The Untold Stories of Sickle Cell Disease Part 2

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  • Опубликовано: 5 окт 2024
  • Giving a voice to people whose stories have gone untold. Dr Kumar, a global health physician and photographer, is sharing inspiring images and stories from around the globe to raise awareness for sickle cell disease and help change how the world sees it. Learn more www.notalonein...
    © 2020 Novartis AG
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Комментарии • 14

  • @Tlodiie
    @Tlodiie 4 года назад +10

    Proud to be part of these amazing warriors! We’ll fight against sickle cell everyday and never give up. 💪🏽

    • @DennisBPraise
      @DennisBPraise 2 года назад

      I am too 🥺

    • @MirageUchiha
      @MirageUchiha 2 года назад +1

      Ditto.
      _Us Sickle Cell Warriors are fighting the good fight! 💪🏾_

  • @Sylvia-op2jd
    @Sylvia-op2jd 3 года назад +2

    Disclosure and acceptance really helped me with my sickle cell journey.Am so encouraged to see that am not alone

  • @sisterstogether2272
    @sisterstogether2272 2 года назад +1

    We appreciate your perspectives and the warriors you have honored in your "Untold Stories of Sickle Cell Disease" . I am encouraged by the strength each person presents. I am also inspired by the truth you portray by showing that Sickle Cell is not a African only disease. We admire the information shared by patients. That over all is the most valid, information shared by those affected and impacted. Much Love!

  • @MirageUchiha
    @MirageUchiha 2 года назад +2

    _This Sickle Hell won't defeat us Sickle Cell Warriors! 💪🏾_

  • @durgakrishnasharma3479
    @durgakrishnasharma3479 4 года назад +3

    They are tollerating so much pain but theire smile says they are not loser they are warrior and winner

  • @bettynankya3661
    @bettynankya3661 3 года назад +1

    My love and prayers to all warriors (sickle cell) u didn't not choose to be born with the disease but just happened may the good lord keep you strong and free from the pain.

  • @orishabaprossyodinga8711
    @orishabaprossyodinga8711 2 года назад

    WOW. You are not alone,we are together and we can fight over sickle cells

  • @amitgarg6529
    @amitgarg6529 3 года назад +1

    Me and my little sister also going through...its been 6 months to my sister suffering severe pain...see cant even move from bed because she has severe pain in waist plz suggest me

  • @sanjaysahu26495
    @sanjaysahu26495 3 года назад

    I'm 25 year old and form Chhattisgarh,india. N I'm one of them. Feel so much pain. My spelen has been remove.
    How can i live normal life ? Please suggest 🙏

    • @Novartis
      @Novartis  3 года назад

      ​​Thank you for your comment. Unfortunately, regulations prevent us from offering personalized medical advice, diagnoses, or treatments. We recommend you consult a physician who is best positioned to advise you on treatment options.

    • @sisterstogether2272
      @sisterstogether2272 2 года назад

      One of the young ladies put it quit good. She said, she doesn't let it dictate her life. It is so important to know the disease, but also know your body and triggers. I am a 55, God willing...56 this April year old Christian woman, who number 1. trust in God's word that no matter what happens, Jesus is with me. So, I don't fear Sickle Cell. But I don't take it for granted either. I eat generally nutrientally. I drink a lot of water. Dress according to the weather. I live in a cold weather area, so I literally at times have to wear turtle necks even when other around me enjoy short sleeves. Also, I have to watch too much hot days. I have too stay hydrated. Everything is planned. I can't overly exercise, can't have too many things with caffeine because that is a de-hydrant. So you really must educate yourself as well. Peace and love

  • @bengy7553
    @bengy7553 2 года назад

    Stay up on organic citrus fruits