Peter Rowe - Orthostatic Intolerance in EDS/HSD

Peter Rowe discusses orthostatic intolerance in Ehlers-Danlos syndromes and Hyprmobility spectrum disorders, in a webinar from December 19, 2018. Learn about how the circulatory system responds to upright posture in EDS, and how circulatory problems like hypotension, recurrent fainting, and rapid heart rate can influence the severity of symptoms (especially fatigue, lightheadedness, headaches, and cognitive fogginess) in EDS. This webinar discusses how to manage these problems with diet, postural maneuvers, and medications. The slides are available in PDF from bit.ly/2TBj1sZ

[@marina_m11]

Wonderful webinar, I learned so much! Thank you to Dr. Rowe & The Ehlers-Danlos Society for this important information. I will be on the lookout for the print out as well

[@SpectrumOfChange]

Dr Rowe is the best

[@CLove-mo7cc]

This has explained my condition completely

[@drnicolemeastmand.o.2974]

Thank you for this. I have Ehlers Danlos and Hypermobility, dysautonomia (positive tilt table test), etc., and a trigger event of getting hit by a semi-truck at 65 mph on 12/15/2010. All of the pieces are finally fitting together after seeking answers since childhood.

[@lAcedUpLiss]

Thank you so much for sharing this informative webinar. As someone diagnosed with EDS, POTS and MCAS I have found this information extremely helpful and look forward to sharing it with my GP and trying to implement the non-pharmacological solutions.

[@HeidiCullinan_Author]

This just radically changed my daughter's life and my own. We both have hEDS and have orthostatic intolerance which presents in different ways. Thank you so much!

[@slavkoputnik227]

This is extremely useful. Thank you.

[@Advocate.bettie]

Has dr. Francis Visser publish the low orthostatic tolerance research yet?

[@meri_soturi]

Great explanations and succinct information

[@perttiylenius]

Good webinar. Thank you very much. Many things confirmed the belief that we are on the right line with medication.

[@kengray1291]

How do we get a print out of this presentation, if one is available. Thank you Dr. Rowe & EDS Society!

[@dustyfeller]

13:40 No HR or BP changes but do have reduced cerebral blood flow. Therefore should respond to therapy. Dutch study.

[@ArayaLight]

This was amazing! I hope to get my pcp/ np to listen. They are clueless on how to help me.

[@wandaryan4250]

Need a support group, we live in Surprise, Arizona

[@misscazb85]

I been directed to this video from the Ehlers Danlos Syndrome Page on Facebook, really informative, would to love know how medication such as amatriplyn would affect with suspected POTs I have also got hEDS and Fibromyalgia

[@strengthinstripes5849]

What is it called when the HR and the BP spike severely when standing?

[@LaniBanani]

Okay trying dairy free and body shapers first. Thankyou!

[@divacassandra1]

slide at 36:56

[@lindajohnson668]

As a certified holistic health coach who loves learning about medical conditions and investigating natural wellness solutions for them, how would I be invited to attend these webinars live?

[@TheEhlersDanlosSociety]

They're webinars - all you have to do is sign up beforehand. They're announced in our newsletter, sign up through ehlersdanlossociety.dm.networkforgood.com/forms/connect-newsletter-sign-up, at our web site www.ehlers-danlos.com/webinar-schedule/, on our Facebook page, facebook.com/ehlers.danlos/, on Instagram @ehlers.danlos, and on twitter.com/TheEDSociety - the next is scheduled on January 30, more information soon.

[@ambertyler5844]

How do I get a print out?

[@TheEhlersDanlosSociety]

The slides are available in PDF from bit.ly/2TBj1sZ