I just got diagnosed with EDS and Differential connective tissue disease. I was watching you say that is ok that as they get to know me better or more symptoms happen they might be able to put me in a more specific category. I got started on Azathioprine. I appreciate your videos. I pretty much already new I was either mixed connective or overlap or DCTD. I diagnosed myself before I even got to get to the dr. I felt like I fit more in the mixed category but I have so many more symptoms fitting in so many categories.
Dear Dr. Have you ever seen how much collective ego is in a hospital and how the hospital staff just hate!!!! any questions patients ask. Why is that. People are not scared of hospitals. It's just a big building. We are scared of those that wander the halls like they have just arrived from heaven. Please one day talk about the psychological impact of hospitalizations . But do some research. I did.
The most difficult thing about being in the hospital (for things other than RA) Is that your medication usually becomes suspended. I realize some of the reasons for this however, when your pain levels are through the roof and you can't sleep, you're not resting well, a flare is inevitable. No matter how many times you explain, beg and plead, no intervention occurs. As horrible as this sounds because there are "reasons " but I have some in my purse
Do you take new patients? My neurologist passed away and my rheumatologist is retiring I’m in Dallas Texas. Severe small fiber Neuropathy borderline Ana 1:80 they are leaning towards connective tissue disease no energy chronic fatigue if I do anything I end up in bed for days. I’m allergic to life most foods outdoor every tree etc . I’m trying to find my why for the SFPN ( poly neuropathy ) I take beta blocker my bo gets in the 50’s at times having chest and irregular beats can feel them. Should have insurance in 90 days will you take me?my ox 92,93,95
In April of 2021 I was rushed to the hospital because I couldn’t eat or drink and all I wanted to do was sleep. Apparently all of my enzymes were dangerously low ( potassium, sodium, phosphorus, albumen, calcium). The doctors told my daughter if she hadn’t called the ambulance that night I would have died in my sleep….scary stuff. My RA and fibromyalgia flared and my normal RA meds. were juggled around. I lost my ability to think straight , walk correctly and muscle strength. Two weeks later I stabilized enough to spend an additional week in their rehab facility, learning all the basics I’d forgotten.The following April 2022 I contracted Covid and another two weeks spent in the hospital getting antibiotics etc. but my RA meds once again juggled around. I’ve learned that with multiple autoimmune diseases my body can’t handle even small medical changes and if I’m not better in a day or two I see my PCP asap. Oh, and being Celiac I had a hell of a time making sure I was not fed any hidden gluten in their wonderful food choices. LOL!
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I just got diagnosed with EDS and Differential connective tissue disease. I was watching you say that is ok that as they get to know me better or more symptoms happen they might be able to put me in a more specific category. I got started on Azathioprine. I appreciate your videos. I pretty much already new I was either mixed connective or overlap or DCTD. I diagnosed myself before I even got to get to the dr. I felt like I fit more in the mixed category but I have so many more symptoms fitting in so many categories.
Dear Dr. Have you ever seen how much collective ego is in a hospital and how the hospital staff just hate!!!! any questions patients ask. Why is that. People are not scared of hospitals. It's just a big building. We are scared of those that wander the halls like they have just arrived from heaven. Please one day talk about the psychological impact of hospitalizations . But do some research. I did.
Well said 🙏🏼
Great information and advice Doctor 👍
The most difficult thing about being in the hospital (for things other than RA) Is that your medication usually becomes suspended. I realize some of the reasons for this however, when your pain levels are through the roof and you can't sleep, you're not resting well, a flare is inevitable. No matter how many times you explain, beg and plead, no intervention occurs. As horrible as this sounds because there are "reasons " but I have some in my purse
Yup! It absolutely is all connected! 🎉
Am diagnosed lupus for last 2 year
Can you discuss Behcet disease? Is it consider an autoimmune disease? Why colchicine is given? Isnt it colchicine is for those who have gout?
I had renal malakoplakia is that through rhumatoid arthritis or sjogrens
♥️♥️♥️♥️
Do you take new patients? My neurologist passed away and my rheumatologist is retiring I’m in Dallas Texas. Severe small fiber Neuropathy borderline Ana 1:80 they are leaning towards connective tissue disease no energy chronic fatigue if I do anything I end up in bed for days. I’m allergic to life most foods outdoor every tree etc . I’m trying to find my why for the SFPN ( poly neuropathy ) I take beta blocker my bo gets in the 50’s at times having chest and irregular beats can feel them. Should have insurance in 90 days will you take me?my ox 92,93,95
You need to go to your gp for blood tests
In April of 2021 I was rushed to the hospital because I couldn’t eat or drink and all I wanted to do was sleep. Apparently all of my enzymes were dangerously low ( potassium, sodium, phosphorus, albumen, calcium). The doctors told my daughter if she hadn’t called the ambulance that night I would have died in my sleep….scary stuff. My RA and fibromyalgia flared and my normal RA meds. were juggled around. I lost my ability to think straight , walk correctly and muscle strength. Two weeks later I stabilized enough to spend an additional week in their rehab facility, learning all the basics I’d forgotten.The following April 2022 I contracted Covid and another two weeks spent in the hospital getting antibiotics etc. but my RA meds once again juggled around. I’ve learned that with multiple autoimmune diseases my body can’t handle even small medical changes and if I’m not better in a day or two I see my PCP asap. Oh, and being Celiac I had a hell of a time making sure I was not fed any hidden gluten in their wonderful food choices. LOL!
C.wish healthy