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Perinatal Conference
Ирландия
Добавлен 30 окт 2015
Perinatal Conference 2016
Complex prenatal diagnoses: a holistic approach to management and treatments.
The International Conference on Perinatal & Hospice care is taking place on Saturday, 30th January 2016 in the Royal College of Surgeons in Dublin. The conference will focus on the the medical and holistic care of women who are told their baby may not live for very long after birth. The conference will discuss novel treatments for serious life limiting conditions, neonatal hospice & palliative care and also hear patients experiences of carrying to term.
Complex prenatal diagnoses: a holistic approach to management and treatments.
The International Conference on Perinatal & Hospice care is taking place on Saturday, 30th January 2016 in the Royal College of Surgeons in Dublin. The conference will focus on the the medical and holistic care of women who are told their baby may not live for very long after birth. The conference will discuss novel treatments for serious life limiting conditions, neonatal hospice & palliative care and also hear patients experiences of carrying to term.
Dr. Martin McCaffrey hablando en la Conferencia Perinatal de Dublín
Dr. Martin McCaffrey hablando en la Conferencia Perinatal de Dublín
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Видео
Dr. Martin McCaffrey speaking at the Perinatal Conference in Dublin, 2016, on
Просмотров 6 тыс.7 лет назад
Dr Martin McCaffrey MD, Professor of Pediatrics University of North Carolina, speaking at the Perinatal Conference in Dublin, 30th January 2016. The topic of his presentation was: EVERY CASE IS UNIQUE: Delivering optimal medical care to babies born with Trisomy 13 and Trisomy 18 Dr. Martin McCaffrey Is a Professor of Pediatrics at UNC and a Board Certified Neonatologist. He completed his pediat...
Dan & Jenna Haley, Parents to Baby Shane Michael, fondly known as the Bucket List Baby
Просмотров 37 тыс.8 лет назад
DAN AND JENNA HALEY, Parents to Baby Shane Michael Haley, who was diagnosed with anencephaly while in utero, he is fondly known as the Bucket List Baby The topic of their presentation was: MAKING MEMORIES: Preparing for the arrival of your baby with anencephaly See more at: www.perinatalconference2016.com
Jacinta Murphy of Féileacáin, Stillbirth & Neonatal Death Association, at the Perinatal Conference
Просмотров 2938 лет назад
Jacinta Murphy of Féileacáin speaking at the Perinatal Conference in Dublin, January 2016 Féileacáin (Stillbirth and Neonatal Death Association of Ireland - SANDAI) is a newly formed, not for profit organisation ( CHY - 19635) that aims to offer support to anyone affected by the death of a baby during pregnancy or shortly after. The organisation was formed by a group of bereaved parents who sup...
Ide O' Sullivan, Soft Ireland (Support for Trisomy 13 & 18) speaking at the Perinatal Conference
Просмотров 2138 лет назад
Íde O'Sullivan from Soft Ireland, Support Organisation for Trisomy 13 and 18, speaking at the Perinatal Conference in Dublin, January 2016. Support Organisation for Trisomy 13/18 Set up by parents for parents of Trisomy children, SOFT, the Support Organisation for Trisomy, in Ireland, is a voluntary group dedicated to providing support for families of children born with Patau’s Syndrome (Trisom...
Dr Elvira Parravicini, Neonatologist & Ass Prof of Paediatrics speaking on perinatal hospice care
Просмотров 1,5 тыс.8 лет назад
Dr Elvira Parravicini, Neonatologist and Assistant Professor of Paediatrics, Columbia University speaking at the Perinatal Conference in Dublin, January 2016 The topic of her presentation was COMFORT AND DIGNITY: Meeting the needs of a baby born with a life-limiting condition and their families She stresses the importance of allowing parents and babies to bond and letting these babies have skin...
Dr. Paula Kelly, Great Ormond Street Hospital, speaking on training staff for perinatal hospice care
Просмотров 2968 лет назад
Dr. Paul Kelly, Clinical Nurse Specialist in Palliative Care, Great Ormond Hospital speaking at the Perinatal Conference in Dublin, January 2016. The topic of her presentation was: WHEN THERE IS NO CURE: Training neonatal staff for the future of neonatal palliative care She spoke about the critical importance of palliative care for babies with life limiting conditions. See more at www.perinatal...
Frances Mc Carthy, Clinical Care Co-ordinator in NYPH, speaking on perinatal care in Dublin
Просмотров 1758 лет назад
"We want to empower moms and dads to care for their babies." Frances McCarthy, Clinical Care Coordinator, Neonatal Comfort Care Program, New York Presbyterian Hospital spoke at the Perinatal Conference in January 2016. The subject of her presentation was: THE GIFT OF TIME: Providing a comfortable and compassionate environment for families to spend time with their newborn See more here: www.peri...
Barbara Farlow, International Trisomy Alliance, speaking at the Perinatal Conferece 2016
Просмотров 1,1 тыс.8 лет назад
Barbara Farlow tells of her daughter Annie'. "Stopping her life because it would be short didn't make sense to us". #perinatalconference2016 From the Perinatal Conference in Dublin on the 30th January 2016. BARBARA FARLOW from CANADA is a Published Medical Researcher and Founder of the International Trisomy 13/18 Alliance She gave a talk on: WORDS MATTER: Communicating difficult perinatal diagn...
Sarah Hynes, mam to Seán, speaking at the Perinatal Conference
Просмотров 1798 лет назад
Sarah Hynes speaking at the Perinatal Conference in Dublin on the 30th January. She shared her memories of precious little Seán who lived for 2 days after birth It was an honour and a pleasure to have parents and families speak at the conference. See more on the conference here: www.perinatalconference2016.com/ See more on Sarah and Sean's story here:
Sarah Nugent, mam to Isabella, speaking to the Perinatal Conference
Просмотров 2758 лет назад
Sarah Nugent speaking at the Perinatal Conference in Dublin on the 30th January. She shared her memories of precious little Isabella who lived for 54 days after birth It was an honour and a pleasure to have parents and families speak at the conference. See more on the conference here: www.perinatalconference2016.com/ See more on Sarah and Isabella story here: www.everylifecounts.ie/stories/isab...
Perinatal Conference 2016: Complex prenatal diagnoses. Perinatal hospice care and new treatments
Просмотров 7578 лет назад
Perinatal Conference 2016: Complex prenatal diagnoses - A holistic approach to management and treatments ABOUT THE CONFERENCE : SUMMARY The development of prenatal diagnosis technology has opened new experiences for families and their healthcare providers. While new technologies within medicine are always to be encouraged, they bring about new challenges and concerns as well as hopes and optimi...
Honoring Shane Michael's life as you did is inspiring. He went to Jesus knowing he was loved, his life mattered and his parents and family loved him. God bless your strength and choice.
Ellos se rien
No tienen pena de filmar esto
People who get this diagnosis DEFINITELY need to look this up and make decisions based on the reality.
How about based on your morals!
Fuck Morals. What live what all have? None. Better to prevent this
I would have wanted to keep the future baby alive as long as it can live inside there is no pain then. But I also understand how difficult some women have delivering a stillborn, it should be your choice.
These babies cannot see,hear, feel pain or hunger. However, in some of the videos , the babies appear to be in distress. I just ask WHY. Put the baby and yourself through this.
Its their choice and they can bear the expenses associated with it, God bless them. Obviously they are well off as they could travel to go to the bucket list, so if it doesn't break the bank. Why not?
@@annabrahamson4320 In some states, you cannot abort after a certain length of time or trimester. In some cases, the states do not have adequate newborn screenings, so the parents don't know their child has a genetic condition until they are born or when they have prenatal exams. Some states are just now adding more genetic conditions to the list of prenatal screenings to watch for. It all depends on the state you live in and whether your doctor orders the tests.
I cannot understand why any woman would not abort a fetus that has no brain. Can someone tell why anyone would carry this to term?
Do you not understand that abortions are painful to the babies they kill… scientists have proven this. Please educate yourself on abortion before you support it. Make no mistake life is taken painfully via abortion.
I think it was very hard for the father to accept this. You can tell by his facial expressions
Beautiful Shane❤️
So helpful, thank you for such good informative speech
It's happend us on 23rd August 2023, this video is 7 years old is anyone still awaiting comments
that’s my grandma 💓
He's absolutely perfect. What a beautiful story. I'm truly amazed at your strength and courage. Baby Shane just touched my life in an unforgettable way. Thank you for sharing him with us! God bless you and your family! 😘
What an excellent lecture presenting a more balanced view of children born with T13 & T18. Every relevant health professional should listen and take on board the information presented here.
Thank you for putting this together and making it available for others to see. There are many longterm survivors living with full, partial, mosaic and other variations of trisomy within the SOFT Community of families. Trisomy.org. There is also a focused Trisomy 13 ~ Patau Syndrome Group at LivingwithTrisomy13.org
Bravo Dr. McCaffrey! Thank you!
Y'all are a special young couple who made the most joy out of a sad situation. You were also blessed with a great staff and the hospital. Now you're ministering to others
So sorry for your lost pray for future healthy babies
You are a brave and wonderful couple Shane was such a handsome little guy God bless u
Loving these dear little children AS THEY ARE..is right. And good in the eyes of Spirit. But each family must face a medical community ("incompatible with life" -- really sensitive phrasing, eh?) The judgemental-ness of strangers who 'would have terminated"..blah blah. Dan and Jenna have helped raise awareness about this condition, while also loving Shane Michael, and even in the sadness, there are good things to be learned, and valued, for all concerned. Blest, all...
Beautifully said 🙏🏻❤️🙏🏻
What a wonderful couple. Every life has meaning and has an effect on everyone they touch. God bless you and your beautiful borrowed angel. He is beautiful. 😢💓💓
You have a beautiful story Jenna and Dad, you two are very special parents, and Shane Michael is a very lucky little boy.
Thank you, Barb!!! For everything you do!
THANKS SOOOOO MUCH FOR SHARING!!
Thank you Barb Farlow for sharing your story and for all you've done to help raise awareness for the trisomy experience.
What a wonderful and brave mother.