Bro, it is really great that you have been creating awareness in general public about invisible disabilities. I am a cancer patient suffering with rectum cancer and am also one among you but with 2 stoma bags. One is colostomy bag and the other is urostomy bag. People with 2 bags require lot of patience & mental strength. Family support is required. More and more people should come out like you and instill confidence in people like us. GOD BLESS YOU & all disabled people. I am from Bangalore, India😊
Your charisma is magnetic and it is so wonderful how you are spreading awareness and making people think about how they shouldn't judge others based soley on appearances.
Socialising the existence of stomas is really important. Before I had mine I knew very little about them, but I think the younger generation are possibly better educated. My daughter and various foster kids actually follow the likes of yourself on social media and so know more than my generation did at their age. Keep socialising and educating out on the streets. Maybe a Q&A session because I see so many good questions in the comments that are worthy of answers. Thank you for what you do. I'm just over a year in with my colostomy and it has become my normality.
Hope you're well brother came across your RUclips channel stay strong brother, my dad had bowel cancer his living with a stoma bag permanent had it since 2009
I would love to see you tell us about how IBD affects of affected your mental health? How you dealt with flares? And do you ever think there will be a cure? I have UC and have followed you for a long time x
In my opinion someone with a stoma is not disabled . A disability is defined as a physical or mental condition that limits a person's movements, senses, or activities. A stoma does not limit any of these . It’s a condition .
Oh I’ve been in similar situations. Was annoying but No chance would I say it limited my activities and I am now disabled though because of a rare situation like that.
I think missing vital major digestive system organs and having to perform a basic bodily function in a very different way is certainly a good argument for it being a disability. I mean it doesn't stop me doing stuff but it does mean I live my life in a very different way which has considerable lifestyle impacts and requires specialist care. Plus you could argue that those who have a stoma due to IBD have a disability due to their IBD anyway. That certainly impacts on the physical and mental health of individuals on a day to day basis.
@@benraybould5261 yes it is different . But does it limit your movement, senses or activities. I just can’t see how a well fitted bag on your skin would. Well it didn’t for me and I think most would agree. Maybe I’m lucky, but if I suddenly went from not being disabled to disabled, I would’ve thought my life would’ve changed a lot when it hasn’t
Man i hope you don’t end up with Crohn’s or UC or similar autoimmune situations. You would think differently because they most CERTAINLY do affect your day to day living. THATS the reason for the ostomy. And having an ostomy most def is a disability as you have to take extra time and care to deal with it.
What foods don't you eat due to having a stoma.. I know there's quite a few foods to avoid.. ty for advice of your ileostomy.. I didn't know what a ileostomy was before having mine.. i never saw one till just before my operation x
I have a question I am just curious I am a type of to not judge no one about anything that's wrong with. As for me I have servare social anxiety so I don't judge but I like to learn about people with all kind of medical conditions so I would like to ask like Is your stoma sensitive like can it cut easily? Or does it affect any part of your life?
Hey thanks @Mr ColitisCrohns for raising awareness to this. I've had an ileostoma for 5 months after cancer and losing most of my rectum. It was a close one regarding to it being a life long stoma. I had a hard time accepting my stoma because it was the result of a life saving op so I kinda got it by surprise and was really scared. I learned to handle my stoma after a couple of spitting out times in the bathroom and some nightly laundry work. Coloplast is such a great brand, here in Germany the customer service is really interested in the individual person and sends a lot of test products. I got my stoma reversed about 9 weeks ago and it's been no picnic but I would never have come to terms with not knowing what it would be like to try and live without it again. Although that might mean I could have permanent issues with the digestion and decide in the future to get a lifelong colostoma. I consider myself lucky that I could choose, not everyone does. Atm I'm fighting hard. I mainly need the toilet after large meals, not just by chance. I don't agree with fats and sugar well. I have to watch what I eat. I don't take medication I just let it take it's course. It's early days considering the bowels need to get back to normal. Looking forward to seeing more of your videos, maybe a comparison like that would be interesting for viewers that haven't yet decided whether they want to get their stoma reversed or not. All the best, Rebekka
Hey brother! Hope u are doing well One of my relative have the same disability which u have and the problem is that he cant afford the stoma bag and its materials which are used on a daily basis Kindly help him out by sending some of these kits which are used for stoma so that he can change on time and stay relax Thank u
I think...you dont have the inner...testiny....inside...how it occure...? What happend...? It is the first time I heard...a story about that. Never I know about that. INTERESTING. You are a brave person. GOD LOVES POEPLE WHO..THEY ARE...INSIDE...AND YOU ARE ONE OF A KIND...IN JEZUS NAME...AMEN
Bro, it is really great that you have been creating awareness in general public about invisible disabilities.
I am a cancer patient suffering with rectum cancer and am also one among you but with 2 stoma bags. One is colostomy bag and the other is urostomy bag. People with 2 bags require lot of patience & mental strength. Family support is required. More and more people should come out like you and instill confidence in people like us. GOD BLESS YOU & all disabled people.
I am from Bangalore, India😊
Your charisma is magnetic and it is so wonderful how you are spreading awareness and making people think about how they shouldn't judge others based soley on appearances.
Good idea. I didn’t have much of a clue about stoma life until I got mine. As an over-sharer, everyone around now me gets all the details.
Hey man you are very strong mentally and physically don't loose this 🥰
Socialising the existence of stomas is really important. Before I had mine I knew very little about them, but I think the younger generation are possibly better educated. My daughter and various foster kids actually follow the likes of yourself on social media and so know more than my generation did at their age. Keep socialising and educating out on the streets. Maybe a Q&A session because I see so many good questions in the comments that are worthy of answers. Thank you for what you do. I'm just over a year in with my colostomy and it has become my normality.
Hey Mesha, loved these street interviews! Cool!
this really is so nice. educating and harmless at the same time. clean video directions .. I wanna watch moreeeee love from Nigeria 🇳🇬❤️❤️❤️
More to come!🎉
@@MrColitisCrohns thank You
We Love You ❤️
@@MrColitisCrohnsvery fake videos there little kid
@@SharonP8356 kid it’s all fake
@@quazeemoloyede7672 you know these videos are so fake as ever. It’s all animated and cgi,
Respect! I have Chiari myself, I got lot of different symptoms but now during the year it has calmed down 🧠 Greetings from Finland 🇫🇮
बाई तेरा दिल डायमंड का है, जो ऐसी हालत में बी इतनी एनर्जी और खुश हो तुम यार,, i support from India
I really appreciate all of the motivational speeches
Hope you're well brother came across your RUclips channel stay strong brother, my dad had bowel cancer his living with a stoma bag permanent had it since 2009
I would love to see you tell us about how IBD affects of affected your mental health? How you dealt with flares? And do you ever think there will be a cure? I have UC and have followed you for a long time x
Would love to meet you ! Such a inspiration
Really inspiring your life❤
In my opinion someone with a stoma is not disabled . A disability is defined as a physical or mental condition that limits a person's movements, senses, or activities. A stoma does not limit any of these . It’s a condition .
Try being at an airport with your ostomy bag and you are stuck in a line waiting to go through customs. And your bag leaks
Oh I’ve been in similar situations. Was annoying but No chance would I say it limited my activities and I am now disabled though because of a rare situation like that.
I think missing vital major digestive system organs and having to perform a basic bodily function in a very different way is certainly a good argument for it being a disability. I mean it doesn't stop me doing stuff but it does mean I live my life in a very different way which has considerable lifestyle impacts and requires specialist care. Plus you could argue that those who have a stoma due to IBD have a disability due to their IBD anyway. That certainly impacts on the physical and mental health of individuals on a day to day basis.
@@benraybould5261 yes it is different . But does it limit your movement, senses or activities. I just can’t see how a well fitted bag on your skin would. Well it didn’t for me and I think most would agree. Maybe I’m lucky, but if I suddenly went from not being disabled to disabled, I would’ve thought my life would’ve changed a lot when it hasn’t
Man i hope you don’t end up with Crohn’s or UC or similar autoimmune situations. You would think differently because they most CERTAINLY do affect your day to day living. THATS the reason for the ostomy. And having an ostomy most def is a disability as you have to take extra time and care to deal with it.
It’s ok to get laughed by other people,if you ignore them you can be happy
Cool man😎
Appreciate it ❤
I think this intriguing because I’ve got a non visible disability
What foods don't you eat due to having a stoma.. I know there's quite a few foods to avoid.. ty for advice of your ileostomy.. I didn't know what a ileostomy was before having mine.. i never saw one till just before my operation x
That was good
My guy ❤
one guy said i want to pop it 💀😡
Does coffee make your stoma overact? Do you get dehydrated easily?
When I had my stoma I was always battling constipation.
I have a question is there a certain diet you go on whilst managing a stoma bag
I have a question
I am just curious I am a type of to not judge no one about anything that's wrong with. As for me I have servare social anxiety so I don't judge but I like to learn about people with all kind of medical conditions so I would like to ask like
Is your stoma sensitive like can it cut easily? Or does it affect any part of your life?
Hii last two month,why not send video❤
Hey thanks @Mr ColitisCrohns for raising awareness to this. I've had an ileostoma for 5 months after cancer and losing most of my rectum. It was a close one regarding to it being a life long stoma. I had a hard time accepting my stoma because it was the result of a life saving op so I kinda got it by surprise and was really scared.
I learned to handle my stoma after a couple of spitting out times in the bathroom and some nightly laundry work. Coloplast is such a great brand, here in Germany the customer service is really interested in the individual person and sends a lot of test products.
I got my stoma reversed about 9 weeks ago and it's been no picnic but I would never have come to terms with not knowing what it would be like to try and live without it again. Although that might mean I could have permanent issues with the digestion and decide in the future to get a lifelong colostoma. I consider myself lucky that I could choose, not everyone does.
Atm I'm fighting hard. I mainly need the toilet after large meals, not just by chance. I don't agree with fats and sugar well. I have to watch what I eat. I don't take medication I just let it take it's course. It's early days considering the bowels need to get back to normal.
Looking forward to seeing more of your videos, maybe a comparison like that would be interesting for viewers that haven't yet decided whether they want to get their stoma reversed or not.
All the best, Rebekka
Nice fake story there kid
bro I just liked all your shorts 😅
Jo bhi comment padhne aaya hai meri tarha please like karke jao😙
Can u tell me more abaut that whatever its called
❤❤❤❤💕
Hey brother!
Hope u are doing well
One of my relative have the same disability which u have and the problem is that he cant afford the stoma bag and its materials which are used on a daily basis
Kindly help him out by sending some of these kits which are used for stoma so that he can change on time and stay relax
Thank u
👍🏻
Hai bro Iam in India same problem help bag and spray send me link please
All my products are from Coloplast 💫
Yes bro
Thank you so much bro I am very happy to day
Olá meu amigo boa tarde
I think...you dont have the inner...testiny....inside...how it occure...? What happend...? It is the first time I heard...a story about that. Never I know about that. INTERESTING. You are a brave person. GOD LOVES POEPLE WHO..THEY ARE...INSIDE...AND YOU ARE ONE OF A KIND...IN JEZUS NAME...AMEN
I have a question what is that on your stomach I’m new so that’s why I asked
It’s a dildo kid.
Can your disease can be cure
You mean a dildo on his stomach. It can be pulled off and use it as a sex toy
Pls pin the comment
Very fake video
Im 12 years old and my mum always tells me to whatch you and this video and you helped me through have a stoma for 2 years😊❤ @mr colitischrones