Hi Emma, sorry for my delay in response.I thought about how to best address this and came to a conclusion ;) While I’m not a medical doctor, I can understand how difficult it must be to make this decision. Surgery for a potential perilymph fistula is a big step, and there are definitely important factors to consider. It’s worth ensuring that your doctor has a high level of confidence in the diagnosis, as perilymph fistulas can be tricky to confirm. If the symptoms strongly align and your specialist believes surgery is the best course, then it may be worth pursuing. However, it’s also important to manage expectations-tinnitus may not fully disappear even if the surgery successfully addresses the underlying issue. Ultimately, the right decision is the one that feels best for you, based on the guidance of your medical team and how much the symptoms are affecting your quality of life. If you’d like, I’d be happy to share some strategies to manage tinnitus alongside whatever medical treatment path you choose. Wishing you all the best as you move forward-please don’t hesitate to reach out if you need support. Take care and happy holidays for you and yours, Frieder
Thanks Freider. I am seeing how it goes. They are pretty sure it's a Perilymph Fistula but he won't know until he explores. The thing to remember is the surgery isn't permanent, typically it lasts until about 4 years. I'm worried about having to re habituate, but at the same time I'm hopeful it might solve at least the hyperacusis. He said 80-90% success rate for hyperacusis but not so successful for tinnitus. I'm still undecided. @@tinnituscoachfrieder
Do you think im doing the right thing by trying surgery for possible Perilymph Fistula or do you think im wasting my time? 😢
Hi Emma, sorry for my delay in response.I thought about how to best address this and came to a conclusion ;)
While I’m not a medical doctor, I can understand how difficult it must be to make this decision. Surgery for a potential perilymph fistula is a big step, and there are definitely important factors to consider.
It’s worth ensuring that your doctor has a high level of confidence in the diagnosis, as perilymph fistulas can be tricky to confirm. If the symptoms strongly align and your specialist believes surgery is the best course, then it may be worth pursuing. However, it’s also important to manage expectations-tinnitus may not fully disappear even if the surgery successfully addresses the underlying issue.
Ultimately, the right decision is the one that feels best for you, based on the guidance of your medical team and how much the symptoms are affecting your quality of life. If you’d like, I’d be happy to share some strategies to manage tinnitus alongside whatever medical treatment path you choose.
Wishing you all the best as you move forward-please don’t hesitate to reach out if you need support.
Take care and happy holidays for you and yours,
Frieder
Thanks Freider.
I am seeing how it goes.
They are pretty sure it's a Perilymph Fistula but he won't know until he explores.
The thing to remember is the surgery isn't permanent, typically it lasts until about 4 years.
I'm worried about having to re habituate, but at the same time I'm hopeful it might solve at least the hyperacusis. He said 80-90% success rate for hyperacusis but not so successful for tinnitus. I'm still undecided. @@tinnituscoachfrieder
Why does my tinnitus spike every fourth day?