My BFF with Down Syndrome (Life as an Adult with an Extra Chromosome)

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  • Опубликовано: 8 фев 2025
  • Kayla is diagnosed with Down syndrome and is the first registered lobbyist who has an extra 21st chromosome. She also has a natural energy that makes every person she encounters feel like an old friend.
    Kayla and I met at a leadership course at MIT in 2019 and knew each other for a few months prior to this interview being filmed. This video was filmed in 2019.
    Connect with Kayla at / mckeonkay
    SBSK Patreon: / sbsk
    SBSK's Socials:
    / specialbooksbyspecialkids
    / chrisulmer
    / specialbooksbyspecialkids
    / sbsk

Комментарии • 157

  • @natanoodle3303
    @natanoodle3303 3 года назад +106

    She's so wise, her vocabulary is excellent! She seems like a cool person to talk to.

    • @poopdick69
      @poopdick69 Год назад

      Maybe because she's 30.

    • @poopdick69
      @poopdick69 Год назад

      *and you're infantilizijg her

    • @natanoodle3303
      @natanoodle3303 Год назад

      @@poopdick69 didn't know calling someone smart and saying that they have proper vocabulary is equivalent to treating them like an infant.... you wouldn't be saying anything if she didn't have down syndrome, so in reality YOU'RE the one whose treating her differently.. I'm just complimenting someone.

    • @natanoodle3303
      @natanoodle3303 Год назад

      @@poopdick69 your point? Stupidity has no age limit.... Obviously 😂 all I was saying is that she's a bright individual which would have stayed the same regardless. Go after someone whose actually being a bully, I'm not going to stop complimenting someone because their 30 and have down syndrome. I'll treat her exactly how I treat everyone else, thank u.

  • @Metalbabilicious
    @Metalbabilicious 3 года назад +122

    Damn she is deep! What an incredible individual. Anyone that has her as a friend is blessed!

  • @jeflang
    @jeflang 3 года назад +74

    What a wonderful, articulate woman making a great impact on the world! Rock on, Kayla!

  • @escott9099
    @escott9099 3 года назад +26

    Kayla, if you see this, you are so driven and determined! The lobbying work you've done is awesome.

  • @MissCarlyJoy
    @MissCarlyJoy 3 года назад +15

    The amount of comments of every video within the past month blows my mind. There is so much love and beauty even in the midst of darkness. Amazing channel!

  • @shonda87
    @shonda87 2 года назад +9

    Kayla, as a new mama to a baby with Down Syndrome I want to thank you ❤️. Thank you for sharing part of yourself in this interview and thank you for being an inspiration to so many.

  • @ginaandseason2774
    @ginaandseason2774 2 года назад +22

    Kayla you just made 3.2 million friends..we are all sending vibes into the universe for that boy..girl..husband and dog!

    • @ishandhotkar9974
      @ishandhotkar9974 25 дней назад

      Bingo! You hit it right. Lots of love and care for her. ❤

  • @Kai-eb1fv
    @Kai-eb1fv 3 года назад +53

    Her saying her dad is high energy and outgoing is great 😂 I bet those two have some fun times together! Those parents must be so proud, Kayla is really making an impact with her job

  • @blake4604
    @blake4604 3 года назад +8

    What a great lady! Such fun and a great conversationalist. It’s lovely to see her relationships with her parents and amazing to hear about the work she’s doing.

  • @rebeccabarnett2907
    @rebeccabarnett2907 3 года назад +10

    She's adorable. This is one of my fav videos. She really made me smile.

  • @jesschappellable
    @jesschappellable 3 года назад +6

    These mothers are beyond compassion - they are also incredible!

  • @BarbieSasquatch
    @BarbieSasquatch 2 года назад +43

    I had a son who also had Trisomy 21 and this just warms my heart. ♡ He sadly passed at 10 days old due to necrotizing enterocolitis but I still feel a connection to Downs people. ♡

    • @willow_jayde
      @willow_jayde 2 года назад +1

      They had a lawsuit for that miss. Lots of baby's passed bc of infant formula from e-colitis. Might check into that. Get baby boys name on their so they have to acknowledge the heartbeat they took away from him too. Some moms don't want the $ they just want them to take responsibility for they did.

  • @jullecours8324
    @jullecours8324 3 года назад +52

    Kayla, you remind me so much of Leslie from parks & rec!! you have such fun energy :) I hope if you see this you're having a great day!

  • @emilylockett814
    @emilylockett814 3 года назад +12

    Awe, what an amazing person she is.. Anyone would be lucky to have her as a friend ..

  • @debwoods3831
    @debwoods3831 2 года назад +2

    Absolutely nothing holding this sweetheart back! She’s awesome!

  • @coryward9537
    @coryward9537 3 года назад +4

    I have the up most RESPECT for this guy for sure..truly genuine human being.

  • @lisaerickson6533
    @lisaerickson6533 3 года назад +3

    What an amazing, positive, expressive woman! Girl, you've got it going on! Continue to enjoy life, setting an example and making a difference!

  • @amphibeingmcshpongletron5026
    @amphibeingmcshpongletron5026 3 года назад +4

    She seems really fun to talk to! I'm sure she'll find someone special and make some more great changes in our society. Great interview.

  • @liquidlunch3826
    @liquidlunch3826 2 года назад +15

    She is absolutely gorgeous, smart,funny,on and on pretty close to perfect! I don't know her and I love her! Absolute rock star!

  • @DoUGotMusic
    @DoUGotMusic 3 года назад +31

    She would be an amazing comedian! I haven’t laughed so hard in a while.

  • @HanPlaysGames
    @HanPlaysGames 3 года назад +6

    what an amazing person she is, she deserves the best in life.

  • @abzd6535
    @abzd6535 3 года назад +20

    The thing she had to work at becoming efficient at: saying “Bangladesh” 😂 I love her

  • @williamlouca7905
    @williamlouca7905 3 года назад +9

    She's rlly articulate, I enjoyed hearing her speak alot. One love ✌️❤️❤️

  • @D-me-dream-smp
    @D-me-dream-smp 3 года назад +27

    If she ever wanted to change careers she would probably do well in acting. She so articulate, passionate and expressive. Smart too so I’m sure she’ll o well whatever she sets her mind to.

  • @syntheticteapot
    @syntheticteapot 3 года назад +7

    Well damn girl. I was expecting an impressive career just based on your dialogue with Chris alone, but those are some serious accomplishments and you're only in your early 30's!? You are still so young and you're going to find the one some day. You've clearly shown that you're determined and driven enough to accomplish things people like me dream of. I really hope that legislation goes through. I'm so glad you shared your story.

  • @Jesus.is.LordSavior4
    @Jesus.is.LordSavior4 3 года назад +148

    Her: I’m going to a bar
    Him: and what are you gonna do there?
    Her: drink..Duhh!!
    I love it 😂

  • @lissjae6325
    @lissjae6325 3 года назад +2

    Kayla is really smart and truly have a positive outlook about life..I hope she can find a good man that will love and take care of her .She’s an amazing lady..Go,Kayla!

  • @almendagggna
    @almendagggna 3 года назад +8

    she is so smart and so adorable at the same time 🥰 wanna be your friend, Kayla!

  • @darak4187
    @darak4187 2 года назад +1

    Kayla, you are an amazing woman. The world is a better place because you are in it! I really enjoyed your interview. Thank you for sharing your enthusiasm and joy with us.

  • @amyradbill1836
    @amyradbill1836 3 года назад +57

    Kayla, you are clearly a *rockstar* of a human being, not to mention a rockstar of a friend. I hope you get that marriage legislation passed-the current law is ridiculous, infantilizing, and lacking in compassion. Also: I think you’ll be an incredible mother to those two children you’re dreaming of.

  • @roderickgarcia2778
    @roderickgarcia2778 3 года назад +1

    Chris you're a real one. Loyalty is important

  • @SyDiko
    @SyDiko 3 года назад +5

    She is amazing, so fun and free. Most importantly she knows what she wants and will get it.

  • @sarah58197
    @sarah58197 3 года назад +4

    I’m so happy the comments are back!

  • @twistedcryptid
    @twistedcryptid 2 года назад +2

    Like some folks with Downs, she is VERY smart! It’s nice seeing people who defy the odds that are dealt to them. Wish her the best of luck in life, and looking forward to an update!

  • @marleenninaka1303
    @marleenninaka1303 3 года назад +7

    Hi everyone: It's so nice to see you all again on RUclips. I want to meet you all one day. Take care and stay safe.

  • @EFRAMB
    @EFRAMB 3 года назад +6

    What a wonderful person!

  • @MischaDitamparOma
    @MischaDitamparOma 3 года назад +1

    she sounds like such an awesome person to become friends with. her wits and her amazing job. she's smart but also looks fun to hang out with. I wish I have close friends like her. Need that kind of positive energy in my life

  • @krystalharwood6359
    @krystalharwood6359 3 года назад +4

    she seems so sweet!

  • @pbinsb3437
    @pbinsb3437 3 месяца назад

    Kayla is so awesome. She seems so adorable, loving, kind, intelligent, happy and quite accomplished for a young lady her age.This was posted 4 years ago and I would love an updated video to hear how she's doing.

  • @maggymay6999
    @maggymay6999 2 года назад +12

    In all honesty she is more intelligent then most people I've met and know.🙌 I love the Sunshine she expels 🥰🧚💖💃💐

    • @kimberlysevastyanenko3798
      @kimberlysevastyanenko3798 2 года назад +3

      She's very well spoken and together. Not surprised at all that she's got a successful career.

    • @JesusChrist-Gives-Eternal-Life
      @JesusChrist-Gives-Eternal-Life 2 года назад +1

      I almost can't believe she has Down's, especially after having worked with many in my life.

  • @trixxylee6918
    @trixxylee6918 2 года назад +4

    A great inspiration to my daughter with Down Syndrome❤️💕

  • @amywalsh4006
    @amywalsh4006 3 года назад +3

    "oh it did... I unleashed it. Fast and furious. I love you. You are hilarious!

  • @Nordchai
    @Nordchai 3 года назад +5

    this is just amazing!

  • @shayrajrani35
    @shayrajrani35 3 года назад +2

    So well spoken and easy going! Great gal ❤️❤️❤️

  • @GangeArtCom
    @GangeArtCom Год назад

    Your mother and dad are such cool people. They really love you!

  • @mariadigiorgio7440
    @mariadigiorgio7440 2 года назад +2

    Kayla, you are so lovely!!! You are beautiful on the inside and outside, fun-loving, sensitive and very accomplished!!! You are a role model for all!!!

  • @debbiekrieger81
    @debbiekrieger81 Год назад

    Wow, I am completely taken and impressed by Kayla. She is amazing!!!

  • @geoffreyjonathanwilson5826
    @geoffreyjonathanwilson5826 3 года назад +17

    Adorable person ☺️

  • @WeOutSlide
    @WeOutSlide 2 года назад +2

    you are doing gods work, I love these videos and how they can show how important it is to show love and attention to those who suffer from certain disabilities. we are all people and we share the same minds even if people don't think we are, were all the same

  • @coaciajohnson803
    @coaciajohnson803 3 года назад +3

    She’s amazing ‼️💗

  • @lucyii
    @lucyii Год назад

    I’m so inspired by this wise and strong woman!!!!!! The words she has to say about her parents is amazing and so uplifting!!!!! Yay! GO KAYLAAAAAAAA 💥 😊 ❤

  • @divyanarayaniyer4879
    @divyanarayaniyer4879 8 месяцев назад

    Wishing you the best Kayla. You are wonderful! ❤

  • @MrLink1701
    @MrLink1701 10 месяцев назад

    She shatters any myths about people with Down's syndrome not being intelligent. She is awesome and so very smart!!!

  • @karenmilford7809
    @karenmilford7809 Год назад +1

    I would love to be friends with Kayla. What a special soul and great personality. I bet she is a ton of fun, and an amazing friend. Love her 💗

  • @thomasloveless4800
    @thomasloveless4800 3 года назад +9

    “Go to the bar and drink…..” I’m down 100%, amen to that. That’s my kinda girl.

  • @hopep2282
    @hopep2282 3 года назад +1

    She is awesome 👏 thanks for sharing your life with us 😍

  • @chelsea7298
    @chelsea7298 2 года назад +1

    Kayla is so sweet I hope she’s going well

  • @Ap9leJacks-wy3pq
    @Ap9leJacks-wy3pq 2 года назад +1

    You go mamas. You’re so beautiful & so empowering! 💙💛

  • @olivedog1880
    @olivedog1880 3 года назад +5

    “I’m just doing my job” 🥰

  • @seducedbysasquatch
    @seducedbysasquatch 6 месяцев назад

    “Fast and furious” 😭 I love her, she’s so funny! Great sense of humor ❤️

  • @bling2life703
    @bling2life703 Год назад

    Truly amazing girl she really inspires me she is so gorgeous anyone would be truly blessed to have her in their lives. People need to understand that special people like her are what make the world wonderful places and I hope that everyone like her will follow their dreams and know that they have a very important role in life . Thank you sweetheart for inspiring me in my own life good luck with your future goals you will get there ❤❤

  • @thetanker1980
    @thetanker1980 3 года назад +7

    If I was ever rich I would definitely spend all my money on a foundation for people with downs. They treat people the way all the time the way we wished we treated people half the time.

    • @aceraphael
      @aceraphael 2 года назад +1

      Well I hope you become rich :)

  • @teffley2766
    @teffley2766 2 года назад +3

    People with down's are something special, because you know they worked 3x as hard as you have to get where they are in life. I think they should be admired, not ridiculed. THAT is the kind of determination that we all want to have, right?

  • @ThirdEye...
    @ThirdEye... Год назад

    She’s an amazing shining person!

  • @felicityatkinson
    @felicityatkinson 3 месяца назад

    An amazing interesting and intelligent woman. Such a warm personality. Xxx

  • @manavhirani
    @manavhirani 3 года назад +8

    OMG COMMENTS ARE BACKKK

  • @slsh2011
    @slsh2011 12 дней назад

    Excellent and very helpful questions asked.

  • @lala-gj4oo
    @lala-gj4oo 2 года назад +1

    she's awesome. i'd be her friend any day. you go girl!

  • @dandelion7313
    @dandelion7313 3 года назад +3

    i hope u find the perfect significant other that will enjoy ur bubbly personality every day

  • @Mchannelw
    @Mchannelw 9 месяцев назад

    She’s extremely intelligent, more so than I’d say most non-neurodivergent people her age. Having parents as supportive as hers I’m sure had a ton to do with it. I was so touched by how her dad described her. I feel like if my dad were asked to describe me, he’d use negative words and struggle to find something good to say.

  • @sunshine19601000
    @sunshine19601000 3 года назад +1

    She is so awesome!

  • @eliselaughlin1886
    @eliselaughlin1886 3 года назад +5

    Kayla u r such an amazing women. Good luck in all the u do.

  • @amyhurley5485
    @amyhurley5485 2 года назад +1

    Shes so smart i love her !!!

  • @ashleydelacuadra3826
    @ashleydelacuadra3826 3 года назад +2

    She's awesome omg I love her

  • @KylieRockow-s8r
    @KylieRockow-s8r Год назад +1

    I am a teenager girl that haves a learning disability and I do tell new friends that I have a learning disability, just to let them know that if they want to be my friend well they would have to understand what I am going through, but I don’t tell them right away I usually wait and get to know them and they can get to know me and then after being friends for a long time we’ll I can tell them or even sometimes a month, it really depends on the person. And I do feel bad for kids and teenagers and adults with disabilities because people can be so mean to them these days now and it just breaks my heart when people are mean to people with disabilities, people with disabilities it’s not there fault, they were just born with it.

  • @maggiepanning356
    @maggiepanning356 2 года назад +1

    What a remarkable woman!

  • @theresehastings9030
    @theresehastings9030 11 месяцев назад

    One amazing person Godspeed.

  • @NancyGarcia-op2kg
    @NancyGarcia-op2kg 3 дня назад

    You are such a beautiful soul thank you for being just you you really a blessing ❤️❤️❤️🙏🙏🙏

  • @Nonayabizness360
    @Nonayabizness360 Год назад

    Kayla you are an amazing beautiful woman and I am so proud of you. I hope all of your dreams come true ❤ sending lots of love and prayers from Michigan.

  • @Pearlsandchampagne
    @Pearlsandchampagne 3 года назад +4

    i love her !!!!! 😂😂❤️

  • @mikecampos5123
    @mikecampos5123 Месяц назад

    Kayla is awesome she deserves a good family and a dog Kayla's parents are awesome also God bless them all ❤️❤️❤️❤️❤️❤️🙏🙏🙏🙏🙏🙏

  • @sadieandbean
    @sadieandbean 3 года назад +5

    I want a friend like Kayla

  • @hannahwackernagle4716
    @hannahwackernagle4716 3 года назад +1

    she does have a point and she knows everything like she does and I am agree what she saiding about her life and be kind I think I like it

  • @bigmamastearns
    @bigmamastearns 2 года назад +1

    She is so awesome. I would love to be her friend too.

  • @singing.winnie
    @singing.winnie Год назад

    I love this family.. so much!

  • @twikiriizeclare2239
    @twikiriizeclare2239 3 года назад +3

    This lady is so intelligent🥰wao...we all wear a pant one leg at a time.thanks Chris for the good work

  • @countrygirl366
    @countrygirl366 22 дня назад

    Shes so smart and beautiful ❤❤❤

  • @toniabrown4376
    @toniabrown4376 2 года назад

    Kayla is a beautiful person

  • @RC-yg2gf
    @RC-yg2gf 3 года назад +1

    what an amazing lady 😄

  • @annmariedemonico8331
    @annmariedemonico8331 2 года назад

    I would totally hang out with her!!! I hope she finds someone who will treat her like the queen she is...

  • @stickitydoodah
    @stickitydoodah 3 месяца назад

    I know this is an old video, but i like her. She's cool

  • @nicoleanderson5704
    @nicoleanderson5704 3 года назад +1

    Shes so intelligent and beautiful 😍

  • @mikepeterson7175
    @mikepeterson7175 Год назад

    She’s awesome.

  • @blackbeautifulandsmart2849
    @blackbeautifulandsmart2849 5 месяцев назад

    What an amazing and beautiful young woman.

  • @sharoncurry6071
    @sharoncurry6071 2 года назад

    Chris you and Alyssa are my inspiration lenjoy watching Your videos on RUclips channel take care of yourselves and each other l have a disabilities l have anxiety and depression and l have osteoporosis in both of my knees l have to have 2 knee replacements soon.Have a healthy happy New Years God bless you all

  • @EvaDavies-y3q
    @EvaDavies-y3q Месяц назад

    She is so sassy people with Down syndrome are clever and Kayla is so clever and funny she made me laugh when I felt sad ❤

  • @tonisargent4695
    @tonisargent4695 2 года назад

    your a good women thats all that matters you have a pure heart

  • @tylergreene9025
    @tylergreene9025 3 года назад +7

    This girl is literally smarter than me lol

  • @louiseclark4732
    @louiseclark4732 3 года назад

    Very smart and loving.💗

  • @JonathanHernandez-mm3nd
    @JonathanHernandez-mm3nd 2 года назад

    May god be with Kayla.