What are precursor conditions of multiple myeloma?
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- Опубликовано: 3 окт 2024
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Diagnosed with MGUS 16 years ago. Health issues all of the time. Polymyalgia Rheumatica/Giant Cell Arteritis. Age 68, non- smoker, no alcohol. Not obese. Not diabetic. CKD, with MGRS, a new and distinct diagnosis for MGUS/MM. MGRS (Monoclonal Gammopathy of Renal Significance). Just on the edge of having MM. Diagnosed with kidney and bone biopsy. Chemotherapy begins as soon as blood test for cryoglobulin comes back. MGUS can be harmless with no symptoms. For me, it has been a nightmare for 16 years. Can't begin to tell you how many doctors told me I was just "deconditioned", and needed more exercise. Have Anemia of Chronic Disease for at least 10 years. MGUS is not always a simple blood "quirk". MGUS is a serious medical condition and like the doctor states, deserves more preventative attention.
Like me. IgG Kappa discovered in 2018. I had it almost certainly 6 years before. It's progressing very slowly from Kappa 37 mg/l to 84 mg/l today. Diabetes will kill me first, probably
UPDATE: Cryoglobulins at 10%. Diagnosed with MGR as cause of CKD. Last month had stem cell transplant after four months of reduction chemo. In "recovery" from stem cell. Just horrible. .
@@phebagirlsmith3228 Chin up ! There are people worse than me and possibly you.
@@stephenrichards5386 Recovery period would not be so bad, except I had a dumb accident first night home from hospital. I got out of bed confused and disoriented (first night home in 3 weeks). I tripped on a chair in the bedroom, fell, and broke my nose. I am having a lot of discomfort from my own shortsightedness. I should have awakened hubby to help me.
What is MGUS?
Recently diagnosed with mgus. This is one of the best videos I've seen 👏
I suppose it'd help if I understood what the big names meant, but one thing that listening to all this has done for me, is increase in me a trust that most doctors really *do want us well!
I'm waiting on my myeloma scan result and thought I'd check out things related, whilst waiting.
If you want to understand all of the complicated terms we have a course on the basics of myeloma that will help you to get a better grasp. healthtree.org/myeloma/university/courses
I was diagnosed with MGUS in August 2018, and then in 2020, it progressed to smoldering multiple myeloma 😢
I have MGUS, I’m excited that they are looking at treating before it progresses. I believe some types have poor prognosis so it would be nice to start with those.
I know that stress was one of main causes for my progression 😮
UPDATE. Finished stem cell transplant for MGRS, plus four months of conditioning chemo. Will restrt chemo after bone marrow biopsy in September. Please pay very close attention to MGUS, especially if you start showing problems with kidneys. My cryoglobulins that are a marker for MM if over 10%, are just at ten percent. I barely, barely, have MM, but it is beginning to look like I had MGRS for years. Don't let doctors discount your MGUS if numbers are low. Make sure attention is also paid to kidneys and anemia.
I have low protein MGUS but slightly elevated Kappa FLC and K/L ratio & B2M, neutrophils, monocytes & WBC. I am a member of the PROMISE study. A brother had MM, a sister had ALL mutated to AML.
I am trying to find out when a bone marrow biopsy is indicated, but my general oncologist says not until its become full blown MM according to serum values! I want to know my baseline at least. Should I get a 2nd opinion?
I would most definitely get a second opinion.
What are the root causes of multiple myeloma. Is it genetic or due to some other factors?
I have smoldering MM. I have had a fracture and have anemia.
We are here for you!
What does smouldering myeloma mean?
@@marywilliams9858 Smoldering myeloma is considered a middle ground between MGUS and multiple myeloma. You can learn more about this in this article: healthtree.org/myeloma/community/articles/smoldering-myeloma-what-we-know-where-going
My husband has MGUS and I am watching him wasting aware he has so much bone pain and other health problems prostrate problems incontinence and heart problems
We are here for you!
God bless him every day. There is a NEW NON-ADDICTIVE pain medication . I think it's called colmodine. Made in the U.S. God bless all the myeloma sufferers.