Thank you! Your explanation of why my pubic bone hurts is the first time I’ve heard anybody that makes sense! Thank you so much! It almost feels like spasms, shooting pains and then it’ll calm down and then it’ll come back and I do believe that it is coming from my spine I think everything is out of alignment so I will be seeing my chiropractor. 🤗
Something to keep in mind for patients and doctors is that this separation can occur without any trauma in people with connective tissue diseases. I’m almost able to walk around my house again with an SI belt cinched very tight after my doctor, who has EDS herself, was able to realign and close my gap by several inches. Still more inches to go, but I was having such severe nerve pain that we thought I had cauda equine syndrome and I was in the emergency room the night before. It affected my bladder and I couldn’t sleep without icing my pubis and thighs. Thankfully I don’t have CES, but I was born with tethered cord and now it’s very hard to tell if symptoms are coming from the tethered spine pulling on and dislocating my coccyx or the dislocations at the SI joints, pubic symphysis, and left hip dislocating the coccyx and therefore pulling on the spine. I don’t want to go for detethering surgery when my symptoms may actually be entirely from all my pelvic instabilities. I’m currently 2 months post-op from emergency C0-C2 fusion because I nearly internally decapitated, my skull slid back into my brainstem, stopping my respiratory drive, paralyzing my arms and legs, and causing my transient ischemic attacks to progress to strokes. Thankfully I already had an EDS-literate neurosurgeon and I was airlifted cross-country for immediate surgery and I’m happy to say that the arm and leg paralysis is gone, I haven’t had a single TIA, and I’m breathing on my own! Again my ligaments failed due to my genetic condition, no traumatic event. So if you’re hypermobile, it can be worth finding knowledgeable PTs and MDs who can help you correct instabilities and preserve your spine and peripheral nervous system. I wish I’d known years ago! I probably could have avoided my head basically falling off.
Omg im NOT crazy? I have ehlers danlos and this condition. Walking is extremely painful for me. Pt has. NOt helped. Its also affecting my lumbar spine as well. 😢
@@SobrietyandSolaceI was genetically confirmed to have classical ehlers danlos and that's what happened to my. Ps joint in the pelvis and the AC joint in my left shoulder.. it completely seperated 😢
@@grettagrids Oof I’m sorry! I’m still no closer to being diagnosed even though I literally have a copy of the criteria with everything I have on it crosses off. I’ve been to 3 different rheumatologists, paid for my own genetic testing but none of them want to call it conclusively. I ended up with a bunch of variants of unknown significance for brittle cornea syndrome and I do have ocular issues. I am trying to save up for a geneticist but spending all of my disability on bills because my boyfriend is broke.
I was hit by a car in 1985. Had a 9" separation of my pubic symphysis. NINE-INCHES. That's giving-birth sideways. And I'm a guy! Fortunately, (from a pain-perspective) I was also unconscious. (comatose, about 6-weeks) UNfortunately, I "blew a stress-ulcer" before I was to have a pelvis-plate attached to close my diastasis.(sp?) So I've been living for 34-years with a 2-3" separated pubic symphysis. (Hoffman-bars were drilled at the time of the incident / not accident / since it was a hit-and-run) Another "blessing" of my brain damage (OMG - my computer almost exploded having that irony typed on it!) is that I've spent about 2/3-time of those 34 years in a w/c. (brain damage = balance & coordination troubles, amputation mandates a prosthetic which needs constant adjustment so I use w/c) But, returning to the vid, I'm glad for UTube. Adds to my understanding.
Hi Dr, I have pain in the pubis symphysis, according to a MRA I did there is no separation but I have a tear in both hip labrum, and sometime the pain travels to the pubis area and also have inflammation in my SI joints, When im sitting in the sofa I have a wedge so I can recline and I put a small pillow under the knees....Do you consider this position is safe or it will make the problem worse for my condition? Thanks for your help!
thank you so much for explaining this problem. I know now why it is happening to me. I am not pregnant I am 78 years old and I have a pelvis tilt that seems to be stuck.
I was diagnosed with Pubis Diastasis during my 3rd trimester in December2018. This was the worst pain I have EVER felt in My life. 😥 It was definitely a traumatizing experience. I'm genuinely afraid to ever get pregnant again. I had two children before my last child and those pregnancies where nothing compared to the experience this last pregnancy brought me. Fr. Just the thought of reliving this over again scares me to death.
I’m curious to know how you are doing now and if you have delivered your baby? I just had my third child and never experienced this with any of my pregnancies. However, after I delivered my son, I was unable to walk and in excruciating pain. He is now a week old, and I feel somewhat better, but can only take a few steps on a walker while putting all of my body weight on my arms. The doctor that delivered my son said it would just take time to heal. I hope it heals completely and I will be back to normal again. If this would have happy I me with my first child I don’t think I would ever of had anymore children, so I know what you mean when you say you don’t think you would ever want to be pregnant again.
Hi Dr my wife gave birth last 2 months and still now can’t really walk ATM due to that pubis separation as the doctor said it’s been separated and they do nothing about it. I keep knocking them about my wife not feeling well and they said use something stretch material to bind her hips and now it’s getting worse..could you help pls?
And by the way I am not pregnant or in postpartum, that was eons ago for me I am in my early 70s. But is a recent occurrence with this pubic bone hurting most the time is dull but when I lay on my back and press on a certain spot on the right side it’s very sharp pain. Any other revelations you can share with me would be greatly appreciated!
I'm a guy and I got diastasis there due to motorcycle accident. Its painful to walk, to lift heavy objects, to climb the stairs even carrying a backpack could be painful! Drs said I need to live with it for the rest of my life 😢
I was bed ridden in hospital for 3 months in morphine daily due to this I had to have a c section I hant fully recovered my coccyx cracks and I still get terrible pains it’s better than what it was but I have permanent chronic pain from my pregnancies
I am on my 15th weeks pregnancy I have started feeling pain on my pubic bone on early since last 4 weeks. Sometimes I feel inflammation on my right hip joint. I can't take big step, unable to put on trousers and unable to make move during my sleep. Please suggest how to cure this !! 😔😑
I’m 28 weeks pregnant been having this issue past weeks my right leg 🦵 is the most painful I can’t barely walk and I can’t stand or sit for more than 15 minutes i’m a stay home have to 2 toddlers to take care of and it’s really hard even though laying on my bed is painful 😩😩😩😩
I’m still having the pain I tried every exercise to ease the pain but none of them working the pain is come and go which is normal my doctor said now i’m currently 36 weeks and I can’t barely walk my right leg is weak and swollen I can’t wait to meet my baby soon inshaa’allah Praying for you and your baby 🙏 hang in there mama you can do this hormones are really hard to deal with but all are part of the pregnancy but don’t forget to mention every pain you feel on your doctor every mama is different 🙏🙏🙏🙏🥰😍
Exact same boat! I’m currently 28 wks with my 3rd and have a 1yo & 5yo it’s so hard to walk. I had it with my last child too and was beyond miserable. 😩 But I found a special belt that’s supposed to help with pelvic pain so hopefully it’ll help me this time around.
Thank you this video was very helpful, what I want to ask is if that is the case and I have pain in my iliac muscles as well, should I go to a physical therapist, a chiropractor or where to?
Ive had chronic pain post delivery. My son is now 2. The pcp said they would only consider surgery and wont give a referral for pt. Ive been doing youtube pt the last few weeks I am making some progress. I can feel in the back where its not meeting properly at the si. My spine has curved to compensate for my pelvic tilt. I want to feel better again so badly.
Im a single mom with very little support and I hate that i so many days I feel so defeated by this pain. I guess I will just have to become a physical therapist to treat myself since insurance wont let me be treated
I have this. My dr said its becuase I have ehlers danlos and the joint had dislocated so many times, it just tore apart. Never had a baby and never will as I got my tubes tied at age 26 due to genetic conditions.
I’m 30 and have been trying to get a solid EDS diagnosis for a while but I remember every time I had my period from the age of 10 the hormones would make everything go to jelly and this would happen. I am on continuous birth control now which sort of helps. I am still in constant pain but if I take a break from the pills I feel like I’ve got every flu and plague ever unleashed on humanity with the body aches and things randomly subluxating. Certain times of the month I notice I try to pick things up, use cutlery etc an my fingers bend backwards more than usual so I guess it’s hormone related. Pregnancy seems like a bad idea for people with EDS and an unfair one for their offspring… like I legit told my mother to stop having children please, because my brother is also struggling with GI issues, dysautonomia, cardiac issues, skin issues, ENT issues, chronic pain etc
I am 13 years old and for some reason I've had pubic symphysis for as long as I remember and I'm to embarrassed to tell my parents to bring me to the doctors, what do I do? 😬😬😬 Please help.
Google something called the Beighton test to see if you are hypermobile. People whose bodies naturally stretch a bit too much are more inclined to get this. I think you should bring it up though as I waited until I was an adult to pursue a lot of health stuff and it was so much harder without my parents helping or advocating for me
Thanks for your video! I am 15 POSTPARTUM and still suffering from pain on a daily bases..so much so I haven’t been able to return to working out and yet none of my drs have answers.
Amy Rudd Did you have the pain during pregnancy as well?? If so, how was your delivery?! I’m 34 weeks pregnant with my 5th baby and have never experienced this pain before😓I’m so scared to deliver and what it’s going to be like postpartum 😩
Lissie 127 I was in a ton of pain during pregnancy as well. I did have a little relief after delivery. I suffered with pain until about 17 months postpartum. My doctors told me to see a pelvic floor therapist but I didn’t want to spend the time or money so I just looked up stretches on my own on Pinterest and google and it worked like magic!!!!! Moving is medicine! I can’t believe it!
15 weeks? Yea buckle in hun you need to give your body a couple of years pregnancy is a dangerous condition and it takes a lot of time to rebalance and with pelvic arthropathy it takes a very long time
Hey what’s up, this video was super helpful. I’m 18 years old and have a 1 1/2 inch separation and my cartilage there isn’t even attattced at all and I’ve been dealing with this problem for 12 months straight and I would go to work and high school everyday. Do you think it’s possible for you and I to conversate about a couple things hip related ?
@@BabyBird404 I have had 3 children and have had it in the last 2. I am able to walk fine and I have found that the feeling disappears as soon as I birth. I am back to normal. What I did notice however is that with my last pregnancy, the symptoms began alot earlier at 5/6 months and I reallh could not walk very far at all. I ended up have to work from home unfortunateluly for the remainder of my pregnancy but as soon as I gave birth bang I was me again. Incredible
Наука
Thank you! Your explanation of why my pubic bone hurts is the first time I’ve heard anybody that makes sense! Thank you so much! It almost feels like spasms, shooting pains and then it’ll calm down and then it’ll come back and I do believe that it is coming from my spine I think everything is out of alignment so I will be seeing my chiropractor. 🤗
My issue explained.Thank you so much.
I have this now so hard to get out the bed my bones popping when i turn i be so scared to lay on my side because when i get up it pops
Something to keep in mind for patients and doctors is that this separation can occur without any trauma in people with connective tissue diseases. I’m almost able to walk around my house again with an SI belt cinched very tight after my doctor, who has EDS herself, was able to realign and close my gap by several inches. Still more inches to go, but I was having such severe nerve pain that we thought I had cauda equine syndrome and I was in the emergency room the night before. It affected my bladder and I couldn’t sleep without icing my pubis and thighs. Thankfully I don’t have CES, but I was born with tethered cord and now it’s very hard to tell if symptoms are coming from the tethered spine pulling on and dislocating my coccyx or the dislocations at the SI joints, pubic symphysis, and left hip
dislocating the coccyx and therefore pulling on the spine. I don’t want to go for detethering surgery when my symptoms may actually be entirely from all my pelvic instabilities. I’m currently 2 months post-op from emergency C0-C2 fusion because I nearly internally decapitated, my skull slid back into my brainstem, stopping my respiratory drive, paralyzing my arms and legs, and causing my transient ischemic attacks to progress to strokes. Thankfully I already had an EDS-literate neurosurgeon and I was airlifted cross-country for immediate surgery and I’m happy to say that the arm and leg paralysis is gone, I haven’t had a single TIA, and I’m breathing on my own! Again my ligaments failed due to my genetic condition, no traumatic event. So if you’re hypermobile, it can be worth finding knowledgeable PTs and MDs who can help you correct instabilities and preserve your spine and peripheral nervous system. I wish I’d known years ago! I probably could have avoided my head basically falling off.
Well would you look at that, I’m here because I have experienced this and am thinking about pursuing a hEDS diagnosis.
@@SobrietyandSolace hi, what Dr should one see to evaluate for EDS?
Omg im NOT crazy? I have ehlers danlos and this condition. Walking is extremely painful for me. Pt has. NOt helped. Its also affecting my lumbar spine as well. 😢
@@SobrietyandSolaceI was genetically confirmed to have classical ehlers danlos and that's what happened to my. Ps joint in the pelvis and the AC joint in my left shoulder.. it completely seperated 😢
@@grettagrids Oof I’m sorry! I’m still no closer to being diagnosed even though I literally have a copy of the criteria with everything I have on it crosses off. I’ve been to 3 different rheumatologists, paid for my own genetic testing but none of them want to call it conclusively. I ended up with a bunch of variants of unknown significance for brittle cornea syndrome and I do have ocular issues. I am trying to save up for a geneticist but spending all of my disability on bills because my boyfriend is broke.
I was hit by a car in 1985. Had a 9" separation of my pubic symphysis. NINE-INCHES. That's giving-birth sideways. And I'm a guy! Fortunately, (from a pain-perspective) I was also unconscious. (comatose, about 6-weeks) UNfortunately, I "blew a stress-ulcer" before I was to have a pelvis-plate attached to close my diastasis.(sp?) So I've been living for 34-years with a 2-3" separated pubic symphysis. (Hoffman-bars were drilled at the time of the incident / not accident / since it was a hit-and-run) Another "blessing" of my brain damage (OMG - my computer almost exploded having that irony typed on it!) is that I've spent about 2/3-time of those 34 years in a w/c. (brain damage = balance & coordination troubles, amputation mandates a prosthetic which needs constant adjustment so I use w/c) But, returning to the vid, I'm glad for UTube. Adds to my understanding.
Lol to giving birth sideways 🤣. I got same problem too because of my motorcycle crash. Mine hits my bike gas tank hard!
Oh my god. Oh Jesus. LORD HAVE MERCY. One inch is bad enough. Wow. You poor poor soul
Hi Dr,
I have pain in the pubis symphysis, according to a MRA I did there is no separation but I have a tear in both hip labrum, and sometime the pain travels to the pubis area and also have inflammation in my SI joints, When im sitting in the sofa I have a wedge so I can recline and I put a small pillow under the knees....Do you consider this position is safe or it will make the problem worse for my condition? Thanks for your help!
i have this rihgt now. im 39 wks pregnant. it's so painful. so hard to walk.
have you given birth already? did the pain went away?
Same girl
Did it go away? I have it to 38 weeks its too painful
thank you so much for explaining this problem. I know now why it is happening to me. I am not pregnant I am 78 years old and I have a pelvis tilt that seems to be stuck.
I was diagnosed with Pubis Diastasis during my 3rd trimester in December2018. This was the worst pain I have EVER felt in My life. 😥 It was definitely a traumatizing experience. I'm genuinely afraid to ever get pregnant again. I had two children before my last child and those pregnancies where nothing compared to the experience this last pregnancy brought me. Fr. Just the thought of reliving this over again scares me to death.
I’m curious to know how you are doing now and if you have delivered your baby? I just had my third child and never experienced this with any of my pregnancies. However, after I delivered my son, I was unable to walk and in excruciating pain. He is now a week old, and I feel somewhat better, but can only take a few steps on a walker while putting all of my body weight on my arms. The doctor that delivered my son said it would just take time to heal. I hope it heals completely and I will be back to normal again. If this would have happy I me with my first child I don’t think I would ever of had anymore children, so I know what you mean when you say you don’t think you would ever want to be pregnant again.
Hi Dr my wife gave birth last 2 months and still now can’t really walk ATM due to that pubis separation as the doctor said it’s been separated and they do nothing about it. I keep knocking them about my wife not feeling well and they said use something stretch material to bind her hips and now it’s getting worse..could you help pls?
And by the way I am not pregnant or in postpartum, that was eons ago for me I am in my early 70s. But is a recent occurrence with this pubic bone hurting most the time is dull but when I lay on my back and press on a certain spot on the right side it’s very sharp pain. Any other revelations you can share with me would be greatly appreciated!
I'm a guy and I got diastasis there due to motorcycle accident. Its painful to walk, to lift heavy objects, to climb the stairs even carrying a backpack could be painful! Drs said I need to live with it for the rest of my life 😢
I was bed ridden in hospital for 3 months in morphine daily due to this I had to have a c section I hant fully recovered my coccyx cracks and I still get terrible pains it’s better than what it was but I have permanent chronic pain from my pregnancies
I am on my 15th weeks pregnancy I have started feeling pain on my pubic bone on early since last 4 weeks. Sometimes I feel inflammation on my right hip joint. I can't take big step, unable to put on trousers and unable to make move during my sleep. Please suggest how to cure this !! 😔😑
I’m 28 weeks pregnant been having this issue past weeks my right leg 🦵 is the most painful I can’t barely walk and I can’t stand or sit for more than 15 minutes i’m a stay home have to 2 toddlers to take care of and it’s really hard even though laying on my bed is painful 😩😩😩😩
Now what was ur condition because I have this pain right now in 27th week
I’m still having the pain I tried every exercise to ease the pain but none of them working the pain is come and go which is normal my doctor said now i’m currently 36 weeks and I can’t barely walk my right leg is weak and swollen I can’t wait to meet my baby soon inshaa’allah
Praying for you and your baby 🙏 hang in there mama you can do this hormones are really hard to deal with but all are part of the pregnancy but don’t forget to mention every pain you feel on your doctor every mama is different 🙏🙏🙏🙏🥰😍
Exact same boat! I’m currently 28 wks with my 3rd and have a 1yo & 5yo it’s so hard to walk. I had it with my last child too and was beyond miserable. 😩 But I found a special belt that’s supposed to help with pelvic pain so hopefully it’ll help me this time around.
@@babylinmallari6868 "The doctor says the pain is normal." ??? Get at LEAST one second opinion! Doctors are very often wrong.
@@babylinmallari6868 Did the pain go away after birth?
ive had this since month 5 and my goodness now im
so scared with how its gonna feel
during birth..
Im a year and a half post partum and at least 12mm seperated...it pops so deeply when i turn over in bed...
Im in constant pain.
I want it to END
Thank you this video was very helpful, what I want to ask is if that is the case and I have pain in my iliac muscles as well, should I go to a physical therapist, a chiropractor or where to?
?
oh I had this pain after giving birth..since today some friends thought I was joking.😢
Mine was so severe I had to have my tubes tied because my body physically could t carry another
Ive had chronic pain post delivery. My son is now 2. The pcp said they would only consider surgery and wont give a referral for pt. Ive been doing youtube pt the last few weeks I am making some progress. I can feel in the back where its not meeting properly at the si. My spine has curved to compensate for my pelvic tilt. I want to feel better again so badly.
Im a single mom with very little support and I hate that i so many days I feel so defeated by this pain. I guess I will just have to become a physical therapist to treat myself since insurance wont let me be treated
ive been getting this lately. im 33 weeks pregnant
Can you ever get pubic symphonies separation and sacral iliac joint separation at the same time?
Yes, I have both
4weeks postpartum and cant keep off pain medication. The discomfort n pain is crazy wondering if it will ever get easier
Update? Going through the same now 😢
What do we do when we have this 30 years post baby? I am 49. CTscan shows a moderate case. Um... How about seatbelt trauma from a bad car accident?
Hypermobile by any chance? I’ve never had a baby because I get this shit even without pregnancy
I have this. My dr said its becuase I have ehlers danlos and the joint had dislocated so many times, it just tore apart. Never had a baby and never will as I got my tubes tied at age 26 due to genetic conditions.
I’m 30 and have been trying to get a solid EDS diagnosis for a while but I remember every time I had my period from the age of 10 the hormones would make everything go to jelly and this would happen. I am on continuous birth control now which sort of helps. I am still in constant pain but if I take a break from the pills I feel like I’ve got every flu and plague ever unleashed on humanity with the body aches and things randomly subluxating. Certain times of the month I notice I try to pick things up, use cutlery etc an my fingers bend backwards more than usual so I guess it’s hormone related. Pregnancy seems like a bad idea for people with EDS and an unfair one for their offspring… like I legit told my mother to stop having children please, because my brother is also struggling with GI issues, dysautonomia, cardiac issues, skin issues, ENT issues, chronic pain etc
I am 13 years old and for some reason I've had pubic symphysis for as long as I remember and I'm to embarrassed to tell my parents to bring me to the doctors, what do I do? 😬😬😬 Please help.
Google something called the Beighton test to see if you are hypermobile. People whose bodies naturally stretch a bit too much are more inclined to get this. I think you should bring it up though as I waited until I was an adult to pursue a lot of health stuff and it was so much harder without my parents helping or advocating for me
Thanks for your video! I am 15 POSTPARTUM and still suffering from pain on a daily bases..so much so I haven’t been able to return to working out and yet none of my drs have answers.
Amy Rudd Did you have the pain during pregnancy as well?? If so, how was your delivery?! I’m 34 weeks pregnant with my 5th baby and have never experienced this pain before😓I’m so scared to deliver and what it’s going to be like postpartum 😩
Lissie 127 I was in a ton of pain during pregnancy as well. I did have a little relief after delivery. I suffered with pain until about 17 months postpartum. My doctors told me to see a pelvic floor therapist but I didn’t want to spend the time or money so I just looked up stretches on my own on Pinterest and google and it worked like magic!!!!! Moving is medicine! I can’t believe it!
@@amyrudd7355 plz share which exercise
It can take years to fully recover did for me and even then you don’t depending
15 weeks? Yea buckle in hun you need to give your body a couple of years pregnancy is a dangerous condition and it takes a lot of time to rebalance and with pelvic arthropathy it takes a very long time
Hi mam i need ur help personally.. Is it possible?
Very good
I have this and I’m 22 weeks pregnant with twins- this is extremely painful- did this go away for you guys? Any update??
it doesn’t go away.. but it doesn’t get worse :’) (im in month 6 now)
Hey what’s up, this video was super helpful.
I’m 18 years old and have a 1 1/2 inch separation and my cartilage there isn’t even attattced at all and I’ve been dealing with this problem for 12 months straight and I would go to work and high school everyday.
Do you think it’s possible for you and I to conversate about a couple things hip related ?
My public symphysis SEPARATED by 17 inc
And now i know why chainsaws were invented, its to cut this part
Had this happen after my first child. I used to lay in bed and I could feel the front bones in the hips grind together if I squeezed.
ah me too
Hello! This happened to me too. Could you plz tell how you feel now? Are u able to walk as earlier now?
@@BabyBird404 I have had 3 children and have had it in the last 2. I am able to walk fine and I have found that the feeling disappears as soon as I birth. I am back to normal. What I did notice however is that with my last pregnancy, the symptoms began alot earlier at 5/6 months and I reallh could not walk very far at all. I ended up have to work from home unfortunateluly for the remainder of my pregnancy but as soon as I gave birth bang I was me again. Incredible
Why is the body so flexible to allow this😅😅😅😅😅 just like ughhhhh babies. Don’t know why I ever thought the body was actually connected via bone 😅😅😅
I have this pain since 25 weeks pregnant 🥲 I’m 31 now… Hopefully it goes away after birth