became very ill over a few months and ended up in hospital for two months. They fitted a temporary Loop Illiostomy (badly as it leaked a lot) So my colon and rectum could heal. I had infusions of Infliximab every 6 weeks at hospital for 5 years. I’ve been well for about six years now. But I have gained a lot of weight due to bad mobility. Arthritis in back, hips both thumbs and wrists etc. Lol. I had my right hip replaced in 2012 and a very unpleasant time after. So I’m keeping my left hip. It’s fussed into my pelvis now. I’m wondering now about all the pain I get and that it could be U/C. I’m sorry you have this awful disease. Do take care. Try and avoid surgery if you can. Once they invade your abdomen it makes the area weak. I’ve had several hernias operations using a mesh. It never stays in place. I’m not having any more ops. Bless you 🌹 Maddy.
I had a similar experience and was diagnosed in January 2021. Was a pretty brutal seven months of misdiagnosis up to that point. Lost about 9kg and felt absolutely terrible. Things are better now but still not totally back to normal. What I eat can greatly effect my body and I'm still learning about how to adjust.
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
I have been in hospital since Wednesday n ive been diagnosed with ulcerative colitis and i honestly am devistated ive been crying in the hospital bed for hours. I dont eat alot of vegies. Im going to struggle with this
I am watching all these young people with this disease, and I really cannot understand how I was just diagnosed with this problem. I am 75 years old and I have been healthy all my life it has really made my retirement the pits. They say old age has something to do with it but I am totally confused. My medicine has not helped yet I I am depressed and pray for a little relief soon!
I once worked with brick masons and got internal hemmorhoids. They became infected. Then I was diagnosed with ulcerative colitus and proctitus. I have found that I have flare-ups when I pressure wash old mildew from the side of my house and also when I have toe-nail fungus (appears white underneath the large toe's nail). I have also found that if I use hydrogen peroxide to soak my toe's in (bought a little toe-nail foot bath tub) the toe-nail fungus dies quickly. I scrape out the fungus first from underneath and then soak them in hydrogen peroxide. I looked at some youtube videos on getting rid of toenail fungus and the hydrogen peroxide method seems to work for me. I suppose the fungus gets in the bloodstream and goes to the old damaged rectal area where I had the internal hemmorhoids causing UC flareup. I use rowasa prescribed by my gastroenterologist and the peroxide toe-nail treatment and UC usually goes away in about a week. I really only have flare-ups when I pressure wash the sides of my or my parents house in the last few years. I notice that when I get the flare-ups my digestion is not as efficient and therefore I get backed up so I use glycolax or miralax laxative 10 mg/twice/day. I also take a tumeric/curcumin supplement. If I drink beer it seems the yeast gives me a problem so I don't drink it. Liquor also not sure if its the thinning of the blood that causes flareups. I eat ground flax seed meal every morning with two boiled eggs (for complete protein) along with some pineapple slices. I stay away from breads. I mostly eat meat, vegetables, and pineapples. I sometimes take a multivitamin, and a Vitamin C tablet, along with Complex B vitamin. I try to walk at least 4 times a week. Doing situps and jumping jacks seems to help things move along in my bowels. Hope this information can help someone. Take care.
My son’s story is very similar as well. He just found out that he has UC after waiting over 4 months before seeing a Dr. So I am trying to collect information so I can be supportive. Thanks for sharing.
Just got diagnosed with it had a really bad faler up 2days ago went to the er was one of the scariest things I've been through the pain alone is what got to me
Thank you for sharing, I was also diagnosed around the same time as you, in the UK. My GP fast tracked a colonoscopy by saying he wanted to rule out cancer. I was prescribed Mesalazine like you. This medication caused a side effect of Pancreatitis, a swollen pancreas, which causes great severe pain in the left side under the ribs. I have stopped taking any meds and trying not to get stressed, which causes flare ups. I manage my diet by going very low fibre if the colitis kicks off and mostly liquid food, for easy digestion.
here is one thing you need to cut out right away, Chlorine is a know gastric irritant. Eliminating the chlorine and other irritants found in most public drinking water can benefit those with inflammatory bowel disease, ulcerative colitis and Crohn's disease, chlorine is bleach , the only way to do this is to get a water distiller this water is the best you can get this is the first thing to do
@@marechell66. So true, I've been drinking bottled water and filtered water for years, then recently started a new job where you're not allowed liquid at your work station, so they have fountains, of tap water, within a few weeks I'm in a flare, also I've been chewing gum, which has aspartame in it, that didn't help. I'm gonna start smoking tobacco to see if that helps with my flare!
same symptoms for me about 2 years ago, then I got diagnosed. Then it seemed to get better after the medication(the suppositories are not fun btw)). So after I stopped taking the medication thinking it was all just a mistake. Now I am in a bad relapse, I was on the toilet over 50 times yesterday and know I have to stay on the med's because I really do not want a colostomy bag. Anyway all the best Louise x
Hi thanks so much for sharing your story with us, i watched many videos the doctors advising that the need to take a very good Probiotic it will help you a lot with very good nutrition diet cooked vegetables 🥗, so the decease doesn’t spread further. Please avoid drinking alcohol and caffeine.
I have UC this video helped a lot makes me fell a bit less lonely, I feel fine now thankfully but I am on they tablets 😞 I’ve found CBD helps personally
I just got diagnosed with colitis. I’m waiting for a colonoscopy to find out if I’ve got chrones disease. I just graduated high school this year and I’m in so much pain and I fear that it will be something I go through all of my life, and sort of like my life is over before it’s even starting.
Please don’t feel bad. There’s a lot of help around these days for us who have this illness. I’m sure as soon as you have a diagnosis and the Doctors get you on some medication then you will be feeling different and hopefully able to control you situation. Bless you. 🌹
No. Your life isnt over. Loads of people have this disease. Whilst it can be hard work to manage and tiring when its active, its not stopped people I know graduating, meeting and raising a family with their life partner, and having fulfilling careers. See the bios for Sir Steve Redgrave, and Shinzo Abi, the PM of Japan.
Hi, I'm ED in Yorkshire and I'm awaiting a colonoscopy on NHS. I was supposed to have had it in January but it was cancelled. Then they offered me another date and I had to cancel so I could get advice on my being overpaid for Working Tax Credit at a local advice centre. Then, along came the Coronavirus Pandemic!
I was talking to doctor for around 2 years and it took that long for me to get a colonoscopy but eventually it became an ermergancy so I just got it done 2 weeks ago and I’m only 13 so a lot went wrong and I have crohns and ultcer colitis
Bless you. Don’t rush into surgery! Ask about Infliximab. It’s a very good dry you have into your arm. I nearly had my colon removed. My Dr got me this drug I had it every six weeks at the hospital and I’m in remission now for the last six years. Good luck ❤️
UPS COURIER DELIVERY SERVICE omg thank you so much but currently I’m on 4 different meds that seem to be working but unfortunately 2 days ago the doctor I gusse did not know that 2 of the meds could be taken at the same time? And randomly at 6:00 at night I started having a painick attack! And about 10 mins after I started having mini sezuries every 4 mins so we went to the Er and I was stuck there over night so currently I’m not looking to try any meds right now but I do really appreciate the help
Sweet child I’m so sorry... so anything that I hate the most is children having to go through this...you’re tough! I cried the day I was being put to sleep for both a colonoscopy and endoscopy! At 24 year old crying like a little girl....you’re not alone 😓🥺
bit life it’s not real… I’m so sorry, there’s no cure. @UPS COURIER DELIVERY SERVICE is a bot trying to spam you and to earn money off suffering people. Stay strong, and beware of 🤖!
Meslamine doenst help me. I take steriods, bensonide but i cant stay on it. Im supposed to take meslamine daily but it doesnt help. Great video thanks.
Myself is from India, I am suffering from ulcerative colitis. Can you suggest me what all food items we need to avoid ? My doctor prescribed me to take medicine lifetime. So will that medicine affect other organs like kidney & liver ?
The enema doesn't work for me either and I have the opposite i have really bad constatation and hard stool But like you I have all the mucus and blood every single day I haven't been diagnosed yet but im almost certain I have it cuz Its been almost 4 months with the really bad symptoms now my colonoscopy is November 5 thank god they are finally going to give me some anwsers I had to quit work because the pain was so bad and the fatigue is so bad oh and I also have the showllen dome thing you talked about I have a question with me every morning at the same time I get an awful feeling in my stomach that says go to the washroom. Have you had similar symptoms?
i have had ulcerative colitis (UC) for a number of years now and I have been on everything, Asacol, prednisone etc. My cousin told me one day that a woman who had the same disease told us about PLANET AYURVEDA and cure UC. I went there and got some herbal formulations with dietary recommendations , I feel so much better.
It may be caused by embodied trauma as wel, im combination with other causes. There is an interesting book called Cured. What worked for me are (living) probiotics, I drink every day home brewed water kefir, and am symptom free and medicine free for about a year now
Thanks for sharing. 6 years ago I was at the point Prednisone no longer worked & biologics were the next step. At that time I found a book called Self Healing Colitis & Crohn's by David Klein that allowed me to heal without any meds! It outlines a vegan (largely fruit) diet based on the way we are actually designed to eat. I am still vegan today and have only had one flare up in these past 6 years, which I was able to knock out in a few months without drugs. I strongly recommend anyone struggling with UC & looking for answers to check this out.
I’m 17 I was diagnosed with uc at the age of 16 this is very new too me only a few months but had symptoms w weight loss and bloody stools I resent got out of hospital which I was in for 2 weeks because of a flare up I’m new and I honestly a bit lost with it all is there any tips Iv read online about the condition but still finding it hard to understand if any tips or anything please let me know
Sounds like it’s early days for you , living with UC , so sorry to hear that , yes it’s a very debilitating silent illness . I believe causes are genetic and stress ! Diet was my big healer ! My whole family has it , parents , Children , grand children , all had surgery,. plant based is the answer , not medicine , yes medicine can be life saving , but living with a life Time illness meds are not good , side effects can sometimes out weigh the illness itself , long term steroids etc , medicine suppresses, not heals , eating the right food heals the body , the body is amazing , it has the ability to heal itself given the right conditions , avoid trigger foods . ( it’s like holding a gun to ourself , we shouldn’t blame genetics, it’s up to us if we pull the trigger , and eat junk food and fizzy drinks , we get sick , be kind to your body , dont put toxins into it ,listen to your body ,eat the right stuff , the Health rewards speak for them self’s ,
I went largely vegan years ago. It made a huge, huge difference. The abdominal pain stopped… and the excruciating abdominal pain and bloating radically improved. I still have bouts of terrible, terrible exhaustion and urgency to go to the toilet. My old dr was hopeless. Said that the exhaustion and UC link wasn’t a thing🙄 and that it wasn’t possible to have an actual accident because the rectum stops that 🙄🙄🙄. My specialist also queried the exhaustion and UC link. Which left me feeling utterly desperate tbh. I now have a lovely dr who totally understands. You need support when you have UC. It’s such a difficult disease to manage.
Is the bleeding that supposed to go away with medication or is it always present? I have been taking Salofalk for 2 years and I'm still bleeding not extensively but it's there. Should I be changing to a different medication? My symptoms are not that severe.
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
I’ve seen videos on utube of people healing from this by going on a carnivore diet. Sounds really strange at first but after listening to them I’m trying it. Just getting over a flare up and my weight is to low. After eating quality meat for two days I’m feeling better. We will see.
Well done Louise, by talking openly we can help people who are new to the disease as it’s a scary place to be at first! Great charity
Thank you for a great video. I am almost 64 and was diagnosed with UC ten years ago. I take two mezalazine tablets daily and have been in remission for seven years. My diet is basically whole food plant based so very high in fibre however I realise this would not be appropriate for everyone. Thanks again and wishing you well.
I also have Ulcerative Colitis and I have been on different medications and IV infusions, It is very difficult and challenging to deal with. I’m glad to see other people who are speaking out about it because I personally don’t know anyone who has Ulcerative Colitis. I was diagnosed at 19 and am currently 26 and right now I am currently on prednisone because my current flare up was out of control. I have had to change my diet my lifestyle and besides prednisone I’m also currently on Entyvio and I take Lialda pills to control the swelling of the gut. I have a lot to say about my experience and years of dealing with Ulcerative Colitis, if anyone would like or need to speak to me about your Ulcerative Colitis diagnosis, I am here for you and I can answer any questions that anyone has. Also hearing your stories is truly inspiring. Just remember that I feel your pain and I am here for you.
4 months in and I'm losing my mind
Diagnosed in 2016 . Gone through 3 colonoscopy. Taking mesalamine from 2016 . But now in 2022 sept-oct i got a flare up. I am mentally stressed. Thought why me? But i am shocked that so many people suffer from same thing. As per now i have started walking 1 hour. Per day, changed my eating habits, left non veg. Eating plain food. How are you now?
Hi I have a relative diagnosed with UC, I would like to know more about the meds you’re taking aside from the steroids. How have you adjusted your diet, lifestyle etc?
I’d be so grateful for your response
@@WFasanya hi 👋🏼 yes, I did have to change my dietary lifestyle, I have been eating more anti inflammatory also reduced my sugar intake and that has helped me so much when I’m in flare and has helped me maintain longer periods of remission. If my flare ups are acting up or out of control I eat a low residue diet sometimes only having chicken broth or only liquids. Also green tea especially matcha tea I have been drinking a lot and I’ve noticed my inflammation reduce greatly. I’m just speaking for myself that living this way has greatly improved my health. I also reduced my intake of meat especially pork. When I eat pork I notice that I have abdominal pains and even sometimes have a flare up provoked when consuming pork so I completely eliminated it from my diet all together. Currently I am on Rinvoq I was on Entyvio but my gastroenterologist told me that my blood tests were showing that my body was not responding to the medication, so I am on Rinvoq, but I was on it for a good month, and then I noticed I started to experience symptoms similar to panic attacks and anxiety attacks, tightness in my chest, it scared me and I started to notice that it happened hours after taking Rinvoq, so I told my gastroenterologist that I’m having a reaction to Rinvoq so currently at this moment I’m in the transition of going on Stelara. I can update my progress on how that goes in a month or two. Thank you for your questions and I hope your journey to remission is successful and not too stressful, we can get through this and this doesn’t define us we are more than this disease.
@@justinjjoachin448 thank you so so much for your response. I know being at the mercy of a condition is far from easy and I pray your journey becomes easier and easier as time passes.
I have taken note of all you’ve said 🙌🏾 cheers again
Just got diagnosed and I can't tell you how empowering hearing your process and journey with this disease is. Gives me hope to get through this. Thank you
🙏🏻🌟💕
Nice to hear someone in the public eye talking openly about UC. I was diagnosed with UC in May last year. It’s been a huge battle so far. RUclips has helped me connect with so many people and learn so much about my condition
hi Louise,
So sorry to hear you have suffered so badly these past few years and hats off to you for getting yourself to such a good place. I have a different kind of colitis but it is every bit as life-limiting as yours. I was mis-diagnosed for the first 8 years as having IBS but was correctly diagnosed a few years ago and am now having a better time of things. A big thank-you to Crohns and Colitis UK for their help and support and for the cards to flash a shop/restaurant to ask to use their loo urgently. Also big applause for their Not Every Disability is Visible campaign. lots of love to all fellow sufferers and let'sdo what we can to make life easier for ourselves and those who come after us.
SHUT UP!
Andy what type of Colitis you have. I have Eosinophils Colitis. Can you share your experience if the same since I was recently diagnosed.
Thank you Louise for sharing your heartfelt story with us as someone living with Ulcerative Colitis. I've just been diagnosed & your story wrang so true to me. I could relate with it all. You are very brave sharing your story. I'm so glad you did. You have allowed me to connect to another with this. You are very lovely & am so happy you are doing well. I learned a lot from your video today & others I've been watching. I want to learn all I can about this disease so I can live a great life & enjoy a healthy lifestyle, managing my UC. Thank you for opening up about UC. It helps us all to be able to share our stories & encourage & support each other on our journey. ❤️ I feel more empowered after watching you. Thank you for allowing me into your world. I am following your content. Thank you for bringing awareness of UC & for making me feel better about my diagnosis & about the hope that is there for remission & even prolonged periods of remission. Thank you for your honesty & your sweetness. I'm an Aesthetician & I would say your beauty on the inside radiates on the outside. You are very relatable & will help so many. You've already helped me tremendously.
Kindly,
Katie Coffey
I just got this in June very badly - radically changed my life bc I have significant head vextibular injury which w severe malnutrition I experienced (83lbs!) my brain was starved as well so a lot of brain compensation pathways were lost. I want to heal uc so I don’t have to deal w this as well.
I think good posioning started mine plus extreme stress and eating foods I am allergic to ( barely rye in bread).
I just got diagnosed with proctocolitis in March of this year. I've lost around 10 lbs. and on a stupid amount of mesalamine for how many months, I don't know. Trying to stay positive but there's still fear of the unknown. Thanks for sharing your videos and reading the comments helps. My heart goes out to anyone who's dealing with UC.
Ive got the same
Taking 3 different medications everyday. But i have cut all non veg , oily, fried, spicy food. Eating veggies , fruits and eggs. Praying to God to heal this disease
I just got diagnosed this week with the same thing. I lost 8lbs. I am also on mesalamine and steroids. The pain is something else. The medicine is helping some. My husband has been a great help and keeps everything positive when I feel down.
Thanks for the video I have crohns colitis more people need to understand these diseases.
So thank you x
Marian Cook no.
Hey Louise. As a 30 year sufferer of Ulcerative Colitis I have been in remission for the last 10 years. I achieved this by strictly following a gluten free diet. 2 months ago I was given a wrong order at a cafe and within 2 days the symptoms returned. With the help of predsol enema I am just starting to get well now.
Gf might not work for everyone but it’s certainly worth trying.
I was just diagnosed with pancolitis and it’s a lot 🙁 I appreciate videos like yours to help me get familiar with the disease .
I'm in the Pan club also. Almost 7 years. When your in remission, life is good. When you flare, it's a nightmare. Try to stay on a good diet and get exercise. Turmeric and ginger tea works well and what I recently discovered digestive enzymes and curcumin and frankincense combo supplements (bought on amazon) has brought me a lot of relief. Hang in there and good health to you.
Hi Louise, thanks so much for sharing your journey. I'm so sorry for what you've gone through! We were devastated when our daughter, Erin, was diagnosed with Crohn's back in 2001! She had to drop out of college, as she was too sick to continue. It wasn't long until someone told her about the Specific Carbohydrate Diet and she decided she had nothing to lose and wanted to go on it. Since she started it early in her Crohn's journey, she started to feel better quickly and had gained back 9 pounds by her 6 week check up! Her doctor wasn't really in favor of a nutrition approach, but said that she might as well keep doing whatever she was doing as it seemed to be helping. She's still on the diet and is off of all meds and feels great, as long as she stays on the diet 100%. But of course she's totally willing to do that since it's given her her life back. Just like you said, people seemed to come out the woodwork who have Crohn's or Colitis, asking her about her diet, and within a few years Erin and I started a website where we wrote down everything we knew about the diet with lots of recipes, helpful tips, stories, and information, so we could just refer people there! I would love to have you visit our site for yourself and see if it's something you might be interested in. Please feel free to visit us at NoMoreCrohns.com. Thanks, Louise, and blessings!
Hey Robin, I too have done this diet with great success! I completely went into remission with no symptoms and was able to eat anything. Its a fantastic diet which makes you feel very nourished! I discovered the diet in 2001 when I was backpacking in France and met a lovely American girl who told me about the book. I will check out your website. So glad your daughter is doing great!! Xx
My husband has UC and it takes so much out of him. Thank you for sharing.
Louise, I'm Amanda. I'm trying my best to support a young woman, 27 y o, in my Church. This video of yours is the first one I watched. Very helpful, thank youuu!
Great video, Louise! I was diagnosed with U.C. approximately a year ago. It’s been challenging, to put it as euphemistically as possible. I believe that it’s definitely helpful, psychologically, to hear stories like yours so that people with U.C. know what others are experiencing, and how they’re coping with this unfortunate disease. Thanks again for sharing!
I had diarrhea for 33 straight days. Was not scheduled for colonoscopy until another month. Forced myself to ER, ER doctor wouldn't admit me. Luckily, my brother is a medical director of the hospital and pulled some strings to get me. The colonoscopy revealed that I have Ulcerative Colitis. At least, now I know. I wanted to let others know that you need to take this seriously and not wait 33 days like I did. Bloody stool, flare-ups will cause 30 times of going to the toilet, rapid weight loss, no appetite, and tenderness in the lower left side. I am going to live with this disease and share with others. Thank you for doing this video.
My ulcerative colitis has changed dramatically after I started smoking weed. I used to be so anti weed but it literally has saved me so much. I no longer suffer with inflammation.
I smoke weed so I won’t feel the pain sometimes
Really?
What kind?
I heard that nicotine is good for UC ... Google it
@@carolgilmour1165 wow.. That’s actually really interesting. Thank you for sharing
Hey Louise,
I loved you video. Thanks for sharing. I was diagnosed with UC 10 years ago. I have had a few bad flares up over the years but these past 2 years I have gained control over my UC. I'm glad you are doing well yourself. Glad to know we have a community to talk it over. I was lucky to have found my wife who is a medical assistant and understood my condition but has learned move over the years.
What did you do for last two years? No meds?
Thank you for your video - excellent. I too am in remission now, however the anxiety aspect of it haunts me every day driven by the occasional ‘accident’. I have learned to deal with it as best I can and it hasn’t stopped me with travelling and sport but all that to the backdrop of anxiety. I hope you continue have a good standard of living with the condition. I certainly intend to not let it beat me. I’m in my 60’s and was diagnosed about 3 years ago! ❤
I was diagnosed two years ago and our stories are so similar!! Thanks for sharing. It’s definitely a life changing disease. Some days are better than others.
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
Louis as a person with UC (but in remission with 6mp) I thank you for having this conversation - I have been through pretty much everything you have so I can relate, I hope that you will continue to post as it helps others around the world know that this disease effects all types of people - switching to Entyvio (Vedolizumab) hopefully soon so we shall see how it goes, wishing you good health
Thank you.
I was just diagnosed 27/7/20....my diagnosis pending since 2012 due to failure in paper work not done from my hospital inpatient stay. I was told I would be referred to gastro team. But the paperwork was not done nor was a letter to my GP. My surgery was not aware n they would not chase or refer...the surgery was sold n the new doctors would not refer.
I'm glad now I have the answer to my diarrhoea, fatigue, vomiting, unable to eat, bloating, farting, burping, etc.
I am waiting for Crohns n colitis society to email me for support...due to covid...delay.
I have been diagnosed with UC for around 5 years, and recently I have just recovered from Uveitis which makes the eye(s) go red and painful. Get this checked out instantly if it happens to you- as it is linked to UC and can cause permanent vision loss.
Thanks for telling everyone that.i thought I was going crazy.the eyes alongside everything thing else no joke.please take care.
@@hollywitherite416 no problem, they tried passing mine of as conjunctivitis at first, but the pain was really bad so I went to the eye specialist.
I'm going next week to see eye 👁️ dr.concerned.i hope you get the help you need.
@@hollywitherite416 good luck, and if they need to give you an injection in the eye ball, don’t be scared- it does not hurt! 😂👍
😲👁️🥵 not thrilled to hear that.
I was walking my dog a couple of months ago and suddenly had that feeling of dread lol, anyway about 20 seconds later totally had had an accident (shat my self). There was this guy behind me and he said 'are you ok' because he saw me curling over. I just said, yeah don't worry i just shit myself and started running home. Fortunately i was only a 100 yards away from home lol. But seriously itis life changing
I can relate 100%
Can really relate to your experience! UC really impacts quality of life!
I feel for you. I find going outside on an empty stomach or after been to toilet helps.
I want to say thank you so much for sharing your experience. My husband is currently going thru this and is still undergoing testing for this and crohn's. He was in the ER this last couple of days. He literally had all the same symptoms you shared.
God bless you Doctor Salami On RUclips for curing me from my chronic illness I never believe there was a cure I am indeed very grateful. Hit him up if you suffer from Incurable Disease.
Thank you for making this video. I have Crohn's disease but could relate to all the symptoms you mentioned, especially the fatigue, which is the worst for me. I come out of the loo looking like I have just done ten rounds with Mike Tyson, stagger to my bed and just fall on it cause I dont have the energy to climb in! Lying there you begin to feel the pain creep back and you think "oh no! Oh, no no no, not again!"and so it goes on. It helps so much to hear your story and the others posted here. I also suffer with anxiety and I believe it is strongly connected to the cause of my Crohn's. So pleased to hear you are in remission here's hoping it lasts for many years! Merry Christmas to you and your fam. Thank you again Louise x
I've had cronies for nearly 50 years I'm now 67 and I've only just come to turms with talking sbout it I've always been quite private so good on you your video was great to watch thank you
Thank you for sharing! I’ve been on mesalamine and mesalamine enemas for the last couple years but they’re no longer working for me (the enemas just haven’t really been helping me either!) so trying a biologic for the first time now. I’m hopeful but still scared of the unknown.
It’s always so reaffirming and encouraging to hear others’ stories, especially the parts we’re all usually uncomfortable discussing! I feel less alone. Thank you!
Thank you so much for sharing your story. I too had never heard of it until they thought my issues could be the cause of UC. i got diagnosed officially Feb 2020 (this year). I had my symptoms for 4 weeks before I seeked help. Don't be afraid to talk to a doctor. Don't wait as long as I did. Mine started in December (I blamed it on christmas food & my IBS not agreeing with it).
Hi. I hope you doing well.
Brilliant video.. Thank you.
I’ve been in the hospital for the last 9 days. Just diagnosed with severe UC. This is brutal. Thanks for the video.
Hope your doing better I follow you on Facebook just seen your update and decided to research a little a bit I had bleeding ulcers last year and spent a week in the hospital getting blood transfusions and endoscopy to fix the problem worst week ever things get better keep up hope man
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
so, how are you now, how are u feel, im curious to know
@@nakulkumar4903 I feel great now
RobertFrank615 please watch Dr Eric Berg on YT . He's very good.
😊Thank you, very informative & as you say, each person is & can have very different symptoms. I needed to have extensive surgery, which I required a Stoma & has helped immensely. Good luck! Kay
My experience has been so accurately identical to yours
Just come across your video louise and want to say a massive thankyou for sharing and explaining about your condition. Ive just got out of hospital after being admitted with severe pain in my lower right flank and towards tummy area. It was so bad i was crying with the pain and was rushed to hospital which is where i first heard colitis mentioned. Ive had diarreah on and off all my life but last week i had a lot of blood in the stools every time i went to the loo. Felt fine in myself but a week later i woke up at 2am in absolute horrific pain felt like something had burst inside my gut. In hospital i was put on a iv drip and given morphine. Got sent home same day and the saturday i was fine but pain came back with a vengeance sunday morning so admitted back to hospital. Had ct scan and nothing found then had to provide stool sample which i needed suppositories and laxative drinks to help get. Theyve fast tracked me in for a colonoscopy in the next 2 weeks hopefully get some answers but listening to your story i can relate so much to your symptoms and anxiety. Thanks again for sharing. Take care joe
Joe how are you doing now after colonoscopy?
Thank you for doing this video and bringing attention to this horrible disease! I got diagnosed with ulcerative colitis on Friday and i currently don’t know much about this disease, I’m unsure where to go from where I am at the moment! I’m hoping my doctor will contact me and hopefully be told what to do next! Is there a fb group or chat room to talk to others that have ulcerative colitis?
I feel your pain. I just got diagnosed today. Ct, stool, and blood work but after all the struggle and pain I feel relieved that I can manage this. I lost 20 lbs during this flare up. Those head torches are amazing! We have 2, hand free. You might just have to wave your hand in front of it.
Hi. I hope you doing well.
I have symptom of the disease. I’m waiting for endclonscopy
Well done, thanks for sharing. I have had UC as well for about 3 years, and do the Mesalamine also. Flare ups are ROUGH. People that don't have this have no idea how bad flare ups can make a person feel
Thank you Louise you are so stunning orange eyeshadow and blue dress ! Stun
Was just recently diagnosed. Thank you for your wonderful video!
probiotic rich foods like kefir and pickled veggies aree the cure
Thank you. Thank you. Thank you. 💕
Thanks for the video! Your bringing great awareness for crohns and colitis. My main symptoms are the fatigue and joint pain and sometimes it’s really hard to live with. I’ve had crohns for a while now. I’m also a big fan of Made in Chelsea lol.
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
Got diagnosed last year. It was so bad. I was bleeding like hell for two months and the doctor didn't believe me. Eventually I was allowed to deliver a sample, and my calprotectin was skyrocketing. Shirtly after that I got my colonoscopy, but by that time I was already in remission. The horror of going through the cycle with no medications to the point where the body just had to deal with it itself... Currently having a new flare-up. Not as bloody as back then, but I started treating it with steroids when I noticed the blood was back.
The worst part is that you can't really eat your way to health either, cause when it comes down to your colon, it's just poop - there's nothing left to react to..
It keeps me from doing things I used to do, because when I have to go, I have to go, and if I'm not at home (or somewhere else I feel safe), I get constipated. So you get bloat, blood and constipation yet it will explode out of your butt when you finally calm down enough to go..
It's such a funny illness..
I thought it was bad last year. I just got home from a 5 night stay at the hospital. Last year was fine. Last year was no problem.
Beautiful lady thanks for the info 😍
You’re amazing, thank you for sharing your story 😊
Thank you for sharing your story and I hope you are doing well now and God bless you.
Firstly Thankyou for your video, your very brave to talk about Ulcerative Colitis.
I’m 64 and was diagnosed 30 yrs ago. Everything you have said happened to me.
In 2008 I was caring for my Mum 24/7.
I became very ill over a few months and ended up in hospital for two months.
They fitted a temporary Loop Illiostomy (badly as it leaked a lot)
So my colon and rectum could heal.
I had infusions of Infliximab every 6 weeks at hospital for 5 years.
I’ve been well for about six years now. But I have gained a lot of weight due to bad mobility.
Arthritis in back, hips both thumbs and wrists etc. Lol.
I had my right hip replaced in 2012 and a very unpleasant time after.
So I’m keeping my left hip. It’s fussed into my pelvis now.
I’m wondering now about all the pain I get and that it could be U/C.
I’m sorry you have this awful disease. Do take care. Try and avoid surgery if you can.
Once they invade your abdomen it makes the area weak.
I’ve had several hernias operations using a mesh. It never stays in place. I’m not having any more ops.
Bless you 🌹 Maddy.
I had a similar experience and was diagnosed in January 2021. Was a pretty brutal seven months of misdiagnosis up to that point. Lost about 9kg and felt absolutely terrible. Things are better now but still not totally back to normal. What I eat can greatly effect my body and I'm still learning about how to adjust.
Yeah diet is huge factor in remission abd healimg colon
Also dopamine is produced in the gut so this absolutely effects anxiety levels because uc can inhibit dopamine production
After my chrons disease diagonisis 8 years ago, I stopped all the chrons disease medicines/treatment prescribed due to severe side effects, and decided to go on natural herbal approach. My primary care provider introduced me to Dr folonsho and immediately started on their chrons disease herbal formula treatment, this herbal treatment made a tremendous difference for me. my symptoms including shaking,diarrhea,vomiting,blood stool,fatigue,abdominal pain,stomach pain,excruciating pain and urinary retention all disappeared after the 1 month treatment contact Dr folonsho the herbal healer { { drfolonsho@gmail.com} you can visit his website at drfolonshoherbalhome.simdif.com/ order-online -today
I have been in hospital since Wednesday n ive been diagnosed with ulcerative colitis and i honestly am devistated ive been crying in the hospital bed for hours. I dont eat alot of vegies. Im going to struggle with this
I love her eyeshadow 💕
I have usrat clitus
I am watching all these young people with this disease, and I really cannot understand how I was just diagnosed with this problem. I am 75 years old and I have been healthy all my life it has really made my retirement the pits. They say old age has something to do with it but I am totally confused. My medicine has not helped yet I I am depressed and pray for a little relief soon!
💚💚💚
Thanks for your help, I really appreciate it 🙏❤️
I have ti
My mood change dramatically but I'm a very healthy eater and I don't eat meat or takeout foods. Stress is bad for flares.
Stress alone can cause a flare
I once worked with brick masons and got internal hemmorhoids. They
became infected. Then I was diagnosed with ulcerative colitus and
proctitus. I have found that I have flare-ups when I pressure wash old
mildew from the side of my house and also when I have toe-nail fungus
(appears white underneath the large toe's nail). I have also found that
if I use hydrogen peroxide to soak my toe's in (bought a little
toe-nail foot bath tub) the toe-nail fungus dies quickly. I scrape out
the fungus first from underneath and then soak them in hydrogen
peroxide. I looked at some youtube videos on getting rid of toenail
fungus and the hydrogen peroxide method seems to work for me. I suppose
the fungus gets in the bloodstream and goes to the old damaged rectal
area where I had the internal hemmorhoids causing UC flareup. I use
rowasa prescribed by my gastroenterologist and the peroxide toe-nail
treatment and UC usually goes away in about a week. I really only have
flare-ups when I pressure wash the sides of my or my parents house in
the last few years. I notice that when I get the flare-ups my digestion
is not as efficient and therefore I get backed up so I use glycolax or
miralax laxative 10 mg/twice/day. I also take a tumeric/curcumin
supplement. If I drink beer it seems the yeast gives me a problem so I
don't drink it. Liquor also not sure if its the thinning of the blood
that causes flareups. I eat ground flax seed meal every morning with two
boiled eggs (for complete protein) along with some pineapple slices. I
stay away from breads. I mostly eat meat, vegetables, and pineapples. I
sometimes take a multivitamin, and a Vitamin C tablet, along with
Complex B vitamin. I try to walk at least 4 times a week. Doing situps
and jumping jacks seems to help things move along in my bowels. Hope
this information can help someone. Take care.
I have proctitis can u please give me your email or fb ...
Our stories are sooo similar wishing you the best thank you for making something invisible, visible ♥️
My son’s story is very similar as well. He just found out that he has UC after waiting over 4 months before seeing a Dr.
So I am trying to collect information so I can be supportive. Thanks for sharing.
Thanks for sharing your experience.
When are they going to come up with a cure and what medication are you on?
Just got diagnosed with it had a really bad faler up 2days ago went to the er was one of the scariest things I've been through the pain alone is what got to me
Thank you for sharing, I was also diagnosed around the same time as you, in the UK. My GP fast tracked a colonoscopy by saying he wanted to rule out cancer. I was prescribed Mesalazine like you. This medication caused a side effect of Pancreatitis, a swollen pancreas, which causes great severe pain in the left side under the ribs. I have stopped taking any meds and trying not to get stressed, which causes flare ups. I manage my diet by going very low fibre if the colitis kicks off and mostly liquid food, for easy digestion.
here is one thing you need to cut out right away, Chlorine is a know gastric irritant. Eliminating the chlorine and other irritants found in most public drinking water can benefit those with inflammatory bowel disease, ulcerative colitis and Crohn's disease, chlorine is bleach , the only way to do this is to get a water distiller this water is the best you can get this is the first thing to do
@@marechell66. So true, I've been drinking bottled water and filtered water for years, then recently started a new job where you're not allowed liquid at your work station, so they have fountains, of tap water, within a few weeks I'm in a flare, also I've been chewing gum, which has aspartame in it, that didn't help.
I'm gonna start smoking tobacco to see if that helps with my flare!
But once colon calm fiber can help the gut heal right?
Louise can identify with UC as I going through same since 2018 hope it eases I'm on inflixamb and its help so take care godbless
same symptoms for me about 2 years ago, then I got diagnosed. Then it seemed to get better after the medication(the suppositories are not fun btw)). So after I stopped taking the medication thinking it was all just a mistake. Now I am in a bad relapse, I was on the toilet over 50 times yesterday and know I have to stay on the med's because I really do not want a colostomy bag. Anyway all the best Louise x
Try Kefir, it helps a lot and maintains remission for a longer period
Thank you.
Hi thanks so much for sharing your story with us, i watched many videos the doctors advising that the need to take a very good Probiotic it will help you a lot with very good nutrition diet cooked vegetables 🥗, so the decease doesn’t spread further. Please avoid drinking alcohol and caffeine.
I have UC this video helped a lot makes me fell a bit less lonely, I feel fine now thankfully but I am on they tablets 😞 I’ve found CBD helps personally
Thank for the video
I was just diagnosed with it and literally no one in my family has or had it!
Hi thank you for sharing I just be told I have the condition so any advice I do appreciate .
I just got diagnosed with colitis. I’m waiting for a colonoscopy to find out if I’ve got chrones disease. I just graduated high school this year and I’m in so much pain and I fear that it will be something I go through all of my life, and sort of like my life is over before it’s even starting.
Please don’t feel bad. There’s a lot of help around these days for us who have this illness.
I’m sure as soon as you have a diagnosis and the Doctors get you on some medication then you will be feeling different and hopefully able to control you situation. Bless you. 🌹
No. Your life isnt over. Loads of people have this disease. Whilst it can be hard work to manage and tiring when its active, its not stopped people I know graduating, meeting and raising a family with their life partner, and having fulfilling careers. See the bios for Sir Steve Redgrave, and Shinzo Abi, the PM of Japan.
I am sorry to hear that, i do have the same disease, try taking kefir (probiotics) it relieves pain and puts you into a longer remission. Best wishes
@@maddyclark5284i saw a video about curcumin the guy said he takes it 3x a wk and all his symptoms stop.
Why did they check again
whether you had. Crohns? Was diagnosis changed?
Hi, I'm ED in Yorkshire and I'm awaiting a colonoscopy on NHS. I was supposed to have had it in January but it was cancelled. Then they offered me another date and I had to cancel so I could get advice on my being overpaid for Working Tax Credit at a local advice centre.
Then, along came the Coronavirus Pandemic!
I was talking to doctor for around 2 years and it took that long for me to get a colonoscopy but eventually it became an ermergancy so I just got it done 2 weeks ago and I’m only 13 so a lot went wrong and I have crohns and ultcer colitis
I’m on lots of steroids to help it but it’s not working so I have to get my colon removed
Bless you. Don’t rush into surgery!
Ask about Infliximab. It’s a very good dry you have into your arm.
I nearly had my colon removed.
My Dr got me this drug I had it every six weeks at the hospital and I’m in remission now for the last six years.
Good luck ❤️
UPS COURIER DELIVERY SERVICE omg thank you so much but currently I’m on 4 different meds that seem to be working but unfortunately 2 days ago the doctor I gusse did not know that 2 of the meds could be taken at the same time? And randomly at 6:00 at night I started having a painick attack! And about 10 mins after I started having mini sezuries every 4 mins so we went to the Er and I was stuck there over night so currently I’m not looking to try any meds right now but I do really appreciate the help
Sweet child I’m so sorry... so anything that I hate the most is children having to go through this...you’re tough! I cried the day I was being put to sleep for both a colonoscopy and endoscopy! At 24 year old crying like a little girl....you’re not alone 😓🥺
bit life it’s not real… I’m so sorry, there’s no cure. @UPS COURIER DELIVERY SERVICE is a bot trying to spam you and to earn money off suffering people. Stay strong, and beware of 🤖!
Please can I ask you what you eat for your breakfasts. Thank you 🙏❤️
I had to have a stoma because of colitis the pain went after that. I feel for you louise.🤗🤗
Was the stoma tempory or permanent and does it relieve the pains from colitis?
Meslamine doenst help me. I take steriods, bensonide but i cant stay on it. Im supposed to take meslamine daily but it doesnt help. Great video thanks.
Myself is from India, I am suffering from ulcerative colitis. Can you suggest me what all food items we need to avoid ? My doctor prescribed me to take medicine lifetime. So will that medicine affect other organs like kidney & liver ?
U might can google that.
The enema doesn't work for me either and I have the opposite i have really bad constatation and hard stool But like you I have all the mucus and blood every single day I haven't been diagnosed yet but im almost certain I have it cuz Its been almost 4 months with the really bad symptoms now my colonoscopy is November 5 thank god they are finally going to give me some anwsers I had to quit work because the pain was so bad and the fatigue is so bad oh and I also have the showllen dome thing you talked about
I have a question with me every morning at the same time I get an awful feeling in my stomach that says go to the washroom. Have you had similar symptoms?
Hi. I hope you doing well. After the colonoscopy
I’m waiting for my colonoscopy I hope they. It be late
How long it’s take to get appointment after stool test
Have you had sibo test small intestine overgrowth bacteria
I was diagnosed with it on Monday. So far meds seem to be working but I hope it don’t come back .
How's your condition now.. are you okay.
Hi.
Can I ask what medication they gave you please?
The thought of steroids petrify me xxx
i have had ulcerative colitis (UC) for a number of years now and I have been on everything, Asacol, prednisone etc. My cousin told me one day that a woman who had the same disease told us about PLANET AYURVEDA and cure UC. I went there and got some herbal formulations with dietary recommendations , I feel so much better.
Mine also started like hers ! I ate something and I felt sick
ye ate yer fingers comin out yer asshole........
@@johnrafferty7781 thats uncall for ! Have some respect for people !
PROBIOTIC RICH FOODS PLEASE
I have uc it’s caused me depression
Thank you
It may be caused by embodied trauma as wel, im combination with other causes. There is an interesting book called Cured. What worked for me are (living) probiotics, I drink every day home brewed water kefir, and am symptom free and medicine free for about a year now
What is the best diet for UC?
It seems different for everyone
Thanks for sharing. 6 years ago I was at the point Prednisone no longer worked & biologics were the next step. At that time I found a book called Self Healing Colitis & Crohn's by David Klein that allowed me to heal without any meds! It outlines a vegan (largely fruit) diet based on the way we are actually designed to eat. I am still vegan today and have only had one flare up in these past 6 years, which I was able to knock out in a few months without drugs. I strongly recommend anyone struggling with UC & looking for answers to check this out.
How can your skin be so nice and glowing when you have gut issues??!!
I’m 17 I was diagnosed with uc at the age of 16 this is very new too me only a few months but had symptoms w weight loss and bloody stools I resent got out of hospital which I was in for 2 weeks because of a flare up I’m new and I honestly a bit lost with it all is there any tips Iv read online about the condition but still finding it hard to understand if any tips or anything please let me know
Good luck---Unfortunately the treatments may be worse than the disease--the cost to treat is thru the roof
U r so gorgeous honey... beautifully awesome.... may god bless u health and wellness...
Sounds like it’s early days for you , living with UC , so sorry to hear that , yes it’s a very debilitating silent illness . I believe causes are genetic and stress ! Diet was my big healer ! My whole family has it , parents , Children , grand children , all had surgery,. plant based is the answer , not medicine , yes medicine can be life saving , but living with a life Time illness meds are not good , side effects can sometimes out weigh the illness itself , long term steroids etc , medicine suppresses, not heals , eating the right food heals the body , the body is amazing , it has the ability to heal itself given the right conditions , avoid trigger foods . ( it’s like holding a gun to ourself , we shouldn’t blame genetics, it’s up to us if we pull the trigger , and eat junk food and fizzy drinks , we get sick , be kind to your body , dont put toxins into it ,listen to your body ,eat the right stuff , the Health rewards speak for them self’s ,
I went largely vegan years ago. It made a huge, huge difference. The abdominal pain stopped… and the excruciating abdominal pain and bloating radically improved. I still have bouts of terrible, terrible exhaustion and urgency to go to the toilet.
My old dr was hopeless. Said that the exhaustion and UC link wasn’t a thing🙄 and that it wasn’t possible to have an actual accident because the rectum stops that 🙄🙄🙄. My specialist also queried the exhaustion and UC link. Which left me feeling utterly desperate tbh. I now have a lovely dr who totally understands. You need support when you have UC. It’s such a difficult disease to manage.
I didn't get diarrhea or bloody bowels
But still diagnosed with UC
I feel pain and bloated that's it
I am experiencing sleepless nights as well... Its so hard. My doctor took my lymph node because it led it to be expanding
Struggling with this disease from last 20 years. Life is not normal. Remission always there .skin damage nowadays facing.😢
😢
Is the bleeding that supposed to go away with medication or is it always present? I have been taking Salofalk for 2 years and I'm still bleeding not extensively but it's there. Should I be changing to a different medication? My symptoms are not that severe.
Talk to your primary Dr also ask him or the nurse this question.
What was your Dr advice ? Having a same problem here ….
I have
How do you live with it
please take time to read this, it might help you my husband suffered from crohn's disease almost all his life and i can tell you that its really terrible, watching him get lean and pale worried me the more, he lost appetite, he was always and was unable to go to work again,he kept having sores in his mouth and the constant pain was making the situation worse. we kept going from one gastroenterologist to another, they were not helping the situation, they kept giving us different drugs and it was making it worse,they kept increasing the dosage, in 2016 when i went to cvs pharmacy to go and get another drugs for him, that was were i heard about dr folonsho a herbal doctor, who specialises in using natural roots and herbs to treat diseases and chronic pain. at first i was in doubt, because we have tried many options that were not helping and all the doctors we came across told us that there was no cure, and i believed, so i contacted this herbal doctor and he said he could help my husband,after i told him my problem, he said he has a herbal remedy that can heal my husband and reverse this illness completely and he will be back to his normal state of health, not having many alternatives anymore i requested for the herbal remedy,because the situation was getting worse, after using the medicine for about 3 weeks there was great improvement, and my husband was getting back to his normal self, its been 4 years now and my husband is still strong as ever, all thanks to dr folonsho, and may GOD continue to bless you, so if you are still sufferring from this disease kindly contact dr folonsho today either through email drfolonsho@gmail.com or via whats app +2348073410606 or you can check out his website drfolonshoherbalhome.simdif. com/ and you will be glad you did, i wouldn't want someone to experience what my husband did
I’ve seen videos on utube of people healing from this by going on a carnivore diet. Sounds really strange at first but after listening to them I’m trying it. Just getting over a flare up and my weight is to low. After eating quality meat for two days I’m feeling better. We will see.
How did it go ? How are u now? :)
great
Ia diagnose uc recently
Has anyone drank alcohol with UC?
Chronic uc can lead to malignancy so early detection is better