Everything addressed but the severity of headaches associated with IIH and pain management, as usual. The worst thing about IIH for me is that I have 24/7 headache, that sometimes becomes so excruciating it makes me throw up
I noticed that if I don't have a headache, I got ringing in the ear instead. Pretty strange condition. I got double vision. I'm sure I got it from looking at my phone for too long. It started with sinus and ear infections. I believe it came from poor nutrition and yeast infections. I didn't go to the doctor. I just pray and do intermittent fasting and running twice a day as a form of exercise. Drinking water a lot helps. I thought it was TMJ and vertigo. I'm glad the tinnitus is getting low sound and sometimes I don't hear it anymore. Trust your body to heal. Avoiding gluten, wheat, peanuts, sugar, dairy and all junk foods. Praying for everyone's healing to happen. I'm 56 years old. I got the symtoms 2 years ago when my both parents died from covid and I can't travel to see them. 😢
I do have a swooshing noise in my ear, hearing loss, pounding and pressure filled headaches every day. It's definitely affected my quality of life. I haven't felt all that great for years. After reading an article and watching this. I can't prove it but this sounds like me.
I have every symptom including severe swooshing and pulsatile tinnitus which doesn’t allow me to sleep at all some nights and I have nausea a lot as well , I have MS and this was found on a MRI to find I have empty sella but nobody listens to how I’m feeling and my severe tinnitus not just ringing in my ears and the doctor said don’t we all have tinnitus and I said no not the type I’m having it’s severe heart beating in my ears worse at night but this severe pain in my right ear is 8-10 level of pain? I also have Hashimoto thyroiditis and mixed connective tissue disease and am positive for ANA and my titers are 1:80 with a specked pattern so I also have lupus rashes kidney disease so I believe I have not cutaneous lupus but SLE my cognitive function is declining my hearing is decreasing my vision compromised blurry and double at times neck pain ear pain is bad heart pounding in my ears and head I’m suffering so bad .
Was diagnosed about a year ago, although it took about 6 years for one doctor to catch it. Glad they found it. However. No relief. Still in terrible pain. Currently been having severe pain since last Tuesday. Started with back pain near spine that travels down the shoulder and tight arm, was seeing a orthopedic, didn’t think nothing of it, until after going to physical therapy and it bought on the headaches that had been u bearable and non relieving and researched that IIH cause cause pain in the spine so now thinking they can be related
Everything addressed but the severity of headaches associated with IIH and pain management, as usual. The worst thing about IIH for me is that I have 24/7 headache, that sometimes becomes so excruciating it makes me throw up
I noticed that if I don't have a headache, I got ringing in the ear instead. Pretty strange condition. I got double vision. I'm sure I got it from looking at my phone for too long. It started with sinus and ear infections. I believe it came from poor nutrition and yeast infections. I didn't go to the doctor. I just pray and do intermittent fasting and running twice a day as a form of exercise. Drinking water a lot helps. I thought it was TMJ and vertigo. I'm glad the tinnitus is getting low sound and sometimes I don't hear it anymore. Trust your body to heal. Avoiding gluten, wheat, peanuts, sugar, dairy and all junk foods. Praying for everyone's healing to happen. I'm 56 years old. I got the symtoms 2 years ago when my both parents died from covid and I can't travel to see them. 😢
I do have a swooshing noise in my ear, hearing loss, pounding and pressure filled headaches every day. It's definitely affected my quality of life. I haven't felt all that great for years. After reading an article and watching this. I can't prove it but this sounds like me.
Get your blood pressure checked a few times...i had your symptoms and it was my blood pressure
@@chrissyk3783 Thanks for the suggestion! I'll keep that in mind for future appointments!
@@aleshapeters Hope you feel well soon!
@@chrissyk3783 Thanks a ton. If anything ever changes, I'll update my comment.
IIH since 2000...thanks to the Neuro Fellow at UCSF I finally got a VP shunt in that changed my life...after 6 failed LP shunts..
I have every symptom including severe swooshing and pulsatile tinnitus which doesn’t allow me to sleep at all some nights and I have nausea a lot as well , I have MS and this was found on a
MRI to find I have empty sella but nobody listens to how I’m feeling and my severe tinnitus not just ringing in my ears and the doctor said don’t we all have tinnitus and I said no not the type I’m having it’s severe heart beating in my ears worse at night but this severe pain in my right ear is 8-10 level of pain? I also have Hashimoto thyroiditis and mixed connective tissue disease and am positive for ANA and my titers are 1:80 with a specked pattern so I also have lupus rashes kidney disease so I believe I have not cutaneous lupus but SLE my cognitive function is declining my hearing is decreasing my vision compromised blurry and double at times neck pain ear pain is bad heart pounding in my ears and head I’m suffering so bad .
Was diagnosed about a year ago, although it took about 6 years for one doctor to catch it. Glad they found it. However. No relief. Still in terrible pain. Currently been having severe pain since last Tuesday. Started with back pain near spine that travels down the shoulder and tight arm, was seeing a orthopedic, didn’t think nothing of it, until after going to physical therapy and it bought on the headaches that had been u bearable and non relieving and researched that IIH cause cause pain in the spine so now thinking they can be related
Does this affect blood sugar and blood pressure readings?
I have a CSF Leak now, my IIH was never caught correctly. 😭