TSW Vlog Month 12 (Part2/2) | 1 YEAR ANNIVERSARY

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  • Опубликовано: 10 янв 2025

Комментарии • 32

  • @Johnnymahon218
    @Johnnymahon218 Год назад +3

    Gald u doing better. Everyone has the right to decide for themselves what they want to do without others pushing their opinions on us. We all are still learning about this TSW condition so we take in what we learn and do what we have to. Thanks for sharing your experience. It's helping a lot of people going through this.

  • @theodoreoss6211
    @theodoreoss6211 Год назад +4

    I’m so happy for you that you’ve found what works for you ❤ it’s been a rough year for me too with my skin and I totally relate when you say you can’t recognise yourself in the mirror 😢 your boyfriend is such a supportive individual unfortunately my boyfriend wasn’t so supportive and I’ve learnt to accept myself as I am now with or without him ❤

  • @chelsmacaraig
    @chelsmacaraig Год назад +3

    Awww Remi!!!!! Much love to ya! 🫶🏼😭 excited to see where this next journey takes you!

  • @lau.e.3316
    @lau.e.3316 Год назад +3

    You look good !! Glad seeing you doing better and being happier !
    I'm French and seeing you vlogging in Sydney reminds me of good times when I was living there almost 10 years ago!
    I can't wait to see a little bit of Melbourne through your vlogs as well.
    Take care and don't stress out !

  • @cornisyummy7
    @cornisyummy7 Год назад +4

    Your shower moment resonated so much ❤ I can’t wait to also be able to shower pain free!!

  • @isagoldfield7393
    @isagoldfield7393 Год назад +3

    Remi, thank you for sharing your journey with us. We’re all glad you’re doing well & looking marvelous🌼💜👼🏻🌸

    • @remi.tswjourney
      @remi.tswjourney  Год назад

      Thank you for following along🤍🤍 Since I’ve started sharing my journey, it feels like I made lots of friends because you guys are always there for me🥰🫶

  • @thedredayshow9246
    @thedredayshow9246 Год назад +3

    I'm pretty much the new kid on your block, but congrats on getting your TSW in order. 😊😁

  • @raymenezes1468
    @raymenezes1468 10 месяцев назад +1

    Remi! I've been watching all your videos and this one is muted :(

  • @RicePho
    @RicePho Год назад

    I'm happy you gave dupixent a try. I had TSW for 3-4 years that I took the risk and ask my dermatologist to sign my up for the medical trial for it. It cured my TSW and also I would say cured my eczema to where I only have 5% of eczema only . As a person who also had TSW I know the pain and I'm glad you gave dupilumab a try.

    • @remi.tswjourney
      @remi.tswjourney  Год назад

      I’m glad I gave it a try too. It’s been life changing. How long have you been on dupixent for?

    • @RicePho
      @RicePho Год назад

      @Remi's skin journey when I did the trial I recall I was on it for 1 year or 1 year and a half because that was how long the trial lasted for. I was given a placebo first in the test so that placebo lasted 1 yea. After the test I never had to use it ever again. It is a life changing medication. The trial pretty much lasted for 2 years.

    • @Checkthem22
      @Checkthem22 Год назад

      @@RicePho Are you still almost normal? How severe was your eczema/tsw. I’m on a really bad flare atm unsure to do NMT or try dupixent.

    • @RicePho
      @RicePho Год назад

      @Epa Derm if it isn't TSW then don't take dupixent since of the cost and I'll be real we don't know the true side effect of it since when I did thr trial it was on rapid approval. Usually, a new medicine, especially injection, takes years to see the full side effect. How severe was my TSW was as bad as remi in her videos, remi has more severe infection while my infection was usually on my scalp since I scratch my head. And 100% yes I'm normal now other than a flare up 1 or 2 times a year. Iching SOOOOO less now.

    • @Checkthem22
      @Checkthem22 Год назад

      @@RicePho that’s awesome, im happy for you! You’ve not noticed one side effect so far? How old are you? Was your eczema bad to begin with? I’m really thinking about asking my doctor about it, do you have any idea what the pricing is or was yours done through NHS?

  • @kimberlylaguna4272
    @kimberlylaguna4272 Год назад +1

    Is ur skin still extremely dry and can u sweat know cause when I excersise I can’t sweat and I am extremely hot all the time

  • @asuranrocks
    @asuranrocks Год назад +1

    looking good! ahh decaf with soy milk... that was my usual too... not anymore! actual milk is better for our skin

  • @krista5077
    @krista5077 Год назад +4

    What happens when you get off dupixent ?

    • @RicePho
      @RicePho Год назад

      Nothing, I know cause I was one of the medical trial participants when I had TSW.

    • @Checkthem22
      @Checkthem22 Год назад +1

      Has your tsw/eczema cleared up?

    • @RicePho
      @RicePho Год назад

      @@Checkthem22 Are you asking me?

    • @Checkthem22
      @Checkthem22 Год назад

      @@RicePho yes

    • @RicePho
      @RicePho Год назад

      @Epa Derm oh, ya it has cleared up BIG TIME. I do get flare up like 1 or 2 times a year which I use protopic but everything is better in life now after dupixent.

  • @Rebecca236
    @Rebecca236 7 месяцев назад

    Is something wrong with the sound?

  • @alvinsiew1025
    @alvinsiew1025 Год назад +1

    Hey Remi, hope you’re doing fine, I have super severe eczema before and what I did was spraying a kind of Chinese tea 白莺山 for few weeks. The results are amazing. Hope that this could help you as I know eczema is super depressing. Let’s fight tgt and get clear skin!!