Hi Christina and Jamie-Lynn- Please continue to be real and speak the truth , share how you really feel. This helps people, and makes people feel not alone with their own issues. Hang in there Christina and take it one day at a time. We are here to listen and want to know how you really are feeling. Lots of love ❤
Please never stop this podcast. Your true, keeping it real conversation is helpful tremendously. People need to hear your honest detail so they feel not alone. I beg you to not stop. You guys are doing the right thing. You are saving people to get through one more day. You are also helping the family members to hear your conversations, to the utmost. I am a mother/ 24/7 caregiver of a son with the worst PPMS journey. Hearing your podcast helps me dig even deeper to understand his experience. I am SO grateful that you both for your honest raw detail.. Bless you both. I
Thank you Christina and Jamie-Lynn for sharing what you both are going through. We need more honesty in the world about what we are really living with. Christina I just really want to thank you so much for the amazing entertainment you have giving us through the years. I have also fallen asleep with a heating pad on my ass and burnt two red raspberries on my butt. Yes Life is messy...best of luck with this podcast and I hope that it gives you something to focus on that will help you to have purpose for your future. Sending love and light.
I had an adult diagnosis that has complicated my life immensely - severe insulin-dependent diabetes. My first cousin was diagnosed with MS around the same time. When I listen to her and then you two talk I realize how many of our symptoms overlap because with severe diabetes comes diabetic neuropathy. I love you both and if either of you ever need a sympathetic ear, I'll be available.
I am so glad you two started this podcast. I was diagnosed in 2012 and remember those first several years of mourning and trying to just survive day to day.
You two are great. Thanks for being so open. It sucks that you are having your eye thing. It’s so refreshing to hear your MS journey’s, your sharing helps us all know we aren’t going through this alone. Before I was diagnosed in 2018 I never heard anyone talk about MS openly. Peace.
It's so nice to have some ms content thsts not just boring doctors talking about it! I was diagnosed with rrms at 22 I'm 30 now. I've been waiting for a podcast like this the whole time! Please never stop.❤🧡
Hi Christina, you need to get a shower chair. I've been using one since I was diagnosed in August 2020. Sounds like you need to use a walker for your mobility. I use crutches outside of the house, a walker, and a wheelchair. Use them if you need to, you've got to be able to get around your house 🧡😚
I was thinking the same thing about a shower. She might feel so good to have a shower. Maybe retrofit the shower so its easy to get in and out of, too.
I laid in my room all weekend because of very similar MS things. I know everyone’s MS is different but, Christina, I have so much in common with my symptoms. Thank you for being so candid!!! ❤
Over 50% of MS patients also have PEM- Post Exertional Malaise... and exercise will make your symptoms even worse. It would be great if you both discussed PEM further. You both are helping us to be heard. Love your podcast. Stay strong pain warrior sisters. ♥♥
thank you both for this very essential podcast and you help more people than you will know. take good care and looking forward to hearing everything that you share
Tuned in after watching Fly on the Wall podcast with Christina. Have to say...what a great friend Jamie-Lynn is. So wise, and kind. Also, in regards to people not being supportive in the ways you need during this time, or any of life's challenges, I try to keep in mind - not everyone can be there for you all the time. Sometimes they might be going through something and just don't have it to give. You can't give what you don't have. And some people you should just totally break away from. My father had MS. And you are right, everyone has a different experience. He made it to 85, I'm happy to report...... love and more love to both of you....Christina, laughing when you say you just don't like people, you find them irritating. I know what you mean...lol...hope your support system grows to what you need...xoxoxo
Christina: I got my sturdy shower bench at Home Depot years ago - durable textured plastic and plenty of room. It really helps. Also: if you're able to get in and out of the tub, baths may be easier than showers, lower center of gravity. And it is some time to relax and think! Hugs.
Oh my gosh!!! I could shed some light on a number of things. I was diagnosed 2/2000. I don't have any new lesions but have been progressing. I could go on and on about my MS related "issues." I don't ask for help until I have to. When I fall down, I don't want help getting up, because I know how to get up myself, and others make it difficult for everyone. I guess they don't want to watch me because it is ugly. But I'm very positive. If there is something that you want to do, just look at what you need to accomplish that. I wanted to ride in the MS 150 from Houston to Austin. I have balance problems so I can't keep a two wheel bike from tipping. I bought a recumbent trike and started training. I ride but don't ride in the MS 150 any longer. I started using a wheelchair, because it has given me more freedom to go places. It's not preventing but giving me more opportunities. Yes, this disease is a bitch but we can't let that stop what we CAN do. Christine-I could not see your eyes but it sounded like nystagmus. I had that when I first got diagnosed. I had a round of steroids and it never came back again. It could be that simple or it could be something else.
Awww so happy to have seen this podcast you have been my idol as long as i can remeber Christina ....i am catching up on the episodes ....you are so right ladies we all GOT STUFF Messy stuff .....thanks for being real ....and jamie thanks for your BOUNDRIES TALK ...ive set some recently before hearing of this podcast and it was very scary but i wasnt GONNA HEAL if i didnt ..but the unknown is still so scary ...but i have more courage after listening Thank you ....Take care YOU Beautiful insparational Ladies XO Dayle from vancouver island, Canada
I needed this today! Thank you!parenting is tough to start with - and MS added on sucks! Just diagnosed 6 months ago and I am kayaking down de’ Nile hard! Thank you for helping me face this!
You are fu#kin awesome Christina. I was Dxd in 2009...Its now 2024. I lived in denial...its catching up with me now ..and you, my friend, are the bees knees and the cats pajamas...I find a tribe, i lose a tribe... Jamie.... bless you...
I thought the 2 of you are just amazing and I believe with all my heart that your dreams of doing what you want to do again one day will happen i have gone thru so much with family or friends being physically or mentally and I always have to believe that anything is possible I myself am a breast cancer survivor of nearly 8 yrs and dealt with other issues too much to get into but I always just have to believe anything is possible two beautiful people that found a way to help each other and be there and that’s the way it should always be God Bless both of you loved the Podcast and all the work the 2 of you have done Marcia Tavares
I don’t believe in coincidences and coming across your podcast was just what I needed and I am grateful to you both and for the God I love for answering my prayer. This platform has so many incredible moments of pure vulnerability, true trust, and unconditional love. I just want to THANK YOU BOTH and I send you both a virtual hug full of HOPE that you both have given me in a way I needed. It is so
Love you two! I was diagnosed with MS on my 12 year wedding anniversary on July 4, 2011. I was 33 years old. It fking sucked then when I got it and it still sucks now. I’m so happy I finally found a podcast that I can relate to! THANK You!
I've had someone say woe is me too. I had my 1st flare of psoriatic arthritis at 29 and a traumatic brain injury (TBI) at 38 that earned (sarcasm) me disability retirement. I'm now 55. Those close to me that ask me how I'm doing understand when I say fine, I mean F'd up Insecure Neurotic and Emotional. Those not in the know get a big smile mask plus "fine" because I'm not about to explain my constant pain, cyclical grief, and depression. I realized nobody wants to be around someone that complains constantly so I rely on sarcasm and my dark twisty sense of humor as my life raft. I went to group grief therapy for TBI, best choice ever because it applied to my autoimmune disease too. I recommend it to anyone with a debilitating disease, it was validating and helped us explain to our families. Best wishes to you both. ❤️
Another thing I learned that might help others from grief therapy was energy management. Bank of gas tank with Max Bal of $100, min $25. Every morning evaluate how much your bank bal is, assign a $ for each task (learn as you go) ensuring you don't go below $25 because that's when shutdown happens. I have days that I wake up with a $10 balance, I don't get out of bed. It does take time to figure out the cost of activities, journal it. This allows me to participate in life vs sleeping through it.
Crazy how I found this podcast out of no where. At 3:30 a.m. I'm sitting up feeling a lot of what you are talking about. I do not have MS & I'm in no way comparing my shit to yours or what you are going through. However, I have other ailments, which feel sometimes crippling. I'm a 54 year old woman, who recently found out I have osteoperosis, also Neuropathy in the form of restless leg syndrome & every time I try to relax & go to sleep, my legs start with this crazy energy, causing insomnia. So, of course from no sleep, working a full time job, over-thinking, anxiety, panic blah blah blah & from running on empty, instead of tending to the kids (who are all mostly grown 33, 21 & 14), a husband, family, a house to clean, laundry.. I shut my bedroom door, no makeup, no shower, no brushing my hair, no plans for he day & stay in bed, watch TV & veg. On a mental level, I'm like what the f*ck is wrong with me? So like I said, out of nowhere, I'm flipping through RUclips & come across Christina's interview, being as real & raw I am. I never knew she was so normal (at least normal to me). & then I saw Jamie sitting next to you holding your arm & emotionally supporting you during the interview (& I also had no idea Jamie had MS), & you two remind me of me & my best friend in so many ways. Next thing you know, I go, make coffee, come back to "my dungeon" & listen to the podcasts. I must say, during one of the Podcasts, Edie mentions what about he kids? No one ever talks about that side of it. Like, you go into mourning & I'm like YES Edie! What about those little kids! I get it! I've said that out loud so many times, or to another person & they are like, stop thinking so damn much. But for a moment, I want to go back in time & just hug those little kidd one more time. I miss them. Like where did that little person go? ugh I felt that Edie. Anyway, of course now I'm sitting here listening & have to chime in lol I have one best friend, I always say I hate people lol It's probably not true because I'm more of an empath than anything. But right now, I have to take care of me. I need to get the hell back in the mindframe, or state of mind & do something but it's just not happening today. So, thanks girls for the convo. I'm sitting here pointing at the damn screen like yeah girls I hear that! LOL The only thing that was hard, is not being able to see either one of you so of course, when Christina talks about her eye thing and she says, "see it?" and I'm like no, wtf Christina haha so... Love it. Keep it up. You two are awesome. xoxoxo
I just love this podcast. On a positive note about MS (If there is one) You wouldn't be helping so many people with this podcast if it wasn't for you both having MS although I wish you didn't have it, does that make sense? I love the humour you both bring even though it's about your suffering from this dreadful illness. This podcast brings up so many emotions but most of all it brings us laughter. Please keep this podcast going. Thanks so much.
I have pots and was in bed all day yesterday. I can’t talk to my friends about it because they can’t relate. Thank you for your honesty and positivity. I need this today.❤❤
I have PPMS, and, an Ocrevus fail ( yes, we do exist, but, ya gotta dig to find them.) But, I went from using my cane to pretty much my wheelchair. I’ve always been the caregiver/listener, all that, and, I’m fighting tooth and nail to be as close to previous me as possible. My profile picture is me going out with my family… I don’t look like her anymore, and, I’ve been grieving for her since I went downhill after the Ocrevus. And, I’ve lost many friends, but, the ones that stayed are my core group. We don’t live near each other, but, I am thankful for the ones that did. This disease isn’t easy to explain, and, the not taking a shower…I’d be lying if I said I didn’t, cos I have… Anyway, love this podcast ❤❤❤
Wow ladies! This is such a helpful conversation. 🙏🏻 I have a hereditary ataxia called MJD late onset. Just got my genetic test back because I’m having balance issues and double vision. I’ll be 55 on Saturday and have a 12 & 16 year old. Haven’t told them yet. 😢 I’m looking forward to more podcasts because I feel alone (living as an expat in Switzerland with no family around). Hugs 🤗 to you 🫶🏻
I swear me and Christina go through the same. I get electric shock on top of what she does. I have neuromyelitis optica which is like MS but worse. I go through that Christina but you should have been tested when tested for MS for neuromyelitis optica. I'm legally blind. No peripheral vision. It sucks. I'm never better. I always relapse and get worse. The pain sucks. Thank God for Lyrica bc I wouldn't survive at all. I wish I knew you Christina bc we have so much in common with this disease but please get tested for neuromyelitis optica. It's a worse form of MS. But when anyone gets tested that blood test is done. Mine was a severe high positive
My 30 something male coworker was just diagnosed about 5 months ago. He's mentioned his eyes and is taking his glasses off and trying to see how his focus is a lot l've noticed. His eyes seem to be affected at this stage for him. I'll ask about the shifting you mentioned. Thank you both for the podcast. My friend with MS won't watch yet because he's scared what he might hear and he doesn't want expectations...l can understand that for him at this stage of his finding out and adjusting. 💙
I was diagnosed a year ago, and I'm curious if either one of you had a narcissistic parent growing up? I'm really curious about how many of us have survived mental abuse, and then diagnosed, I want to do a study. I didn't realize until I was 47 that my parent was narcissistic, I was manipulated and gaslighted for that long. Please reach out by email if you want, you have a great platform to bring attention to this. I love both of you, and this show! Thank you for creating it, somehow I don't feel as alone in my disease now❤
I've discussed this topic with a few friends with auto immune diseases! Only I say "walk on eggshells" emotions growing up....I was blessed with everything I needed...I'm not sure if I was a handful...I'm sure I was ...blah blah blah blah.
Thank you for this podcast. I am 70 and just found out I have MS 6 months ago. They figure I have had it for 15 years. I call it the Mighty Strange disease. I have good days and bad. Do you two ever get flashes of light to the side ?
Good morning 🌞☀️😃 ladies ℹ found u guys 🌺☀️🌞🌸🌟 I’m so sorry for what you both going through 🥲🥲 Christina you are so amazing 😻 and I’m glad to be able to learn about MS but mostly I’m glad to hear about your journeys. Thank you for all that you are doing 🩷🥰💕😻😘🫶🏻
Christina my legs are the same way. My doctor keeps telling me ms doesn’t cause pain 🤦♀️ I’m so glad to find someone going through the same thing 😢 this whole thing sucks!!!
@cindy4178 Fried nerves hurt!!!! I don't need to have gone to medical school to know that. My Neurologist has prescribed Marijuana, muscle relaxer and pain pills, because MS indeed HURTS!!! It doesn't feel good, or I wouldn't need a rollator to keep from falling on my face.
I've got MOGAD, which is a MS-like demyelinating disease. My eyes feel like they're going to pop out of my head and bounce around all the time during relapse, which is all part of optic neuritis. The only thing that seems to help during that relapse is serious steroids and/or plasmapheresis. I do have a magical device (from amazon) that is a neoprene cap that you put in the freezer which covers your head and eyes. It's wonderful.
Ahh yes, any optic symptoms are such a pain in the ass 😮💨 I have a few optic symptoms as well. I am also in the midst of a flare-up, and I too smell like a wild animal from not having a shower - oh the fun 😅 MS keeps ya humble
I love this show ❤ Christina please ask your dr about sclerosis of the eye, your symptoms are a lot like mine were. They will see how much damage is done how far it's gone in the eye, hopefully you caught it quick enough to get some steroid drops. Praying for you both! ❤
"Christina, I have a few suggestions that I think might be helpful to you. 😊 I have MS, and I don't know how to say it in the French way you do, but I think it's funny. 😂 MS is a wicked disease that can do many things to our body, and I know exactly how you're feeling with the tingling and pain in your legs. 😔 I understand not wanting to get out of bed and feeling like you can't walk. 😞 Well, I've been in a wheelchair for about 9 years now, and I don't do well in the heat; I hate the cold. ❄☀ I was on Ocrevus, which is a good drug. 💊 I think it might help you if you want to talk to your neurologist about it. This is just a little advice. If you ever need somebody to talk to, I would be happy to talk with you. 😊 I'm a good listener. 🙋♀ Don't be so hard on yourself."
It's been hours since the last comment. I've tried commenting on this video before this & none of them show up. So if they do show up at some point, I apologize for numerous double comments.
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Hi Christina and Jamie-Lynn- Please continue to be real and speak the truth , share how you really feel. This helps people, and makes people feel not alone with their own issues. Hang in there Christina and take it one day at a time. We are here to listen and want to know how you really are feeling.
Lots of love ❤
Please never stop this podcast. Your true, keeping it real conversation is helpful tremendously. People need to hear your honest detail so they feel not alone. I beg you to not stop. You guys are doing the right thing. You are saving people to get through one more day. You are also helping the family members to hear your conversations, to the utmost. I am a mother/ 24/7 caregiver of a son with the worst PPMS journey. Hearing your podcast helps me dig even deeper to understand his experience. I am SO grateful that you both for your honest raw detail.. Bless you both. I
I love this podcast and I hope you continue this as long as you get something from it.
Thank you Christina and Jamie-Lynn for sharing what you both are going through. We need more honesty in the world about what we are really living with. Christina I just really want to thank you so much for the amazing entertainment you have giving us through the years. I have also fallen asleep with a heating pad on my ass and burnt two red raspberries on my butt. Yes Life is messy...best of luck with this podcast and I hope that it gives you something to focus on that will help you to have purpose for your future. Sending love and light.
Best podcast, like how honest Christina is, keep it honest we are here to listen.
This is one of the most powerful things I have ever heard as a mother struggling. Thank you! ❤
I had an adult diagnosis that has complicated my life immensely - severe insulin-dependent diabetes. My first cousin was diagnosed with MS around the same time. When I listen to her and then you two talk I realize how many of our symptoms overlap because with severe diabetes comes diabetic neuropathy.
I love you both and if either of you ever need a sympathetic ear, I'll be available.
I’m here after hearing Christina on the Fly on the Wall podcast where she was brilliant,
Looking forward to catching up on the previous podcasts here
I am so glad you two started this podcast. I was diagnosed in 2012 and remember those first several years of mourning and trying to just survive day to day.
You two are great. Thanks for being so open. It sucks that you are having your eye thing. It’s so refreshing to hear your MS journey’s, your sharing helps us all know we aren’t going through this alone. Before I was diagnosed in 2018 I never heard anyone talk about MS openly. Peace.
It's so nice to have some ms content thsts not just boring doctors talking about it! I was diagnosed with rrms at 22 I'm 30 now. I've been waiting for a podcast like this the whole time! Please never stop.❤🧡
Hi Christina, you need to get a shower chair. I've been using one since I was diagnosed in August 2020. Sounds like you need to use a walker for your mobility. I use crutches outside of the house, a walker, and a wheelchair. Use them if you need to, you've got to be able to get around your house 🧡😚
I was thinking the same thing about a shower. She might feel so good to have a shower. Maybe retrofit the shower so its easy to get in and out of, too.
I was going to say the same thing. My daughter has one- she got it when she was diagnosed with POTS. It helped her so much.
I laid in my room all weekend because of very similar MS things. I know everyone’s MS is different but, Christina, I have so much in common with my symptoms. Thank you for being so candid!!! ❤
Over 50% of MS patients also have PEM- Post Exertional Malaise... and exercise will make your symptoms even worse. It would be great if you both discussed PEM further. You both are helping us to be heard. Love your podcast. Stay strong pain warrior sisters. ♥♥
thank you both for this very essential podcast and you help more people than you will know. take good care and looking forward to hearing everything that you share
Tuned in after watching Fly on the Wall podcast with Christina. Have to say...what a great friend Jamie-Lynn is. So wise, and kind. Also, in regards to people not being supportive in the ways you need during this time, or any of life's challenges, I try to keep in mind - not everyone can be there for you all the time. Sometimes they might be going through something and just don't have it to give. You can't give what you don't have. And some people you should just totally break away from. My father had MS. And you are right, everyone has a different experience. He made it to 85, I'm happy to report...... love and more love to both of you....Christina, laughing when you say you just don't like people, you find them irritating. I know what you mean...lol...hope your support system grows to what you need...xoxoxo
❤ love this one
Christina: I got my sturdy shower bench at Home Depot years ago - durable textured plastic and plenty of room. It really helps. Also: if you're able to get in and out of the tub, baths may be easier than showers, lower center of gravity. And it is some time to relax and think! Hugs.
Oh my gosh!!! I could shed some light on a number of things. I was diagnosed 2/2000. I don't have any new lesions but have been progressing. I could go on and on about my MS related "issues." I don't ask for help until I have to. When I fall down, I don't want help getting up, because I know how to get up myself, and others make it difficult for everyone. I guess they don't want to watch me because it is ugly. But I'm very positive. If there is something that you want to do, just look at what you need to accomplish that. I wanted to ride in the MS 150 from Houston to Austin. I have balance problems so I can't keep a two wheel bike from tipping. I bought a recumbent trike and started training. I ride but don't ride in the MS 150 any longer. I started using a wheelchair, because it has given me more freedom to go places. It's not preventing but giving me more opportunities. Yes, this disease is a bitch but we can't let that stop what we CAN do. Christine-I could not see your eyes but it sounded like nystagmus. I had that when I first got diagnosed. I had a round of steroids and it never came back again. It could be that simple or it could be something else.
Awww so happy to have seen this podcast you have been my idol as long as i can remeber Christina ....i am catching up on the episodes ....you are so right ladies we all GOT STUFF Messy stuff
.....thanks for being real
....and jamie thanks for your BOUNDRIES TALK ...ive set some recently before hearing of this podcast and it was very scary but i wasnt GONNA HEAL if i didnt ..but the unknown is still so scary ...but i have more courage after listening
Thank you ....Take care YOU Beautiful insparational Ladies
XO Dayle
from vancouver island, Canada
I needed this today! Thank you!parenting is tough to start with - and MS added on sucks! Just diagnosed 6 months ago and I am kayaking down de’ Nile hard! Thank you for helping me face this!
I love you both! ❤ Thank you!!
You are fu#kin awesome Christina. I was Dxd in 2009...Its now 2024. I lived in denial...its catching up with me now ..and you, my friend, are the bees knees and the cats pajamas...I find a tribe, i lose a tribe... Jamie.... bless you...
I thought the 2 of you are just amazing and I believe with all my heart that your dreams of doing what you want to do again one day will happen i have gone thru so much with family or friends being physically or mentally and I always have to believe that anything is possible I myself am a breast cancer survivor of nearly 8 yrs and dealt with other issues too much to get into but I always just have to believe anything is possible two beautiful people that found a way to help each other and be there and that’s the way it should always be God Bless both of you loved the Podcast and all the work the 2 of you have done Marcia Tavares
I don’t believe in coincidences and coming across your podcast was just what I needed and I am grateful to you both and for the God I love for answering my prayer. This platform has so many incredible moments of pure vulnerability, true trust, and unconditional love. I just want to THANK YOU BOTH and I send you both a virtual hug full of HOPE that you both have given me in a way I needed. It is so
Love you two! I was diagnosed with MS on my 12 year wedding anniversary on July 4, 2011. I was 33 years old. It fking sucked then when I got it and it still sucks now. I’m so happy I finally found a podcast that I can relate to! THANK You!
I've had someone say woe is me too. I had my 1st flare of psoriatic arthritis at 29 and a traumatic brain injury (TBI) at 38 that earned (sarcasm) me disability retirement. I'm now 55. Those close to me that ask me how I'm doing understand when I say fine, I mean F'd up Insecure Neurotic and Emotional. Those not in the know get a big smile mask plus "fine" because I'm not about to explain my constant pain, cyclical grief, and depression. I realized nobody wants to be around someone that complains constantly so I rely on sarcasm and my dark twisty sense of humor as my life raft. I went to group grief therapy for TBI, best choice ever because it applied to my autoimmune disease too. I recommend it to anyone with a debilitating disease, it was validating and helped us explain to our families. Best wishes to you both. ❤️
Thank you both, I was diagnosed in 2006 with MS and this is the first time I truly get it with kids and no friend.
Another thing I learned that might help others from grief therapy was energy management. Bank of gas tank with Max Bal of $100, min $25. Every morning evaluate how much your bank bal is, assign a $ for each task (learn as you go) ensuring you don't go below $25 because that's when shutdown happens. I have days that I wake up with a $10 balance, I don't get out of bed. It does take time to figure out the cost of activities, journal it. This allows me to participate in life vs sleeping through it.
Crazy how I found this podcast out of no where. At 3:30 a.m. I'm sitting up feeling a lot of what you are talking about. I do not have MS & I'm in no way comparing my shit to yours or what you are going through. However, I have other ailments, which feel sometimes crippling. I'm a 54 year old woman, who recently found out I have osteoperosis, also Neuropathy in the form of restless leg syndrome & every time I try to relax & go to sleep, my legs start with this crazy energy, causing insomnia. So, of course from no sleep, working a full time job, over-thinking, anxiety, panic blah blah blah & from running on empty, instead of tending to the kids (who are all mostly grown 33, 21 & 14), a husband, family, a house to clean, laundry.. I shut my bedroom door, no makeup, no shower, no brushing my hair, no plans for he day & stay in bed, watch TV & veg. On a mental level, I'm like what the f*ck is wrong with me? So like I said, out of nowhere, I'm flipping through RUclips & come across Christina's interview, being as real & raw I am. I never knew she was so normal (at least normal to me). & then I saw Jamie sitting next to you holding your arm & emotionally supporting you during the interview (& I also had no idea Jamie had MS), & you two remind me of me & my best friend in so many ways. Next thing you know, I go, make coffee, come back to "my dungeon" & listen to the podcasts. I must say, during one of the Podcasts, Edie mentions what about he kids? No one ever talks about that side of it. Like, you go into mourning & I'm like YES Edie! What about those little kids! I get it! I've said that out loud so many times, or to another person & they are like, stop thinking so damn much. But for a moment, I want to go back in time & just hug those little kidd one more time. I miss them. Like where did that little person go? ugh I felt that Edie. Anyway, of course now I'm sitting here listening & have to chime in lol I have one best friend, I always say I hate people lol It's probably not true because I'm more of an empath than anything. But right now, I have to take care of me. I need to get the hell back in the mindframe, or state of mind & do something but it's just not happening today. So, thanks girls for the convo. I'm sitting here pointing at the damn screen like yeah girls I hear that! LOL The only thing that was hard, is not being able to see either one of you so of course, when Christina talks about her eye thing and she says, "see it?" and I'm like no, wtf Christina haha so... Love it. Keep it up. You two are awesome. xoxoxo
Thanks for sharing your experiences. I was diagnosed with MS in 2012 . Much love to you both, Christina and Jamie-Lynn Sigler ❤
I just love this podcast. On a positive note about MS (If there is one) You wouldn't be helping so many people with this podcast if it wasn't for you both having MS although I wish you didn't have it, does that make sense? I love the humour you both bring even though it's about your suffering from this dreadful illness. This podcast brings up so many emotions but most of all it brings us laughter. Please keep this podcast going. Thanks so much.
I have pots and was in bed all day yesterday. I can’t talk to my friends about it because they can’t relate. Thank you for your honesty and positivity. I need this today.❤❤
I can relate. :)
I have PPMS, and, an Ocrevus fail ( yes, we do exist, but, ya gotta dig to find them.) But, I went from using my cane to pretty much my wheelchair. I’ve always been the caregiver/listener, all that, and, I’m fighting tooth and nail to be as close to previous me as possible.
My profile picture is me going out with my family… I don’t look like her anymore, and, I’ve been grieving for her since I went downhill after the Ocrevus. And, I’ve lost many friends, but, the ones that stayed are my core group. We don’t live near each other, but, I am thankful for the ones that did.
This disease isn’t easy to explain, and, the not taking a shower…I’d be lying if I said I didn’t, cos I have…
Anyway, love this podcast ❤❤❤
Christina, you are a badass for doing this podcast. Don't beat up on yourself.
Wow ladies! This is such a helpful conversation. 🙏🏻 I have a hereditary ataxia called MJD late onset. Just got my genetic test back because I’m having balance issues and double vision. I’ll be 55 on Saturday and have a 12 & 16 year old. Haven’t told them yet. 😢
I’m looking forward to more podcasts because I feel alone (living as an expat in Switzerland with no family around).
Hugs 🤗 to you 🫶🏻
I swear me and Christina go through the same. I get electric shock on top of what she does. I have neuromyelitis optica which is like MS but worse. I go through that Christina but you should have been tested when tested for MS for neuromyelitis optica. I'm legally blind. No peripheral vision. It sucks. I'm never better. I always relapse and get worse. The pain sucks. Thank God for Lyrica bc I wouldn't survive at all. I wish I knew you Christina bc we have so much in common with this disease but please get tested for neuromyelitis optica. It's a worse form of MS. But when anyone gets tested that blood test is done. Mine was a severe high positive
My 30 something male coworker was just diagnosed about 5 months ago. He's mentioned his eyes and is taking his glasses off and trying to see how his focus is a lot l've noticed. His eyes seem to be affected at this stage for him. I'll ask about the shifting you mentioned. Thank you both for the podcast. My friend with MS won't watch yet because he's scared what he might hear and he doesn't want expectations...l can understand that for him at this stage of his finding out and adjusting. 💙
I was diagnosed a year ago, and I'm curious if either one of you had a narcissistic parent growing up? I'm really curious about how many of us have survived mental abuse, and then diagnosed, I want to do a study. I didn't realize until I was 47 that my parent was narcissistic, I was manipulated and gaslighted for that long. Please reach out by email if you want, you have a great platform to bring attention to this. I love both of you, and this show! Thank you for creating it, somehow I don't feel as alone in my disease now❤
I've discussed this topic with a few friends with auto immune diseases! Only I say "walk on eggshells" emotions growing up....I was blessed with everything I needed...I'm not sure if I was a handful...I'm sure I was ...blah blah blah blah.
Thank you for this podcast. I am 70 and just found out I have MS 6 months ago. They figure I have had it for 15 years. I call it the Mighty Strange disease. I have good days and bad. Do you two ever get flashes of light to the side ?
What were your symptoms, and what made you think to be tested for it?
Christina do a live....i want her to give her my top 5 and analyze. I love her more❤
i know all to well about not showering in 3 weeks its sad i have to wait for for fear of falling i love your show.
Good morning 🌞☀️😃 ladies
ℹ found u guys 🌺☀️🌞🌸🌟
I’m so sorry for what you both going through 🥲🥲
Christina you are so amazing 😻 and I’m glad to be able to learn about MS but mostly I’m glad to hear about your journeys.
Thank you for all that you are doing 🩷🥰💕😻😘🫶🏻
Christina my legs are the same way. My doctor keeps telling me ms doesn’t cause pain 🤦♀️ I’m so glad to find someone going through the same thing 😢 this whole thing sucks!!!
@cindy4178
Fried nerves hurt!!!! I don't need to have gone to medical school to know that. My Neurologist has prescribed Marijuana, muscle relaxer and pain pills, because MS indeed HURTS!!! It doesn't feel good, or I wouldn't need a rollator to keep from falling on my face.
Christina, here are my top 5 movies:
Fisher King, Dead Poet Society, Yankee Doodle Dandy, Max Dugan Returns, and On Golden Pond. Thoughts?
I've got MOGAD, which is a MS-like demyelinating disease. My eyes feel like they're going to pop out of my head and bounce around all the time during relapse, which is all part of optic neuritis. The only thing that seems to help during that relapse is serious steroids and/or plasmapheresis. I do have a magical device (from amazon) that is a neoprene cap that you put in the freezer which covers your head and eyes. It's wonderful.
Ahh yes, any optic symptoms are such a pain in the ass 😮💨 I have a few optic symptoms as well. I am also in the midst of a flare-up, and I too smell like a wild animal from not having a shower - oh the fun 😅
MS keeps ya humble
As a person with MS who is postponing a shower because of the standing and washing in pieces, I understand
I love this show ❤ Christina please ask your dr about sclerosis of the eye, your symptoms are a lot like mine were. They will see how much damage is done how far it's gone in the eye, hopefully you caught it quick enough to get some steroid drops. Praying for you both! ❤
guys you need to do a show together-maybe with Edie Falco too-that would be F***en awesome
"Christina, I have a few suggestions that I think might be helpful to you. 😊 I have MS, and I don't know how to say it in the French way you do, but I think it's funny. 😂 MS is a wicked disease that can do many things to our body, and I know exactly how you're feeling with the tingling and pain in your legs. 😔 I understand not wanting to get out of bed and feeling like you can't walk. 😞 Well, I've been in a wheelchair for about 9 years now, and I don't do well in the heat; I hate the cold. ❄☀ I was on Ocrevus, which is a good drug. 💊 I think it might help you if you want to talk to your neurologist about it. This is just a little advice. If you ever need somebody to talk to, I would be happy to talk with you. 😊 I'm a good listener. 🙋♀ Don't be so hard on yourself."
It's been hours since the last comment. I've tried commenting on this video before this & none of them show up. So if they do show up at some point, I apologize for numerous double comments.
Christina, you might need a live in aide.
Ice packs, ice vest, and cool showers do wonders for painfull, stiff muscles also brings your body temp down. I'm Wishing you both wellness.❤😊