Thank you so much Captain Jack. My 19 yo daughter has epilepsy as a result of a brain tumor and it’s been a long process in just the 18months since her 1st seizure. I can’t imagine 12 Years of uncertainty but am so grateful you’ve opened up here. Ps - my husband is also a Marine! Semper Fi!
I got diagnosed with my first episode in 2019 and it's continued every day since then. It started with a viral fever. I lost all my memories due to the treatment that doctors gave me. I was in ICU for 40 days. I lost my job & became dependent on my family.
Army veteran here, served in Iraq. Been having seizures since May 2020 9 yrs after discharge from the army. My neurologist keeps asking about TBI , but I'm unaware of such their have been blast mostly controlled det's but still strong enough to feel it in your body,and or rip the doors open on your living quarters. Then ask me about toxic exposure I do know about there were burn pits , and they would release all kinds of dioxins, fumes and other particulate matter. That's really where I think these seizure attacks I started having came from, never have siezures before in my life , not in childhood not in adolescence then start having the first seizures until after a few months of turning 39 years old. At onset they were generalized grand mal seizure with convulsions actually causing me to crash and destroy my vehicle I was actually driving when the first occurred, 4 months later after that accident I have another grand mal seizure, I was sitting in the chair have a conversation with my mother I turned towards her Direction and fell out the chair towards my right side immediately went into convulsions putting carpet burn on the side of my face and ripping my shirt. Seems like I have several types I can have them in my sleep, or have complex unawareness, most of time when I have a seizure I have no awareness or memory. Yep I know that not being able to drive feeling, see that's the hardest to deal with especially with my background being a commercial driver once and a driver in the military motor transport vehicle operator and material handler can't do any of those anymore, got to be ten years seizure-free before I can go OTR again. I can't even go 6 months just to be able to get regular license back, in the six months period I can have at least that many seizures 6 or more in that given time frame. I was tracking them at 4months then have one , now it can be less or have two a month, or have one seizure a month back to back for 4 months striaght. To me the pattern isn't really set. Just be aware of the seizure triggers. Good luck to you sir, captain Jack.
I think I have had a lifetime of seizures. Diagnosed at 51. After my husband found me have generalized seizures in bed still took a couple years to capture a seizure at EMU. I wrongly thought I was quirky and saw the world with an artist's eye and a poet's heart. Media / movies have made a spectacle of epilepsy I thought only TC were a seizure. As so newly diagnosed my family is struggling emotionally.
My having Tonic-Clonic seizures in college ended up allowing me to be treated for untreated absence mals that I had since childhood. I was misdiagnosed as an inattentive student. Now I take medication that has eliminated all my various types of epilepsy I was having. I have no side effects. I am quite thankful that my malady has been dealt with quite effectively but I do wonder if my undiagnosed absence mals made my early education more difficult than was necessary. Regardless, I’m not a resentful person but very appreciative.
Since CURE Epilepsy’s mission is focused on epilepsy research, we do not have clinical health professionals on staff to provide individual medical advice.
Thank you so much Captain Jack. My 19 yo daughter has epilepsy as a result of a brain tumor and it’s been a long process in just the 18months since her 1st seizure. I can’t imagine 12
Years of uncertainty but am so grateful you’ve opened up here. Ps - my husband is also a Marine! Semper Fi!
I got diagnosed with my first episode in 2019 and it's continued every day since then. It started with a viral fever. I lost all my memories due to the treatment that doctors gave me. I was in ICU for 40 days. I lost my job & became dependent on my family.
Army veteran here, served in Iraq. Been having seizures since May 2020 9 yrs after discharge from the army. My neurologist keeps asking about TBI , but I'm unaware of such their have been blast mostly controlled det's but still strong enough to feel it in your body,and or rip the doors open on your living quarters. Then ask me about toxic exposure I do know about there were burn pits , and they would release all kinds of dioxins, fumes and other particulate matter. That's really where I think these seizure attacks I started having came from, never have siezures before in my life , not in childhood not in adolescence then start having the first seizures until after a few months of turning 39 years old. At onset they were generalized grand mal seizure with convulsions actually causing me to crash and destroy my vehicle I was actually driving when the first occurred, 4 months later after that accident I have another grand mal seizure, I was sitting in the chair have a conversation with my mother I turned towards her Direction and fell out the chair towards my right side immediately went into convulsions putting carpet burn on the side of my face and ripping my shirt. Seems like I have several types I can have them in my sleep, or have complex unawareness, most of time when I have a seizure I have no awareness or memory. Yep I know that not being able to drive feeling, see that's the hardest to deal with especially with my background being a commercial driver once and a driver in the military motor transport vehicle operator and material handler can't do any of those anymore, got to be ten years seizure-free before I can go OTR again. I can't even go 6 months just to be able to get regular license back, in the six months period I can have at least that many seizures 6 or more in that given time frame. I was tracking them at 4months then have one , now it can be less or have two a month, or have one seizure a month back to back for 4 months striaght. To me the pattern isn't really set. Just be aware of the seizure triggers. Good luck to you sir, captain Jack.
I think I have had a lifetime of seizures. Diagnosed at 51. After my husband found me have generalized seizures in bed still took a couple years to capture a seizure at EMU. I wrongly thought I was quirky and saw the world with an artist's eye and a poet's heart. Media / movies have made a spectacle of epilepsy I thought only TC were a seizure. As so newly diagnosed my family is struggling emotionally.
Amazing and needed informational program. I understand some of what i have and am going through for years. appreciate and respect what you do.
My having Tonic-Clonic seizures in college ended up allowing me to be treated for untreated absence mals that I had since childhood. I was misdiagnosed as an inattentive student. Now I take medication that has eliminated all my various types of epilepsy I was having. I have no side effects. I am quite thankful that my malady has been dealt with quite effectively but I do wonder if my undiagnosed absence mals made my early education more difficult than was necessary. Regardless, I’m not a resentful person but very appreciative.
Captain Jack ❤ Sry I’m a Dr. Who fan and i love this reference (if intentional)
are you a doctpr
Since CURE Epilepsy’s mission is focused on epilepsy research, we do not have clinical health professionals on staff to provide individual medical advice.
Doctor* At Least Not Yet, It's All Focused On Epileptic Seizures