Weirdly, one of the worst parts of being sensitive to light and sound is how boring it is. Yes, you're in pain, but you also can't do anything to distract from the pain, because that would make it worse. It's just curling into a misery-ball for hours until you *finally* fall asleep.
I used audio Books and Podcasts during a period of my life when I had migraines often enough to come up with a strategy to fend off the boredom of it. Low volume, radio-theater low-key kind of things that never got too much.
Being bored is the furthest thing from my mind when I’m having a migraine. 😆 the sensitivity is so bad, that I DON’T want to do anything. I just want to have my eyes closed in a silent, dark room.
One week out from menstruation I get a wixkedly brutal headache. No meds or enough water or caffeine can help. Thankful it's just one day but OMG it sucks to work with it, knowing nothing works.
@Chilapa not true, it depends on WHAT you eat as a vegan, as some vegans still eat poor diets,although it's less common. Migraine is associated with too much refined food, such as sugar, rather than meat/dairy products .
Thank you for setting the record straight. Too many people claim to have a migraine when it's really just a headache. As someone who's been having migraines since age 10, I certainly appreciate the distinction.
Oh yes! I suffer from chronic headaches when I don’t get a ton of sleep, but it’s NOT a migraine. I’ve had migraine a few times and I wouldn’t wish for it for my worst enemy. I hope you can manage, Ivy :)
Nothing more irritating than bumping into someone grocery/ clothes shopping who says " I have such a bad migraine today..."..... grrrrrrrrrrr..... no dear, you have a headache.... a migraine will lay you out flat!!
@@juliecross1567 I am sorry, but I disagree. As someone who's had migraines for most of my life, they can vary in strength by a lot. just because someone is still functional doesn't mean they aren't in pain
some migraines lack the "pain phase" of the attack - they are called silent migraines. migraines are helpfully defined not by pain level, but by their neurological effects across the 4 stages of migraine.
It's especially infuriating when someone says "Well, when *I* have a headache I just take a couple of aspirin and get on with my day. Why do *you* have to go lie down in a dark room?" with strong connotations of mental illness and/or malingering.
i've had migraines since i was 12 and honestly, the worst part is to continue with my job (literally in front of a computer) as my vision gets worse and my meds don't do anything. I don't mind having it at home, it still sucks, but at least i can just lock me in a dark bedroom and wait, or when i was in school i would just go home. But we can't do that in jobs, and many people don't understand how debilitating a migraine really is. I look forward for the day medicine evolves and there is a cure for this.
I'm crying reading this. It's brought me back to a terrible experience at a previous job. People don't understand how truly debilitating migraines are. I had to lock myself in dark offices sometimes to get work done or have my head covered under my parka's hood, and even though I had disclosed this to my manager (some days I truly could not make it out of bed or out of the house and had to work from home), I was reprimanded for *hiding* under my parka, not smiling at people at work. It was a very horrible experience. This was two years ago now, I still feel traumatized by the treatment I received.
I suffer from migraine too and I asked my neurologist about a possible future cure for it. Unfortunately she said while we might find better treatments for migraines, we won’t see the day of light for a cure for migraine in our lifetimes.
I am so sorry 😔😔 I wish I were your co-worker who would cover for you anytime you’re having an attack. I have been dealing with migraine since I was 15, but my situations have been a little bit fortunate. Take care, and I hope one day you’ll find the solution for your situation. Hugs.
Have you ever tried migraine glasses? They're supposed to be able to help with things like computer screens and fluorescent lights. They're a pinkish color if you Google migraine glasses.
As a chronic migraine with aura sufferer (I have one almost every day) I feel so heard right now. So many people talk badly about me and my mom because they think we're just lazy and don't believe that migraine is real. I actually am crying rn because I feel validated by this video. Thank you so much for this video.
One migraine myth that has been the bane of my existence is the migraines require headaches because that entire myth prevented me from knowing for ten years that I had VESTIBULAR migraines. I never got headaches. I had dizziness and vertigo and nausea and dyspraxia and visual impairment and memory issues. I've started medication now and have been on it for about a few months. Apparently I've been having migraines 24/7. I'm slowly getting back parts of myself and I feel more active and I am able to understand what the hell is going on. I just got a prescription for prisms in my glasses to help with the visual impairment and the medication helps me sleep. MIGRAINES DON'T REQUIRE HEADACHES. I will scream that out for the world because I am not letting this disease ruin someone else's life. I used to be a medical anomaly because I had dizziness and fainting spells with no heart issues, no blood sugar issues, no anemia, no deficiencies. It was a migraine.
Thank you! I’m going to tell my sister this. She also gets random dizziness the doctors haven’t been able to find out alongside the very occasional migraine. Maybe she is getting more occasional migraines without the headache part!
@@bronwynknox3605 try and have her ask about POTS. You can do the table test at home and report that to your doctor. That's also a very underdiagnosed condition. I hope she finds help and effective treatment!
I did not know the name for this, I have always called them silent migraines and honestly, they scare me even more than the super painful type. I have actually lost my vision and speech at times without pain! As I came to realize what was happening I began to treat this the same way I treat a regular migraine with better results.
Yup, the first few times I had a migraine, I had no idea what was going on. Blurry vision, nausea, difficulty speaking, sensitivity to light and sound. I thought I was having a stroke. Hours later I started getting a headache. I'd say 3/4 times I get a migraine, there is little or no headache accompanying it, but those other symptoms can be just as debilitating.
Chronic migraine sufferer here :( thank you for this video! I hope more people watch and listen. It's so hard being dismissed as having "only a headache" and having to try to live life. It's so hard to try to explain what's happening when attacks completely wipe me out, no energy all of a sudden, when I can't open my eyes sometimes (tremendous light sensitivity), constantly nauseous and uncomfortable - and then weak because I can't eat very well. It's been quite a journey in the past five years now, and oh man, mental health being affected doesn't help one bit. I miss my life.
It's so debilitating to have migraines. I can't think, see, function, and are down to a very primitive survival mode. And sometimes they are so bad I feel like I would accept a quick death if it was offered, just to get out of the torture. If you have them all the time, I can see how it could absolutely affect your mental health. Stay strong and take care of yourself, be gentle with yourself.
@@ronaldrenegade8519 Did this work for you? I've tried nutrition and it helped in other ways but didn't change my migraines at all. The migraines are a genetic problem unfortunately
@@ronaldrenegade8519 not really, prior to migraines my diet had been great. Since migraines, minus the times I'm not able to eat as much because I'm not able to chew due to the pain, my diet is still a good one. Even with supplements and "natural" remedies from the beginning (I don't like to resort to medicine) things weren't going well. My diet, is likely not it, doctors have looked at this multiple times and I don't eat poorly. If only it was as simple as that
I want to say, as someone who has been dealing with this for way too long (intractable for more than a decade), I truly appreciate this!! Thank you, thank you! For those of us who are in the 0.5% of the 1% who don't respond to treatments and have multiple things going on, it's refreshing to see this.
I never responded to anythting either, it is truly horrible to live like this! I hope you can manage and that you have a strong support system to help you
@@pabli_ From Wikipedia: "Craniosacral therapy (CST) is a form of alternative therapy that uses gentle touch to palpate the synarthrodial joints of the cranium. CST is a pseudoscience, and its practice has been characterized as quackery." I don't think you have ever treated anyone, with real migranes, and cured them.
@@pabli_ The only reason you will get any effect in some cases, in your treatment, is because people believe in what you can do. But you can't fix migranes, period! And it's not about what I believe, but about what I know. Your treatment is BS, just as homeopathy treatment, and healing, and the like, are.
It is not it is rather a demostration of how we confidently say the stuff we dont fully understand as stuff we do understand theres so much wrong in so many videos, only a few videos are truly gems especially the one about sleep(with the white man and white woman((sorry for the racial descriptions i forgot their names)))
@@ronaldrenegade8519 Agreed. These two are WRONG about curing migraines. Maybe not for all people, but most certainly for many. MIGRAINES CAN BE CURED.
Thank you for clearing this out. I've been struggling for a decade with migraines and it really affects your mental health and people do not understand the severity of it. Being in constant pain makes you want to do anything to make it stop...
I’ve never been diagnosed with migraines because doctors have alway said to me that it’s normal. Which I know it is not. When I get a migraine I need to be in a dark room, no light, no sound because both are irritating. I cry because the pain is unbearable. I cannot be talked to or bothered and I have to put ice packs on my head, neck, and eyes. I’ve had to deal with this since I was 8 years old. I remember the pain wouldn’t let me go to school, doctor back then said it was my eyesight. Till this day I wear glasses and yet continue with the migraines. Really wish some doctors listened and actually help people with this. But I continue to treat myself the best way possible.
I’m really sorry about that, that literally sounds debilitating…. Taking magnesium helps me a lot, it might help you. Also a melatonin here and there before bed, I hope you can recover!! Or at least the pain can ease up a little
I had family members insist that if we got my preschooler glasses his “headaches would go away.” No, they didn’t, because he isn’t getting headaches. 🙄 He was professionally diagnosed with migraines at the age of two, and I’m just thankful everyday that his pediatrician listened and took our concerns seriously (and was the one to suggest that it was migraines). I’m sorry that people in your life, who were in a position help you, choose to dismiss your concerns and invalidate your suffering that way.
Can I suggest you as your GP/PCP or equivalent doctor wherever you are from to refer you to a neurologist and should they refuse ask them to give you a letter confirming their refusal. You deserve to get the medical care you require. I had chronic migraine for years before it was finally brought under control and having my life back is surreal. I hope you get it resolved.
Hopefully you can get diagnosis and proper treatment soon. Had my first at 7 and while I don't have them much now they can be hell. Luckily I get migraine meds now but definitely sounds like they're ignoring the obvious to me. Hopefully they believe you sooner than later.
Ive dealt with eye migraines and migraines with auras my whole life, it’s nice having videos like this to explain the difference between headaches and migraines.
Oh my goodness! Thank you!!! I have chronic migraines and so many people don’t believe me when I say these myths are myths. Sending this to SO many people.
Thank you so much for this video. I am so fed up of people saying that a migraine is just a headache, either when I tell them I suffer with migraines, or they have a headache and say its a migraine when it's clearly not.
My husband occasionally deals with what he calls "full-body migraines" where the pain in his head leaks out into his entire body. Those are brutal, but thankfully rare. He also has both depression and anxiety, which only adds to things. Fortunately he is getting help. He was actually able to step out of our Christmas celebration and not feel guilty about it, because he knows why he gets sick during holidays.
I had daily nearly all day long headaches for over a decade. My dr just told me it was allergies and since I was a lifelong allergy sufferer, I figured he was right. I started seeing a Neurologist for sleep apnea last year and when we were going over my history, he just dropped his head and shook it. He told me there is no such thing as daily sinus headaches, that’s migraines. A few months later and we had them under control with a combination of seizure medication, tmj treatments, and sleep apnea treatment.
@@agathachris9722 I told my family physician to put a referral in for sleep medicine. Around here, it’s neurology that tend to do sleep medicine, but my kids are going to go and they could see either a pulmonologist or a neurologist at the children’s hospital.
@@agathachris9722 I had a sleep study done years ago for sleep apnea, it's pretty straightforward. They'll have you sleep in a monitored room with a lot of leads attached to you to measure sleep patterns. I've had a CPAP now for years. Night and day difference if I don't wear it. It's almost like living everyday in a slight hangover and fatigued state without it. I literally can get 4 hours sleep with it and do alright. Without? Even after 8, 10 or 12 hours I'm still not feeling it.
I also have sleep apnea. My Dr. and I are hoping that once I get a CPAP I can have less frequent migraines. I'm so sorry it took so long for someone to diagnose your migraines. But I'm really glad you found a doctor who is helping you!!
I suffered from migraines for years. Turned out 1: I'm allergic to caffeine. So no more chocolate, coffee and black or green tea. 2: hormonal migraines on the day before, of or after my menstrual cycle started. Imitrex nasal mist worked. After menopause & eliminating caffeine I don't suffer from migraines anymore.
Sad high five! Not that you asked, but😂 Please google the following: coffee and chocolate are high in copper. Copper is a metalloestrogen. When estrogen levels rise, there is more histamine released (looks like an allergy). There fore antihistamine would also work for those headaches, too. Personally I've moved onto experimenting with DIM+CDG and ALA, as the copper deposits in the tissue can cause tons of other problems than just headaches and 'allergic' reactions, so I don't want to hold onto excess copper in my body... (I had to read up on this, as my doctors couldn't explain to me how I got high estrogen issues from a copper IUD. It also explained why I suddenly stopped being able to drink coffee and why my allergies worsened on the copper IUD.)
I always forget there’s people that exist that are allergic to what seems so confusing to be allergic to to others not dealing with it. Like that one girl allergic to water but that’s of course a much more extreme situation since we literally need it unlike certain foods we can stay away from when the allergy isn’t really life threatening. Yours sounded debilitating though well I guess that’s migraines as a whole but thank god and the doctors you could remove the entire trigger.
@@andij605 thank you for letting me know about the copper. I have taken large doses of benadryl for the allergy and got some relief. But had to take more 4 hours later for two days straight, to get relief. I miss coffee a lot.
THANK YOU THANK YOU!! I’ve suffered from severe debilitating migraines for years and most people think it’s just a headache! Not for me! Sometimes I have to stand in the tub because I lose control of bodily functions. Vomiting urinating everything comes out everywhere! I’ve lost jobs, been written up ( before FMLA will kick in), lost productivity.. I wish it would go away
Me too Hi don't worry if u are in difficultty it will be gone after some time .u know it takes time and try to be strong even if u r weak . do some thing that u can do right now don't overthinking make u fall go to any plesent place .travel to any were I drop out from college and my parents are in more stress I want to continue but don't know how to In that we are life uncontrolled and controlled by any other Also other also feel sick of us and why she/he acting like that . try to be normal So be happy here some motivation audio/vidio all is well
I developed my first migraine when I was 23, and it's just gone downhill from there. This year I started an experimental treatment where a surgeon passes a current through a needle to disrupt the nerves at the base of the neck. I've gone twice for the left side and once for the right, and I am hoping there is an end in sight. It has reduced the frequency of attacks, but the pain has not gone away completely.
PSA: Please try to avoid mixing acetaminophen- brand name Tylenol- with alcohol. Both acetaminophen and alcohol are processed by the liver so consuming even moderate doses of both in the same day can cause significant liver damage. Most acetaminophen bottles say on the label if and how much you can safely drink while taking the recommended dosage, but ideally don't mix the two at all. Hope this helps
Acetaminophen/paracetomol was by far the most common OD drug I saw in urgent care - DO NOT exceed the stated dose, it can cause liver injury, or failure very easily, especially in alcoholics or older people.
I started having migraines when I was 15. Lack of sleep is my biggest trigger. My vision is sparkly, I feel fatigued, and I cannot stand any sound or light-I have to lie down for a few hours. My worst migraine sent me to the hospital; I thought I was having a stroke in my bedroom.
I drove a coworker to the hospital for her migraine. I have had two concussions and they were NOTHING compared to what migraine sufferers describe. I feel so bad for them.
Lack of sleep for me too and to show how ignorant doctors are when I told my old doctor he said that can't be! Glad to hear these doctors set that straight!
I would love if I could be seen by one of these two! I've had severe Migraines since I was 14. They are hell!! No one has ever been able to really help me.
Is very hard to find videos and information accurate and with the right vocabulary. Normally they have the facts all wrong and confusing. This is amazing, Dr Kuruvilla is one of the most enjoyable and trustful to listen, her aproach is one of the most complete. Thank you to the doctors and Insider for this!!! Let's share💙
Thank you for this. I thought I just had to endure the pain of my migraines and take otc meds to deal with the pain. And to know that my depression and anxiety, may be linked to my debilitating migraines is so encouraging. Making an appointment for a specialist immediately. Thank you again for posting this.
Everyone responds to different medicines in a different manner but a good neurologist will find the cocktail of preventative and rescue medicines that work the best for you. For me it is low dose amitriptyline and rizatriptan combined with excedrin
I live almost migraine free in a stress free bubble that my family helped to provide and have done so for a good 5 years now, but I know I need to come back to reality eventually. The problem is my migraine attacks used to last for more than a week and they used to come multiple times a month... So basically I was in some degree of pain every single day for 3 years (most days it was so bad I couldn't move a muscle without feeling like a hammer was hiting on my temples) and it ruined me! 😔😢 I was unresponsive to many treatments (8 in total) took way to much medication and came to a point where the pain was so severe that I wanted to cry and scream my lungs out, but crying always made it worse so I just spent days in a dark room not being able to sleep and thinking that there was no way for me to ever truly live again. Dramatic, I konw, but it is what this does to a person... I lost all zest for life, accomplished nothing (had to give up on studies) and gained the added bonus of anxiety attacks. It is good to see that more people are trying to bring awareness to this weird condition that completely changes one's way of living
The way they explain everything is absolutely amazing. As a patient with migraines I'm glad they make sure they make the knowledge so easily digestible. Next time I have someone tell me they also have headaches sometimes, I'll send them this video 💀
A louder applause for women of color in Science! Extra special episode, this one! My husband has migraine and he is getting awesome treatment from our integrated pain management clinic (Physiotherapie, medication and counselling)! Love the myth busting
Why do "women of color" get a "louder applause" Are you surprised "women of color" can do science? Or you trying to put racial bull shit on 2 people with an education? Stop the critical race bull shit. People are people stop being a racist!
@@erenawismer4009 yup! As a woman of color with a doctorate in electronic engineering, that's exactly what I am! I am an extremely racist born and raised Indian woman of color scientist who can't simply celebrate two successful women in the top of their field and need a white girl with savior complex to teach me how to not be a racist! Check your privilege!
@@sayantiju so you brought race into picture over here and when someone called you out, you immediately changed your stance from "women of color being successful" to "two successful women" and very conveniently assumed that the first person is privileged and white. This proves you are a bigger racist who hates anything that is white.
@@erenawismer4009 you're so lame dude! Race does not exist in a vacuum. There is societal and cultural context going on here that you and other closeted racists benefit from ignoring!!! Often people of color experience more nuanced obstacles or straight up backlash in STEM fields so seeing two successful women of color in this field is just awesome also personally inspiring because i see myself in them. DUh!!
Thank you, nicely laid out. When I was diagnosed my doctor never bothered to truly and fully inform me so it took some time until I figured out my causes and triggers.
I get painless migraine, with wiggly, sparkly silver streaks across my vision accompanied by a very high pitched sound like an old CRT monitor powering up. The worst ones also affect my speech and coordination on my left side. The aura is momentary, but the speech and coordination issues can last for hours.
I have had migraines for decades. I have tried everything, you name it. Some of my migraines respond to a medication, others respond to nothing. The weather will cause them and nothing helps, I can be out of commission for over a week. It’s horrible. I have tried meds to treat and preventative, ice, heat, massage, physio, chiropractor, acupuncture, caffeine, no caffeine, diet, had every test you can imagine. I have even tried naturopathic, nerve blocks and narcotics-they don’t even touch the pain. The types of migraines I experience range from silent, to cluster. Cluster migraines are just the most horrible pain-breathing hurts. Triggers can be position of my head, low sugar, weather, perfumes, stress, hormones, allergies. I’ve lost track of them all. I remember being a small child and awakening in the night because of the most blood curdling screams. My father had them. He would hallucinate. My mother saved him once as he saw a pool of cold water and was about to dive into it-but in reality he was about to dive headfirst off the top of our concrete basement stairs. Migraines are horrible and it’s something no one understands til they’ve experienced it.Does anyone else get a “migraine hangover?” It’s what I call the aftermath of a bad one (especially if it’s lasted a long time) I get a “brain fog” where I can’t think straight for at least the first day after it.
As a migraine sufferer, thank you so much for this episode. I find what you are saying pretty accurate in my case too. I’ve had tension headaches rarely and I have migraines once a month..I gotta tell you, the intensity of the pain of a migraine can’t be compared to a tension headache..sometimes it is almost as strong as a kidney stone pain. Also, they always last for 2 days in my case.
Every family physician should watch this. I was (eventually) diagnosed with New Daily Persistent Headache, but when I first became ill, the first two questions EVERY healthcare professional asked me was “are you drinking enough water?” (I was) and “how much caffeine are you drinking?” (I weaned off of caffeine completely and it did nothing.) Also nobody told me about medication-adaptation headaches until I finally went to the emergency room.
I suffer from headaches, but the few times I've asked a doctor about it, they'd ask me the usual questions to determine whether I was having migraines. Once they realized my headaches aren't migraines, it was like the pain suddenly wasn't important enough to be concerned about anymore. Luckily for me, the headaches aren't nearly as bad now as they used to be.
My migraine often comes in clear sunny days, when sun shines exceptionally bright. When it happens, I'll cover all sources of light, napping in the darkness, recovering, unable of doing anything.
As a person that suffers from complex severe chronic migraines, I truly appreciate this video. I suffered for years with no one knowing what was happening to me and getting rushed to emergency rooms and being sent away after with no answers or treatment. I lost my job, savings, car and almost just want to give up because I had lost control of half my body! It was like I was constantly having a stroke... I was in my early 30s and I couldn't work or even always see or walk! When I finally got answers and treatment... It still took years to get to better answers and actually learn (I'm a rare case from my understanding) but... It made such a difference in life! There aren't enough of you doctors in the world! Thank you for doing your work!
Thank you for this video because as a migraine sufferer and for my sister who suffers from cluster headaches and hemapoligic migraines band we both suffer with severe sinusitis life can be very difficult and s lot of people don't really understand how debilitating life can be so this video is great for those who truly don't understand the difference in these conditions 🤗 love from Ireland🤗🇨🇮
I had my first migrane attack a few years ago and it was one of the worst things I've felt in my life. I stood up from bed one morning and it was like someone kicked my head like a football. I couldn't stand up straight for more than a few minutes before needing to lie down in complete darkness. Honestly, I thought there was something seriously wrong with me and that I might be dying. The whole ordeal lasted across four days and it was just awful. Before that I had a hard time knowing what set apart migranes from headaches but now there is no doubt in my mind what does. I honestly commend ever person struggling with migranes on a recurring basis and wish them all the love and support I can muster. And thank you to this channel for busting these myths that desperetly needed bustin!
The fact that migraines and headaches are so nuanced makes them ripe for these sorts of myths to persist. I've recently been getting chronic migraines (runs in my family) and it's been a journey to figure out what exactly it is i'm dealing with and how to manage it. I do not want to be on a cocktail of pills so right now i'm working with a better diet and life practices... like the video says, no cure, it's all about management. The anxiety around what they "could be" also has been a lot fun. Your thoughts always jump straight to cancer or stroke. Scans, blood tests have shown negative, thank god.
Thank you ladies .... for helping us headache sufferers feel "seen" .... so many people who don't have the problem are dismissive, with faux jokey comments like "it's all in your mind" ... and "see you're cutting work again, with that headache excuse".
Thank you so much for this video!! I've lived with migraines since I can remember and so with people around me that always tell "Migraine are just headaches..." I have to say that I hate that comment. This video make it clear the meaning of each condition. I hope more people be aware of it, for us who live it, means a lot!
As someone with Menieres disease and vestibular migraine, I love this so much. These amazing women make me feel so seen and I love it so much. I can never explain properly how it fully affects me in my day-to-day life especially to teachers/lecturers who don't understand what it's like
I have Menieres too, when I was little I could barely stand as the vertigo was so bad. Now, it is in the background, kinda like white noise. I feel the same way about the teachers who don't understand that at least for me, affects me constantly. Sometimes when I have to miss school due not being able to drive, I tell them that I am "sick". Kind of sucks that I can't tell them the full truth.
I’ve been dealing with migraine aura episodes ever since I was a little kid. It’s very frustrating as they part of my family’s genetics. The episodes I get tend to scare the heck out of me as if I was having out of body experiences.
Same. No one ever mentions the kaleidoscope channel my brain gets stuck on either. It's all neurological. I will straight up trip balls when I have a migraine 😳 I'm a barber. They want me to drive to work and use scissors on people in this state 😳
I have a child who was diagnosed with abdominal migraines at the age of two. TWO! (We realized later he’d been having them since he was at least 18 months, and has since started experiencing other types of migraines as well) One of the most frustrating things people do is refer to his migraines as “headaches.” You can’t call something that completely incapacitates you for hours, and causes you to scream and cry out in pain, simply a headache. So many people in our lives insisted that getting him glasses would “cure his headaches.” They didn’t, of course. If you want proof that a migraine is not simply a really bad headache, try taking care of a preschooler while he’s experiencing a migraine attack. Just please try to be mindful and sensitive about your word choice, and how it might invalidate somebody’s suffering.
Just want to reach out. I too had abdominal migraines as a child. It is common to at some point transition to migraine headaches. I explained this to a neurologist who has no idea what I was talking about. Needless to say not my neurologist anymore. Stay the course, Beth. I took an antihistamine to control them in the 80s. I hope that there are better treatments for pediatric patients today.
@@deltaflute03 we are currently working with a pediatric gastroenterologist, alongside his pediatrician, who is surprisingly knowledgeable and supportive. We were super lucky to have access to such wonderful care. My child has already started experiencing migraine headaches as well, so I guess he's in that group. He also takes an antihistamine (cyproheptadine), so I guess that's still the same. Thank you for your thoughtful words of encouragement! I'm sorry that you as well had to go through all of this as a child. It seems so incredibly unfair for such little people to have to feel so much pain.
This video made me emotional. It's just so good to be acknowledge for once! Yes, migraine is a disease. Yes, it's very hard sometimes. And yes, just because I don't have the most common symptoms doesn't mean I don't have a "real" migraine.
Thank you for this education! I'm almost 40 and now see a headache specialist, but didn't seek help for a long time because people in positions of authority, including doctors, told me migraines are just headaches and I should toughen up and get over it. That chronic migraines shouldn't be as debilitating to me as they are. Hopefully this video helps more people get the help they need.
I have abdominal migraines and psychological vomiting syndrome. Love that these videos are being made. Very helpful for me to learn more and for other to understand what we go through.
As someone who has chronic migraines I love when people clarify that it’s not all about drinking water. So many people throughout my life have said I just need to drink water that I now subconsciously drink a ridiculous amount when I have an attack
Thank you so much for this! I have had migraine for 60 years. For the past 30 years I have had excellent doctors. The first 30 years were terrible. I’m still not sure how I got through HS and college. If I had a dollar for every time a well-meaning person offered me a “cure” I would be rich. My migraines have changed over the years and, thanks to my wonderful doctor, are now well managed. BTW, does anyone else get a cold nose as a warning of an oncoming migraine?
Never had that happen to me. I've had migraines since I was a teenager & was told that I couldn't have migraines because I was a boy. Or was told even though I couldn't stand any light or sound when they hit, it's just a bad headache.
Yes! My sister's neurologist says cold nose is quite common, because a major nerve connects inward toward the nose on its way down (the vagus nerve, I think?).
@@deltaflute03 ask your dentist if you're grinding your teeth or if you could have possible TMJ problems. It's common to find TMJ problems in migraine sufferers. It causes you to clench your teeth (which causes the teeth to hurt). All of this then triggers headaches. If you currently receive Botox for migraines you can ask that they also inject the TMJ muscles on the side of your jaw. You can also see specialized dentists who will inject Botox into the TMJ muscles and other muscles in the neck. Just make sure not to have head Botox and the dental one around the same time because it can be too much and you'll be like me and I couldn't even hold my head upright without a neck brace. 😂 A cheaper alternative is to pick up an OTC grinding mouthpiece. They're less than $10 and easily found on Amazon or CVS type stores or in the pharmacy and sports sections at Walmart. You put the piece in boiling water for 30 seconds then in your mouth to get a perfect fit while the plastic is soft.
This video is so validating!! Thank you! ☺️ I have had migraines since I was 6 years old, and I’m 34 now. I really appreciated how you mentioned the mental health component. That’s so important to acknowledge. I still get at least two migraines a week, but, I’m finally on a migraine regimen from my neurologist. I hope it’ll help decrease the frequency of my migraines 🙏🏻.
I didn’t know until I went to the ER one time that numbness on one side of the body was a migraine symptom. They did an MRI and everything and came back with “you have a weird migraine”
The best advice they give is the diary. Writing down symptoms, exercise, meals, sleep, and other activities is the only way to know yourself and identify what to modify.
More people need to get that Migraines are NOT headaches. Thankfully I don't regularly get migraines, but I know my biggest trigger is light and, unfortunately for me, I'm quite sensitive to light on some days. Heat can cause trigger it too. And once it triggers, light and sound just are too much. I've never actually thrown up, but there have many times where I was worried I would. Usually some time in a dark quiet room helps. . . but I have woken up the next still struggling. Dehydration is also a pretty big trigger for me. Once it hits, its usually going to last the rest of the day at least.
Oh gosh! I really appreciate for clearing these myths because it took me 10 years only to realize I have vestibular migraine symptoms. There are so many types of migraines and I myself was proven wrong when I use to think I only had a headache which prevented me from seeking professional help.
I have finally started to get help with preventing them. My new doctor has migraines so she knows what it is like and wants to find something that works for me.
Thank you so much for this video. As a chronic migraine sufferer it’s so nice to see a video setting the story straight that it’s not just a bad headache. Great job 👏
I only recently learned about the effects of the overuse of NSAIDS and looking back to when I was a kid, I suffered so much from that on top of migraines. Nobody wanted to believe me when I said they weren't working anymore.
Wow, that last question blew my mind. I used to have incapacitating migraines every week and they suddenly stopped when I started taking mood stabilizers for a totally separate diagnosis. Never made the connection. 🤯
I’ve had migraines with aura for many years now and I am guilty of doing what you said, I take an Advil (extra strength) and then try and lay down and usually after an hour the aura’s go away but it can take a while for the migraine to leave me. Great video, thx for making it for us migraine sufferers, cheers.
What I do is, I'll take 800mg of ibuprofen right when it begins. Then I'll end up with a bad headache, but it takes out the migraine. I have migraines like you, but I have also have had a major stroke. First migraine in 1978, stroke in 2015.
I wish more people understood not all headache disorders are migraine. Even providers. I saw 3 neurologists before I was finally correctly diagnosed with hemicrania continua and not atypical migraine.
Why would anybody think u have a weird disorder when there are things way more common? , Thats why the follow up consults exist theres no way to diagnosis everyone at first try
I have a migraine disorder that only started to become a real problem when I developed multiple sclerosis. MS gave me cluster headaches. So now I have a migraine disorder AND cluster headaches. Also, agoraphobia. Why go outside where there is bright light and people wearing way too much after shave when instead, I can stay here, in my cool dark room, free from others bad choices in cheap perfume and their migraine triggering air. (I have had the agoraphobia for a while and lemme tell ya, covid lock down... Felt like any other day. Win? Somehow?)
Everyone is different. We all have different triggers and different “treatments” that work for each of us. I tried for 20 years to figure out my issue. This included working with multiple neurologists, using all kinds of medications. Brain scans, sinus scans, sleep studies, acupuncture, chiropractors, diets, supplements, tracking weather patterns etc. I kept detailed records in a spreadsheet of every headache including date, severity, and treatment. Near the end I got 50 headaches in 60 days. By a stroke of luck I determined that aerobic exercise is only thing that worked for me. Once I started jogging and biking my headaches all but disappeared. I don’t know why but I’m not arguing. Not only have my headaches disappeared but I’m in the best shape of my life. I’m also not putting all that medication in my body.
Thank you for this, my family members mostly females suffer from migraines I have sinus related one's, and stress. I take aspirin as needed . Thank you for the cluster headaches
I have Chiari malformation and idiopathic intracranial hypertension (aka pseudotumor cerebri) with “complex headaches” and I hate when people dismiss it as “just a headache”…”just a headache” wouldn’t require approximately 150 brain surgeries. “Just a headache” doesn’t cause you to spend months and years worth of time in the hospital. “Just a headache” doesn’t cause you to take 20+ pills each day. “Just a headache” doesn’t cause you to be in constant pain that is t quantified about whether or not you are in pain but rather whether or not you can function. It is NOT “just a headache!”
Thank you, thank you, THANK YOU! While I knew a lot of this already living my life with non-stop migraine headaches (and the pain getting worse when I got older. I was only barely able to finish high school so my dreams of college were kissed goodbye), I didn’t know other people who had migraine were also so disabled! It’s… I hate to say encouraging, but it makes me feel a lot better knowing that my life being stalled from the chronic pain isn’t me just being a total wuss. I’ve finally found something that, mostly, helps, but it’s hard to imagine ever living a normal life :/ So honestly, from the bottom of my heart, thank you. Both of you ladies are absolutely inspiring and intelligent, and I’m sure you’re saving people everyday! Sounds dramatic at first until you realize you’re dealing with patients who are in chronic pain and disabled. Suicide is just one very bad pain day away. Trust me on that one.
i have had migraine since i was a kid and the doctors just told my parents that i was faking it and no one took me seriously.. now that we know it is a migraine they still arent doing anything and they dont understand how severe it is. a little too much light, sound, stress all knocks me out during those times and they dont give a shit lol.. i just take paracetamols and get back to studying cause icant do anything else. its like someone hitting you with axes in the head, idek how to explain it to people
I started to suffer from aura migraines 2-3 times a month ever since having my first child back in 2014. I get the stroke like symptoms where my speech is very slurred and I get numbness in my body and cant see. Finally after years of suffering I tried the advil migraine pills after I realized the prescription pills were doing nothing for me. They take 30 minutes to kick in but my vision always returns. Also having a blue light filter on my phone helps a ton! Also polarized sunglasses in the car 👍
The validation I feel from this is amazing! I've had migraines since I was 12ish, I inherited them from my mom. I was put on Topamax, it made me so dumb. Like stupid. I got off that, and was off meds for a long time, mom would give me her Imitrex from time to time. Later I got on Propranolol and Maxalt. The propranolol has been great for me! Now I do Imitrex nasal spray as needed also.
I’m on Topomax, have been for over a decade. Tried imitrex. Allergic, bad. I’m not dumb, just never hungry. It’s been pretty good for me. I have breakthroughs during weather changes. Or if I cry. Luckily, my husband and I never fight. I had a LOT more migraines with my exhusband 😂
Well done! As a sufferer things changed and I had to have an MRI. It showed an arachnoid cyst with my cavernous sinus. 4 months to see a neurologist, crazy!
I had chronic pain for years since I was hit by a car and became disabled. About six months ago I suddenly had debilitating pain, went to apparently the greatest massage therapist in the world, she prescribed certain exercises and stretches, and that all worked, but I still had chronic pain a little more intense than usual. It hurt most just above my hip on the right side; she said that was because my liver was overwhelmed by drinking too much alcohol. I looked it up and while alcohol could be the cause, so could NSAIDs. Since I was hit I had been taking large amounts of ibuprofen every day, so I stopped taking it, and it was like magic! The damn ibuprofen was causing my chronic pain for years because I took too much of it.
Had headaches / migraines daily for years (12-18 yrs of age). Told my doctors, they all said it's nothing (they didn't do or ask me anything). As soon as I moved out of my parents home at 18 I never had a headache since.
Yes. Thank you. Thank you. Have been trying my best to live a full life with migraines, but damn it's so nice to be heard, and understood by amazing Drs!
Thank you for sharing all of this knowledge! I don't suffer from migraines, but I never understood people who used migraines and headaches interchangeably. I always understood they were separate things.
Thank you so much for clarifying and debunking so many things. My own neurologist told me that my migraines were psychosomatic and that there was nothing he could do about it. Well besides to not be me and be stressed. 😅
Ive dealt with migraines for over 20 years. They're the worst especially when they last for several days straight, makes you feel like you're not really living just exsisting.
Always mention the nausea and auras(if you get them. I went to a neurologist and he believed me but he told that people will literally go in to see him just for a minor headache caused by rebound effect or too much caffeine.
Just making me feel grateful for the fact that I don't have a migraine right now. Last month the attacks were more frequent than usual, never found out why.
Hearing that they’re the second leading cause of disability was so validating. I finally feel like someone understands how bad it is and that I’m not exaggerating. My migraines are SEVERELY painful and quite literally disable me during them. Can barely move bc the pain, can’t sleep but I can’t do anything to keep myself sane, and sometimes it’s hard for me to go to the bathroom as much as needed because of how much my head pounds when I stand up. Everything hurts my head: lights, sounds, scents, and moving my neck even slightly. Luckily they’re much less severe thanks to medical marijuana. I have tried so many things and this was the last resort, and it’s honestly been a miracle for me (This is NOT medical advice or meant for suggestions. See a doctor if possible because there are plenty of treatments and ways to manage! They just didn’t work enough for me for years of suffering from migraines.)
OMFG THANK YOU!! The amount of Doctors who have said i "don't have migraines because migraines are only on one side" and completely shrugged me off and treated me like an over sensitive hypochondriac, is one of the reasons I have c-PTSD from medical trauma! LISTEN TO YOUR PATIENTS!
Dehydration may not be considered a cause of headaches, but it sure helps alleviate a hangover if you drink some water before you go to sleep, and drink some water once you have a headache. Maybe it's just me.
Only times I get migraines (severe head pain, dizziness, aura) is when the muscles in my neck locked up super bad. IMS performed by a physiotherapist unlocked those, and migraine went away. Got lucky that mine were that straightforward to solve. I wonder what % of people are actually this.
This happens to me too. I've even thrown up from the feeling. Many people never find out reasons but sometimes headaches can come from other things. Also clenching teeth or TMJ can give a headache, sinus issues, etc
@@mahvish5388 "When performing IMS, a trained physiotherapist inserts a (large) acupuncture needle into a tight and shortened band of muscle (or a trigger point)." They basically grind the muscles with a big needle. Hurts really bad, but it releases the muscle.
I suffer from migraine with aura (chronic) and have had two hemiplegic migraines. My migraines started about two years ago and I was having up to 6 a week, sometimes 3 a day. Longest one has lasted about two weeks. I remember some of my first ones... just getting out of bed and dry heaving on the floor in a puddle of sweat. I get nausea, light sensitivity, sound sensitvity, visual distortions, trouble speaking, sweating, mood changes, left side weakness and paralysis (with the hemiplegic migraines), and more! Most of my migraines seem to come from my neck... I get severe neck pain and stiffness. Many of my migraines have been silent as well (no headache, just the other symptoms). Thankfully, I'm now using Botox and a nerve block in combination to treat my migraines. My biggest triggers still are too much standing/exercise, missing meals, sodas/junk food, lack of sleep, stress, stong smells, too much movement (flashing lights, windshield wipers whipping back and forth, motion-heavy videogames, etc), drastic weather changes, and getting too hot/hot weather.
OMG this video was so eye opening for me even after dealing with headaches and migraines for nearly 20 years Please have them back regularly!! Can we submit questions? I would love to know about genetic relatedness for headaches and migraines
I get episodic migraines. And I get different types. I've had aural migraines, but never with pain and painful migraines, but don't remember getting aura with them. Until I found out aura was a symptom of migraine, they really freaked me out.
Weirdly, one of the worst parts of being sensitive to light and sound is how boring it is. Yes, you're in pain, but you also can't do anything to distract from the pain, because that would make it worse. It's just curling into a misery-ball for hours until you *finally* fall asleep.
yesss 100%
I used audio Books and Podcasts during a period of my life when I had migraines often enough to come up with a strategy to fend off the boredom of it. Low volume, radio-theater low-key kind of things that never got too much.
Being bored is the furthest thing from my mind when I’m having a migraine. 😆 the sensitivity is so bad, that I DON’T want to do anything. I just want to have my eyes closed in a silent, dark room.
@@aprilscales4683 depends on how bad it is, for me. But yeah, lots of times its not possible to take any input.
Yes! Like, what can you do that doesn't involve looking or listening but is interesting? 😪
Fluctuations in estrogen, such as before or during menstrual periods, pregnancy and menopause, seem to trigger headaches in many women👍
Yessss! Because I experience this as well
One week out from menstruation I get a wixkedly brutal headache. No meds or enough water or caffeine can help. Thankful it's just one day but OMG it sucks to work with it, knowing nothing works.
@Chilapa not true, it depends on WHAT you eat as a vegan, as some vegans still eat poor diets,although it's less common. Migraine is associated with too much refined food, such as sugar, rather than meat/dairy products .
In my case that indeed happens sometimes. In other cases it's more related to lack or excess of sleep, stress, and fire smoke
Agree that's my problem like right now..
Thank you for setting the record straight. Too many people claim to have a migraine when it's really just a headache. As someone who's been having migraines since age 10, I certainly appreciate the distinction.
Oh yes! I suffer from chronic headaches when I don’t get a ton of sleep, but it’s NOT a migraine. I’ve had migraine a few times and I wouldn’t wish for it for my worst enemy. I hope you can manage, Ivy :)
Nothing more irritating than bumping into someone grocery/ clothes shopping who says " I have such a bad migraine today..."..... grrrrrrrrrrr..... no dear, you have a headache.... a migraine will lay you out flat!!
@@juliecross1567 I am sorry, but I disagree. As someone who's had migraines for most of my life, they can vary in strength by a lot. just because someone is still functional doesn't mean they aren't in pain
some migraines lack the "pain phase" of the attack - they are called silent migraines.
migraines are helpfully defined not by pain level, but by their neurological effects across the 4 stages of migraine.
It's especially infuriating when someone says "Well, when *I* have a headache I just take a couple of aspirin and get on with my day. Why do *you* have to go lie down in a dark room?" with strong connotations of mental illness and/or malingering.
i've had migraines since i was 12 and honestly, the worst part is to continue with my job (literally in front of a computer) as my vision gets worse and my meds don't do anything. I don't mind having it at home, it still sucks, but at least i can just lock me in a dark bedroom and wait, or when i was in school i would just go home. But we can't do that in jobs, and many people don't understand how debilitating a migraine really is. I look forward for the day medicine evolves and there is a cure for this.
I'm crying reading this. It's brought me back to a terrible experience at a previous job. People don't understand how truly debilitating migraines are. I had to lock myself in dark offices sometimes to get work done or have my head covered under my parka's hood, and even though I had disclosed this to my manager (some days I truly could not make it out of bed or out of the house and had to work from home), I was reprimanded for *hiding* under my parka, not smiling at people at work. It was a very horrible experience. This was two years ago now, I still feel traumatized by the treatment I received.
I suffer from migraine too and I asked my neurologist about a possible future cure for it.
Unfortunately she said while we might find better treatments for migraines, we won’t see the day of light for a cure for migraine in our lifetimes.
Eergh yes so true. I get them rarely but I once got a horrible one at work, I couldn't read the computer screen anymore and vomited :/ fun times..
I am so sorry 😔😔 I wish I were your co-worker who would cover for you anytime you’re having an attack. I have been dealing with migraine since I was 15, but my situations have been a little bit fortunate. Take care, and I hope one day you’ll find the solution for your situation. Hugs.
Have you ever tried migraine glasses? They're supposed to be able to help with things like computer screens and fluorescent lights. They're a pinkish color if you Google migraine glasses.
As a chronic migraine with aura sufferer (I have one almost every day) I feel so heard right now. So many people talk badly about me and my mom because they think we're just lazy and don't believe that migraine is real. I actually am crying rn because I feel validated by this video. Thank you so much for this video.
One migraine myth that has been the bane of my existence is the migraines require headaches because that entire myth prevented me from knowing for ten years that I had VESTIBULAR migraines. I never got headaches. I had dizziness and vertigo and nausea and dyspraxia and visual impairment and memory issues. I've started medication now and have been on it for about a few months. Apparently I've been having migraines 24/7. I'm slowly getting back parts of myself and I feel more active and I am able to understand what the hell is going on. I just got a prescription for prisms in my glasses to help with the visual impairment and the medication helps me sleep.
MIGRAINES DON'T REQUIRE HEADACHES. I will scream that out for the world because I am not letting this disease ruin someone else's life. I used to be a medical anomaly because I had dizziness and fainting spells with no heart issues, no blood sugar issues, no anemia, no deficiencies. It was a migraine.
Thank you! I’m going to tell my sister this. She also gets random dizziness the doctors haven’t been able to find out alongside the very occasional migraine. Maybe she is getting more occasional migraines without the headache part!
@@bronwynknox3605 try and have her ask about POTS. You can do the table test at home and report that to your doctor. That's also a very underdiagnosed condition. I hope she finds help and effective treatment!
This!! I suffer from vestibular migraines as well.
I did not know the name for this, I have always called them silent migraines and honestly, they scare me even more than the super painful type. I have actually lost my vision and speech at times without pain! As I came to realize what was happening I began to treat this the same way I treat a regular migraine with better results.
Yup, the first few times I had a migraine, I had no idea what was going on. Blurry vision, nausea, difficulty speaking, sensitivity to light and sound. I thought I was having a stroke. Hours later I started getting a headache. I'd say 3/4 times I get a migraine, there is little or no headache accompanying it, but those other symptoms can be just as debilitating.
Chronic migraine sufferer here :( thank you for this video! I hope more people watch and listen. It's so hard being dismissed as having "only a headache" and having to try to live life. It's so hard to try to explain what's happening when attacks completely wipe me out, no energy all of a sudden, when I can't open my eyes sometimes (tremendous light sensitivity), constantly nauseous and uncomfortable - and then weak because I can't eat very well. It's been quite a journey in the past five years now, and oh man, mental health being affected doesn't help one bit. I miss my life.
It's so debilitating to have migraines. I can't think, see, function, and are down to a very primitive survival mode.
And sometimes they are so bad I feel like I would accept a quick death if it was offered, just to get out of the torture.
If you have them all the time, I can see how it could absolutely affect your mental health.
Stay strong and take care of yourself, be gentle with yourself.
I’m so sorry for all the pain you’re experiencing. Praying things get better for you!
@@ronaldrenegade8519 Did this work for you? I've tried nutrition and it helped in other ways but didn't change my migraines at all. The migraines are a genetic problem unfortunately
@@ronaldrenegade8519 not really, prior to migraines my diet had been great. Since migraines, minus the times I'm not able to eat as much because I'm not able to chew due to the pain, my diet is still a good one. Even with supplements and "natural" remedies from the beginning (I don't like to resort to medicine) things weren't going well. My diet, is likely not it, doctors have looked at this multiple times and I don't eat poorly. If only it was as simple as that
@@ronaldrenegade8519 I'm so glad you came up with this...didn't work for me...but you do you boo
I want to say, as someone who has been dealing with this for way too long (intractable for more than a decade), I truly appreciate this!! Thank you, thank you! For those of us who are in the 0.5% of the 1% who don't respond to treatments and have multiple things going on, it's refreshing to see this.
Same here, same situation...
I never responded to anythting either, it is truly horrible to live like this! I hope you can manage and that you have a strong support system to help you
@@pabli_ From Wikipedia:
"Craniosacral therapy (CST) is a form of alternative therapy that uses gentle touch to palpate the synarthrodial joints of the cranium. CST is a pseudoscience, and its practice has been characterized as quackery."
I don't think you have ever treated anyone, with real migranes, and cured them.
@@pabli_ The only reason you will get any effect in some cases, in your treatment, is because people believe in what you can do. But you can't fix migranes, period!
And it's not about what I believe, but about what I know. Your treatment is BS, just as homeopathy treatment, and healing, and the like, are.
Pablo escaped...
Let's be honest. This "a professional debunks myths" video series is pretty fire!
Complete bombardment!!
It is not it is rather a demostration of how we confidently say the stuff we dont fully understand as stuff we do understand
theres so much wrong in so many videos, only a few videos are truly gems especially the one about sleep(with the white man and white woman((sorry for the racial descriptions i forgot their names)))
This one is shit.
not really
@@ronaldrenegade8519 Agreed. These two are WRONG about curing migraines. Maybe not for all people, but most certainly for many.
MIGRAINES CAN BE CURED.
Thank you for clearing this out. I've been struggling for a decade with migraines and it really affects your mental health and people do not understand the severity of it. Being in constant pain makes you want to do anything to make it stop...
I’ve never been diagnosed with migraines because doctors have alway said to me that it’s normal. Which I know it is not. When I get a migraine I need to be in a dark room, no light, no sound because both are irritating. I cry because the pain is unbearable. I cannot be talked to or bothered and I have to put ice packs on my head, neck, and eyes. I’ve had to deal with this since I was 8 years old. I remember the pain wouldn’t let me go to school, doctor back then said it was my eyesight. Till this day I wear glasses and yet continue with the migraines. Really wish some doctors listened and actually help people with this. But I continue to treat myself the best way possible.
I’m really sorry about that, that literally sounds debilitating…. Taking magnesium helps me a lot, it might help you. Also a melatonin here and there before bed, I hope you can recover!! Or at least the pain can ease up a little
I had family members insist that if we got my preschooler glasses his “headaches would go away.” No, they didn’t, because he isn’t getting headaches. 🙄 He was professionally diagnosed with migraines at the age of two, and I’m just thankful everyday that his pediatrician listened and took our concerns seriously (and was the one to suggest that it was migraines). I’m sorry that people in your life, who were in a position help you, choose to dismiss your concerns and invalidate your suffering that way.
You aren't alone. I've had 2 docs tell me I was exaggerating my headaches/migraines. Been dealing with non-help for a decade.
Can I suggest you as your GP/PCP or equivalent doctor wherever you are from to refer you to a neurologist and should they refuse ask them to give you a letter confirming their refusal. You deserve to get the medical care you require. I had chronic migraine for years before it was finally brought under control and having my life back is surreal. I hope you get it resolved.
Hopefully you can get diagnosis and proper treatment soon. Had my first at 7 and while I don't have them much now they can be hell. Luckily I get migraine meds now but definitely sounds like they're ignoring the obvious to me. Hopefully they believe you sooner than later.
Ive dealt with eye migraines and migraines with auras my whole life, it’s nice having videos like this to explain the difference between headaches and migraines.
Oh my goodness! Thank you!!! I have chronic migraines and so many people don’t believe me when I say these myths are myths. Sending this to SO many people.
Thank you so much for this video. I am so fed up of people saying that a migraine is just a headache, either when I tell them I suffer with migraines, or they have a headache and say its a migraine when it's clearly not.
My husband occasionally deals with what he calls "full-body migraines" where the pain in his head leaks out into his entire body. Those are brutal, but thankfully rare. He also has both depression and anxiety, which only adds to things. Fortunately he is getting help. He was actually able to step out of our Christmas celebration and not feel guilty about it, because he knows why he gets sick during holidays.
I HAVE THESE TOO! Have to stand in the tub sometimes..
How are u doing
I am also having these
I had daily nearly all day long headaches for over a decade. My dr just told me it was allergies and since I was a lifelong allergy sufferer, I figured he was right.
I started seeing a Neurologist for sleep apnea last year and when we were going over my history, he just dropped his head and shook it. He told me there is no such thing as daily sinus headaches, that’s migraines. A few months later and we had them under control with a combination of seizure medication, tmj treatments, and sleep apnea treatment.
Hmm. I suspect I might have sleep apnea as well. How did the visit go if you don't mind me prying?
@@agathachris9722 I told my family physician to put a referral in for sleep medicine.
Around here, it’s neurology that tend to do sleep medicine, but my kids are going to go and they could see either a pulmonologist or a neurologist at the children’s hospital.
@@agathachris9722 I had a sleep study done years ago for sleep apnea, it's pretty straightforward. They'll have you sleep in a monitored room with a lot of leads attached to you to measure sleep patterns. I've had a CPAP now for years. Night and day difference if I don't wear it. It's almost like living everyday in a slight hangover and fatigued state without it. I literally can get 4 hours sleep with it and do alright. Without? Even after 8, 10 or 12 hours I'm still not feeling it.
I also have sleep apnea. My Dr. and I are hoping that once I get a CPAP I can have less frequent migraines.
I'm so sorry it took so long for someone to diagnose your migraines. But I'm really glad you found a doctor who is helping you!!
I suffered from migraines for years. Turned out 1: I'm allergic to caffeine. So no more chocolate, coffee and black or green tea.
2: hormonal migraines on the day before, of or after my menstrual cycle started. Imitrex nasal mist worked. After menopause & eliminating caffeine I don't suffer from migraines anymore.
Mine were real migraines. Vision problems, nausea & passing out were the worst symptoms. It could go on for days. 😮💨
Sad high five!
Not that you asked, but😂 Please google the following: coffee and chocolate are high in copper. Copper is a metalloestrogen. When estrogen levels rise, there is more histamine released (looks like an allergy).
There fore antihistamine would also work for those headaches, too.
Personally I've moved onto experimenting with DIM+CDG and ALA, as the copper deposits in the tissue can cause tons of other problems than just headaches and 'allergic' reactions, so I don't want to hold onto excess copper in my body...
(I had to read up on this, as my doctors couldn't explain to me how I got high estrogen issues from a copper IUD. It also explained why I suddenly stopped being able to drink coffee and why my allergies worsened on the copper IUD.)
I always forget there’s people that exist that are allergic to what seems so confusing to be allergic to to others not dealing with it. Like that one girl allergic to water but that’s of course a much more extreme situation since we literally need it unlike certain foods we can stay away from when the allergy isn’t really life threatening. Yours sounded debilitating though well I guess that’s migraines as a whole but thank god and the doctors you could remove the entire trigger.
@@andij605 thank you for letting me know about the copper.
I have taken large doses of benadryl for the allergy and got some relief. But had to take more 4 hours later for two days straight, to get relief. I miss coffee a lot.
THANK YOU THANK YOU!! I’ve suffered from severe debilitating migraines for years and most people think it’s just a headache! Not for me! Sometimes I have to stand in the tub because I lose control of bodily functions. Vomiting urinating everything comes out everywhere! I’ve lost jobs, been written up ( before FMLA will kick in), lost productivity.. I wish it would go away
Doctor Oziegbe Herbal Home from RUclips cured me totally, search for him
Me too
Hi don't worry if u are in difficultty it will be gone after some time .u know it takes time and try to be strong even if u r weak . do some thing that u can do right now don't overthinking make u fall go to any plesent place .travel to any were
I drop out from college and my parents are in more stress
I want to continue but don't know how to
In that we are life uncontrolled and controlled by any other
Also other also feel sick of us and why she/he acting like that . try to be normal
So be happy here some motivation audio/vidio all is well
@@FunkyKong2020 ??
I developed my first migraine when I was 23, and it's just gone downhill from there. This year I started an experimental treatment where a surgeon passes a current through a needle to disrupt the nerves at the base of the neck. I've gone twice for the left side and once for the right, and I am hoping there is an end in sight. It has reduced the frequency of attacks, but the pain has not gone away completely.
@@lolipoppification for me drinking coffee once everyday usually in the morning seems to prevent my migraine. My trigger is lack of sleep
PSA: Please try to avoid mixing acetaminophen- brand name Tylenol- with alcohol.
Both acetaminophen and alcohol are processed by the liver so consuming even moderate doses of both in the same day can cause significant liver damage.
Most acetaminophen bottles say on the label if and how much you can safely drink while taking the recommended dosage, but ideally don't mix the two at all.
Hope this helps
Acetaminophen/paracetomol was by far the most common OD drug I saw in urgent care - DO NOT exceed the stated dose, it can cause liver injury, or failure very easily, especially in alcoholics or older people.
Yeah I was a little shocked when she said to have acetaminophen before drinking to prevent hangover. That's a dangerous mix.
Horrible advice in the video. Ibuprofen or naproxen are much safer here.
I started having migraines when I was 15. Lack of sleep is my biggest trigger. My vision is sparkly, I feel fatigued, and I cannot stand any sound or light-I have to lie down for a few hours. My worst migraine sent me to the hospital; I thought I was having a stroke in my bedroom.
I drove a coworker to the hospital for her migraine. I have had two concussions and they were NOTHING compared to what migraine sufferers describe. I feel so bad for them.
Lack of sleep for me too and to show how ignorant doctors are when I told my old doctor he said that can't be! Glad to hear these doctors set that straight!
I would love if I could be seen by one of these two! I've had severe Migraines since I was 14. They are hell!! No one has ever been able to really help me.
They are both so nice and informative, I wish they were MY doctors! I feel like they would really believe your pain story.
Is very hard to find videos and information accurate and with the right vocabulary. Normally they have the facts all wrong and confusing. This is amazing, Dr Kuruvilla is one of the most enjoyable and trustful to listen, her aproach is one of the most complete. Thank you to the doctors and Insider for this!!! Let's share💙
Thank you for this. I thought I just had to endure the pain of my migraines and take otc meds to deal with the pain. And to know that my depression and anxiety, may be linked to my debilitating migraines is so encouraging. Making an appointment for a specialist immediately. Thank you again for posting this.
I hope you find some good help. Please don't be discouraged if the first treatment doesn't work if it later has to change. Sending hugs!
Everyone responds to different medicines in a different manner but a good neurologist will find the cocktail of preventative and rescue medicines that work the best for you. For me it is low dose amitriptyline and rizatriptan combined with excedrin
I live almost migraine free in a stress free bubble that my family helped to provide and have done so for a good 5 years now, but I know I need to come back to reality eventually.
The problem is my migraine attacks used to last for more than a week and they used to come multiple times a month... So basically I was in some degree of pain every single day for 3 years (most days it was so bad I couldn't move a muscle without feeling like a hammer was hiting on my temples) and it ruined me! 😔😢
I was unresponsive to many treatments (8 in total) took way to much medication and came to a point where the pain was so severe that I wanted to cry and scream my lungs out, but crying always made it worse so I just spent days in a dark room not being able to sleep and thinking that there was no way for me to ever truly live again. Dramatic, I konw, but it is what this does to a person...
I lost all zest for life, accomplished nothing (had to give up on studies) and gained the added bonus of anxiety attacks. It is good to see that more people are trying to bring awareness to this weird condition that completely changes one's way of living
The way they explain everything is absolutely amazing. As a patient with migraines I'm glad they make sure they make the knowledge so easily digestible. Next time I have someone tell me they also have headaches sometimes, I'll send them this video 💀
A louder applause for women of color in Science! Extra special episode, this one! My husband has migraine and he is getting awesome treatment from our integrated pain management clinic (Physiotherapie, medication and counselling)! Love the myth busting
Why do "women of color" get a "louder applause" Are you surprised "women of color" can do science? Or you trying to put racial bull shit on 2 people with an education? Stop the critical race bull shit. People are people stop being a racist!
@@erenawismer4009 yup! As a woman of color with a doctorate in electronic engineering, that's exactly what I am! I am an extremely racist born and raised Indian woman of color scientist who can't simply celebrate two successful women in the top of their field and need a white girl with savior complex to teach me how to not be a racist! Check your privilege!
@@sayantiju so you brought race into picture over here and when someone called you out, you immediately changed your stance from "women of color being successful" to "two successful women" and very conveniently assumed that the first person is privileged and white. This proves you are a bigger racist who hates anything that is white.
@@erenawismer4009 you're so lame dude! Race does not exist in a vacuum. There is societal and cultural context going on here that you and other closeted racists benefit from ignoring!!! Often people of color experience more nuanced obstacles or straight up backlash in STEM fields so seeing two successful women of color in this field is just awesome also personally inspiring because i see myself in them. DUh!!
I’d like to kindly recommend you read Blackout by Candace Owens. She also is successful woman of color.
Thank you, nicely laid out.
When I was diagnosed my doctor never bothered to truly and fully inform me so it took some time until I figured out my causes and triggers.
I get painless migraine, with wiggly, sparkly silver streaks across my vision accompanied by a very high pitched sound like an old CRT monitor powering up. The worst ones also affect my speech and coordination on my left side. The aura is momentary, but the speech and coordination issues can last for hours.
Thank you for this video. As a migraine sufferer, you're video so clearly explains how and why we experience the agony of migraines.
I have had migraines for decades. I have tried everything, you name it. Some of my migraines respond to a medication, others respond to nothing. The weather will cause them and nothing helps, I can be out of commission for over a week. It’s horrible. I have tried meds to treat and preventative, ice, heat, massage, physio, chiropractor, acupuncture, caffeine, no caffeine, diet, had every test you can imagine. I have even tried naturopathic, nerve blocks and narcotics-they don’t even touch the pain.
The types of migraines I experience range from silent, to cluster. Cluster migraines are just the most horrible pain-breathing hurts.
Triggers can be position of my head, low sugar, weather, perfumes, stress, hormones, allergies. I’ve lost track of them all. I remember being a small child and awakening in the night because of the most blood curdling screams. My father had them. He would hallucinate. My mother saved him once as he saw a pool of cold water and was about to dive into it-but in reality he was about to dive headfirst off the top of our concrete basement stairs. Migraines are horrible and it’s something no one understands til they’ve experienced it.Does anyone else get a “migraine hangover?” It’s what I call the aftermath of a bad one (especially if it’s lasted a long time) I get a “brain fog” where I can’t think straight for at least the first day after it.
Migraines and severe pain is exhausting, so no wonder you're out of it after, especially when it's a longer time.
Yes! The migraine hangovers are awful- some of my migraine hangovers have been worse than the migraine itself.
As a migraine sufferer, thank you so much for this episode. I find what you are saying pretty accurate in my case too. I’ve had tension headaches rarely and I have migraines once a month..I gotta tell you, the intensity of the pain of a migraine can’t be compared to a tension headache..sometimes it is almost as strong as a kidney stone pain. Also, they always last for 2 days in my case.
Every family physician should watch this. I was (eventually) diagnosed with New Daily Persistent Headache, but when I first became ill, the first two questions EVERY healthcare professional asked me was “are you drinking enough water?” (I was) and “how much caffeine are you drinking?” (I weaned off of caffeine completely and it did nothing.) Also nobody told me about medication-adaptation headaches until I finally went to the emergency room.
I suffer from headaches, but the few times I've asked a doctor about it, they'd ask me the usual questions to determine whether I was having migraines. Once they realized my headaches aren't migraines, it was like the pain suddenly wasn't important enough to be concerned about anymore. Luckily for me, the headaches aren't nearly as bad now as they used to be.
My migraine often comes in clear sunny days, when sun shines exceptionally bright. When it happens, I'll cover all sources of light, napping in the darkness, recovering, unable of doing anything.
As a person that suffers from complex severe chronic migraines, I truly appreciate this video. I suffered for years with no one knowing what was happening to me and getting rushed to emergency rooms and being sent away after with no answers or treatment. I lost my job, savings, car and almost just want to give up because I had lost control of half my body! It was like I was constantly having a stroke... I was in my early 30s and I couldn't work or even always see or walk!
When I finally got answers and treatment... It still took years to get to better answers and actually learn (I'm a rare case from my understanding) but... It made such a difference in life!
There aren't enough of you doctors in the world! Thank you for doing your work!
As somebody who suffers migraines with aura, thank you so much for showing the difference between migraines and headaches.
I loved how they addressed each question. Also, I kept thinking to myself "they are so beautiful".
Thank you for this video because as a migraine sufferer and for my sister who suffers from cluster headaches and hemapoligic migraines band we both suffer with severe sinusitis life can be very difficult and s lot of people don't really understand how debilitating life can be so this video is great for those who truly don't understand the difference in these conditions 🤗 love from Ireland🤗🇨🇮
I had my first migrane attack a few years ago and it was one of the worst things I've felt in my life. I stood up from bed one morning and it was like someone kicked my head like a football. I couldn't stand up straight for more than a few minutes before needing to lie down in complete darkness. Honestly, I thought there was something seriously wrong with me and that I might be dying. The whole ordeal lasted across four days and it was just awful.
Before that I had a hard time knowing what set apart migranes from headaches but now there is no doubt in my mind what does. I honestly commend ever person struggling with migranes on a recurring basis and wish them all the love and support I can muster. And thank you to this channel for busting these myths that desperetly needed bustin!
The fact that migraines and headaches are so nuanced makes them ripe for these sorts of myths to persist. I've recently been getting chronic migraines (runs in my family) and it's been a journey to figure out what exactly it is i'm dealing with and how to manage it. I do not want to be on a cocktail of pills so right now i'm working with a better diet and life practices... like the video says, no cure, it's all about management. The anxiety around what they "could be" also has been a lot fun. Your thoughts always jump straight to cancer or stroke. Scans, blood tests have shown negative, thank god.
Thank you ladies .... for helping us headache sufferers feel "seen" .... so many people who don't have the problem are dismissive, with faux jokey comments like "it's all in your mind" ... and "see you're cutting work again, with that headache excuse".
Thank you so much for this video!! I've lived with migraines since I can remember and so with people around me that always tell "Migraine are just headaches..." I have to say that I hate that comment. This video make it clear the meaning of each condition. I hope more people be aware of it, for us who live it, means a lot!
As someone with Menieres disease and vestibular migraine, I love this so much. These amazing women make me feel so seen and I love it so much. I can never explain properly how it fully affects me in my day-to-day life especially to teachers/lecturers who don't understand what it's like
I have Menieres too, when I was little I could barely stand as the vertigo was so bad. Now, it is in the background, kinda like white noise. I feel the same way about the teachers who don't understand that at least for me, affects me constantly. Sometimes when I have to miss school due not being able to drive, I tell them that I am "sick". Kind of sucks that I can't tell them the full truth.
chronic migraine is a despairing disease. thank you for offering some calm reassurance and validation.
I’ve been dealing with migraine aura episodes ever since I was a little kid. It’s very frustrating as they part of my family’s genetics. The episodes I get tend to scare the heck out of me as if I was having out of body experiences.
Same. No one ever mentions the kaleidoscope channel my brain gets stuck on either. It's all neurological. I will straight up trip balls when I have a migraine 😳
I'm a barber. They want me to drive to work and use scissors on people in this state 😳
I have a child who was diagnosed with abdominal migraines at the age of two. TWO! (We realized later he’d been having them since he was at least 18 months, and has since started experiencing other types of migraines as well) One of the most frustrating things people do is refer to his migraines as “headaches.” You can’t call something that completely incapacitates you for hours, and causes you to scream and cry out in pain, simply a headache. So many people in our lives insisted that getting him glasses would “cure his headaches.” They didn’t, of course. If you want proof that a migraine is not simply a really bad headache, try taking care of a preschooler while he’s experiencing a migraine attack. Just please try to be mindful and sensitive about your word choice, and how it might invalidate somebody’s suffering.
Just want to reach out. I too had abdominal migraines as a child. It is common to at some point transition to migraine headaches. I explained this to a neurologist who has no idea what I was talking about. Needless to say not my neurologist anymore. Stay the course, Beth. I took an antihistamine to control them in the 80s. I hope that there are better treatments for pediatric patients today.
@@deltaflute03 we are currently working with a pediatric gastroenterologist, alongside his pediatrician, who is surprisingly knowledgeable and supportive. We were super lucky to have access to such wonderful care. My child has already started experiencing migraine headaches as well, so I guess he's in that group. He also takes an antihistamine (cyproheptadine), so I guess that's still the same. Thank you for your thoughtful words of encouragement! I'm sorry that you as well had to go through all of this as a child. It seems so incredibly unfair for such little people to have to feel so much pain.
This video made me emotional. It's just so good to be acknowledge for once! Yes, migraine is a disease. Yes, it's very hard sometimes. And yes, just because I don't have the most common symptoms doesn't mean I don't have a "real" migraine.
Great video. I've been suffering from migraines my whole life and still learned something here.
Thank you for this education! I'm almost 40 and now see a headache specialist, but didn't seek help for a long time because people in positions of authority, including doctors, told me migraines are just headaches and I should toughen up and get over it. That chronic migraines shouldn't be as debilitating to me as they are. Hopefully this video helps more people get the help they need.
I have abdominal migraines and psychological vomiting syndrome. Love that these videos are being made. Very helpful for me to learn more and for other to understand what we go through.
What does abdominal migraine mean?
@@najah1819 I get migraines from smells, food or anxiety that cause severe pain all over the abdomen, stomach and or head.
As someone who has chronic migraines I love when people clarify that it’s not all about drinking water. So many people throughout my life have said I just need to drink water that I now subconsciously drink a ridiculous amount when I have an attack
Thank you so much for this! I have had migraine for 60 years. For the past 30 years I have had excellent doctors. The first 30 years were terrible. I’m still not sure how I got through HS and college. If I had a dollar for every time a well-meaning person offered me a “cure” I would be rich. My migraines have changed over the years and, thanks to my wonderful doctor, are now well managed. BTW, does anyone else get a cold nose as a warning of an oncoming migraine?
I have cold hands and freezing cold feet...... heat pad on my stomach and feet, ice pack on my head....
Never had that happen to me. I've had migraines since I was a teenager & was told that I couldn't have migraines because I was a boy. Or was told even though I couldn't stand any light or sound when they hit, it's just a bad headache.
Yes! My sister's neurologist says cold nose is quite common, because a major nerve connects inward toward the nose on its way down (the vagus nerve, I think?).
For me, it’s my teeth. They start hurting like I’ve been clinching or something,
@@deltaflute03 ask your dentist if you're grinding your teeth or if you could have possible TMJ problems. It's common to find TMJ problems in migraine sufferers. It causes you to clench your teeth (which causes the teeth to hurt). All of this then triggers headaches. If you currently receive Botox for migraines you can ask that they also inject the TMJ muscles on the side of your jaw. You can also see specialized dentists who will inject Botox into the TMJ muscles and other muscles in the neck. Just make sure not to have head Botox and the dental one around the same time because it can be too much and you'll be like me and I couldn't even hold my head upright without a neck brace. 😂
A cheaper alternative is to pick up an OTC grinding mouthpiece. They're less than $10 and easily found on Amazon or CVS type stores or in the pharmacy and sports sections at Walmart. You put the piece in boiling water for 30 seconds then in your mouth to get a perfect fit while the plastic is soft.
This video is so validating!! Thank you! ☺️ I have had migraines since I was 6 years old, and I’m 34 now. I really appreciated how you mentioned the mental health component. That’s so important to acknowledge. I still get at least two migraines a week, but, I’m finally on a migraine regimen from my neurologist. I hope it’ll help decrease the frequency of my migraines 🙏🏻.
I didn’t know until I went to the ER one time that numbness on one side of the body was a migraine symptom. They did an MRI and everything and came back with “you have a weird migraine”
The best advice they give is the diary. Writing down symptoms, exercise, meals, sleep, and other activities is the only way to know yourself and identify what to modify.
Thank you for making room for this topic. Very important.
More people need to get that Migraines are NOT headaches. Thankfully I don't regularly get migraines, but I know my biggest trigger is light and, unfortunately for me, I'm quite sensitive to light on some days. Heat can cause trigger it too. And once it triggers, light and sound just are too much. I've never actually thrown up, but there have many times where I was worried I would. Usually some time in a dark quiet room helps. . . but I have woken up the next still struggling. Dehydration is also a pretty big trigger for me. Once it hits, its usually going to last the rest of the day at least.
This was amazingly helpful! Also you two intelligent doctors have FANTASTIC camera chemistry. I hope this isn’t the last time I see y’all on RUclips!
Oh gosh! I really appreciate for clearing these myths because it took me 10 years only to realize I have vestibular migraine symptoms. There are so many types of migraines and I myself was proven wrong when I use to think I only had a headache which prevented me from seeking professional help.
I have finally started to get help with preventing them. My new doctor has migraines so she knows what it is like and wants to find something that works for me.
Thank you so much for this video. As a chronic migraine sufferer it’s so nice to see a video setting the story straight that it’s not just a bad headache. Great job 👏
I only recently learned about the effects of the overuse of NSAIDS and looking back to when I was a kid, I suffered so much from that on top of migraines. Nobody wanted to believe me when I said they weren't working anymore.
So helpful! I’m a migraine sufferer but did not know some of these details. Smart, kind, and charming ladies helping us out!
Wow, that last question blew my mind. I used to have incapacitating migraines every week and they suddenly stopped when I started taking mood stabilizers for a totally separate diagnosis. Never made the connection. 🤯
I’ve had migraines with aura for many years now and I am guilty of doing what you said, I take an Advil (extra strength) and then try and lay down and usually after an hour the aura’s go away but it can take a while for the migraine to leave me. Great video, thx for making it for us migraine sufferers, cheers.
What I do is, I'll take 800mg of ibuprofen right when it begins. Then I'll end up with a bad headache, but it takes out the migraine. I have migraines like you, but I have also have had a major stroke. First migraine in 1978, stroke in 2015.
I lost my auras years ago, and I no longer get debilitating headaches. I hope you get better.
@@umcarafilipino Thx, I appreciate that.
I wish more people understood not all headache disorders are migraine. Even providers. I saw 3 neurologists before I was finally correctly diagnosed with hemicrania continua and not atypical migraine.
Why would anybody think u have a weird disorder when there are things way more common? , Thats why the follow up consults exist theres no way to diagnosis everyone at first try
@@katonryuka Because hemicrania continua is actually far more common than previously thought because so many people are misdiagnosed with migraines.
I have a migraine disorder that only started to become a real problem when I developed multiple sclerosis.
MS gave me cluster headaches. So now I have a migraine disorder AND cluster headaches. Also, agoraphobia. Why go outside where there is bright light and people wearing way too much after shave when instead, I can stay here, in my cool dark room, free from others bad choices in cheap perfume and their migraine triggering air.
(I have had the agoraphobia for a while and lemme tell ya, covid lock down... Felt like any other day. Win? Somehow?)
I have no headaches-problems, but this is a really good and interesting video and you doctors ladies are for sure the doctors we need! Thank You!
Everyone is different. We all have different triggers and different “treatments” that work for each of us. I tried for 20 years to figure out my issue. This included working with multiple neurologists, using all kinds of medications. Brain scans, sinus scans, sleep studies, acupuncture, chiropractors, diets, supplements, tracking weather patterns etc. I kept detailed records in a spreadsheet of every headache including date, severity, and treatment. Near the end I got 50 headaches in 60 days. By a stroke of luck I determined that aerobic exercise is only thing that worked for me. Once I started jogging and biking my headaches all but disappeared. I don’t know why but I’m not arguing. Not only have my headaches disappeared but I’m in the best shape of my life. I’m also not putting all that medication in my body.
cool
I’m going to try exercise!!
Thank you for this, my family members mostly females suffer from migraines I have sinus related one's, and stress. I take aspirin as needed . Thank you for the cluster headaches
I have Chiari malformation and idiopathic intracranial hypertension (aka pseudotumor cerebri) with “complex headaches” and I hate when people dismiss it as “just a headache”…”just a headache” wouldn’t require approximately 150 brain surgeries. “Just a headache” doesn’t cause you to spend months and years worth of time in the hospital. “Just a headache” doesn’t cause you to take 20+ pills each day. “Just a headache” doesn’t cause you to be in constant pain that is t quantified about whether or not you are in pain but rather whether or not you can function. It is NOT “just a headache!”
Amitryptaline has changed my life. I’m down from 19/20 days a month to once a every 2 months or so. It’s also booted out depression.
really important! as someone who lives with vestibular migraine, this video is a relief with so much misinformation out there
Thank you, thank you, THANK YOU! While I knew a lot of this already living my life with non-stop migraine headaches (and the pain getting worse when I got older. I was only barely able to finish high school so my dreams of college were kissed goodbye), I didn’t know other people who had migraine were also so disabled! It’s… I hate to say encouraging, but it makes me feel a lot better knowing that my life being stalled from the chronic pain isn’t me just being a total wuss.
I’ve finally found something that, mostly, helps, but it’s hard to imagine ever living a normal life :/
So honestly, from the bottom of my heart, thank you. Both of you ladies are absolutely inspiring and intelligent, and I’m sure you’re saving people everyday!
Sounds dramatic at first until you realize you’re dealing with patients who are in chronic pain and disabled. Suicide is just one very bad pain day away. Trust me on that one.
i have had migraine since i was a kid and the doctors just told my parents that i was faking it and no one took me seriously.. now that we know it is a migraine they still arent doing anything and they dont understand how severe it is. a little too much light, sound, stress all knocks me out during those times and they dont give a shit lol.. i just take paracetamols and get back to studying cause icant do anything else. its like someone hitting you with axes in the head, idek how to explain it to people
I started to suffer from aura migraines 2-3 times a month ever since having my first child back in 2014. I get the stroke like symptoms where my speech is very slurred and I get numbness in my body and cant see. Finally after years of suffering I tried the advil migraine pills after I realized the prescription pills were doing nothing for me. They take 30 minutes to kick in but my vision always returns. Also having a blue light filter on my phone helps a ton! Also polarized sunglasses in the car 👍
Watching this made me feel validated that its not just me and its not just something. Thank you
The validation I feel from this is amazing!
I've had migraines since I was 12ish, I inherited them from my mom. I was put on Topamax, it made me so dumb. Like stupid. I got off that, and was off meds for a long time, mom would give me her Imitrex from time to time. Later I got on Propranolol and Maxalt. The propranolol has been great for me! Now I do Imitrex nasal spray as needed also.
I’m on Topomax, have been for over a decade. Tried imitrex. Allergic, bad. I’m not dumb, just never hungry. It’s been pretty good for me. I have breakthroughs during weather changes. Or if I cry. Luckily, my husband and I never fight. I had a LOT more migraines with my exhusband 😂
Well done! As a sufferer things changed and I had to have an MRI. It showed an arachnoid cyst with my cavernous sinus. 4 months to see a neurologist, crazy!
I had chronic pain for years since I was hit by a car and became disabled. About six months ago I suddenly had debilitating pain, went to apparently the greatest massage therapist in the world, she prescribed certain exercises and stretches, and that all worked, but I still had chronic pain a little more intense than usual. It hurt most just above my hip on the right side; she said that was because my liver was overwhelmed by drinking too much alcohol.
I looked it up and while alcohol could be the cause, so could NSAIDs. Since I was hit I had been taking large amounts of ibuprofen every day, so I stopped taking it, and it was like magic! The damn ibuprofen was causing my chronic pain for years because I took too much of it.
Glad you figured that out!
Thank you for this ! People who don't have migraines can't really understand how powerless can a migraine make you! I
Had headaches / migraines daily for years (12-18 yrs of age). Told my doctors, they all said it's nothing (they didn't do or ask me anything). As soon as I moved out of my parents home at 18 I never had a headache since.
@Chilapa you're correct. Never attempted that diet but thankfully I don't need to since It has been 3 years since my last migraine
@Chilapa I guess if some random person on the Internet says it’s a “supreme fact” it must be true. No need for science or experts anymore.
Could the cause have been something in your home environment? Stress, for example?
Yes. Thank you. Thank you. Have been trying my best to live a full life with migraines, but damn it's so nice to be heard, and understood by amazing Drs!
in love with this video and all of the knowledgeable information and the representation! Thank you!
Thank you for sharing all of this knowledge! I don't suffer from migraines, but I never understood people who used migraines and headaches interchangeably. I always understood they were separate things.
Thank you so much for clarifying and debunking so many things.
My own neurologist told me that my migraines were psychosomatic and that there was nothing he could do about it. Well besides to not be me and be stressed. 😅
So many doctor without knowledge on this.
Ive dealt with migraines for over 20 years. They're the worst especially when they last for several days straight, makes you feel like you're not really living just exsisting.
Where can I get doctors like these they want to treat me instead of blowing me off 😭
Always mention the nausea and auras(if you get them. I went to a neurologist and he believed me but he told that people will literally go in to see him just for a minor headache caused by rebound effect or too much caffeine.
Just making me feel grateful for the fact that I don't have a migraine right now. Last month the attacks were more frequent than usual, never found out why.
Hearing that they’re the second leading cause of disability was so validating. I finally feel like someone understands how bad it is and that I’m not exaggerating. My migraines are SEVERELY painful and quite literally disable me during them. Can barely move bc the pain, can’t sleep but I can’t do anything to keep myself sane, and sometimes it’s hard for me to go to the bathroom as much as needed because of how much my head pounds when I stand up. Everything hurts my head: lights, sounds, scents, and moving my neck even slightly. Luckily they’re much less severe thanks to medical marijuana. I have tried so many things and this was the last resort, and it’s honestly been a miracle for me
(This is NOT medical advice or meant for suggestions. See a doctor if possible because there are plenty of treatments and ways to manage! They just didn’t work enough for me for years of suffering from migraines.)
That barely scratches the surface of symptoms. Eating problems and nausea are really common for me
OMFG THANK YOU!!
The amount of Doctors who have said i "don't have migraines because migraines are only on one side" and completely shrugged me off and treated me like an over sensitive hypochondriac, is one of the reasons I have c-PTSD from medical trauma!
LISTEN TO YOUR PATIENTS!
It always feels so weird when I take excedrine and the inflammation goes away and the pain is gone, but I can still feel the migraine.
Yes. This. You lose the headache pain, but you can still feel the "off-ness" of it. Had that experience just this week.
Dehydration may not be considered a cause of headaches, but it sure helps alleviate a hangover if you drink some water before you go to sleep, and drink some water once you have a headache. Maybe it's just me.
Only times I get migraines (severe head pain, dizziness, aura) is when the muscles in my neck locked up super bad. IMS performed by a physiotherapist unlocked those, and migraine went away. Got lucky that mine were that straightforward to solve. I wonder what % of people are actually this.
This happens to me too. I've even thrown up from the feeling. Many people never find out reasons but sometimes headaches can come from other things. Also clenching teeth or TMJ can give a headache, sinus issues, etc
what is IMS?
@@mahvish5388 "When performing IMS, a trained physiotherapist inserts a (large) acupuncture needle into a tight and shortened band of muscle (or a trigger point)."
They basically grind the muscles with a big needle. Hurts really bad, but it releases the muscle.
@@mahvish5388 Intra-Muscular Stimulation
I suffer from migraine with aura (chronic) and have had two hemiplegic migraines.
My migraines started about two years ago and I was having up to 6 a week, sometimes 3 a day. Longest one has lasted about two weeks.
I remember some of my first ones... just getting out of bed and dry heaving on the floor in a puddle of sweat.
I get nausea, light sensitivity, sound sensitvity, visual distortions, trouble speaking, sweating, mood changes, left side weakness and paralysis (with the hemiplegic migraines), and more!
Most of my migraines seem to come from my neck... I get severe neck pain and stiffness. Many of my migraines have been silent as well (no headache, just the other symptoms).
Thankfully, I'm now using Botox and a nerve block in combination to treat my migraines.
My biggest triggers still are too much standing/exercise, missing meals, sodas/junk food, lack of sleep, stress, stong smells, too much movement (flashing lights, windshield wipers whipping back and forth, motion-heavy videogames, etc), drastic weather changes, and getting too hot/hot weather.
OMG this video was so eye opening for me even after dealing with headaches and migraines for nearly 20 years
Please have them back regularly!! Can we submit questions? I would love to know about genetic relatedness for headaches and migraines
If I had a headache or migraine problem I would want these doctors to speak to me. Very calming voices.
I get episodic migraines. And I get different types. I've had aural migraines, but never with pain and painful migraines, but don't remember getting aura with them. Until I found out aura was a symptom of migraine, they really freaked me out.
My entire family gets migraines, and my mom has been hospitalized multiple times with one. Thankful for this video!