WHAT!? ARE YOU JOKING!? FIVE CANNULATION ATTEMPTS!? ...

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  • Опубликовано: 12 сен 2024
  • Welcome back to our channel. Life with the bridges.
    We are the bridge family trying to get the most out of this rat race we all call life.
    In September 2021 we found out our dreams had come true. We were expecting a new addition ….to the Bridge family.
    We spent the next 9 months, like any normal parents would, preparing our life for the arrival of our little boy.
    On the 11th of may 2022, at 11:11pm we were bless with the birth of our son. HE WAS PERFECT. We instantly felt love like we had never experienced and our family of 4 we always dreamed of. Was finally complete.
    We had the most magical first 8 months with Teddy experiencing all that life had to offer. UNTIL on the 24 of feb 2023 he got diagnosed with high risk AML Leukaemia.
    We spent 6 months (184 days to be exact) at Great Ormond Street Hospital. He endured 2 rounds of chemotherapy and a full bone marrow transplant in hope that it would save our son's life.
    We documented every part of his journey on this channel to raise awareness and give childhood cancer the exposure it deserves.
    After riding the hellish and unpredictable storm Teddy made it to the end of his treatment and RANG. THAT BELL!
    You are joining us now in our next chapter of this journey at home at bridge HQ, as we try to rebuild our life and continue to spread awareness about what it’s like to have a child post cancer and transplant in hope that this second chance at life we have been given. IS FOREVER.
    So if you’re interested in following our journey don’t forget to like our videos, subscribe to our channel and hit that notification bell as we document our life as the Bridge family.
    Our perspective and what we want from life when spending 6 months in hospital fighting for your child’s life, let’s just say has changed a little.
    All though myself and Katie have been lucky enough to travel the world far and wide in the past and now are slightly restricted for now due to Teddys recovery. This doesn’t mean to can’t dream, explore and go on adventures from our doorstep to show our son what life has to offer.
    TIME is something that none of us have control over and let me tell you. It isn’t on our side. I don’t have time. We don’t have time and you don’t have time. Yes I said it. YOU. DON'T. HAVE. TIME.
    So if there is one message we would like to spread to all of our community here on our channel. It’s live for today as tomorrow is never promised.
    We are going to breathe deep, dream big, travel wide step out our comfort zone and go and grab life with both hands and make the most out of what ever time we have left on this earth. AND WE are taking you along with us. So buckle up as LIFE. WERE COMING FOR YOU.
    We have also been updating daily on our instagram accounts which are mentioned below:
    @scottdanielbridge
    @katexbridge
    Please feel free to ask any questions regarding Teddy's diagnosis in the comments and we will try and get back to them as soon as we can. We appreciate everyones messages and support more than you would ever know!
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    If you are a parent and have a child that is having treatment for cancer up in London. Please consider getting in contact with Young Lives Vs Cancer via the link below. They are an incredible charity in the UK and supply parents with a variety of services from advice, to grants to accommodation like us and so much more! We are forever grateful for all the help and support they supplied us with.
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Комментарии • 125

  • @lindyoliver7750
    @lindyoliver7750 Месяц назад +29

    Another great video. As a nurse I will say putting a cannula in kiddies is not my thing, hence I'm a theatre nurse. But not sure if it's been explained to you but because Teddy has had so many needles in his veins it becomes extremely difficult to find good veins to use. But it breaks my heart to see your little man cry but oh his smile afterwards with the 'so brave' puts the smile right back on my face. ❤

  • @sneaks6635
    @sneaks6635 Месяц назад +11

    Watching you and Teddy play is such a treat. You are so engaged with him. You and your lovely wife are award winning parents. Enjoy your time completely. You are building great memories and as an adult, Teddy is going to truly appreciate the miracle he has in his parents. God bless.

  • @vanessavanderkramer6588
    @vanessavanderkramer6588 Месяц назад +12

    I love Teddy’s version of hide and seek! He has such an incredible personality! Your baby boy is truly ‘amazing’! Xxxxxxx❤

  • @bobbiejoyce1402
    @bobbiejoyce1402 Месяц назад +8

    God has awesome plans for this precious, brave little boy. Y'all are exceptional parents.

  • @chrissyrose8184
    @chrissyrose8184 Месяц назад +8

    Teddy is such a delightful and exuberant little boy. He makes me smile with such joy. His peek-a-boo game with the little doll was priceless!

  • @aimeesalter9521
    @aimeesalter9521 Месяц назад +8

    Poor little man your such a brave strong Superhero teddy he looks so grown up with his new hair cut so cute Aww Ted your too funny 💓💓💓💓💓💓💓

  • @carolwinch-buist2356
    @carolwinch-buist2356 Месяц назад +3

    My husband was 73 on the same journey ( AML) he never complained but the cannula really gave him grief. I was so proud of him and Teddy is a tiny warrior fighting the dragon and winning.

  • @texasproud8822
    @texasproud8822 Месяц назад +10

    Just starting the video and I think mom aka Katie also needs a treat for having to help with the 5 sticks!

  • @user-ic3fb4hi8h
    @user-ic3fb4hi8h Месяц назад +2

    Super Teddy you are the bravest boy ever braver than me sending you so many big hugs xxxxx oh my days love his hide and seek game is just adorable I could munch him lol xx you both are just wonderful and loving parents sending you all so many good wishes you have so much support xxxxx

  • @richardhutchison3123
    @richardhutchison3123 Месяц назад +4

    I am proud of you Teddy. I continuously keep you and your family in my prayers. I am still in remission from AML too! Love to all and hug Willow for me...Richard in Nashville, Tennessee, USA!

  • @patriciahurlbut9684
    @patriciahurlbut9684 Месяц назад +3

    How adorable is Teddy playing hide and seek all by himself with the baby!,, So damn cute!!

  • @JSBecc
    @JSBecc Месяц назад +16

    This is unacceptable in Pediatrics! In the US, two tries and you’re out. You bring in someone else. I am so sorry but Teddy will persevere. He’s still so much better off not having a central line. They need to do better.

    • @adriennesaunders1420
      @adriennesaunders1420 Месяц назад +1

      It’s 2 times you’re out for adults in the US!

    • @98849
      @98849 Месяц назад +1

      He never said it was the same person trying to get into the vein. On one hand he praises the medical staff but my word does he slate them as well. Dear little boy who is still alive thanks to those doctors.

  • @juliep.3660
    @juliep.3660 Месяц назад +2

    So so brave Ted, for such a young lad you inspire more than you can imagine. Scott and Katie are such amazing parents and set such a good example for all. Thanks for sharing, wishing you all the best. Love and hugs to all of you. Super Ted, you got this

  • @lori5032
    @lori5032 Месяц назад +3

    Super Ted is braver than most adults that I know! He is absolutely amazing! He takes after his amazing parents! Sending Love & Prayers from Florida! ❣🧸❣

  • @amyb2646
    @amyb2646 Месяц назад +1

    What a great video! I’m so happy that Teddy found a slide there lol aww he’s such a little trooper, I just love watching him. He is so precious, you and Katie are so blessed. All my love and hugs to you all 🤗🙏❤️🥰

  • @VeetiHuuhka
    @VeetiHuuhka Месяц назад +5

    Teddy is world Warrier he is gonna win this Hospital session❤❤

  • @DeirdreLawless-oi8vu
    @DeirdreLawless-oi8vu Месяц назад +1

    Hi Guys sorry I'm late ,was a bit out of sorts yesterday and only remembered today that Teddy was on yesterday,never want to miss day ,he is the bravest little man I know ,to get 5 Cannular in he is so strong its hard enough when it's your self ,but when Teddy needs them it's a different story but he just settles down so well afterwards he is so brave and I really mean that,it's great seen him play hide n Seek epically with the baby he was so funny and Scott gold medal for hiding,thought u might never had been found ,there is on thing about Little Ted he is happy in his own world ,he plays all day if he can always seems content ,love you always my little Bear 🐻 and Scott and Kate keep up the good work your great and I hope the wedding was a brilliant night for u all ♥️🥂 And willow woof woof buddy.X xx

  • @barbarafawcett9926
    @barbarafawcett9926 Месяц назад +1

    Do you ever wonder what goes through this club's mind? I think you and Katie introducing nature to Teddy was and is great for Teddy. I wonder what made Teddy look for a slide right from the start! Teddy you are adorable😘

  • @mariabottiglieri3047
    @mariabottiglieri3047 Месяц назад +1

    Hi Scott thank you for an awesome video. It was such fun watching you and Teddy play hide and seek. Pure joy.

  • @ADRCATS
    @ADRCATS Месяц назад +9

    I just love your videos…they make me laugh then cry then laugh some more they always complete my day🙏🏻🌸🦋🐶🐻🦄❤️…love you Teddy Bridge❤️

  • @rosanneperricone8060
    @rosanneperricone8060 Месяц назад +2

    Teddy is speaking so well! Thats awesome! Love from North Carolina to you all

  • @kyliestark7356
    @kyliestark7356 Месяц назад +1

    That game of hide and seek !! Bloody hilarious. The imagination of a child xxx it’s absolutely delightful xxx

  • @Susanjoc
    @Susanjoc Месяц назад +2

    I was a pediatric nurse. Unfortunately, it’s often difficult to insert a cannula in a toddler especially with his history. The staff should have tried to use a staff member who is more proficient. Ted day handled it well. I liked to see how Teddy was insistent on the slide. It shows his great ability to think about what he wants todo.

  • @jojosmumdorothy2829
    @jojosmumdorothy2829 Месяц назад +2

    🎉I know how lil man feels I was in hospital again and it's bloody painful to get canulated they always have trouble they go all over the place so teddy 🧸 is extremely brave 🎉

  • @karengenereux6307
    @karengenereux6307 Месяц назад +7

    My heart breaks for Teddy..it's so hard..especially with the veins..
    Maybe ask if they can use a dopler ultrasound to find good veins..
    I'm so sorry to say that with IVs and labs..the veins do wear..
    That's why Dr's recommend ports..but they cause infections..it's a mess..
    My daughter is down to one good vein for everything.
    Vascular has to come in and use the dopler ultrasound to find the vein..
    I don't mean to scare you..but talk to the Dr's on this and see if you can talk with Vascular..
    You want to protect his veins as well..
    My prayers are with Teddy and you both..❤

  • @deidrekoehler2882
    @deidrekoehler2882 Месяц назад +1

    The baby and Teddy “Hide and Go Seek”, PRICELESS!

  • @foofooberrygurl
    @foofooberrygurl Месяц назад +1

    poor TEDS hes such a strong little man. and you and katie are the best parents!!!

  • @patriciahurlbut9684
    @patriciahurlbut9684 Месяц назад +2

    Teddy is taking his meds a lot better I notice!! That’s a big Plus!! Great little warrior ya got there!!!👏🏻👏🏻👏🏻👏🏻💙

  • @user-uk7tl4ip3m
    @user-uk7tl4ip3m Месяц назад +6

    Scott the out of hospital anxiety is a real thing I'm exactly the same my daughter is a twin and she's got major issues with her lungs and we've been in. And out of hospital since she was 6 months old. She's 6 now and she's been out for 9 months now and we went back a couple of weeks ago for the 1st time and I was an emotional mess I understand fully how you feel.

  • @user-sd5op8qf6r
    @user-sd5op8qf6r Месяц назад +1

    I love you guys bunches & bunches If only there were more parents around like you & Katie❤xx

  • @christinadejuliis5465
    @christinadejuliis5465 Месяц назад +1

    Another great video
    You and Kate are amazing parents and Teddy is an absolute legend. He makes me after a long day of work.

  • @wendlit
    @wendlit Месяц назад +2

    Wonderful video❤
    Idea for children’s picture book:
    Little boy, called Teddy goes on a hunt for a slide…
    Is this a slide? No, it’s a …
    Lift the flap to reveal climbing frame.
    Oh no! Keep going!
    End of book, finally, there’s a lovely shiny slide!
    What do you think? 😃

  • @lindad1195
    @lindad1195 Месяц назад +1

    You are a fantastic dad!! God bless Teddy and you all!

  • @susanmartin5334
    @susanmartin5334 Месяц назад

    Teddy you are such a brave boy.... and I like your cheeky laughter 😊❤❤

  • @lauraregan8439
    @lauraregan8439 Месяц назад +1

    You are such fantastic parents and Teddy is such a beautiful and brave young man!

  • @mareemcgahan6431
    @mareemcgahan6431 Месяц назад +1

    Teddy bridge…
    Warms my heart
    Makes me smile
    Makes me laugh
    Amazes me, with his bravery
    Thank you for taking us with you on your outing/ adventures.
    Watching him play hide and seek with his baby on his own … so funny. Take care all until I see you in the next video😊

  • @repunzalrepunzal6063
    @repunzalrepunzal6063 Месяц назад +1

    Teddy playing hide and seek with his baby was so cute!!! 🥰

  • @sonyaskogstad3849
    @sonyaskogstad3849 Месяц назад +1

    Thank you Scott for getting Teddy his favourite treat that kinder egg as poor Teddy has gone through so much and if ever a treat was deserved it’s Teddy that deserves one.
    Thank you for being the best most caring parents ever as you both are exceptional. 🥰

  • @eunicevanschalkwyk4259
    @eunicevanschalkwyk4259 Месяц назад +2

    I know it's not easy to see your child hurting but thank God for medical support which we know without that the outcome would have been different and that's why I will still keep praying for my precious little boy Love from South Africa

  • @mariebarrett8774
    @mariebarrett8774 Месяц назад +1

    Teddy you AMAZING/ BEAUTIFUL/BRAVE boy....you are a rockstar ( my heart broke for you with all the cannula problems) Big strong cleaver boy....❤❤
    Lots of love and a continuous flow of healing reiki energy flowing as always to Teddy 💜✨🕯💜✨🕯💜✨🕯

  • @theresamclaughlin8655
    @theresamclaughlin8655 Месяц назад

    Awe wee soul at the start but great to see him find his bloody slide there I said it for you😂

  • @TraciStanick-eb1wn
    @TraciStanick-eb1wn Месяц назад

    Way to go again Teddy B 🎉🎉🎉🎉 AMAZING 🤩

  • @lyndaward5179
    @lyndaward5179 Месяц назад

    Teddy his your king and deserve that beautiful big chair, all the way round looking for the slide he was looking and trying to make is own slide he as such a wide imagination. Teddy holds your heart in his two hands is very true he also holds a lot of howers strong brave and in teddy’s word amazing just like his mommy and daddy lots of love and huggles from Lynda ❤❤❤and a big pat for willow

  • @audsk9953
    @audsk9953 Месяц назад +1

    I really felt it for Ted having them amount of attempts with the canula....he certainly was so brave bless him...awful to watch from parents point of view aswell...Ted just gets up and carry on all happy...you really crack me up Scott,the bits of music and comedy you add is just brilliant and your little trip looked lovely..and again so funny in parts....I love your videos there's a bit of everything in them great part of my week watching....as usual roll on the next video sending love and big hugs and an extra special big one for superhero teddy ❤...

  • @michellevincent8338
    @michellevincent8338 Месяц назад

    Teddy you and your mommy and daddy are so strong a warrior team ! We all love you and are praying for you dear little man …hang tough and God bless!

  • @sandraserafini4351
    @sandraserafini4351 Месяц назад +1

    Poor teddy having five canulations 😢, but what a brave boy . He melts my heart ❤.

  • @georginaallison9250
    @georginaallison9250 Месяц назад

    Hi Willow! Just saw you for a second 😂 this procedure that Teddy went through are really painful, 😢 he wont fully understand why this is happening, good that dad takes his “medicine” at the same time, youve come along way little man, mum and dad, i hope you are relaxing a bit now, “little Braveheart Teddy”, so so happy your enjoying life Teddy ❤❤❤ xxx

  • @suzheiber8682
    @suzheiber8682 Месяц назад +5

    what an emotional roller coaster, but you are so right when you say teddy is such a brave and resilient little boy. god bless his sweet heart. seeing him run thru that field of grass was just so cute. little boy blue, you've won my heart, too. hugs to all. 💙🧸🐶 # momof5boys

  • @sallyflory6009
    @sallyflory6009 Месяц назад +4

    Im 52 and im not easy to cannulate its so painful and i have blood transfusions every 6 months 😢 teddy you cry and scream buddy you brave boy 💙 ❤️

  • @onek726
    @onek726 Месяц назад +1

    He’s super adorable teddy

  • @abbimoore288
    @abbimoore288 Месяц назад +1

    I am not sure if you guys ever thought of getting a port placed, this would allow you guys to get it accessed for the transfusions and blood tests.. It would not be a hinderence to him doing kid things!! Love watch you all and I hope this finds you doing well

  • @PippiDiPoppi
    @PippiDiPoppi Месяц назад +1

    I can't choose a right word for this gorgeous Little man and I want to say all Angel, Warrior, Hero,Great Fighter a Supeman
    You are everything SWEATHEART❤❤️❤️❤️⭐

  • @emilyleigh2784
    @emilyleigh2784 Месяц назад +1

    The world loves u Teddy ❤❤❤❤❤❤.

  • @amandamiller7926
    @amandamiller7926 Месяц назад +1

    He was making his own slide!

  • @marypreston9998
    @marypreston9998 Месяц назад

    You are so brave super teddy ❤🎉

  • @catharinasimms4588
    @catharinasimms4588 Месяц назад +1

    Goodmorning Teddy 🧸 ❤xxx

  • @jennifercollins3171
    @jennifercollins3171 Месяц назад +1

    Yall find the coolest parks to take him. Wish we had places like that and the castle yards with all the farm life is beautiful. I'm so glad that hospital visit is over with. It sure seems to be helping him continue great health. Much luv teddy from Florida 🇺🇸

  • @sandralazarus7338
    @sandralazarus7338 Месяц назад

    Love you all. God bless. Hugs to Willow.

  • @repunzalrepunzal6063
    @repunzalrepunzal6063 Месяц назад +1

    I get IVIG infusions over three days every month for Myasthenia Gravis. I have a great nurse who gets my IV every time but unfortunately it “blows” quite often. So he has to try sometimes up to seven times. My veins just don’t hold up like they used to. It’s painful but not a lot I can do. Thank goodness I’m an adult. I’m sorry that Teddy and you both have to go through that.

  • @maryellenblount6376
    @maryellenblount6376 Месяц назад

    I'm heartbroken over the five tries at his cannula fitting. That's ridiculous and looks like someone else should have come in and attempted but what do I know. Seeing Teddy enjoying the fresh air and just being happy is all that matters. Great video and so glad he found the slide!! Prayers continue from the USA 💙🙏🏼

  • @cherylm4867
    @cherylm4867 Месяц назад

    Oh my gosh!!! That is the best game of hide and seek I have ever seen! God bless you brave boy!!! You are the best ❤

  • @lindafero4720
    @lindafero4720 Месяц назад +1

    Little Mr. Independent. He's going places! ❤❤

  • @TraciStanick-eb1wn
    @TraciStanick-eb1wn Месяц назад

    Awesome video 😊

  • @shereem3291
    @shereem3291 Месяц назад +1

    A great video indeed😊

  • @t.ellevision
    @t.ellevision Месяц назад

    Oh Teddy so so sorry buddy. It stinks having to be poked so many times. You're so brave little man you got this sweetie ❤❤❤

  • @candacenewman298
    @candacenewman298 Месяц назад +1

    Teddy has been threw so much and he is so brave my heart goes out to sweet Teddy and you guys

  • @barbarafawcett9926
    @barbarafawcett9926 Месяц назад

    Teddy knew there was a slide somewhere😂. Determined little cub😍😍

  • @ivanovotna7336
    @ivanovotna7336 Месяц назад +1

    Moc vam preju,aby jste takovou lasku k Teddymu prozivali po cely zivot moc vam to preju. Vy jste uzasny otec,skanim se ❤❤❤❤❤

  • @nancybladsacker5357
    @nancybladsacker5357 Месяц назад

    Brave Teddy we love you and your parents. From McHenry MS GOD BLESS

  • @christinalobato3766
    @christinalobato3766 Месяц назад

    Dear family.
    Another wonderful video.
    It is lovely to see you both .
    And Teddy is still growing and growing.
    Wonderful.
    Love from Spain❤❤❤❤❤❤❤❤❤❤❤❤❤❤❤

  • @karendyba5213
    @karendyba5213 Месяц назад

    Loved this video glad teddys results were ok . What a lovely place to take teddy so safe and lots for him to explore . So glad he found a slide I was getting worried he wouldn’t find one lol xxx

  • @gail9906
    @gail9906 Месяц назад

    Teddy you are SO BRAVE 🧸 Im all choked up for you Teddy, I wish you didnt have to go through anything more, you are AMAZING. Hide and seek was so cute, I love how Teddy whacks you when he finds you. ❤️🧸❤️❤️🐕❤️❤️🇦🇺🦘

  • @candacenewman298
    @candacenewman298 Месяц назад

    Sweet teddy has gotten so much better at taking his medicine and seeing him play hide and seek and having a adorable smile on him so proud of you sweet teddy

  • @MiriamKing-ou2mp
    @MiriamKing-ou2mp Месяц назад

    So fun to watch teddy explore 😄 and we learnt the hard way last night that going down a slide we need to take our little guys Crocs off , his one foot got stuck on the slide because it slide very well and he twisted his foot backwards, so today he's limping 😢
    So best to just have socks on from now on
    Love you Teddy dear ❤

  • @cathyvitale3670
    @cathyvitale3670 Месяц назад

    Oh my heart breaking for him and the lines I agree with the other comment, in the US they bring someone in with more experience and talent(it is a talent to get the lines in!) But Teddy is so brave and I love love that nothing would do but a slide! Hugs to you all!

  • @mariebarrett8774
    @mariebarrett8774 Месяц назад

    Best game of hide & seek ever ...😂😂😂😂crazy fun...

  • @janinetilyard9280
    @janinetilyard9280 Месяц назад

    Teddy you are a amazing brave little man bless you and your family 💙

  • @momo43momo66
    @momo43momo66 Месяц назад

    Good morning Teddy my favorite and most awesome pumpkin 👆🥰🤗

  • @pearl2910
    @pearl2910 Месяц назад

    Definitely after 2 tries with a Cannula that’s it time for someone who has the expertise ! Children and Babies are so resilient ! Awesome Parents you give Teddy each day a Beautiful life 💗 I often think do some kids only associate a Treat and attention after pain sometimes maybe lack of time more Siblings lack of money ? 😔 you’re the Most Amazing Parents ! Well done Teddy you’re a little Warrior 😘💗💗💗💗

  • @QuintonHarrison
    @QuintonHarrison Месяц назад

    Teddy such a strong boy....keep it up teddy....Thank you for the video

  • @hannahday586
    @hannahday586 Месяц назад

    Teddy is so brave. Can they not use numbing cream for the cannula?

  • @gilliangoodman6362
    @gilliangoodman6362 Месяц назад

    Teddy is a trooper and he looks so well ❤❤❤❤

  • @donnathomson4048
    @donnathomson4048 Месяц назад

    Prayers for Teddy. You are beautiful little one 💗

  • @texasproud8822
    @texasproud8822 Месяц назад

    Your videos are so creative and entertaining.

  • @charlenesterken2604
    @charlenesterken2604 Месяц назад

    what another great adventure

  • @anaferguson5135
    @anaferguson5135 Месяц назад

    You two are so adorable!

  • @Superleelee
    @Superleelee Месяц назад

    What an amazing wee man.

  • @davepounds8924
    @davepounds8924 Месяц назад

    I was so glad Teddy found his slide and you probably would’ve taken him to one if he hadn’t It would have been sad if he didn’t get to slide!!!

  • @Babs-ud1dt
    @Babs-ud1dt Месяц назад

    He is too cute!!!! Hide and seek w his baby!!!!!

  • @kyliestark7356
    @kyliestark7356 Месяц назад

    What about SCIG the subcutaneous one . I know it’s expensive but eventually family can give at home. Surely bad vein access makes you eligible . You need to do something special after the IVIG something just you and him do like an icecream somewhere special maybe xxx

  • @lisatracy2914
    @lisatracy2914 Месяц назад

    I felt so bad how many times they tried the Cannula. I have one vein that cooperates. It’s very frustrating. He is such a brave boy💙

  • @sandrawungluck9959
    @sandrawungluck9959 Месяц назад

    Luv the slide

  • @amysaltsgaver3008
    @amysaltsgaver3008 Месяц назад

    I would suggest a ultrasound to find a good vein I had a stint in heart 5 years ago and after the 2nd or 3rd time they used an ultrasound just from experience much love and prayers as always

  • @rhondawhatley1591
    @rhondawhatley1591 Месяц назад

    I'm so sorry teddy. A nurse but I want work with kids because I would cry myself amd wouldn't be able to get it.

  • @sandrawungluck9959
    @sandrawungluck9959 Месяц назад

    Teddy you are awesome

  • @jo-anne8462
    @jo-anne8462 Месяц назад

    For the first time I need to call you out. Keep in mind that I am a cancer survivor, and I know all about cannulas and their difficulty. Do you honestly think that the nurses enjoy making a child cry? You make it sound like everything they do, they like. They don't. They have a job to do to save your son. Do you get that, they want to save your son. They want to get it out as soon as they can and get both you and Teddy on your way. They don't need to come here to have you making fun of the voices that they are using to calm Teddy. They don't need you mocking them. What they need is your patience, and they need a thank you. The nurses are doing everything that they can. They have a very difficult job, and I, for one, thank them for saving Teddy. I love this channel, and I love seeing how well Teddy is doing, but one has crossed the line. You have disappointed me.

  • @suzheiber8682
    @suzheiber8682 Месяц назад

    Thanks!

  • @klynch7912
    @klynch7912 Месяц назад +1

    I do Ivig monthly for 15.5 years now and have to change drug because became allergic recently. I am not supposed to have a port but it would take me 2 plus hours and over 8 tries for the iv at times. As an adult it’s horrible can5 manage as a kid.

    • @RuchamaGrace
      @RuchamaGrace Месяц назад

      On the patient fb groups I do read that people have a port for ivig. Do you have a port now? I had one ivig treatment and had the worst headache of my life. Now I am doing weekly scig. Still gives some headache and fatigue but a whole lot less. And another great thing is that I can just do it at home by myself at a moment on the day that fits me best.

    • @klynch7912
      @klynch7912 Месяц назад

      At several PI conferences I have attended the doctors always say shouldn’t have ports as very high risk of infection in this population. I am very careful and don’t tend to get all the nasty bugs associated with PI lucky. Tried scig in past and it didn’t help my neurological dx but did the immune issues. Also had skin reactions that made me not want to do my next dosage.

    • @RuchamaGrace
      @RuchamaGrace Месяц назад

      @@klynch7912 It is an infection risk, that is true. Would the risk still be higher after so many years of immunoglobulin? I also have reaction to the scig (also skin) but when I take clemastin before the infusion I don't have any. I do take zaditen and cimetedin as well to keep the mastcells/histamin calm. Does ivig help with your neurological symptoms?

  • @Xianthe_Zan-thee
    @Xianthe_Zan-thee Месяц назад

    Does Teddy have ARFID? There are different types: avoidant, aversion, restrictive, ARFID +, and adult. Just wondering if the trauma and association with food may have contributed.

  • @bettygann
    @bettygann Месяц назад

    Teddy such a cutie