Such a great interview! I am really enjoying these podcasts. I can’t emphasize enough how much I appreciate what you are doing Darren, listening to you talk is like a validating, soothing balm! It is so heartening to hear health professionals who are honest, curious and open-minded especially when it comes to learning about PEM which is such a debilitating condition that is not widely recognized. I had been in remission from ME for 7 months when I developed flu symptoms last March. A few weeks after recovering I started to suffer severe fatigue and brain fog and then a long list of debilitating symptoms. Due to the overlap of symptoms I have no idea if I have long covid or whether I experienced a sudden relapse of ME. I am still battling this illness and have been totally housebound since June. In all the despair and frustration dealing with this, hearing these kinds of interviews gives me hope that this sharing of knowledge and compassionate approach will eventually ripple out to the rest of the medical community. Thank you!!
Thank you Heidi. This is such a kind message and really means a lot to us at Long Covid Physio. We are pleased our work is useful to you and others, and share your hopes of ripples. Wishing you well in your recovery.
@@LongCOVIDPhysio Thanks so much for the well wishes and I also wish you a complete and permanent recovery from this! Keep up the good work, I will be cheering you on!
Thank you for the podcasts! It’s great to hear what others, and in particular health professionals are experiencing faced with Long Covid. I’m lucky that I caught Covid in December 2021 and that most peolple have heard of Long Covid. I face less disbelief than you and others probably did. I have a couple of questions: I see no episodes after august 2021, perhaps there are interesting updates to share by now (March 2022)? And are there now new forms of rehabilitation taking into account post exertion malaise? I’ve heard of yoga programs focused on Long Covid.
Thank you. We ended season 1 of our podcasts to centre our energy on new outputs. We may return with podcasts in the future. You can see all of our past and present work on our website longcovid.physio/our-work
I really enjoyed this podcast. I am nearly 7 months post covid now showing no improvement in my symptoms. I am asthmatic (under control) and was hospitalised on Day 9 of covid with sob oxygen levels of 93% and admitted to hospital here in Bournemouth in the UK on a low dose of oxygen for 5 days, put on dexamethasone and Doxycline for the start of inflmmation in the lungs. I realised about a month later when I started going out that there was something very wrong with my breathing patterns. I felt that my breathing was not in sync and I simply couldn't regulate it on my 10 minute walk to the bus stop. I continue to have this problem, but I really didn't feel it was anything whatsoever to do with my asthma and my ventolin inhaler hasn't made any difference. I don't believe I've had any kind of chest pain as such. I'm awaiting a referral to the Long Covid Clinic here now. I've given my body 6 months to show some improvement and it simply is not happening. I'm quite interested in the link to mcas re the mast cells and with my medical history that resonates with me. I feel like my life is in limbo, that I desperately need some direction, whether there are things I could be doing to help myself?
Thanks for the video! I was diagnosed with a breathing pattern disorder after contracting covid in March 2020 (all my chest X-rays and ct scan came back clear). I just wondered, is one of the symptoms of chronic hyperventilation syndrome a struggle to actually inhale? Along with the constant air hunger I have, where I feel I can’t get to the top of my breath, it’s also difficult to draw in air from the moment I start inhaling. It’s like I’m pushing my lungs open every time I breathe. Do you think this is part of the breathing pattern disorder or could it be weak respiratory muscles?
Yes, that is very common symptom in many of my patients with breathing pattern disorder. It can sometimes being related to having an incomplete exhale - that is, you don't breathe all the way, and keep some air in the lungs (chest will be high and tight as a result). Then you try to breathe in on top of it - it will feel very restricted. The key is to "paaaaah" and release all the air - feel your chest drop - and then try to stay small volume belly breathing after that.
I have had severe breathing problems for the last six months to the point where I just want to quit my job . I’m just curious can you cause yourself to have a heart attack from all the hyperventilization and chest tightness from wheezing and not being able to breathe ? I start to get kind of like heart cramps or heart pinches in my chest where my heart is now . This stuff is so scary . I just want my life back . I’m only 30 yrs old and I’m starting to think of suicide because it’s a every day battle 24/7
Such a great interview! I am really enjoying these podcasts. I can’t emphasize enough how much I appreciate what you are doing Darren, listening to you talk is like a validating, soothing balm! It is so heartening to hear health professionals who are honest, curious and open-minded especially when it comes to learning about PEM which is such a debilitating condition that is not widely recognized. I had been in remission from ME for 7 months when I developed flu symptoms last March. A few weeks after recovering I started to suffer severe fatigue and brain fog and then a long list of debilitating symptoms. Due to the overlap of symptoms I have no idea if I have long covid or whether I experienced a sudden relapse of ME. I am still battling this illness and have been totally housebound since June. In all the despair and frustration dealing with this, hearing these kinds of interviews gives me hope that this sharing of knowledge and compassionate approach will eventually ripple out to the rest of the medical community. Thank you!!
Thank you Heidi. This is such a kind message and really means a lot to us at Long Covid Physio. We are pleased our work is useful to you and others, and share your hopes of ripples. Wishing you well in your recovery.
@@LongCOVIDPhysio Thanks so much for the well wishes and I also wish you a complete and permanent recovery from this! Keep up the good work, I will be cheering you on!
Thank you for the podcasts! It’s great to hear what others, and in particular health professionals are experiencing faced with Long Covid. I’m lucky that I caught Covid in December 2021 and that most peolple have heard of Long Covid. I face less disbelief than you and others probably did. I have a couple of questions: I see no episodes after august 2021, perhaps there are interesting updates to share by now (March 2022)? And are there now new forms of rehabilitation taking into account post exertion malaise? I’ve heard of yoga programs focused on Long Covid.
Thank you. We ended season 1 of our podcasts to centre our energy on new outputs. We may return with podcasts in the future. You can see all of our past and present work on our website longcovid.physio/our-work
Thank you so much for this!!!!!!
You're so welcome!
I really enjoyed this podcast. I am nearly 7 months post covid now showing no improvement in my symptoms. I am asthmatic (under control) and was hospitalised on Day 9 of covid with sob oxygen levels of 93% and admitted to hospital here in Bournemouth in the UK on a low dose of oxygen for 5 days, put on dexamethasone and Doxycline for the start of inflmmation in the lungs. I realised about a month later when I started going out that there was something very wrong with my breathing patterns. I felt that my breathing was not in sync and I simply couldn't regulate it on my 10 minute walk to the bus stop. I continue to have this problem, but I really didn't feel it was anything whatsoever to do with my asthma and my ventolin inhaler hasn't made any difference. I don't believe I've had any kind of chest pain as such. I'm awaiting a referral to the Long Covid Clinic here now. I've given my body 6 months to show some improvement and it simply is not happening. I'm quite interested in the link to mcas re the mast cells and with my medical history that resonates with me. I feel like my life is in limbo, that I desperately need some direction, whether there are things I could be doing to help myself?
Thanks for the video! I was diagnosed with a breathing pattern disorder after contracting covid in March 2020 (all my chest X-rays and ct scan came back clear). I just wondered, is one of the symptoms of chronic hyperventilation syndrome a struggle to actually inhale? Along with the constant air hunger I have, where I feel I can’t get to the top of my breath, it’s also difficult to draw in air from the moment I start inhaling. It’s like I’m pushing my lungs open every time I breathe. Do you think this is part of the breathing pattern disorder or could it be weak respiratory muscles?
Yes, that is very common symptom in many of my patients with breathing pattern disorder. It can sometimes being related to having an incomplete exhale - that is, you don't breathe all the way, and keep some air in the lungs (chest will be high and tight as a result). Then you try to breathe in on top of it - it will feel very restricted. The key is to "paaaaah" and release all the air - feel your chest drop - and then try to stay small volume belly breathing after that.
Do you by any chance also suffer with acid reflux since having these symptoms ?
I have had severe breathing problems for the last six months to the point where I just want to quit my job . I’m just curious can you cause yourself to have a heart attack from all the hyperventilization and chest tightness from wheezing and not being able to breathe ? I start to get kind of like heart cramps or heart pinches in my chest where my heart is now . This stuff is so scary . I just want my life back . I’m only 30 yrs old and I’m starting to think of suicide because it’s a every day battle 24/7