LIVING WITH A RARE GENETIC DISEASE | MY JOURNEY WITH ALSTROM SYNDROME

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  • Опубликовано: 14 окт 2024

Комментарии • 93

  • @g_mae05
    @g_mae05 Год назад +3

    I’ve always been so grateful to be your friend Caleb. I remember in middle school when we first met, I was so happy to know that somebody else had come to KSB from eastern Kentucky too, and that was the first thing we bonded over. It felt so nice to not be so isolated, and I enjoyed when we could sit while the others did things outside. You were always so positive despite everything, and I always enjoyed listening to your funny stories and your Lego building show and tells at lunch. I’m so glad you’ve gotten your channel and are educating people, because I wouldn’t have ever known. Thank you so much for sharing ❤

    • @cdadams1004
      @cdadams1004  Год назад

      Thank you, Gracie. You are a good friend and I missed you when you left KSB. I hope I see you soon and our other friends and I hope you have a good time at school. Me and my mom might come there to see you some time and she can take us out to eat.

  • @kellycoldiron1051
    @kellycoldiron1051 Год назад +7

    Thank you guys so much for sharing your story with us! I love when Caleb said you were just trying to be a good mom! He is definitely right, you are the best mom!! ❤️

  • @KathyHunley-v6k
    @KathyHunley-v6k Год назад +3

    Caleb you are so strong!! Praying for you we have a nephew, he is 53 now and blind. He has Lawrence Bahl syndrome. Had 6 toes when born. He has a very strong mother too and a step dad who has been God sent. Praying for you

    • @cdadams1004
      @cdadams1004  Год назад

      Thank you!

    • @jodyminix429
      @jodyminix429 Год назад

      This is what they originally thought Caleb might have when we visited Cleveland Clinic.

  • @SoBricks
    @SoBricks Год назад +4

    I'm so glad I found your channel! Thanks so much for all you do. Caleb and mom, you are both incredible!

  • @EnhanceTheSeasonswithKaren
    @EnhanceTheSeasonswithKaren Год назад +3

    Caleb, you are a precious, amazing young man! You make your mommy so proud! Hugs sweetie!! Karen

    • @cdadams1004
      @cdadams1004  Год назад

      Thank you and thanks for watching, Karen.

  • @larahkendall1635
    @larahkendall1635 Год назад +3

    Thank you for sharing part of your story, Caleb. You continue to amaze me, even in the short amount of time that I have known you, with how you always continue to push through.

  • @tonysoames1369
    @tonysoames1369 Год назад +2

    That must have been a very difficult video to make, I knew at some point there would be tears. You are both so strong.

    • @cdadams1004
      @cdadams1004  Год назад +2

      Thanks for watching. Mom can never hold it together when she talks about me.

  • @jodyminix429
    @jodyminix429 Год назад +5

    Love you more than anything!

  • @MorganHicks-f9h
    @MorganHicks-f9h 9 месяцев назад +2

    Thank you for sharing this video, we are currently in the process of getting my 4 year old (104 lb 4+ft. tall) daughter diagnosed with Alstrom Syndrome, I have been trying to research as much as I can since with what we have so far but because ot is so rare i havent been able to fund much info. We have so many doctors appointments still in the coming new year, and its getting a bit overwhelming, i hope you continue to post, it would be very helpful to me and my family on this journey with our youngest. I am sorry your son has to deal with this aswell and i hope life is being kind to you guys, Thank you again !

    • @cdadams1004
      @cdadams1004  9 месяцев назад +1

      I'm glad you found this video. You can find my mom on Facebook and she can talk to you more - look up Jody Minix. She comments a lot on my Instagram posts and my Instagram is linked in the description box of my videos. I have a lot of appointments and it can be overwhelming. She is good to talk to about it all. I hope you all had a Merry Christmas!

  • @dedriacarpenter9895
    @dedriacarpenter9895 Год назад +3

    What a special pair you two are. You are inspiring to many. Love you!❤

    • @cdadams1004
      @cdadams1004  Год назад

      Thank you so much! We love you, too.

  • @alanemilybuskirk2645
    @alanemilybuskirk2645 3 месяца назад +1

    Such a wonderful team together. Nothing like the love for your child.

  • @Kbrook11
    @Kbrook11 Год назад +2

    I know you know Caleb, but you’ve got a great momma. Thank you for sharing with us.

  • @Tokillabambi
    @Tokillabambi Год назад +3

    Keep it up man, you're doing incredible things! I was just diagnosed with Autism, adhd, and ocd this year at 30 years old, and have been struggling to cope. Watching your videos keeps me staying positive!

    • @cdadams1004
      @cdadams1004  Год назад +1

      That's very kind of you to stay. Just take it one day at a time.

  • @lauren.237
    @lauren.237 Год назад +3

    Thank you for sharing all this information it takes so much courage from both of you to do this. You are truly my super heros.

    • @cdadams1004
      @cdadams1004  Год назад

      Thanks so much for watching it. You're my hero for putting up with Uncle Curt.

  • @David-Brick-film
    @David-Brick-film Год назад +3

    Love the thumbnail and stay strong always enjoy ur day with a smile 😊

    • @cdadams1004
      @cdadams1004  Год назад +1

      Thank you. I do my best to always be positive.

  • @LibbyAbell
    @LibbyAbell Год назад +2

    Caleb, you are awesome….and Jody, you are remarkable. A true definition of a mother’s love. You two make a great team. Keep on doing exactly what you are doing. God bless you both. ❤❤

  • @armyofone8537
    @armyofone8537 Год назад +1

    You guys are strengthened from GOD. I’m praying for you both. Much love Caleb! You’re awesome.

  • @LaurenPrather-m6r
    @LaurenPrather-m6r Год назад +2

    Keep fighting you two! You’re doing an amazing job Jody! Praying for y’all and hoping a billionaire sees this and finds all the things for y’all!

    • @cdadams1004
      @cdadams1004  Год назад

      That was nice. I hope if a billionaire finds me they take me and my mom to Paris with them on their next vacation. Or, to the Plaza so I can be like Kevin in Home Alone. ha ha

  • @PaulaHall-c8u
    @PaulaHall-c8u Год назад +1

    This video has had me in tears 😢 Caleb is such a sweet and special young man that I love very much ❤️. Jody, you are a true inspiration to us all. Continuing to pray for the both of you ❤️🙏🏻.

  • @jillhoward-o8e
    @jillhoward-o8e Год назад +2

    I just watched and am so emotional. Caleb has always been so special and has the best heart. He has also been blessed with the best mother. I pray Caleb continues to be able to do the things he loves for a very long time. Bless you both ❤

    • @cdadams1004
      @cdadams1004  Год назад

      Thank you, Mrs. Howard. My mom keeps crying too because she said she will be messed up for a few days now but I've just been watching my shows.

  • @GuccieSk8ter
    @GuccieSk8ter 4 месяца назад +1

    Praying for this beautiful family 🙏

  • @nicolemb105
    @nicolemb105 5 месяцев назад +1

    Thanks for sharing. You had me crying too. I love Caleb’s positivity and mom you are doing an amazing job!

  • @xxxxxxxxxx166
    @xxxxxxxxxx166 Год назад +1

    I love watching your videos. You two are so special and sweet. I felt every word you spoke, and wish you were local to me so I could offer my help. Jody, you're a wonderful mom, and Caleb, you're a spectacular son. Continue being each other's favorite people, and please continue to share your lives with all us fans. Big hugs! ❤

    • @cdadams1004
      @cdadams1004  Год назад

      Thanks for saying such kind things and thanks for watching.

  • @JamieHelton-kz8bm
    @JamieHelton-kz8bm Год назад +2

    We love you so much, sweet boy. Always praying for you and your amazing mama ❤️

    • @cdadams1004
      @cdadams1004  Год назад

      Thank you, Aunt Jamie. And I love you and Uncle Brian and my cousins.

  • @PlayerPlayz69
    @PlayerPlayz69 Год назад +3

    2nd missed your posts

  • @scrappedbits
    @scrappedbits Год назад +1

    I stumbled across your channel today and this video has touched me deeply. You both seem like such lovely people and I just can’t stand that you have to deal with this. I have had a couple of close family members that had serious health issues and it took a lot of strength to get through and to just continue to keep going. I can feel the love you have for each other coming through these videos and am so glad you have each other.
    I hope that you both can have a bright and happy future. I can’t wait to watch the rest of your videos now. Thank you for sharing all of this with us. I was crying along with you at the end.

    • @cdadams1004
      @cdadams1004  Год назад +1

      Aww..thank you for the kind words. It is a difficult time, but we get through it. I'm in the hospital right now for the fifth time this year, but this comment cheered me up. I hope you enjoy my videos. I try to do at least one LEGO video each week and one that's different (either a Taste Test Tuesday or vlog).
      Thanks for being here.

  • @StefanieHunter-Hammonds-gk6ym
    @StefanieHunter-Hammonds-gk6ym Год назад +4

    You’re Awesome

  • @OGMrEverything
    @OGMrEverything Год назад +2

    Dude you are amazing, I will pray for you

  • @LidaWireman
    @LidaWireman Год назад +1

    Thanks for sharing your story! I can see the love you two have for each other. Caleb you are an awesome young man, with an incredible mom! Love and prayers for both of you❤️

  • @bretttyner2796
    @bretttyner2796 8 месяцев назад +1

    Caleb is such a strong, amazing, and courageous young man. May God bless and protect you both in this journey that you are on.

    • @cdadams1004
      @cdadams1004  8 месяцев назад

      Thank you so much. I appreciate it.

  • @TabathaMann-s1z
    @TabathaMann-s1z Год назад +1

    I love you both so much. Aunt Tabby will take a while for this one to settle within me. My heart just loves you guys so much!!

  • @cpalmer3
    @cpalmer3 20 дней назад +1

    Really cool video buddy! Stay well ❤️

  • @silentsmysound4040
    @silentsmysound4040 Год назад +1

    You both make such a great team

    • @cdadams1004
      @cdadams1004  Год назад +1

      Hope it helps someone. Thanks for watching!

  • @XianneTV
    @XianneTV Год назад +2

    hello! God Bless you always! keep inspiring us and sharing great content! good day!

  • @Maryannrowe
    @Maryannrowe Год назад +2

    BLESS, I love you both! ❤️

  • @feliciaestep297
    @feliciaestep297 Год назад +2

    Love you two!!

  • @JosephSnodgrass
    @JosephSnodgrass 8 месяцев назад +1

    Prayers for you, Caleb!

  • @SerNiyogi117
    @SerNiyogi117 Год назад +1

    You guys are so strong and amazing!

  • @TeresaHolbrook-x1x
    @TeresaHolbrook-x1x Год назад +1

    Granny loves you both so much

  • @gretemariemolaug2559
    @gretemariemolaug2559 2 месяца назад +1

    My praiers go to u, Caleb and to your lionmama❤🙏

  • @thomas1971ish
    @thomas1971ish Месяц назад +1

    Are hearts are with y'all we know what you are going through we are in ky about 130miles from Louisville. We have to come to Louisville ever so often to the U of L health. If there is anything we can do please let me know. We will do what we can

  • @ashleyjustice9150
    @ashleyjustice9150 Год назад +1

    Caleb, you are amazing and you have the best mom! She takes such good care of you and loves you so much. ❤You’re both an inspiration, that’s for sure. Lifting you up in prayer.

  • @viviancrump9476
    @viviancrump9476 8 месяцев назад +1

    Thank you for sharing.

  • @TeresaHolbrook-x1x
    @TeresaHolbrook-x1x Год назад +1

    Gran loves you bunches

  • @TeresaHolbrook-x1x
    @TeresaHolbrook-x1x Год назад +1

    I know this was hard to share

  • @TeresaHolbrook-x1x
    @TeresaHolbrook-x1x Год назад +1

    I hate this horrible disease with everything in me