COVID-19 long haulers: Why are they still sick?
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- Опубликовано: 10 дек 2021
- Almost two years into the pandemic, there are a growing number of people who were sick and are not getting better. They are known as COVID-19 long haulers, people living with unexplained symptoms including pain, exhaustion and debilitating brain fog.
As Robin Gill found out for The New Reality, experts are trying to unravel the mystery of why people are still sick and who appears to be at more risk.
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Feb 2020 long hauler here. Coming up on three years of this horrific illness. I used to be incredibly healthy and happy and active, now I'm barely a shell of my former self. Here's to all the others suffering from invisible illness like this. You are not alone. I hope and pray we will all find adequate treatment.
hm seems to be when most of us got it Feb 2020. I am goin as long too! ridiculous. My worst of the worst was the first year. Thought I was going to die. Now later I got lung problem. Whatever. Sick of this shat. I mean Glad I made it through the first year. but now all I can do is force myself to exercise because it gets the blood flowing.
@@ForeverDisciple3 ugh it's truly horrible. I hope more research gets done for this, people can't ignore it forever.
Same here as well and 60 pounds lighter but not in a healthy way
I’m the same here. Got this thing at Jan 2021 and I’m still so fatigued and weak all time, I even lost a job because of that
I had it for 4 months, vitamin B1 megadosing (thiamine) completely cured me in less than a week. Healthy, forties, athletic - I could barely get out of bed. By the end of the week I was playing soccer in the park with my kids. The solution was in a ten dollar bottle of vitamins in my medicine cabinet.
I’m on month 5 suffering from Long Covid. It is a debilitating disease! Everyday is a different symptom. It is scary not knowing what’s next and what my future holds. Whoever is suffering please don’t give up. If your doctor says it’s all in your head, change your doctor!
What are they treating you with?
You should go outside Canada for treatment- Iverm3ctin cures over 80% of these “long vid” symptoms
For me it's been a year and a half. The worst years of my life and the thoughts of never being normal again terrify me.
Thank you for sharing. Is there a study group that you can join? Has the doctor given a reason for the long covid?
@@jacked6 I’m right there with you, I struggle with this every day
I wonder what a HIV test would show?
Almost a year for me. It ended my 39 year nursing career. I'm now disabled using a cane. Severe neuropathy which I didn't have before. My oxygen still drops in the 80's with much exertion so I still need oxygen at times. My thought process is much slower. Severe pain at times. Severe rib cage pain. Strong smell of smoke all of the time. My vision is terrible. I'm a puzzle piece of the person I was before. Still, my spirits are high ! I'm alive and thankful.
So sorry..this is crazy...I hope u have support
So sorry you are suffering.
I’m sorry I know it’s horrible what dr.f has done to us and ever who else is backing it
So sorry love.
Just a suggestion. ❤ The book "The Body Keeps Score" along with yoga designed for trauma victims pulled me through a bad diagnosis years ago. There was a couple in my class who could only participate from a chair and they said they still got a lot out of it. I did it through a counseling center, but I'm sure they have online classes now. ❤
@Spanna Banna that would explain it and u are probably correct
I have been dealing with Long Covid about 12 months. Brain Fog, Exercise Intolerance, General Fatigue. I can't seem to get the energy to work out because my heart and lungs just don't function like normal. It is so depressing my mental health is suffering as well. A terrible reality, but I see that many others have it much worse. I also see that many others who have received the vaccine have experienced exacerbated illness.
I have cleaned up my diet substantially, started breathing exercises, taken up more reading, and made many lifestyle changes. In my research I have found that is important for individuals like myself to KEEP MOVING and KEEP UP COGNITION. Do not succumb to the exhaustion. Keep doing what you can, and aim for small improvements while always listening to and respecting your body. Much love and wellness to us all.
Organicell developed Zofin and cured a 2 month long hauler robert skelly from pittsburg. News report is a bit hard to find. Im a 16 month long hauler. I've been trying to tell people.
@@auggie1790 Thank you Auggie! I appreciate this.
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
@@gardenmenuuu I experienced the same. It lasted about 3 or 4 months for me. My eye exam was normal. Im very confident its two separate things, but both from covid. The eye thing went away on its own. Still have decreased brain fog, improved by 25 mg fluvoxamine.
@@auggie1790 what did the zonfin do? LDN is helping me
The worst part for me is, everyone around me don’t understand and some think I’m just making things up to get pity from people. Now I just keep things to myself. Even my doctor can’t help, there is no medicine or anything for me except eat vitamins and eat healthy.. Hopefully everyone will heal from all this craziness
I can relate...no one understands...they say oh, pitty party.
I understand your struggle. I'm still fighting my Dr to even get the diagnose of long covid. I pray you find even a little relief but hopefully total relief. hugs
my husband doesn't believe me--even after my hair fell out.
it's sickening. they should be able to yell the difference between a hypochondrac and someine being sincere
@@aprilcorley9028 yea , it’s hard, I hope you get it approved. Feel better soon
I am 24 years old. I had mild symptoms when I first got Covid. I tested negative few weeks ago but still experiencing chest pains, heart palpitations and dizziness. Recently I found out I have ischemia which was shattering because I am so young. I also went to multiple doctors and they told me I have anxiety. It was the hardest time of my life because no one believed me not even the doctors.
I felt unheard by doctors to. Anything from past history they try to tie in, but it is not the same experience at all. Stand up for yourself and hang in.
I got anxiety still recovering long term covid it's been 1 month now
Hi i got covid in April 20 after that I have slightly pain in my left side chest which pains when I touch that portion, after that I took vac on Oct and it was my worst decision a week after I have paipitation shortness of breath and left shoulder and had pain which is still going on , i have lot of shortness of breath , I did echo and ECG but it was normal please of anyone going through this give input please reply
Drs are gaslighting us. They have been for years. Downplaying our symptoms. I’m so sorry.
@Kanwal Bibi what all test you did
I had a friend that was in the ICU and they were getting ready to put hin on a ventilator and a friend snuck him in ivermectin and the next day he was out of the ICU and walked out of the hospital 6 days later. They were in total awe, and acting like a miracle happened, (he was scared to tell the Drs he took it). The dr.'s refused to give him ivermectin so he got it on his own because he really has nothing to lose at that point and it saved his life. I know this isnt about long hauler covid but I thought it still might help someone!!!!
A Zpack and ivermectin works extremely well and Paxlovid is very good too. Paxlovid however doesn’t work well with other prescriptions so your doctor and pharmacist have to work on your medications but it worked well it just took some time.
The medical industry know that it works. The government also know. Go figure.
@@mellando9770 right!!!!
This is me literally me! I’m so glad to watch this knowing I’m not alone and that I’m not crazy! I use a walker as well because long distance walking and standing for a long time is VERY hard for me to do. I also suffer from mild hearing loss, hair still falling out, headaches, EXTREME back pain, stomach issues that they still have not been able to diagnose, and extreme sweating. It all sucks but again, I’m so glad I’m not alone…. i had Covid back in December of 2020. I was BLESSED to get an infusion at that time that saved my life!
Monoclonal antibodies are basically a vaccine and the idea of doctors at their best. I'm glad you're better!!!
Did you get the shots before the Covid infection?
@@lauratohome the shots weren’t even invented yet
How are you now ? Any improvement?
But you vaccinated bet my bottom dollar
I experienced something very similar to the sixty-year-old gentleman who plays hockey. I became sick in March of 2020 and also had covid toes. Although it took me over a year to get to a good place with my breathing in general, I found that when I went back to sports around that time I struggled still with shortness of breath and a very high heart rate. I kept at it thinking that it might be due to deconditioning after a year of limited exercise and much of that time being very sedentary due to weakness and breathing issues. Sure enough, I have steadily improved the point where I'm now back to myself a year and three quarters after the initial virus. I very much hope that these people are able to find Health again.
Agree. By the time I got my smell and taste back, I was running a half-marathon through the foothills, trying to keep my feet from turning brown-purple at night. Covid eventually tapped out. A year passed before the gyms reopened, so built my own bench, got free weights and stayed metabolically high, to build up appetite and sleep. Now 20 months later it's winter again, losing muscle mass, appetite and sleep. Last weekend went for a 10 mile, and realized my lungs are BETTER now than ever before. Breathing so easy now. I don't puff, even running highschool stadium stairs up, and down again, and I'm in my 70s. Resting heart beat only 56. Like that old saying from back in the 80's, 'You either get busy living, or you'll get busy dying.' You know what motivated me not to call 9-11? ERs were killing 45% of patients in intubation, and the 55% of 'recoveries' were invalids, stick figures who couldn't sit up or hold a glass of water, schlepped off to hospice without physical therapy. Think about that. *CDC didn't keep ANY statistics on 'recoveries.'* Out of the ER, and out of mind, to die alone in hospice.
@@robertmarmaduke9721 I don't wanna be that guy but your lung will never return to 100% no matter what, once our grape shaped organ alveolus gets inflamed even after it heals it will became permanently deformed and lose alot of surface area
@@SuperJosteen Except that I'm athletically active, and have been over 20 years. I know what my cardio and aerobics is doing and has done in the past. I'm here to tell you, in my mid-70s, after a severe case of Alpha Covid lasting 5 weeks, that knocked me out, resting heart beat 119, and breaths in gulps like a dog panting, now 18 months later, I ran a 4 mile hill trail without puffing, then confirmed that by running the high school stadium steps, until I got bored and quit.
So your gloom-doom theory remains Dogma, and my proof becomes an anecdote, like Galileo. The Dogma of Terror of The New Pharma Catholic, and their Cult of the Clean of Jab Jesus. Sad. Infantilizing adulthood. The Covid bogeyman in the closet.
BOOGA BOOGA BOOGA!!💉💉💉
How many shots did you take?
@@robertmarmaduke9721 you are absolutely correct..Are you married?
Absolutely appalling what's happening in this world all these monsters need to be held accountable for crimes against humanity. 😢😡💰😡
Viruses have no conscience of any crime. Nature by itself created leprosy, polio, smallpox, syphilis, and many more diseases you haven't even heard about.
Now, ask yourself why leprosy, polio, smallpox, syphilis aren't a daily occurrence everywhere anymore. Could you discern difteria from a cold?
I highly recommend you the Crash Course RUclips channel, specifically the History of Science course. And check every name that is mentioned in it. Good luck.
I was a 35 year old athlete with no pre existing health conditions, and now I can only go for walks and I'm too exhausted to do anything else. I felt like I was hungover every day for 2 months. I couldn't focus or remember things, it's improving, but I'm still a long way from the man I was... this virus is hell. It's been 5 months, but I'm determined to not give up
@Parts Unknown I am now, but wasn't at the time.. I wish I had been
@Parts Unknown after my experience with covid. ... yes I do. The vaccine didn't effect me much, but covid has wrecked me
@Parts Unknown Some unfortunately do have a bad reaction to the vaccine. Covid is also wrecking people permanently. It's just a matter of risk assessment. There are higher risk of complications with covid. I have had both and for me personally, I know I would much prefer to be vaccinated, than remain unwell for 6 months
How are you now?
@@clairchetwood9777 back to normal! Feeling great 👍🏻
Fibromyalgia and ME/CFS are very similar. We could have more answers for long-covid if we had studied these other conditions. Sadly, these patients were dismissed, told it was in their heads, told it was depression or get over-medicated in order to shut them up. I hope that we will FINALLY have a decent budget for post-viral illnesses and be able to help not only the long-haulers but many people whose lives were ruined by fibro and/or CFS/ME.
It is not a new disease, just another virus that cause ME/CFS!
@@bell4textu973 another (new) virus is a new disease. ME/CFS has symptoms and it's given as the name of a disease for now, but I suspect it's the response to a few auto-immune disorders that we have not discovered yet. I hope that research on COVID-19 will get us started. COVID-19 isn't new in non-human animals. It is new in humans.
Covid makes Lyme look like the Fairy Godmother. Just sayin. I know 2 people who committed suicide due to Covid long haul symptoms (one had Parkinson's!) and the other had severe liver damage.
@@LeTrashPanda So sorry to hear that!
Please let people know there's treatment for long haulers:
Check "FLCCC Protocol for Long Covid"
My thoughts exactly
I feel for her because I’m going through it too. Same exact symptoms. Only working part time and it’s greatly impacted my life
I’ve been suffering with chronic fatigue since 10 years and the worst part no one believes me. Maybe if enough researchers start looking into long covid then maybe I can find a solution for my own problem. I think researchers should also look into what chronic fatigue researchers have recently found out. I think from what I’ve learned there’s a failure in producing ATP on a cellular level.
@@hdd1977m7 I believe you I have had cfs for 28 years it’s cruel
I am glad that I am not alone in my long covid journey. I had every side effect i can imagine, and it changes every couple days or weeks. It literally started with migraines, and has went throughout my body. After heaches, had a horrible head cold, then muslce aches in my neck down to my back, and now in my right leg. I currently can barely walk, because the pain is so horrific. I have been to the emergency room and doctors office multiple times in the past 2 months. I first tested positive March 9, and then negaitve a week later, but am still healing. Just when i think the new pain is over, something else pops up. It is really debilitating physically and mentally. Especially trying to work and keep my job with mulitple absenses. But I still find a way to stay positive every day. I dont wish this disease on anyone.
Yes,my migraines have even gotten worse and all I want to do is sleep on top of every other health issue.
Vaccinated????
@@beavisjones1831 no I wasn’t and am reaping the consequences plus going into my moms nursing home in which they put a covid positive patient in with her not Ats how it happened.
@Beavis Jones I wonder the same about a lot of these people.
Try sauna.
Long haul COVID is exactly what the ME/CFS and lyme community have been dealing with. Definitely causes auto immune and chronic symptoms affecting every bodily system.
I STILL have chronic Covid pain several months post acute onset.
The multi body system baffles doctors here in UK, they refuse to look at this as a whole instead I’ve had doctors tackle one symptom which then comes back normal in lab results. More whole system thinking needs to be approached.
Exactly , Billions worldwide have been sufferring with cfs/ ME . With zero help From traditional Medicine!!!
Long Covid is cfs/ ME. Nearly all cfs/ ME is triggerred by a virus. In this case Covid. Often Epstien Barr virus. Lyme . No big pharma companies are interested in research. As its such a mutisystem malfunction in the body. Pharma can't make one pill to solve this debilitating life changing illness. Affects every system in the body. Nervous system and brain. ...ME is a nurogical disorder as is Cfs. Autoimmune. Malfunction of the immune system. Triggerred usually by a virus...
You will not find any answers to Long Covid guys. Unless you find yourself a cfs/ ME coach who has fully recovered.
Or a Functional Medicine practictioner. Alternative medicine.
Dont wait for a cure as its not going to happen. As all us with cfs/ ME know.
Take your health into your own hands. You can learn so much from the cfs/ ME community. And recover....
I recommend my coach Faith Canter.
Who fully recovered. Amazing knowledge. Helped many recover.
So many unknowns with this disease! The stress is incredible. It seems we should have much more of a handle on this by now.
Planned biological attack. Research it.
@@Gator777 thanks
@@Gator777 Nope, Chinese Incompetence.
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
@@gardenmenuuuyes eyes have deteriorated since 2020. I’ve been left to deal with the myriad of symptoms so it’s hard to know really what is caused by what now.
I had something nasty in 2019, first doctor said it was strep, antibiotics made me worse, the next doctor said it's mono, it went on for months. Had to quit my job while I recovered because company wouldn't let me work from home or take sick days. Health went up and down - I tried again, I told my symptoms (long list) to a doctor and she took a look at my throat and she said "you got thrush from the antibiotics!" (candidiasis) she prescribed me antifungal treatment and I felt 110% better, it was an amazing difference. If you took antibiotics as part of your treatment (it's sometimes to prevent bacterial pneumonia), weak immune system + antibiotics can make you extra susceptible to fungal overgrowth. This is just anecdotal, I don't want to give medical advice, but it's something worth asking your doctor about.
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
You are a genius and scholar ,,,, and 100 % correct 👏 👍
I mentioned in an email to all Canadian Health Ministers back in March 2020 that this was possible as this happened to some who were infected with SARS back in 2003. Not a single minister replied!!!
Our entire household got COVID at the end of 2020. My wife ended up in the hospital for 5 days. She went through months of different therapies as it affected her memory, speech and coordination. One would think that she had suffered a stroke.
One of the biggest problems around the world is that countries release COVID numbers as number of cases, recoveries and deaths. The public sees all the recovered numbers and believe that it's not that bad. All those recovered numbers indicate is recovered from infection. Not recovered from the "Effects" of the infection.
If people knew the likelyhood of suffering debilitating effects from COVID, perhaps they would take it more seriously.
@Nashtark 111 There were no antvirals offered back in 2020 as they were known to be ineffective against COVID. Thus we see a couple of new antivirals being approved recently.
When my wife was in hospital they were doing on again/ off again steroid therapy as they weren't too sure if it would help, based on what was learned from treating SARS. She was also given blood thinners to help prevent blood clots.
Our entire family has been vaccinated, with our youngest just getting her first dose a couple of weeks ago. We do not want to go through that nightmare again.
Not recovered from the effects of invasive intubation and 30 days of chemical coma, leaving us stringbean invalids. That CDC does ZERO followup was the tip-off for me. This is a Global Pharma-Healthcare Swindle. We are their unpaid lab rats. "GETTING A BOOSTER DOSE IS THE SINGLE MOST IMPORTANT THING YOU CAN DO." Uhhh, no it's not, LOL. Wankers!
I was EXTREMELY cautious not to catch this virus and yet here I am. I did well for two years but Omicron eventually got me. Mild infection, except my immune system decided to go havoc, and now I go to sleep at night praying I will never wake up again.
@Brian Johnston
Brain fog, memory loss, extreme fatigue and depression.
@Brian Johnston sorry to hear that
This is so depressing. I got covid in September of 2021 and still feel terrible. Some days are better than others and I'm so grateful for those few good days. I'm just beginning to watch this and I hope their are remedies in this video.
I am 23 months post covid and I still experience the ups and downs. Every time I feel better it is always a little bit better than when The bad days started. There is hope. Just do what you can and stop when you are done. I really try to just do what can be accomplished with what energy I have so there is always a sense of completion. Some days I am unable to do what I may have been able to do before. Be kind to yourself. Some times it is just about managing symptoms you are experiencing and that is the best you can do. Each time I feel better I think is this the beginning of full recovery and then bam I am down again, each up still being a little better and that much closer to getting better. Before this I was super fit and a constant doer. I am a different person now for sure. Hang in and reach out when you are up to it. Hope I have not overwhelmed or discouraged you, there is hope for recovery just be patient and kind to yourself.
@@lois4329 This is so encouraging ♥️
Where do you live? Anyone with long Covid should seriously take a vacation on a country or island near the equator, bask in the sun by the beach or go in the water and just stay there for long hours, eat all the seafood, veggies and meat from local sources, watch your body heal itself.
@JinJin We're not too far apart. I'm October 2021. Assuming we both had Delta. How are you now?
@@clairchetwood9777 still terrible.
My 45 year old daughter had Covid in January. She’s not overweight, she did 15,000 steps a day and lots of stairs at a school where she’s a LIFT teacher going from classroom to classroom assisting teachers with students snd classroom modeling as well as subbing when required along with teaching some elementary classes.
When she got Covid she said she felt like a small child was sitting on her chest. She was in contact with her doctor who prescribed puffers and told her if she hadn’t had 3 vaccines he would have hospitalized her.
She’s still can’t do stairs and has to take the elevator at school- she can’t walk fast. She can’t blow out candles. She gets out of breath very quickly and she’s very fatigued even after a nights sleep. She’s having to undergo lung and kidney function tests, ecg, blood work and a an appointment with a hemotologist which she can’t get into for a year.
My husbands great niece has just developed Type 1 diabetes at 11 years old. The doctor at the childrens hospital told her parents there’s been an increase of 4 times the number of children getting Type 1 diabetes since Covid.
If one more person tells me Covid is just a flu I might just punch them in the nose…
If one more person tells me I
vaxx reaction
I am sorry your daughter is going through this I am going through the cough light headed upper body muscles aches no appetite not sleeping well I am going to keep on Trusting in the Lord that All I can do 🙏
World Tennis No1 Novak Djokovic and Wim Hof Cold Therapy and Breathing exercises video might be worth a look at.
See their video from May 2020.
‘Novak Djokovic and Wim Hof discuss Cold Therapy and Breathing Exercises’
Probably some have already mentioned this, but this so closely resembles fibromyalgia symptoms. After having been sick with some sort of virus in 1994, I was finally diagnosed with fibromyalgia by a specialist in 1997, after 2 years with my own family doctor telling me it was all in my head and pushing all kinds of antidepressants on me (none of which worked, and just caused nasty side effects. I'm female, so what else could it be but depression :[ Grrr).
After 20+ years with it now, maybe they'll actually be able to get to the bottom of this and find out how to successfully treat Fibromyalgia, chronic fatigue, and long COVID. I suspect they are all related.
Thanks so much for doing this piece.
@@cyndijohnson5473 - Agreed, and thank you for commenting. Even though I was finally "diagnosed" as having Fibromyalgia by a rheumatologist, I feel it is a catch-all. Getting it labeled as a "disease" was supposed to help researchers get funding money or something to help treat it, but still, really nothing new to go on. You're sent from one "specialist" to another (which fills their slate), and all that happens is you waste your time and money and THEN get depressed. Some people are put on painkillers, some on antidepressants, and some on both :/ (I do understand that depression can manifest as physical pain, and some antidepressants can help alleviate that type of pain; however, doctors and people in general need to get that depression doesn't usually cause a healthy, active person to suddenly manifest these symptoms, but it sure can cause depression if not taken seriously. It seems to me that, if a patient is female and they're sometimes brought to tears in a doctor's office, then the goto is that they must be suffering from depression - put them on antidepressants and all will be well with the world again). Disappointment after disappointment just makes you want to throw in the towel sometimes, until you work up the courage to try again.
Stuff that messes with your immune system tends to be very hard on relationships, and if you don't look like death warmed up all the time, it's hard for people to relate. Friends disappear because you have to cancel out on them too often and/or you just can't do stuff with them like you used to.
Anyway, after a while, hope will grow again, but I'm finding that each time it does I'm less willing to jump through as many hoops as the time before.
Yep! Me too. I also think that Long Covid, CFS and Fibro are either the same thing, or closely related / different iterations of the same disesase category. For the first time in a long time we have a chance of some real research into this. Especially since doctors are some of the ones getting long covid and they can't deny it anymore.
Chronic fatigue for 28 years now since Covid-19 I am so fatigued I can’t do anything at all with out puffing and panting
I totally get where you're coming from. Yes, so often you are past to yet another "specialist" and your hope stirs again, thinking that just maybe this one will be able to help. Then, your hopes are dashed to pieces yet again. This rollercoaster of hope careening down to disappointment over and over again, can cause one to swear off doctors altogether. You take a break from having your high hopes broken to pieces, until you're strong enough to give something another try. Hang in there. I really think the long COVID research will discover something that may give us some relief.
I have a very strong Bible hope that, one day soon, "No resident will say: 'I am sick'" (Isa. 33:24), and "The righteous will possess the earth, and they will live forever upon it". (Isa. 37:29), and "At that time the eyes of the blind will be opened, and the ears of the deaf will be unstopped. At the time the lame will leap like the deer, and the tongue of the speechless will shout with joy." (Isa. 35:5, 6). These scriptures are what help me to not totally sink into despair😊, but I know this condition is life sucking. Maybe this positive view of the future (which, of course, would no longer be governed by any of the corrupt, self-serving governments of today😒) will be of comfort to you too. I do hope so. It's a beautiful hope to have, and seeing so many Bible prophecies coming true right before our own eyes today, can give us confidence that the other prophecies that follow will also be fulfilled.
I write this to you only with the hope that you will find comfort in these scriptures as I have. Take care.
Sandy
They ARE all related. See my post on this sight from today. The illness is called mast cell activation syndrome (MCAS). I posted references to get more info and find a doc who can help.
I am so confused . What the hell do these people have in common ? Some say you only get really sick if you're too fat but I've seen young healthy fit people die . This whole thing is insane .
What do you consider young? Among the 2100 deaths in Australia only 50 were under 50.
@First Last I agree 💯
@First Last the severe neurological decline and other hard to measure long lasting after effects... how do you filter out the normal baseline levels of these naturally manifesting in the population? how do you know it's long covid.
@@dimitar297 in the US, the higher number of deaths covered a wider range of ages.
Well covid doesn’t kill as many young fit people but if you survive which many young people do the long term symptoms are very common just because this virus is very detrimental to the body
3 years long hauler here, and I’m so emotional watching this. Mostly because it focuses on more than just anosmia/Parosmia/Phantosmia/Dysgeusia. It’s more than that, I’ve had to completely relearn how to manage my body and social relationships. I developed an incurable illness during long haul that has no other explanation. I’ve accepted this by now, but I just wish everyone else would truly recognize the true horror of what we’re dealing with. Covid is serious, but even the ludicrous amount of deaths weren’t enough to convince the world.
I was diagnosed with Covid in January….it’s now March and my symptoms are worse today than they were when I was diagnosed. I have severe headache, dizziness, feeling like I’m losing my mind at times. I need relief.
I had it for 2 years. I'm not 100 but it gets better.
Call upon the name of the Lord..Jesus. Oh my gosh..How we need Him..He is our Ark for today. Turn your life to Him & trust Him.
Pray n put your trust in Jesus, only he can save you, we are living in the end times.
Research feverfew
Feverfew is a herbal tea should help you. Please look it up. Im not a doctor, that tea helps migraines
I had it in November 2020 and just couldn’t seem to get over it completely. Then in April 2021 I took the vaccine. First shot was no big deal. Second shot made me as sick as the initial disease and now, mid December 2021, I’m still suffering tons of symptoms. I already battled Multiple Sclerosis and now my doctor says that there’s no real way to separate the MS and COVID-19 symptoms. An MRI might show something but nobody knows. I’m gonna insist on those MRIs, with contrast and without. Any new lesions should tell me something!
Should have never got that jab.... Dangerous experimental stuff.
Thank you for sharing this. I'm going to say a prayer 🙏🏽 that your health will improve regardless of doctors not having answers 💕
RUclips deletes / censors the truth. Try another video platform for answers. It's worse than you think.
Covid isn't the problem. The jabs are. Why are people being murdered for exposing the truth...
@First Last this is true. The neurologists just stare at me blank when I tell them my symptoms. I've been finding my own "cures" and ways of improving my health. Doctors are useless right now.
I have been going through this.. I had Covid19 in the beginning..started recover,then got vaccinated, then the symptoms got worse..I have been sick ever since.. my quality of life is worse then before. I already had chronic illnesses that I had to deal with. Now this is horrible...
Thanks for sharing....I hope you feel better soon..
glad for people who are sharign their experiences, otherwise no doc etc is even acknowledging the reason for the persons who are damaged and these mandates are another big story though
So sorry Christine. Seek out a support group. So hard to deal with these issues alone. Hang in there.
I wouldnt take another one
Sorry to hear that Christine. Please stay strong. I can completely understand what you are going through as I am going through the same condition ie Long covid. Please stay strong. You can have role models to motivate you or keep you going who also had some chronic illness. For me it's Freidrich Neitzche. Hope something comes out to cure people like us.
For me it is these symptoms.
Fatigue
Fast heart rate a.m.
Breathing difficulties
Brain fog
Occasional headache
Muscle spasms
Will it ever end?
Praying for everybody.
Praying for specialists to find some answers.
I have had long-haulers since having Covid in May of 2022. While I am slowly improving, it has impacted me significantly. I am fatigued constantly, I have an electrical buzz in my head that will not go away, so bad I sometimes can't hear people speaking to me. I have forgotten so many things that I have known my whole life, only post Covid, have I forgotten them. I am forgetful, and work demands so much more than it ever did. When I first got it, I couldn't even remember my own name when I tried to introduce myself, I would speak and it was like someone shut the switch off on me and I could not speak. It is so scary. I wish everyone the best and hopefully everyone can find a road to recovery.
how do you feel right now? any improvements? any better?
I was shocked at my mental state when I had covid, I hadn’t heard of that as a symptom. It was awful. Luckily it went when I recovered. How terrible to have these symptoms ongoing for months and years. I Hope something can be done to help these poor people.
Am I the only one feeling like this look like chronic fatigue symptoms and effect ?
I followed the following program I put together, as an occupational therapist:
- Vagus nerve stimulation
- breathing techniques
- relaxation therapy
- neurodevelopmental therapy
- 70 - 99% cocoa dark chocolate
- vitamin D
- red grapes
- board games: sudoku, solitaire, chess, dominoes, crosswords.
- cetirizine
"low level persistant ongoing infection"
Yep, thats what it feels like. Feels like I have the flu 90% of the time. And the more I try and do? The worse it stirs things up.
Hows that for living life?
Been a long hauler since June of 2020. Didn't need to be hospitalized but suffer from almost no taste or smell and brain fog that refuses to go away. It's life changing and I don't know if and when it will get better. I guess I count as someone who has 'recovered' from the virus though to some. It's been the worst years ever.
16 month LH here. Organicell cured 2 month LH Robert Skelly with Zofin. I think they are supressing it over big pharma. I try to tell people, but im just one person. I want to be cured too.
Wow me sine March 2020, hang on/in.
question: Were you vaccinated before this?
I'm so sorry you are experiencing this. ❤️
@@stephanierobinson3887 No, not vaccinated. Not eligible for it either due to ongoing heart inflammation due to covid. Beware of vaccine induced heart inflammation.
@@stephanierobinson3887 I got vaccinated after and my symptoms did improve every so slightly but I am not even close to 100%. Smelling chocolate smells like raw sewage still.
This was my life after 2yr glandular fever. I was told repeatedly it was just yuppy flu. I lost my teens and since lost 2 careers. I hope this time round pvf gets real funding
Yes, we need the funding. These post-viral syndromes are life-altering and the funding for research is lacking. You are not alone. ❤
It took a long time to figure it out- what was wrong with me- last year I got Epstein Barr, don’t know how but I think it was from previous covid infection- took about 3 months to lose the sore throat but the tiredness and sore throat come back periodically. Good luck to you, I hope you are doing some better.
See IncellDx Dr Bruce Patterson he has likely found it.
His treatement works on long covid, CFS and even Lyme.
There is hope and treatment:
"FLCCC Protocol for Long Covid"
@@yc3425 Yup waiting on it to come to the UK
I am a long term covid patient ..
I got it on January I still have symptoms and we are almost at the beginning of April and I still don't feel well the brain fogs I can't Drive ,burning things forgetting things the stomach pain is awful is just too much to a point I couldn't work anymore!
The daily struggles is awful as women's we should get some help from the government as covid patients we need help .
I got it in February I’m terrible still brain fog is so bad
how do you feel right now? any improvements? any better?
I am doing better now.
Thanks for asking 🙂
However 🤔
I still have issues whit taste and brain fog is less but I still have them.
The Dr. Said to be patient
One year ago January 1st
I tested positive..
Here I am
Thank God 😊
Hello all Cov19 Long Hauler Survivors, I'm one & its so hard to do all different task. Im praying so hard for us all. Im a long hauler since February '2022, im praying for us all, love you all, i live in South Carolina, USA.❤❤❤❤❤❤❤
29 months after catching covid and I don’t think I’m getting any better. I’m so drained to do anything my life is hard to enjoy. I can’t even think right with the brain fog
At least a subgroup of them have probably developed ME/CFS. Post-viral illnesses have been known for decades and yet neglected and ignored. In a severe form, it's completely life ending. Anyone can develop that, Hopefully more much needed biomedical research will be done, quickly.
So is Post viral illness where you body is just in a constant, heightened fight mode after coming into contact with a virus??
Soo my life is over now at 19?
You guys don’t help when you say life ending jm 19 years old dude have a whole life ahead of me but can’t even use my brain or focus and have bad brain fog due to the vax
@@crazycarlitropro2450 I'm sorry to hear that and i hope you recover. However hiding the truth is not helpful either. We have to face the harsh reality and push for more biomedical research on those complex conditions. Ignoring a problem or wishful thinking are not gonna make it go away unfortunately.
@@crazycarlitropro2450 your life is not over at 19, your life has just begun
Many long covid patients are joining CFS/M.E Facebook support groups .M.E is very similar .
Many of us have been living with it for decades .
If there was more funding for research we might get treatments for both .
Right now low dose naltrexone is helping a few people
Dear friends! My husband and I almost lost our lives Aug’21. We are still both on blood pressure pills, have trouble sleeping, brain fog… I think MASSIVE TRAUMA has a lot to do with these symptoms….🌿
What kind of trauma did you both suffer?
how do you feel right now? any improvements? any better?
I can confirm that long covid is almost debilitating. I can’t focus and I feel ill and aches all day throughout the day. It’s absolutely affecting my work and every day life.
I exercised 5 days a week and was in really good shape. Now I can barely work out and the aches make standing and getting up from sitting or sleeping a challenge. I’m desperate to find treatment for this.
I agree and concur. I had the covid alpha and delta. That was a piece of cake compared to the long covid problems. I can't focus and i am pretty much debilitated. They are only just studying the long covid and don't know much yet.
I'm having a hard time just to walk my dog and do some dishes..
I followed the advice of the doctors....do exercise.
It just made me so much more lame!
what are your inflammation markers? i highly suspect your body is really inflamed still from the infection
try chinese traditional herbal medicine in chinatown
Same exact thing for me. 37 and was healthy strong beforehand. It's a mess.
@@reenamola2162 hello u there
Sadly it’s been almost two years now. As a 64 yr old man I feel like I’m 90. Shortness of breath, cognitive issues, fatigue beyond belief. I’ve been diagnosed with fibromyalgia before Covid. It’s taken those symptoms times 4. Never had depression, now I fight every day. There just seems to no end. 😢
Very much like my story but developed extreme panic disorder related to neurological symptoms, my whole spine is affected, brain fog, pressure in my head, ears, and between shoulders blades and muscle spasms. B12 was low, sodium, had constipation then the horrible diarrhea. Heart issues have subsided but tight chest and breathing issues haven't gone away. Some days I feel like I'm going to die and my body is shutting down. And chronic fatigue: I improve and then relapse. Don't sleep well either. Feels like it will never get better.
😢
Try sauna.
Lord heal these folks and bless their lives!
These anti vaxxers will kw blame it on a mental problem and not the virus. That's. Because they are anti science.
This was the scariest thing I had to witness among one of my colleagues prior to the vaccines becoming available for COVID-19. I knew right then and there, that I better never come down with this scary @$$ virus 😳
This is terrifying!! I haven't caught any strain of covid yet but i know its a matter of time. Ive had asthma all my life, and even the common cold makes me sick for months... so im worried. Im so sorry for each and everyone of you that are going through this, and for everyone who has lost a loved one. This is so heartbreaking! I pray you all heal! 🙏❤
Amen, don't think you will have covid, don't let fear win your mind.
Get your booster and wear a mask 🤷
Check "Prevention and Early Treatment Protocols for COVID-19 - FLCCC"
I'm 58 and also have asthma. I was very healthy and working 12 hour shifts as a nurse. It hit me like a bag of rocks. My husband and grandson had mild symptoms. Stay healthy !
We are using vicks early defence nasal spray. Gargling with listerine. So far so good.
I have people in my life in this situation. Hard being the person who watches someone you care about suffer, can’t do anything to fix it.
😇💖
Tell them to look up Dr. Beate Müller in Mülheim, Germany and her theory of microclots in Long COVID patients. She uses an ordinary Aspheresis machine you can find in any hospital to treat her patients with astounding results
@Brian Johnston cure?
@@robbieanderson227 the 💉 from hell. C'mon man. Don't act like you don't know.
@@rebelfighter5249 it wasn’t for me thanks, the human body is a self healing organism though.. but you gotta let it do its magic. :-)
9 months here it’s HELLL brain fog is insane
that is terrible. Go get yourself a few bottles of horse paste, zinc, Quercetin, D3, and C. take it for 2 weeks with a ribeye(horsepaste is used to flush parasite out of stomach, you will need it to stay in your stomach with fatty food) .
I can so relate to these stories I have same issues 15 months after recovery and when people say it’s all in ur head and u r having anxiety issues. It hurts
I have started with my regular pre COVID work and home routine.. there are days of severe struggle and fatigue.. which I need to fight on a regular basis🙁
World Tennis No1 Novak Djokovic and Wim Hof Cold Therapy and Breathing exercises video might be worth a look at.
See their video from May 2020.
‘Novak Djokovic and Wim Hof discuss Cold Therapy and Breathing Exercises’
@@rjames3981 thanks will have a look
I’m sorry. It’s actually good to hear there’s people out there with same situation as me. At least so I know it’s not something else that gets suggested to me all the time. 12 months now.
I feel the same way...I got covid in 2020....then got in again in 2021. It's going on 2 years of not being able to breath normally. I get out of breath while talking. It's so scary. I'm praying for everyone who's going through this
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
@@gardenmenuuu it's both for me. Hard to focus and see for 2 years now.
@@kristadaniels3467 are you better now? I’m 7 months in and have same symptoms (dyspnea while talking) I wonder if I’ll improve???
I think the dr. is right. It very much sounds like an autoimmune disorder and it makes sense.
Sounds like SLE Lupus
Sounds like mental health
I have had all of my antibody levels checked and they came back negative which is strange, as I was sure I had an autoimmune disease post covid. My liver enzymes are through the roof as is my IgE (Immunoglobulin). Something isn't right, they just aren't sure what it is
Please eat plant based
Arrived home Seattle from Honolulu December 29th 2022 just now able to get out of bed and shower no one believed me not even my insurance company! I have super high blood pressure every other day now brain fog fatigue body ache abdominal pain some days I wake up and I feel super hung over in the evenings I feel like I’m reliving menopause the diarrhea and vomiting have stopped joint pain my eyesight has changed. Skin has a pens and Needles sensation off and runs on and I also have a red rash that off and on heats up and itches my heart races I had to hire a therapist because it’s traumatizing for me hardest part is no sympathy whatsoever I finally found a doctor that put me on medical leave I’m just really exhausted and need answers.
Gotta figure out a way to get rid of that spike protein needs to be out of your blood
Father in Heaven, please heal her in Jesus Name. Amen!!!
If God is omniscient and omnipresent why didn't he do something about this Chinese virus?
@@ric8167 its just like cancer,its gods way of cleaning the earth for over population
@@ZZ-topp God is a sadistic prick then. Gotcha.
@@ric8167 god is great, believe me he could of taken me several times,but he let me live for another day
I said lord Jesus there's a fire 🔥
My sister has long haulers and was just diagnosed with Fibromyalgia…I’ve had fibromyalgia for 15 years so genetic medical links…
Take long deep breaths. Which each breath know that you are healing yourself. The power of your mind and heart is going to heal you ❤ Don't give up you will get better.
Fatigue and chronic headaches are very real. And on top of all this, after I got my second dose of the vaccine, my menstrual cycle went haywire. My body is a mess.
Please eat plant based
I'm only 19 and almost I had menopause. Haven't gotten my cycle in months 🤷🏾♀️😅
@@jamberry1135 my daughter eats plant based but had the menstrual disruptions after the vaccine.
Many viruses or bacterial infections.. cause chronic fatigue (M.E) ..lasting months years even.. which can cause Memory problems ..lung issues, aches, pain, exhaustion ..and that outside looking in feeling..
I've had M.E since I was twenty after a massive tooth infection...I'm now 57.
I have had fibromyalgia since I was 45 and I am now 75. The worst effect overall was how a person with a debilitating illness that really does not show on the outside is the fact that your friends and even most family leave you behind. 💔 😔 They just don't have time to wait I guess and lose patience when you don't get better. So, after a while you either get used to being alone or you pretend to be fine.....
@@Hummmminify ❤️❤️❤️❤️❤️❤️❤️❤️
Outside looking in???
It's true and sad! Currently going through this. Im thankful to be alive but depressed and crying when I'm feeling all these long covid effects. Praying for all going through this!
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
@@gardenmenuuu blurred vision I haven't had that. I do have brain fog at times that I got from having covid. Hope you recover fast.
Stop trolling, you are paid off for this nonsense
@@cobblehillsfighter No one is trolling, you delusional child. You literally have no clue what you’re saying. Along Covid is very real, and it has impacted millions of people in this country
World Tennis No1 Novak Djokovic and Wim Hof Cold Therapy and Breathing exercises video might be worth a look at.
See their video from May 2020.
‘Novak Djokovic and Wim Hof discuss Cold Therapy and Breathing Exercises’
I've lived this with a virus in 2011. 10 years later I can function at 75%. I have accepted I will never be 100% again and am thankful for where I am now.
I have been dealing with this for last 27 months… living alone … fighting every day… POTS is the hardest part
My brain fog and other long-haul symptoms have improved with a low histamine keto diet. I have been diagnosed with MCAS (Mast Cell Activation Syndrome) and histamine intolerance which is an auto-immune disorder. MCAS is grossly under diagnosed and usually goes untreated. Obviously not sure of the correlation but it has become obvious that cheating on my diet has an adverse effect on my symptoms.
I think Covid produced a lot of inflammation and if you can get anti inflammatories or change your diet to, cut out bread and beer and stuff then it can help a lot.
how do you feel right now? any improvements? any better?
Why is no one talking about the front line staff in the MAIN MEDIA that walked into the fire of covid and are being finished on capabilities as they became ill with covid some died some suffer long covid and are now unable to work due to ill health. NHS mangers/government stance to these staff "They the NHS staff could have got virus anywhere". We were in lock down traveling to work in our own cars treating wards of covid infected patients many of us getting food delivered home. These staff like me are being let down and their families. The NHS has treated its own hero's badly clap clap!
I got over the illness, but had extreme fatigue for three weeks after. I started eating three cloves of garlic raw each day, and after four days, started producing a weird smelling mucous, every morning, for around two weeks. I felt much better each day, and am back to normal now.
Might be worth a try for someone in a similar situation.
@@Flea-Flicker no, I used it for its scientifically proven antioxidant and anti viral properties!
@@Flea-Flicker no, they are trying to bury that science for seventy five years.
@@Flea-Flicker very sorry to hear that, but without being trying to be mean, it has no absolutely no relevance to our conversation. I am talking about dealing with the lasting symptoms people can have after the illness, whether they are taking part in the clinical trials or not.
@@Flea-Flicker well I hope you and her have a great Christmas. Look after each other and Stay safe!
Me too!!!!
I still suffer from covid 16 months later.
I am a long term hauler approx 1 year and half , it wasnt really until after the first year
did i start to see improvements . I still have a ways to go it is a challenge but dont give
up keep fighting at a comfortable pace there is hope .
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
how do you feel right now? any improvements? any better?
@@sozinho_9894 Yes definite improvement a little short of breath if i walk a long distance but i do have a history with asthma. I did get the covid rash long after the virus was over. It is a long haul just keep fighting it .
@@gardenmenuuu apologize i did not see this . Yes my vision was slightly blurred especially trying to read .
This long COVID is very similar to what I have had for 30 years...Fibromyalgia. I found out that one thing that helps me is compression...a corset around my waist. I bought something called a waist trainer posture correction. Helps my stamina. It allows me to carry on with more strength. It was a cheap fix $48.00 from Amazon. I have just about worn one out in 6 months so I bought 3 more....
Yeah. I have Long Covid and have fibromyalgia symptoms too.
@@Magnocalabro You feel like you fell off a cliff or something....it's nasty....if it persists much longer try compression and Lionsmane Mushroom powder and 100% organic cocoa powder in black coffee. Should give you a little get up and go as well as help the brain fog. The compression will help you keep blood in your upper body. When you have fibromyalgia and long covid your blood seems to want to go to your lower body and this causes weakness. This is something I saw on RUclips from a neurologist in England trying to help people with long covid. That is where I found out about it. I wish I had known about it 30 years ago. Anyway, I know now. It is a challenging condition. All my best to you ❤ at this trying time.
@@Hummmminify I have very stiff and heavy legs and low back pain, too. And really don't know what to do. Thanks for the nice tips though. And I am so sorry to hear about your fibromyalgia.
Thank you Sharon you are such a sweet person. 🙂
how do you feel right now? any improvements? any better?
Symptoms are very similar to long term benzo use. Severe pain that seems to move to different areas, brain fog, anxiety, loss of joy, dizziness, insomnia, severe muscle spams.The healing starts with gut and brain healing.
I am 5 months post covid and i am still exhausted, my knees still aches, i never been through this before, i hope we all heal from this nightmare,,,
How are u now?
@@shaft657 I am much better now, my knee are the only thing that hasn't fully recovered, it still aches..
@@darkcadence938 hope your knees are next to recover, great to hear u are getting somehow better. Stay strong
I was diagnosed with chronic fatigue disorder. Before covid days. I live exactly like these 1st 2 women.
Fatigue uff da yes. If I work 3 hours it wipes me out and I sleep for 12 hours, do almost nothing the next day or two just to feel okie. And anyone else wobble now? Standing there just fine, then wobble out of nowhere. If I catch myself, sometimes i get a rebound wobble.
How are you doing now? Me going through the same symptoms. Fatigue.... Plz reply. I'm scared
@@fahimzia8023 i still get worn out a lot faster than I used to. Sinuses aren't quite right. A lot more migraines. And sometimes I just lose my balance for a second. But better than I was so the right direction
@@fahimzia8023 i would say im not scared, but it definitely is a thing to deal with now. There's nothing wrong with being scared, im not saying that... just saying its getting better slowly and I am not. That make sense?
@@ardellolnes5663 can we talk ? Like this thing is killing me fatigue..... Maybe your insta / anything.....
No one understands what we go through......
I contracted COVID in November 18 2020, two weeks after in December 2 2020 my whole body was fill with ezema like skin problems . With bubble blisters that so much itchy that I scratch my skin untill it bleeds. From then on I took a lot of prenisone to stop the problem. It is now more than a year of this skin condition. But reasonly for about a month I took turmeric and zinc every day which I can see it really helps my skin inflammation and my immune system. But im wondering if anyone had the similar problem like me.
Yes I have a rash on top of my hand and in between my fingers it’s raw from scratching so much. I also have it on my hips and lower back.
Yes! I have had eczema type rashes and very itchy. I have scars on my body from them, it's awful and I'm seeing a dermatologist.
A year on & I have 55% lung function. I was 105kgs & 1.98m before Covid. Coming from hospital after 2 months, I was 78kgs. I'm now back up to 110kgs & for some odd reason 1.96m tall. I get out of breath easily, have heart palpations, lost strength in my legs, have sight issues, especially peripheral vision, have issues with my feet and struggle sometimes with words. Can't work & getting no assistance from UIF. But, I'm alive & there are people in worse positions than myself
My symptoms are exactly like yours, and moreover, I have pain in the thigh and leg, swelling in the ankle, swelling under the knee in the left leg only, and hair loss. Do you have swelling in your leg? Do you have small red veins?
I was diagnosed with COVID mar 2021 and hospitalized since then I have all the ups and down fatigue brain fog joint pain and loss of breath memory loss blurred vision . since then I have lost over 20+ friends to COVID I'm thankful every day I'm still alive. Long Hauler is a term I have learned to deal with . my prayer that no one should go through this.
This definitely seems like it has an autoimmune component which explains why women are vastly more affected then men I'm curious if a treatment plan similar to lupus would lead to improvment?
Basically, they science is too complex to give us any answers yet. It’s quite dismal. I really feel for these people. I have been suffering from chronic pain for well and over 25 years and have learned to live this, over time. However, to be struck with this so suddenly is devastating!
I had a severe case of Covid Jan 4th 2021 which lead double pneumonia. I can’t even count all the health issues because there’s so many . As I thought I was going to get better I got Covid AGAIN in September 2021 with double pneumonia. Never had to be admitted to the hospital. I didn’t leave my house other than work. I can’t remember anything and lose words often not to mention the pain and wondering how I’m going to get out of bed. I broke down to my Dr and said “WE DONT LET ANIMALS SUFFER LIKE THIS, WE PUT THEM DOWN”! I know how sad that sounds but it’s how I feel ! Hopeless is the feeling !
If hopelessness at the door....try raw garlic everyday, you got nothing more to lose. ...give it a shot.
Used to walk 5-10km without resting but after getting Covid last January 2021, walking 1 km already gives me shortness of breath and need to rest. 😫
I was wondering what would break first - your spirit…or your body.
Wow I am 21 months post covid and am a long hauler too. It is like a rotation of symptoms that will not go away. Still struggle with lack of smell and taste. Everything takes so long to accomplish. Some days I can barely move and then I am able to be very active with no repercussions. I feel like I am getting better and then its like my body says not any more. The first vaccine shot I felt really good for a few days only, after the second one it was like when I was first sick and was totally unable to do anything, that was early July and I am just getting back to having some good days. The people interviewed sound like me. When I could barely walk some days, I was told I was no longer fit, If that is the case why am I able to walk easily on other days? After pretty much every conceivable test, that come back normal……what is next. I have been unable to work since March 2020. I was very fit at the onset.
Look up Dr. Beate Müller in Mülheim, Germany and her theory of microclots in Long COVID patients. She uses an ordinary Aspheresis machine you can find in any hospital to treat her patients with astounding results.
@@ReviewBoard-uy5nv hi I am having trouble finding her work, but I did read about it on a uk site. Thank you I will bring it up to the team working with me. Hope your day is going well.
You sound the same as me,,,, just awful,,,, wish you all the best 🌹
@@auntia7687 thanks same to you 🙏♥️🌈
Please tell you feel better now??? Or improved?? I’m 9 months of hell
I haven't improved, gotten worse since December. See doctor again soon but don't feel it will ever get better because it affected my entire spine and neck and isn't going away. You treat it on your own. It's hell. I miss how I used to be.
There is some complication or multiple ones that haven’t been fully identified. I hope these folks heal quickly.
Im no doctor however I believe many viruses have long term impacts and many not researched perhaps due to not being so prominently widespread and imperative for study. Mono for example has been studied and the long term effects specifically its relation to developing MS. .
One report I found indicted there is some association wth bar epstein virus that produced mono lingering in the body and hen complicated with the covid virus.
Its only random until u figure out why.
And your immune system only attacks you for no reason, until you figure out why.
Long hauling since September 2021. It’s horrific. I can say I am improved significantly but every day is a reminder of symptoms circulating pings of headaches mild aches sleepiness mild anxiety. It used to be extreme fatigue myalgia brain zaps chills aches insominia tachycardia high Bp phobia development auditory and lift sensitivity all day every day for a solid 6 months things have wound down a lot over past two months.
It is the worst thing I have ever experienced by far. Shattering in every way to the psyche and body. God bless every one afflicted. May he grant you strength to endure until recovery.
How are u
@@priyanshu-se9bx Much better but still simmering with several issues, sporadic headaches, mild fatigue, and minor nerve irritation restlessness. It ebbs and flows. Almost 1 year anniversary. However I spend my time now consulting with people online for ideas to aid in their recovery but for some their wont be any recovery which is horrifying. I may never be the same as well but I am at the "good enough" stage.
This is so very scary. I am only in week 2 of covid. I have had a mixture of symptoms including, headaches, rapid heartbeat, short of breath and muscle soreness and spasms. I feel for these people, and I hope to God I do not become a long hauler. I sympathize with these people.
You should get magnesium oil for those muscle spasms
My story, 35 years old. I had dizziness for 2-3 months. Weakness and tingling in the left leg and vision problems. Extreme insomnia that still lasts as well as episodes of moderate anxiety. I did an MRI/MRA. Everything is ok about the brain. There is hope for all of us.
I’m experiencing the same it’s been 2 months how are you doing now?
@@alexandralowder4680 much better after aprox. 6 months, but not old me. Keep it up.
I’ve had this too, like a nerve in my leg,
Strange, pain in arms too, do you have this?
I’ve had pain around my body, like stabbing pain that lasts for a few seconds. And numbness, at times. I’ve read from paper long Covid affects our bodies neurologically as well. Not just headaches but also pain wise. Also have stabbing chest pains now and then.
I'm also experiencing the same... How r u now...
I have this and can't walk (stiff and heavy legs, very debilitating vertigo, fibromyalgia etc).
Look up Dr. Beate Müller in Mülheim, Germany and her theory of microclots in Long COVID patients. She uses an ordinary Aspheresis machine you can find in any hospital to treat her patients with astounding results
exactly like you. I have heavy legs and the vertigo is really crazy. I have a hard time walking straight. Looks like I’m drunk
18 months now for me. I had it October 2020 and spent 67 days in hospital and rehab 3 weeks in icu. Lost so much muscle tone I could not stand so had to learn to stand and walk again. Still on oxygen. Have to use a walker if I'm out because my oxygen still drops and heart rate shoots up. I rarely leave the house. Can no longer drive. Brain fog. Have severe sleep apnea, tired all the time. Have open wounds on my stomach that won't heal. No diabetes. Still no answers. Pretty much being dismissed. Heart doctor told me to learn to live with it. This has stolen my quality of life. It has made already existing health issues worse fibro, thyroid. All I can do is pray they find some answers if not for me but for those in the future.
I’m grateful my long haul isn’t as bad and some of these other people have! I’m exhausted fatigued migraines brain fog! I can relate prayers sent!
Hello I know how you feel. I’m still going through it but I found vitamin D3 has helped me taking it everyday has helped me.
And Vitamin C (food sources) is what helped me through the fatigue .
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
I had it September 2021. Never been the same. Not the energy I used to have. Occasional heart palpitations. Lost a lot of my hair. Numb feet,but that seems not as intense. The worst is the taste and smell. Every day for hours sometimes, I will smell dirty ashtray. I only know one smoker and am not around him enough to smell his dirty ashtrays. Food I used to enjoy is just kinda meh. No one I know understands this. The fatigue is the absolute worst.
I understand you. I got sick at the same time. Delta variant.
If your brave enough to get that vaccine, you should be brave enough to take some horse paste. Horse paste with some ribeye for 2 weeks should clear it up. I would do it for every meal. You can thank me later.
@@ex8280
I refused all the jabs,but thanks for your input.
@@Jenny-kg7zb Sorry thought you got the jab, GL with your recovery.
Me too! Xx
I think you're right..very scary
Thank God a doctor admits he doesn't know, instead of telling people it's all in your head, or anxiety
Hello I’m a long hauler too. Vitamin D3 helped me
I get Vitamin 12 and vitamin d and vitamin B complex injections every so many months. I pay for them privately. It has helped me.
do you get blurred vision too?i am confused whether mine is brain fog or eye problem,i feel no fog when i close my eyes
Can you explain more
@@billybrownnaoussi5599 do you feel blurred vision too?i feel no fog when eyes are closed,,
@@gardenmenuuu Not really, Just fatigue, body ache , lack of energy and all long haul symptoms 😢
Over a year with some random chest tightness and feel shortness of breath . Oxygen levels are fine but I feel shortness of breath with little movement and while work . Nasal passages are always blocked worse than before
Me too!! March 2020. You probably have fatigue with this, as well. My oxygen sats are good.
Please eat plant based
@@jamberry1135 how do I start and what do you recommend
@Hi X are you better now? Still short of breath?
@@vanjacalantropo I’ll be honest yes 😬 I still get like this here and there going to a pulmonologist in august I was supposed to go but it’s always been rescheduled and the waiting list is so long . I also caught Covid again 2 weeks ago but it wasn’t as bad as the first time
I’m out there. Still suffering exhaustion since December 2019
Last September I was a sixty-five year old who honestly didn't feel much different than I did at forty-five. I led a very physically active life. Was fully vaccinated. Caught Covid at a concert. Had a fever for three days. After the fever broke I thought I was getting better, but I was wrong. For the last year I've suffered from numerous symptoms: severe fatigue, brain fog, racing heart, deep depression, intense anxiety, and what seems like advanced arthritis in my hips and lower back. Some of the symptoms have shown signs of improvement in the last six months: I'm less fatigued, and my hips and lower back feel less arthritic. I still have brain fog, but it is less of a general problem now, and is largely confined to short term memory. My depression and anxiety sort of wax and wane, with good days and bad days intermixed. And, as far as my heart goes, the constant, intense racing feeling that was a daily occurrence for about six months, has totally stopped. For all of my fellow Long-Haulers, I have the deepest empathy. Hopefully we will all emerge from this terrible affliction soon.
Long hauler is fibromyalgia symptoms.
Wow I did not know that since I haven’t had fibromyalgia that makes me feel so sad for all the people with it it’s been so hard
@@thomasvickery4197 they need to connect the dots. Viral/bacterial infection and other traumas initially trigger fibromyalgia. I suffered 4 years before knowing what I was experiencing. When I hear or see this people, I see me. Tumeric helps me. Not knowing what I was having was the hardest time for me. It waxed and wanes but it never goes away.
I am new on my job and I can cope and learn the process easily but after 2 weeks of working under probation, I was tested positive for covid 19. At first, it was only a fever but it really makes me weak. I can't breath and I suffer backpain. Whenever I do exercise, 8 mins feels like I'm dying because I am losing my breath. I had been quarantined for almost a month. After tested negative, I went back to work and its not the same anymore. I can't recall anything that I have learned and when I start learning it again, I am already suffering for short memory loss. I am easily distracted. Not just cognitive but my backpain troubles me alot when working. I am losing breath when using stairs. I thought that its only me. I open this to my team leader but she always reminding me to move on but she didn't know that I can't because I am still experiencing the symptoms. It really affects my performance. I already asked them if they can lessen the accounts that I am handling but they didn't listen. Instead, they're just reminding me to make a solution to my problem. Because of that, the company clinic asked me to go to a psychologist. Its really difficult that you can't solve this. And it is really hard if you're invalidating by others. It feels like I am the only who is suffering. I already doubted myself if I am already useless On my 5th my appraisal, I was terminated because I didn't met their requirements to be regular. Its really hard on my side. I don't know how can I explain my situation on my interview. But, I feel better now than before. I've been doing alot of cognitive games just to recover. And hoping, to be hired once again. I am having a hard time disclosing this in my interview because I think its too personal and I still feel emotional because I can't get any treatment aside from the support of my boyfriend and my family.
Did you have Omicron? Where you vaccinated? Did you go to the hospital?
how do you feel right now? any improvements? any better?
@@JayTsay its before omicron. I'm not vaccinated at that time because vaccinations is by on schedule. I am just waiting for my schedule before I got sick
@@sozinho_9894 I have improve. I am currently working almost a year in a new company. Imy cognitive skills is better than before since it is almost 2 years. The backpain that I got is from mild scoliosis and I will be going on a treatment. My life right now is good
@@aubreynicolegascon5354 glad to hear that. Time working for us!
I am 10 months out and now having heart issues and I developed a tremor. Memory is up and down. Some days are better than others, but I try to do one job a day no matter how big or small it is. Today I harvested beans and tomatoes but couldn’t do any more than that. I forced myself to walk my dogs and that was it for the day. I have 5 autoimmune diseases and am really interested to see if this will be one more. Hang in there everyone❤️
No mention is made as to whether or not these people have received the vaccine. It would be important to clarify if the vaccine may have had some impact on their situation.
Also vitamin D levels
EXACTLY! I am wondering if people are blaming their symptoms on the COVID they got before the shots and now blame vaccine side effects on COVID. I don't know how many of these people got the shot despite their natural immunity. Utter insanity.
The younger doctor did mention vaccines. In the event that you suffer a breakthrough infection despite vaccination, you are 50% less likely to suffer long term issues.
The other thing they mentioned is how people report improvement with long COVID when they get the vaccine afterwards. I have heard this from U.S. doctors as well.