Hi Hannah, thank you so much for this video. It perfectly describes my experience with Intestinal Failure (in my case, due to severe Crohn's disease and the resulting Short Bowel Syndrome). I've really struggled lately with the fact that lockdown has made it hard to stay out of the "existential doom" part of the repeating emotional cycle that comes with needing drastic bowel surgery every few years. I was feeling disappointed in myself about the fact it IS a cycle; that I don't have the upward trajectory we see in movies: diagnosis > gloom > recovery > plateau. Well, your video has helped a lot by reminding me that other people get this too. The more books, videos, blogs etc. by people like us who've actually lived with this, hopefully the better we CAN live with it.
You're so good at putting your thoughts into words, I feel like from each of your videos I can take a lesson home. Please continue what you do, I like taking part in what you share every time! I wish you all the best!
This is such a poorly understood ting. Thank you for putting words to it ❤ cyclical grief is as much a part of our different chronic or terminal illnesses as the physical aspekt.
excellently put. you are a beautiful soul. stay strong. hugs
Thank you for putting this into words so beautifully
Thank you so much for this video. It is so valuable
Glad it was helpful!
Hi Hannah, thank you so much for this video. It perfectly describes my experience with Intestinal Failure (in my case, due to severe Crohn's disease and the resulting Short Bowel Syndrome). I've really struggled lately with the fact that lockdown has made it hard to stay out of the "existential doom" part of the repeating emotional cycle that comes with needing drastic bowel surgery every few years. I was feeling disappointed in myself about the fact it IS a cycle; that I don't have the upward trajectory we see in movies: diagnosis > gloom > recovery > plateau. Well, your video has helped a lot by reminding me that other people get this too. The more books, videos, blogs etc. by people like us who've actually lived with this, hopefully the better we CAN live with it.
thank you for this ive been going though the stages of grief due to gastroparesis
You're so good at putting your thoughts into words, I feel like from each of your videos I can take a lesson home. Please continue what you do, I like taking part in what you share every time! I wish you all the best!
Wow, thank you!
Thank you for this video. I felt humbled by the experience of listening to it.
Thank you for this lovely comment! :)
You're such a wonderful writer and speaker, it was really quite beautiful to listen to ❤️. It's so important to recognise and normalise grieving 💕
thank you so much
I've not commented before but this was very touching and thought provoking. Thank you for sharing Hannah
Thank you so much! x
This is truly touching and quite beautiful. Thank you for sharing the link to your article too
I'm a big supporter of Dignity in Dying and the right of choice over ones life and death
Thank you so much!
This was really beautiful, thank you
Thank you so much for watching 💜
This is such a poorly understood ting. Thank you for putting words to it ❤ cyclical grief is as much a part of our different chronic or terminal illnesses as the physical aspekt.
It's a huge component which needs normalising! Thank you for your kind words :)