I wish I could control any part of my body during these seizures, but the muscle contractions and tremors and dystonia make it next to impossible. I am listening to a meditation during some of them and find it helps a little.
That’s nice of you and I appreciate it. We have a language barrier so it may be challenging. Plus, I have a group of 3000 people that need help and so many more.
I wish, the neurons are not sending correct messages to all parts of my body which is what causes these dysfunctional movements. There is no control on any movement, including my mouth. Sometimes it even locks my jaw. The only control I have are my thoughts which then I try to surrender all the discomfort and pain to God’s will to seek some peace through them all.
Non ho nessun messaggero, sono un neurochirurgo e ti consiglio di farti aiutare da qualcuno ad aprire la bocca durante le crisi, ti aiuterà a respirare…
I’ve seen countless neurologists who just unfortunately brush me off. It’s a problem with the dysfunction of the nervous system. From all we have understood about the disorder, you can’t die from FND and your brain will eventually allow us to regain normal body function should it bring great peril or disrupt life sustaining functions.
I do the minute the extreme contractions of my entire chest and abdomin are done. The cantractiins squeeze and make breathing next to impossible. These are uncontrolled movements and trust me, I start breathing with deep breathes as soon as the contractions are over.
Sentiamoci su Messenge
What’s your messenger name?
Provaci anche durante le contrazioni magari tenendo la bocca aperta
I wish I could control any part of my body during these seizures, but the muscle contractions and tremors and dystonia make it next to impossible. I am listening to a meditation during some of them and find it helps a little.
if you want I'll write to you in English
Io non ti respingo, ti vorrei aiutare anche se siamo lontane
That’s nice of you and I appreciate it. We have a language barrier so it may be challenging. Plus, I have a group of 3000 people that need help and so many more.
Magari ti fai aiutare a tenere la bocca aperta
I wish, the neurons are not sending correct messages to all parts of my body which is what causes these dysfunctional movements. There is no control on any movement, including my mouth. Sometimes it even locks my jaw. The only control I have are my thoughts which then I try to surrender all the discomfort and pain to God’s will to seek some peace through them all.
Non ho nessun messaggero, sono un neurochirurgo e ti consiglio di farti aiutare da qualcuno ad aprire la bocca durante le crisi, ti aiuterà a respirare…
I’ve seen countless neurologists who just unfortunately brush me off. It’s a problem with the dysfunction of the nervous system. From all we have understood about the disorder, you can’t die from FND and your brain will eventually allow us to regain normal body function should it bring great peril or disrupt life sustaining functions.
If you want we can talk on messenge
Devi cercare di aprire la bocca e respirare
I do the minute the extreme contractions of my entire chest and abdomin are done. The cantractiins squeeze and make breathing next to impossible. These are uncontrolled movements and trust me, I start breathing with deep breathes as soon as the contractions are over.