Wow, that is a very touching story. I actually have 2 of my 4 children who have been diagnosed with ANEC, and both have survived. Its a really tough road to travel, and its awful to see your children suffer. So encouraging to find another family going through a similar journey! Best of luck. Sarah
What a blessing to sit beside you on the plane yesterday and hear about your precious Bailey. You have a beautiful testimony of love and support. You have truly touched my heart. Praying for you and your family and knowing that God is able!
In 2001 in Calgary Alberta Canada I lost my 15 month daughter to acute necrotizing encephalopathy. Im so thankful your daughter made it through it watching your story took me back to the hell I went through but was glad to see a happy ending for you all.
Hi Penny427427 , I'm really sorry for your loss. I'm not sure if this would be of any comfort but we do have a group on facebook facebook.com/groups/1143757862322059/ we have a couple of families in your situation on there. Maybe you'd like to join us.
What a touching story.. My daughter has been through ANE twice and has survive. It's a tough road for sure. Feel free to reach out to us if you ever want to talk.
All my wife and I can do is wait pray and hope for the best, and I know my daughter is in good hands with the medical team here at valley children's hospital, ca...And I pray that we'll have the same outcome as Bailey's story...TRUELY AN INSPIRATION
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My friend's daughter in the UK has been diagnosed with this disease and is hanging on to life. This story gives me some hope. Thank you.xx
Wow, that is a very touching story. I actually have 2 of my 4 children who have been diagnosed with ANEC, and both have survived. Its a really tough road to travel, and its awful to see your children suffer. So encouraging to find another family going through a similar journey! Best of luck. Sarah
What a blessing to sit beside you on the plane yesterday and hear about your precious Bailey. You have a beautiful testimony of love and support. You have truly touched my heart. Praying for you and your family and knowing that God is able!
In 2001 in Calgary Alberta Canada I lost my 15 month daughter to acute necrotizing encephalopathy. Im so thankful your daughter made it through it watching your story took me back to the hell I went through but was glad to see a happy ending for you all.
Hi Penny427427 , I'm really sorry for your loss. I'm not sure if this would be of any comfort but we do have a group on facebook facebook.com/groups/1143757862322059/ we have a couple of families in your situation on there. Maybe you'd like to join us.
What a touching story.. My daughter has been through ANE twice and has survive. It's a tough road for sure. Feel free to reach out to us if you ever want to talk.
All my wife and I can do is wait pray and hope for the best, and I know my daughter is in good hands with the medical team here at valley children's hospital, ca...And I pray that we'll have the same outcome as Bailey's story...TRUELY AN INSPIRATION
This is beautiful. I met these people at my job at red lobster. Amazing people. Amazing story. Amazing baby girl.
Poor Baily
Wow