I underwent POEM Procedure today on 26th August 2024. Was suffering from Achalasia from a couple of years. Thank you for posting this, I'll try to follow as well. Juices, milkshake for 1 week, then soft rice stuff. Wish me luck 🤞🏻
Achalasia! Changed my life...I had POEM in 2021. You have a great attitude going into surgery day, I couldn't eat and lost 35 lbs leading up to the surgery date. How are you doing now? When I first had the surgery, the results were amazing for the first four months then symptoms slightly came back. I have to take PPIs 2xday now and grateful I can EAT...
I'm 5 days post op and still on the puree 😐 I feel you with the pains, not as bad as the gas pain though, that was brutal in my shoulders! Good luck with you're recovery, you aren't alone in this. Best wishes from the UK 🇬🇧
Oh wow! I feel like I found my “community of peeps” (sadly) that I am in the same boat with Achalasia for over a year. I have my POEM scheduled for October 4th. This has been a hard 1.5 year unable to eat or swallow. End up throwing most of the time. Lost about 40lbs. Never hated the HealthCare system delays in US as much as I do now (and I work in Healthcare!). Enough of me venting. Just wanted to thanks for doing this video… as much as you were smiling and being positive… I could feel the pain and see myself smiling when I talk to my friends when I explain to them… so this is so real …. Thanks to all other commenters as well.. made me realize I have other people that are going through….and understand the pain and frustration. Some thing I felt my family and friends didn’t understand and didn’t want them to worry about me much.. anyway, now I am rambling. Thank you again!!! Hope you are feeling better now.. wish me luck!
I get what you mean! I have jackhammer esophagus and have lost 30#… the drugs help a little and the Botox wore off in 3 weeks. I am being sent to university of Miami on Monday to find out if someone can do a POEM and maybe fundoplication. It’s getting harder to eat and work… i vomit so much (except for today yea) and it makes me lose my voice. This is so scary and overwhelming. 😢 I sleep in a lazy boy every single night since Feb. I hope this new Dr can help me!
Omg! I just had this surgery on Monday! I feel the pressure in my stomach as well and I get winded and my voice gets weaker. I haven’t eaten since last Thursday😢 I have to wait until next week to introduce soft foods I’m on starving straight clear liquids I’m jelly that I’ve been able to drink juices bcuz my diet is broth, jello, popsicles water or ginger ale. How have you been since your surgery? Thank you for this content❤
I just had my /POEM procedure done today . I am in such pain . Dr never told me about that . Only minimal pain . I pray al these comments are true for me . Yes I'm very tried, weak . I always try to look for the best .I to have hope after reading all these comments. Sunshine is coming
My achalasia symptoms got diagnosed in July 2023 but the symptoms started in February 2023. It’s insane how fast it progressed. I’ve had a botox injection in February 2024 and early April 2024. Both did not work. Yesterday (April 25) they finally scheduled me for POEM surgery. I was vomiting a lot when they brought me back to my room but that stopped after. Today (April 26) I will finally get to eat something soft (soft diet for 2 weeks) and after, FINALLY start introducing the normal food!!! I am very excited for the two weeks to be over and feel like a normal person again 🥹 I mean, achalasia is forever but I hope this surgery finally allows me to eat better (the past days I have just been eating white chocolate bars lol at least 2-3 because nothing will go down). I probably tried already ALL the existing white chocolate bars in the supermarkets here in Germany 😆
Does anyone here have jackhammer esophagus? I have stage 3 and on like 5-6 meds… I vomit almost every day… unable to work since I can hardly eat 600 calories a day… Botox injections helped for only 3 weeks… next step is POEM and headed to Miami to see a new more specialized Dr on Monday. I am down 30 pounds and lost a ton of hair… the biopsy was + for alopecia. Anyone else losing their hair? I read one case study where a lady had advanced jackhammer and also + for alopecia. My primary dr thinks it’s autoimmune too. Ahh this is stressful and nobody to really turn to since it’s so rare. 😢
Hi love. I have it. In the process of the TESTING...thank u so much for vlogging. I thought I was the only person. May I ask about before surgery- what did u eat to gain weight or maintain.
@@EchoTunesOffical hiya mate, yeah I’m okay now thank you still struggle a tiny bit. I had my les stretched in January 2022 and it seems to have done the trick. I’ve gained up to 60kg and now been hitting the gym for 7-8 months.
@@Dheiepwlamm7897 For Real I Facing This Problem From Last 4 Weeks I am So Worried About it And I am Scared To Eat Something You Know Better When I Eat Something My I Can't Breathe Do You Have Any Tip Or You Feel Like This Which I Tell You And Thank You For Replying Me
So glad I found this. I’m 61 and started having swallowing issues in my 20’s. Over the years I’ve had the esophagus dilation performed about 5 times but last year was told that was no longer an option for me and they finally diagnosed me as having Achalasia. They recommended the Heller as my next option but even the surgeon said that there was no urgency, thankfully. Unfortunately, I am now starting to aspirate at night so I’m considering getting either the HM or POEM scheduled soon. I live in Tennessee and the closest options, in order of proximity, are Vanderbilt in Nashville, Washington University in St.Louis, MO, or Tulane in New Orleans….anyone have any feedback on these three. Thank you in advance.
I’m having this in 2 days. The liquid only diet is SO frustrating before surgery. I can’t eat food well, but at least I can chew!! But it’s a good chance to eat better, and feel less pain long term. I’ve been told liquid diet for a week, then purée for a while, then soft foods for a while. I’m shocked you were told to eat soft food like 4 days in!!
hey! i came across this cause i have a pouch in my throat lol (super rare and i dont think anyone in their 20's has gotten it ever) anyway as part of the removal they want to remove the pouch and then do the POEM thing that you got. im just wondering have you noticed more reflux in your throat after this procedure? like sore vocal chords or more burping or belching? im worried about getting the POEM because i get belches already that burn my vocal chords so im hesitant that they want to cut the muscle wahhh :(
I've not eaten for a month, I'm currently on the waiting list for manometry test which is couple of months away. Then I'll have the procedure. For now I'm.on NG tube feed 😔 which isn't the most nicest thing to have.
I'm having the HM tomorrow. I've been battling achalasia since September 2021 but the last 3 months have been the worst. So I'm excited for tomorrow. I miss drinking water.
@@Bad_BowHunter I completely understand you. After two months of recovery, the heartburn is going away. While surgeon was performing my surgery, Dr. Carvajal found 2 holes in my esophagus. I will pray for you. Get all of your medications after discharge from hospital. Dexilant 60mg, Reglan 10mg, Zofran 4mg, Gas X, Omeprazole 40mg, Pepcid 20mg and Sulcrafate Oral Suspension.
How was that procedure? I have jackhammer esophagus and severe reflux so I’m hoping for a poem plus fundo…. But it might not help… up in the air and scared. My gi dr dropped me here and now have to see a new guy in Miami 2.5 hrs away. My dr said my esophagus is so advanced that it’s above him and he can’t help.
I just had this a week ago. Rough recovery for me. I am still on liquids. The chest pain is subsiding, but it's apparently a result of them pumping CO2 into my chest during the surgery. I am glad to find others in my situation. There is no information out there.
@@EchoTunesOffical I am definitely getting better. I can eat about 65 percent more than I could before the surgery. I feel better overall because I am getting the protein I need. I think I will keep improving. Thanks for asking.
it took me over a year to get to the conclusion for getting the POEM procedure. swallow tests, endoscopies, etc - after surgery it took a month to be able to eat normally
I underwent POEM Procedure today on 26th August 2024. Was suffering from Achalasia from a couple of years. Thank you for posting this, I'll try to follow as well. Juices, milkshake for 1 week, then soft rice stuff. Wish me luck 🤞🏻
I cried when you said " I get to eat again in 2 weeks" I haven't eaten in 16 years because I have achalasia too- I have surgery on the 17th of July-
17 yrs for me . Dr's. Kept pushing me off . Say live with it , because that's Multiple Sclerosis .
Thank you for sharing this!! I'm due for my HM surgery soon and I'm terrified, you made me feel so much better about it all! 😢 Achalasia sucks!
Achalasia! Changed my life...I had POEM in 2021. You have a great attitude going into surgery day, I couldn't eat and lost 35 lbs leading up to the surgery date. How are you doing now? When I first had the surgery, the results were amazing for the first four months then symptoms slightly came back. I have to take PPIs 2xday now and grateful I can EAT...
I'm 5 days post op and still on the puree 😐 I feel you with the pains, not as bad as the gas pain though, that was brutal in my shoulders! Good luck with you're recovery, you aren't alone in this. Best wishes from the UK 🇬🇧
How are you doing now?
Oh wow! I feel like I found my “community of peeps” (sadly) that I am in the same boat with Achalasia for over a year. I have my POEM scheduled for October 4th. This has been a hard 1.5 year unable to eat or swallow. End up throwing most of the time. Lost about 40lbs. Never hated the HealthCare system delays in US as much as I do now (and I work in Healthcare!). Enough of me venting. Just wanted to thanks for doing this video… as much as you were smiling and being positive… I could feel the pain and see myself smiling when I talk to my friends when I explain to them… so this is so real …. Thanks to all other commenters as well.. made me realize I have other people that are going through….and understand the pain and frustration. Some thing I felt my family and friends didn’t understand and didn’t want them to worry about me much.. anyway, now I am rambling. Thank you again!!! Hope you are feeling better now.. wish me luck!
Bless you, I'm going through the same and the nhs In United Kingdom is sluggish. Everything is a waiting game unfortunately..
@@Londerner285Hi How Are You Are You Ok Now
I get what you mean! I have jackhammer esophagus and have lost 30#… the drugs help a little and the Botox wore off in 3 weeks. I am being sent to university of Miami on Monday to find out if someone can do a POEM and maybe fundoplication. It’s getting harder to eat and work… i vomit so much (except for today yea) and it makes me lose my voice. This is so scary and overwhelming. 😢 I sleep in a lazy boy every single night since Feb. I hope this new Dr can help me!
Booked in for my POEM in 8 days ♥️ thank you for this! I cannot find much on post procedure so this is so great
Omg! I just had this surgery on Monday! I feel the pressure in my stomach as well and I get winded and my voice gets weaker. I haven’t eaten since last Thursday😢 I have to wait until next week to introduce soft foods I’m on starving straight clear liquids I’m jelly that I’ve been able to drink juices bcuz my diet is broth, jello, popsicles water or ginger ale. How have you been since your surgery? Thank you for this content❤
I just had my /POEM procedure done today . I am in such pain . Dr never told me about that . Only minimal pain . I pray al these comments are true for me . Yes I'm very tried, weak . I always try to look for the best .I to have hope after reading all these comments. Sunshine is coming
My achalasia symptoms got diagnosed in July 2023 but the symptoms started in February 2023. It’s insane how fast it progressed. I’ve had a botox injection in February 2024 and early April 2024. Both did not work. Yesterday (April 25) they finally scheduled me for POEM surgery. I was vomiting a lot when they brought me back to my room but that stopped after.
Today (April 26) I will finally get to eat something soft (soft diet for 2 weeks) and after, FINALLY start introducing the normal food!!! I am very excited for the two weeks to be over and feel like a normal person again 🥹 I mean, achalasia is forever but I hope this surgery finally allows me to eat better (the past days I have just been eating white chocolate bars lol at least 2-3 because nothing will go down). I probably tried already ALL the existing white chocolate bars in the supermarkets here in Germany 😆
Did you try CBD (weed)? It has a relaxing effect and it's safe and since you're in such a dire state I imagine it's worth trying.
Does anyone here have jackhammer esophagus? I have stage 3 and on like 5-6 meds… I vomit almost every day… unable to work since I can hardly eat 600 calories a day… Botox injections helped for only 3 weeks… next step is POEM and headed to Miami to see a new more specialized Dr on Monday. I am down 30 pounds and lost a ton of hair… the biopsy was + for alopecia. Anyone else losing their hair? I read one case study where a lady had advanced jackhammer and also + for alopecia. My primary dr thinks it’s autoimmune too. Ahh this is stressful and nobody to really turn to since it’s so rare. 😢
Thank you for sharing this. Its comforting that I am not the only one going through this
2:05 you know it's rare when you can't remember its name :)
..and I don't understand the dislikes.
Hi love. I have it. In the process of the TESTING...thank u so much for vlogging. I thought I was the only person. May I ask about before surgery- what did u eat to gain weight or maintain.
I had a Heller myometry ... Surgery was
2 years ago
Hi, when did you get your esophagus surgery done?
Shared
Hello Tiffawny, I wonder how you are doing nowadays ? Can you update how well you are doing ??
Thank you for sharing this. Now I know I'm not the one who have this.
I’m 14 and got this. It sucks
im so sorry so do i, hang in there😘
@@kennaa173 I’ve got it sorted due to a oesophageal stretch at the moment
@@Dheiepwlamm7897Hi Are You Ok Now
@@EchoTunesOffical hiya mate, yeah I’m okay now thank you still struggle a tiny bit. I had my les stretched in January 2022 and it seems to have done the trick. I’ve gained up to 60kg and now been hitting the gym for 7-8 months.
@@Dheiepwlamm7897 For Real I Facing This Problem From Last 4 Weeks I am So Worried About it And I am Scared To Eat Something You Know Better When I Eat Something My I Can't Breathe Do You Have Any Tip Or You Feel Like This Which I Tell You And Thank You For Replying Me
So glad I found this. I’m 61 and started having swallowing issues in my 20’s. Over the years I’ve had the esophagus dilation performed about 5 times but last year was told that was no longer an option for me and they finally diagnosed me as having Achalasia. They recommended the Heller as my next option but even the surgeon said that there was no urgency, thankfully. Unfortunately, I am now starting to aspirate at night so I’m considering getting either the HM or POEM scheduled soon.
I live in Tennessee and the closest options, in order of proximity, are Vanderbilt in Nashville, Washington University in St.Louis, MO, or Tulane in New Orleans….anyone have any feedback on these three. Thank you in advance.
I got my POEM surgery done on 13th april, still have discomfort in chest and throat … I think it will get better with time… achalasia sucks…
Sorry, you were supposed to blend and strain for the soft foods. I am reading up on EVERYTHING prior to my first day post-POEM tomorrow morning!!!
I’m having this in 2 days. The liquid only diet is SO frustrating before surgery. I can’t eat food well, but at least I can chew!!
But it’s a good chance to eat better, and feel less pain long term.
I’ve been told liquid diet for a week, then purée for a while, then soft foods for a while. I’m shocked you were told to eat soft food like 4 days in!!
It’s brutal. Was diagnosed 9 years ago and had two surgeries, both HM and POEM. It’s still an issue, tho somewhat better
Hello. May i know the name of the hospital where you had surgery? I would also like to have surgery in Seattle. Thank you 🙏
I thought I was alone I had poem surgery may 9th and it's going ok so far
Thank you. I'm about to go through surgery tomorrow. 👍
Iam just wanting to eat a burger again. 😅
hey! i came across this cause i have a pouch in my throat lol (super rare and i dont think anyone in their 20's has gotten it ever) anyway as part of the removal they want to remove the pouch and then do the POEM thing that you got. im just wondering have you noticed more reflux in your throat after this procedure? like sore vocal chords or more burping or belching? im worried about getting the POEM because i get belches already that burn my vocal chords so im hesitant that they want to cut the muscle wahhh :(
i only had more reflux the week after the procedure but after I had significantlyy less reflux in general compared to before the procedure!!
I've not eaten for a month, I'm currently on the waiting list for manometry test which is couple of months away. Then I'll have the procedure. For now I'm.on NG tube feed 😔 which isn't the most nicest thing to have.
I am suffering for this problem for 7 months. From UK
May I ask you where do you live?
I'm 25 years old having problems swallowing and next I'm supposed to get the swallowing test done but next I want the other appointment
Hello, I'm 25 too and have this 😭
Was diagnosed with Achalasia type2. I had surgery HM. Recovery sucks. I’m having excruciating 😖 heartburn!!! Omeprazole and Pepcid are saving my life.
I'm having the HM tomorrow. I've been battling achalasia since September 2021 but the last 3 months have been the worst. So I'm excited for tomorrow. I miss drinking water.
@@Bad_BowHunter I completely understand you. After two months of recovery, the heartburn is going away. While surgeon was performing my surgery, Dr. Carvajal found 2 holes in my esophagus. I will pray for you. Get all of your medications after discharge from hospital. Dexilant 60mg, Reglan 10mg, Zofran 4mg, Gas X, Omeprazole 40mg, Pepcid 20mg and Sulcrafate Oral Suspension.
I had my heller myotomy with a fundoplication two weeks ago and wondering how long it took you to get back to a normal diet?
How was that procedure? I have jackhammer esophagus and severe reflux so I’m hoping for a poem plus fundo…. But it might not help… up in the air and scared. My gi dr dropped me here and now have to see a new guy in Miami 2.5 hrs away. My dr said my esophagus is so advanced that it’s above him and he can’t help.
I just had this a week ago. Rough recovery for me. I am still on liquids. The chest pain is subsiding, but it's apparently a result of them pumping CO2 into my chest during the surgery. I am glad to find others in my situation. There is no information out there.
Hi Now How Are You Are You Fine Now After Surgery?
@@EchoTunesOffical I am definitely getting better. I can eat about 65 percent more than I could before the surgery. I feel better overall because I am getting the protein I need. I think I will keep improving. Thanks for asking.
@@obamaboy1 That's Great Brother Thank You So Much For Your Reply
I am also achalasia
How long did it take for to get the problem fixed
it took me over a year to get to the conclusion for getting the POEM procedure. swallow tests, endoscopies, etc - after surgery it took a month to be able to eat normally
I had the PoMe surgery on March 13, and feel worst, I cannot eat as I please. Achalasia has been a torture for me.