Thank you for putting this together and making it available for others to see. There are many longterm survivors living with full, partial, mosaic and other variations of trisomy within the SOFT Community of families. Trisomy.org. There is also a focused Trisomy 13 ~ Patau Syndrome Group at LivingwithTrisomy13.org
What an excellent lecture presenting a more balanced view of children born with T13 & T18. Every relevant health professional should listen and take on board the information presented here.
Thank you for putting this together and making it available for others to see. There are many longterm survivors living with full, partial, mosaic and other variations of trisomy within the SOFT Community of families. Trisomy.org.
There is also a focused Trisomy 13 ~ Patau Syndrome Group at LivingwithTrisomy13.org
So helpful, thank you for such good informative speech
What an excellent lecture presenting a more balanced view of children born with T13 & T18. Every relevant health professional should listen and take on board the information presented here.
Bravo Dr. McCaffrey! Thank you!