Chronic Fatigue Syndrome
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- Опубликовано: 27 сен 2020
- Chronic Fatigue Syndrome represents an enigma. Between 850,000 and several million people are diagnosed with this condition, yet a firm diagnostic protocol remains illusive. We still lack a universally accepted definition for the Chronic Fatigue Syndrome and neither confirmatory laboratory nor imaging technique exists.
In 2015 the Institute of Medicine attempted to define Chronic Fatigue Syndrome as a condition associated with a decrease in the ability to engage in social, personnel or occupational activities lasting at least 6 months. Additional requirements were fatigue, often profound and not related to excessive exertion. Other features of Chronic Fatigue syndrome included unrefreshing sleep and malaise or weakness after almost any physical activity.
The IOM report mandated either cognitive impairment and/or worsening of symptoms while the individual was upright with some degree of improvement on lying down. Collectively these symptoms needed to be present at least 50% of the time and of moderate to severe intensity. The IOM even suggested renaming the condition Systemic Exertion Intolerance Disease instead of Chronic Fatigue Syndrome.
Now this imprecisely defined syndrome may be referred to as the medically sounding myalgic encephalomyelitis (ME), ME/CFS, CFS or SEID.
Symptoms remain as variable as the definition. They additionally include inability to sustain activities, feeling drained and lacking energy and complaints of joint pain. Some describe cognitive decline, impaired learning, difficulty finding the correct word and suffering “brain fog.” Other non-descript complaints include muscle aches, gastrointestinal symptoms, headache and night sweats. Some describe uncontrolled anxiety and panic attacks.
Recent studies suggest blurring of the distinction between Chronic Fatigue Syndrome and Fibromyalgia. Some argue that Chronic Fatigue Syndrome may be precipitated by an underlying significant infection, serious injury or psychological stress.
Of course a condition lacking a firm definition with neither confirmatory laboratory testing nor imaging studies seems destined to remain poorly treated and open to unscrupulous “practitioners” offering guaranteed treatments with hasty recovery. At present the only accepted interventions involve graded exercise therapy perhaps coupled with psychological interventions. No pharmaceuticals exist that offer widespread lessening of symptoms.
We salute you for your contribution to the recognition of this common but disabling disease. Thank you!
Thank you for covering this! I have been dealing with this for 4 years. Over the course of a year or two I went from being pretty much fully functional to being unable to do many basic functions and get out of bed in the morning. It is an ungodly level of exhaustion and brain fog (cognitive problems), total avolition (executive problems), memory problems, an element of depersonalization/derealization, and an element of sleep cycle problems and unrefreshing sleep. I have mostly been seeking treatment from a psychiatric perspective, though I don't actually claim mood problems, and some antidepressants have shown mildly helpful. I still have hope to find the right medications in the future.
I relate. The kind of fatigue that lasts 24/7 no matter what you do and makes even sending a text or watching tv feel like running a 5k on 3 days no sleep. Used to have a perfect memory and now forget what I’m doing in the middle of a task. And depersonalization/derealizion that I couldn’t snap out of for years. Finally got prescribed duloxetine which is FDA approved for fibromyalgia (which I’m also now diagnosed with) and I was shocked I’m getting better. I can do chores again, eat sitting up, even light exercise is possible again. And the depersonalization/derealization has gone from like a 9 to a 3. Deeply sorry for what you’ve been going through and hope you eventually get some relief
@@viatrixvaillancourt3027
Yes, the fatigue and avolition/lack of motivation has been compared to having to push a boulder up a hill before you even start each task. Cook breakfast? Push boulder up hill. Do homework? Push boulder up a hill. Do laundry? Push boulder up a hill. I am so glad you are feeling better! What dose are you on and how long did it take for you to begin feeling a benefit?
Yeah... makes you feel like Sisyphus. My starting dose was 30mg and now I’m on 60mg. I began feeling it almost immediately. Probably on day 2. It began as a jittery feeling that settled into genuine energy. I was really skeptical at first, because I had only heard it used as an antidepressant before and didn’t know it’s also used as a nerve pain medicine and prescribed for things like fibro. But the results were so dramatic that my skepticism didn’t last long.
1) plant based diet + fruits + multivitamin + omega3 2) mild yoga as possible ( yoga for CFS in youtube) 3) pranayam ( very important) 4) journalist 5) fasting and intermittent fasting ( very important) ... This will help you for sure. Eliminate toxic people, toxic food ( packaged , processed, sugar ) , drug or intoxication of any form . Eliminate any kind of toxin ( food, environment, data consumed, people, liquid ) adopt yogic life style. I had this , I treated with above method. I had in childhood and recently. Drink greenfood + turmeric warm water. Turmeric is anti inflammatory and works excellent. Get rid of coffein and tea all together. Eliminate stress and engage in activities you enjoy. CFS is psychological as well , so do things you enjoy.
I here you
I just started watching your videos, and I have now seen several of them. I really enjoy your videos because you are such an incredibly knowledgeable doctor and you really thoroughly analyze the medical conditions that you discuss in your videos. Thanks for all the time and effort you put into your excellent videos, Dr. Landow! I look forward to watching many more of your videos so I can continue to gain so much useful medical knowledge from you. Thanks again! :)
I was just denied work disability claim Saying there’s no proof of my condition. And I felt everybody thought I was faking it or just lazy. And this guy just said there’s no test to prove. I’ve gotten blood work done and my vitamin B and D were low. And months past after taking these vitamins and getting vitamin D injections and my level were with in spect but I’m still tired. This is annoying and frustrating. I’m happy I seen this video with many others. Can’t wait to see my doctor again.
I got it in the 1990's from Epstein-Barr virus. I suffer from this! have you ever got an EBV Titer, Blood Test?
There are so many abnormalities that have been proven. These patients are about as sick as someone can get without dying. Jarrod youngers lab .... Ron Davis at Stanford.
So true , that’s how I sometimes feel
I've felt that way for 39 yrs each year it got worse as age sets in. Was 20 when diagnosed now 59. Much worse than you can try to understand. Not sure I could relate if I didn't actually have it.
Been around for hundreds if not the beginning of time.
More then likely you inherited this.
Stress and other issues on the brain likely could have lit the fuse.
Research and science believe they know more but not one study can provide any evidence of there claim(s). I personally feel ME / CFS is the same as what they call FM.
I've never met an ME patient who didn't have pain.
Everyone with ME has disturbed Slow Wave Delta Sleep due to Alpha Wave Intrusion. Sone sort of conection to the petuatiry gland and human growth hormone. We do not achieve restorative sleep. All symptoms of Nonrestorative Sleep is ME. I'm sure it all begins with the lack of Slow Wave Delta Sleep.
In my opinion, I would guess that CFS is caused by an infection. People have different reactions to both bacterial infections & viruses (EBV, CMV, Lyme, HHV-6, HTLV 1-2, etc). There are even theories that depression & other mental disorders could be caused by infections. Maybe these infections are damaging the brain, nervous system or immune system (or all three)?
30 year survivor of me-cfs and I agree with this 100%
Thanks for this video. Spot on information!
This Dr has highlighted beautifully why I now avoid the medical profession like the plague! It’s all about assigning labels. I will stop there otherwise I will find it difficult to remain civil.
Thank you for your informative videos!
One of the most confusing aspects at the start of diagnosis is that every patient’s explanation of their suffering is limited to their imperfect ability to explain it.
I’ve had CFS for over 16 years, I really think it has most to do with an overactive SNS (sympathetic nervous system) and this makes sense because you discussed high stress individuals being more susceptible to it. Could you please do a follow up vid about “Covid long haulers” who are also experiencing CFS en masse? You do great and informative videos thank you! 😁
I love the channel thank you
I had chronic fatigue syndrome after I had mono and it was AWFUL. It lasted about a year. Had to leave college for it.
CFS...sounds like a classic autoimmune condition to me... triggered by a virus...
I agree. I also have sleep narcolepsy. The sleep narcolepsy was really difficult as a child because no one really noticed. At a very young age I could tell it was coming and that I had very little time to find a safe place to sleep. As a child such as passing out in a hot car or behind the dryers where my Mother worked at a laundromat probably wasn't the best idea. Heat makes it worse. Later on I became more sensitive and any emotion that affected me would make me literally pass out in school and home. I only found out a few years ago my Mother had the same problems. She hated it in herself and she hated it in me until in 1994 I finally got a diagnosis. Typically sleep 11 or more hours a night and many naps in between. You have say a third of a day as most people.
Oddly the cocktail of drugs my Dr had me on have me a schedule for the first time in my life for the last 2 years. Severe anxiety I take Xanax 26 years now. For acute and chronic pancreatitis I take oxycodone. They've halved my pain meds here in Florida and will soon be tapering the Xanax. My children do not even know me without these meds and why they must take them when I have at least some semblance of a life I do not know. Addicts I presume have destroyed trust. I take a urinalysis monthly. Very sad I'm losing a life I've only just found.
I'm also scared because social security has found an overpayment I did not know was wrong. Even though I did not use it for myself it still was an access access for me. I have nothing left and am in fact in debt before I receive my check they have decided I can do without 10%. Life eh?
My Mother has covid. I'm the only one she talks to or trusts. Yet I can barely take care of myself. And mostly I don't like it being in my paperwork making me sound like some creative thief. And I'm sooo tired. Prayers to all as we all have our crosses to bare. I find myself often contemplating the life of other things that only live a few hours such as insects. And no one wants to believe you could possibly be more tired than they. Never really asleep and never wide awake.
I have lupus and Sjogren’s syndrome, and have debilitating fatigue.
I feel like I won the Olympics, just for getting up in the morning and taking a shower.
The fatigue is horrific.
I lost my thyroid to cancer, and am on thyroid replacement, but have hypothyroid.
I have great difficulty functioning.
The fatigue causes memory issues, and the only thing they have for this is steroids every six months, noting the affect only lasts for a few days.
They need to come up with something to help us patients be able to live a normal life.
The physical weakness is awful.
Im from Poland and I have been struggling with it all my life.
I just had a thought about one possible cause of Chronic Fatigue, which could be combined with some other possible causes. A great number of people start the day drinking coffee, and I assume that many drink it for the caffeine buzz. Some people drink espresso (double or triple espresso). I'm wondering if either the caffeine buzz will bring on some extreme fatigue, especially after drinking it every day for many years. Or, maybe the come down from the caffeine could bring on severe fatigue and several other symptoms that come with it. Also, the stress on the body (and mind) from the caffeine as well as stress from overworking (or job stress from certain jobs with very tight schedules every day) may cause the severe fatigue. Of course, depression can be mixed in there which I know can cause fatigue, brain fog, muscle aches, general malaise, etc. Anyway, these are just some of my thoughts on some possible causes of Chronic Fatigue Syndrome. I know that you brought up several of these possible causes, but I was just pondering the idea of daily caffeine intake (through coffee, tea, caffeinated beverages, energy drinks) being a possible primary cause, or at least one of the primary causes in a number of cases of chronic fatigue).
Dr.landow can u make a video about nordazapam.what drug is it used for
I love this Doctor very much 🙂 he is so nice ☺️
I can sleep for 24 hours without taking sleep aides. I am continually exhausted and have been for several years. I can only schedule activities every other day as I am so fatigued that I can not function the other days
You should try better, find a new way.
My M.E happened rather quickly . I caught an inner ear virus but seemed to recover mostly except was left with vertigo .
I woke up one morning and could not walk properly .
I could only shuffle , my muscles would not work . Then a myriad of symptoms rapidly occurred .
I was very fit and active .
I never recovered .
I luv older woman 😁😎 46 isn't to young now though
I had chronic fatigue for many many years and I've tried numerous things to try to help it. the only thing that has ever helped me with it is taking a stimulant and the stimulant only made me feel somewhat " normal ". But these are almost impossible to get your doctor to prescribe 😢
Malabsorption issues also and inability to uptake nutrition properly in conjunction with the above statement in my opinion.
Thank you Dr. Landow. I think the causes of CFS are different in different patients
I have this condition for years I'm totally pissed off I can't do anything
Im having Dysautonomia,, Myofascial pain and POTS. Many different and unpleasant symptoms, can't even diagnose myself if i have CFS or Fibromyalgia. Watching your videos to gain knowledge so i can help myself. Doctors in my country have no idea how to fix me, or even give me correct diagnosis.
Are you from the UK by any chance?
@@yvonnejohnson1004 nah im from Ukriane. I did read a lot of info and talked to people. Now im almost sure that im having ME/CFS. Thinking about treating it with LDN. In 60% cases it helps. But im not even expecting to be cured soon, if i ever will be haha.
Updating: i do probably have me/cfs. Getting better with pacing, the only thing that helps, basically im escaping triggers - significant activity. But only after 6 month i got like 30% better. So yea... this is pretty bad disease.
Tinnitus links ?
Im living with it. Please look into neural limic systen retraining by dnrs or Gupta. Also check for MTHFR gene mutation, thyroid with antibodies (stop the thyroid madness) para thyroid, ferritin for anemia, increase vitamin D with magnesium
You make me want to become a doctor but I'm too old for that now. Wish you were my primary care doctor. In my opinion, severe unhappiness and/or some type of food allergy may be responsible for this, as well as psychiatric drugs such as benzo's and anti-depressants.
Somedays I just want to sleep all day it doesnt matter how much sleep I get I just cant. Leave. Bed. I have hashimotos but my levels are good with consistant meds... all other blood work checks are fine... I have no idea
Look up narcolepsy type 2
I have fibromyalgia and chronic fatigue syndrome. Tested positive for Epstein-Barr virus antibodies. I remember having mono as a kid.
Anyone here live in a moldy building or work in moldy conditions
Most likely gluten sensitivity causing mineral a vitamin deficiencies in many cases compounded by undetected blood mutations in my opinion.
Gluten seems to be a bad thing, and should be taken out of all breads.
@@richieslimbach Bread can be baked grain free. I'm a GF chef
There are several diseases where there is controversy about diagnosis. This seems to be yet another one. Some medical sleuth will figure it out just like Alzheimers will get consistent diagnosis and treatment.
It's truly a sad state of affairs when the medical profession can't even decide on a name for this condition let alone have doctors that recognize that it's real and not psychosomatic in nature.
The only thing that even came close to helping was taking D-Ribose. But it's no miracle cure either.
In my case, I was in the best shape of by life at 42 years of age. By the time I hit 50, it turned into nothing but hell from that point on.
If there is one takeaway from this video is that if you have CFS, you're pretty well near fucked. Good luck trying to get on disability, or finding a doctor that understands your condition. You can look for therapies until the cows come home. Most of this shit doesn't work. Better to just accept your lifelong state of affairs and work as best as you can within those limited parameters. I'm tired of people on RUclips peddling "cures" and false hope. It's cruel to lead sufferers on like this.
My mother is diagnosed with this
This guy giving the same stink face I got from half the medical community I came in contact with. All we want is your help.
Read the book The Copper Revolution by Jason Hommel
What's the difference between this and depressive disorder?
@@Gatsu1995 interesting
Cher had Epstein Barr.
I have lupus.
Both cause extreme fatigue.
As soon as we find a biomarker, then all this guessing might cease. I have lyme disease which was diagnosed with five positive bands on a blood test. My chronic fatigue has lasted for four years after being diagnosed with lyme disease and before that Epstein Barr.
Yet psychiatric diagnosis can be made without any labs or imaging studies.
Yeah go figure, meanwhile one's hormones being off kilter can cause much of these signs & symptoms
I got all of the symptoms of fibromyalgia and CFS/ME after having a severe adverse reaction to Cipro. I believe it has to do with the cipro damaging the mitochondria of cells which is the energy of the cell so this explains why i have had CFS since 2012 when i had the severe adverse reaction to cipro which is a chemo level antibiotic. which she never be used for a freakin' UTI! I have several other permanent side effects from only taking 3 Cipro pills and i haven't been able to work or have much of a social life since and i am bedridden half the time. If i take a shower it takes me 3 days to recover. I was perfectly healthy before i took Cipro!!!!
Ive been given cipro multiple times over the course of my life... Not a chemo level drug.
I hate that you had a severe adverse reaction it. I have CFS/ME and i think the mitochondria path is by far the best. I hope scientist and doctors can get right answers in our life time. Id love to understand it
A lot of chicken or egg stuff😕
I think it's a combination of everything if you look at your hypothalamus goes back to a stress event along with the crappy sad diet standard American diet that causes inflammation and the ability for Americans to sustain themselves on caffeine and energy drinks and nicotine it hides a lot of the symptoms
Caffeine helps.
Helps me with brainfog a little, but makes my nervous system go wacky and also increases chest pain. Obviously, it's a symptomatic treatment at best
@@Perf401 Agreed, it is just a small band aid and it occasionally causes some anxiety. That said, it is still better than nothing.
Unfortunately it’s poison for me. Gives me palpitations and acid reflux
For two hours.