Things I Wish I Knew About Antipsychotics - Living With Schizophrenia - Mental Health and Meds 💊
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- Опубликовано: 5 май 2023
- Hi!
Since I became ill with psychosis and later diagnosed with schizophrenia I have taken antipsychotics. Antipsychotics are a very common and big part of treatment for schizophrenia and in this video i'm going to talk a little about some of the things I would have wanted to know before taking them. Like som of the many, many side effects, the way it interacts with your body and how it affects it.
thank you for watching! 💚
contact: kimberlyhallberg95@outlook.com
#schizophrenia #antipsychotics #mentalhealth #livingwithschizophrenia #mentalhealthawareness
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Oh you look so pretty ❤ your hair and lipstick 💄.
I think doctors lie to make you start medication. They said to me “oh don’t worry. Not every medication causes weight gain. Some even help you lose weight bc now you can relax”. But what they don’t tell you is that it is inevitable!! Everyone who takes it says so! Because it gives you hunger AND it slows down your metabolism. It messes with your hormones. So you gain weight no matter what. At least 80% of the time. 😢 I wish they would just be honest about it!
Because it hurts to gain weight and no way to control it. I gained so much weight even in just a few weeks.
Yes it also made me so tired. Just spacing out.
I love that you talk about it. It’s so important to know.
thank you! i'm glad you liked the video ❤ and yes, they really need to be honest about the weight gain since it comes with so many health risks. and they need to implement more help for both preventing it and helping with it if you do gain weight... thank you for watching and commenting, have a nice weekend! ❤
Without being informed about side effects,one cannot form an informed decision. I suppose the Doctors are scared that the patient might refuse to take the medication.Another major side effect is impotence for many if not most men This further complicates the hope of living a normal life.
yes! if I had known some of the side effects I experienced beforehand I would have considered which medication to try more carefully. and yes, I have heard that impotens is common for men also, and I do believe it can affect normal life very much like you say. thank you for watching! 😊
The meds absolutely suck, it's just that the schizophrenia sucks more sometimes. So you get to choose between two bad situations and that's if the meds even effectively treat the disease. I was forced onto one med that didn't even work but caused massive weight gain, a permanent movement disorder and emotional numbing on top of psychosis that just continued on. It was misery for years.
Same here
oh god, Im so sad to hear that! and as you say, you basically have to choose between to evils.. I hope you're doing better now and thank you for watching! 💚
Just wanted to add that there is a whole group of movement disorders you can get, some of which are usually permanent and may or may not respond to meds. I got vocal and motor tics, likely Tardive Tourettism and they've lasted long after being off the meds. Docs also don't know much about them and can be dismissive all around.
@@silverdweller2809 oh wow I didn't know about that at all! sad to hear, this is really something they should be warning about! 🤔
@@KimberlyHallberg Thank you! Your videos are helpful and I can relate to so much of what you say. I'm on a better med now overall.
Hi Kimberly. Thanks for doing these videos. The worst side effect I had from anti-psychotics like risperidone was a condtion called Akathisia. This is an inability to keep your body still. With akathisia your body is constantly in motion and it is exhausting. I don't get it anymore thanks to the new medication I am on thank goodness, but I do also suffer from "slow thinking" from time to time and also it can be difficult to use the knowledge I read in books immediately. Your words and the things you describe ring so many bells for me and it is comforting to hear that someone else is suffering the same thing I am suffering from and explaining it all so well.
thank you! 🥰 i'm glad you like the video and im sad to hear you have also suffered some of the many side effects from meds. akathisia sounds exhausting! sending you a hug and thank you for commenting! ❤
Me too facing this issue slow thinking.
I have taken them for one month only.
It ruined by life only in one month.
Stop taking these drugs. I am 70 percent recovered after stopping drug
When i was on med and aftet 3 months afyer stopping these i was not able to even cry.
I am now facing of frequent urination. Too many side effects. It is better to become mad then taking these drugs. These drugs disturbs body normal functions.
These crue
Me too facing this issue slow thinking.
I have taken them for one month only.
It ruined by life only in one month.
Stop taking these drugs. I am 70 percent recovered after stopping drug
When i was on med and aftet 3 months afyer stopping these i was not able to even cry.
I am now facing of frequent urination. Too many side effects. It is better to become mad then taking these drugs. These drugs disturbs body normal functions.
These crue
Me too facing this issue slow thinking.
I have taken them for one month only.
It ruined by life only in one month.
Stop taking these drugs. I am 70 percent recovered after stopping drug
When i was on med and aftet 3 months afyer stopping these i was not able to even cry.
I am now facing of frequent urination. Too many side effects. It is better to become mad then taking these drugs. These drugs disturbs body normal functions.
These crue
Yes! I remember reading of side effects. After that I asked reduced medication after awhile. Luckily one medication was left out. Now only one medication works for me. I also started eating extra when I was in hospital at the beginning of treatment. Now I want to start exercising but I feel tired and starting things is more difficult. Slowly I have accepted the situation and I'm doing better now after years of taking anti psychotic medication.
glad to hear its working out for you! 😊 as for exercising, I really recommend doing it with someone who can motivate you, I always go to the gym with my mother because she helps me get there 😊
@@KimberlyHallberg Thank you! It's true. I go hiking with my friend.
@@mizachs oh hiking sounds fun! 🤩
@@KimberlyHallberg I love taking photos of nature too with my Nikon cameras.
@@mizachs nice! I wish I had somewhere to hike 😊
Happy Saturday Kimberly, great informative video...I too take medication, it helps with the major problem, but leaves you with so many other unpleasant side effects. I feel this is why so many people choose not to take their medication...they cannot cope with the side effects. Rainy and gloomy here in Thunder Bay, Canada :(
thank you Pam! 🥰 and yes I also feel that many decide not to take them or quit due to all of the side effects. I hope you have a nice sunday! ❤️
I also developed Parkinson drug induced reaction to Risperdal, walking problems, and breastmilk😢
En lärorik video! Alla dessa biverkningar...ja vad gör man när man behöver medicin. Man ska ju kunna lita på sina läkare! Man vill ju bli informerad. Men mycket får man veta genom att läsa sig fram! Jag ser framemot din nästa video 😊Ha en fin helg!❤❤
Tack så mycket Rose-Marie! ❤️ ha en fin söndag! ❤️
I really love your videos big hugs from Kingdom of Saudi Arabia ❤
Thank you! 🥰♥️
Thank u for making this video I highly appreciate you
thank you for watching! 🥰
Im on antipsychotics since 2019, it is a double edge sword but took me out of my psychotic episode but still i don't want to be on them
Bdw looking beautiful Kimberley ❤
Ps: i sleep alot too😅
thank you! 🥹❤ and yes, it really is a double edged sword! I especially hate the sluggish feeling they give you... hope you have a nice weekend! ❤
I really understand you Kimberly... I have to admit I still temper with my meds, trying to go down or lower dose because I am concerned about long term effects. Quietapine works great for sleep for me and I have little side effects on a low dose. But I also take 30mg Abilify and Lamotragine. It works well for me but I do worry about long term. I am glad you found something that works for you Kimberly with not too many side effects, it's a journey.... Sending you much love ❤️
thank you aria! 🥰 and yes, it really is a journey, and some it can be a long one, sadly.
I hope you have a nice sunday and take care! ❤
Another thing about many antipsychotics is in addition to increasing your appetite and making you very inactive, they also slow your metabolism, so you end up with a perfect storm for weight-gain. What antipsychotics are you on?
yes, exactly! currently im on kariprazine (I think that's what it is called in English at least.). I quit olanzapine about 8 months ago and thanks to that I have lost 40 pounds so far... 🙃
@@KimberlyHallberg I've heard good things about cariprazine, so good luck with it, and good luck with the weight loss!
@@andrewhall7176 Thank you! And yes, it’s the best medication I have tried!
@@KimberlyHallberg Great stuff!👍
I've been on several medications over the years. They would help me, but I would take them reluctantly. For ten years I was always looking for ways to reduce my dose or go off medication completely. But now I am fully compliant and have been for almost six consecutive years. I guess I am just hoping the side-effects will go away over time. One persistent adverse effect I have endured is dysphagia. Lately it seems to have been improving, but it is still prevalent. It is caused by a partial paralysis of my oropharynx - due to my antipsychotic. But it is what it is.
I have also tried lowering my dose but it hasn't worked so fa. I also had trouble with dysphagia when I took quetiapine, which is why I changed meds. I wish you well and thank you for watching! 💚
Thank you for your videos, Kim, I've started watching you 2 days ago, I have schizophrenia for 10 years and I'm 31, from Czech republic, I can relate to your videos, also it's very calming watching someone like me, with same struggles. Can I ask you, if you work or planning to work, or if you're on disability, how much is it in Sweden? Because I'm planning to get one soon here, but it's not much, so I will have to find some part-time job at least. Good luck in your journey and hey, you're such a beautiful soul. Thank you for your content, we need it.
Hi and thank you! Im glad you find some joy in my content! 🥰 im currently on disability and here it is based of what you have earned by working before, its not much but since I didn't work much before getting sick sadly, but I manage, its enough for living but its not glamorous. I do believe the average is around 1100-1300 euros a month 😊
@@KimberlyHallberg Thank you for answering me! That's a lot, because here we get 500€ at best, so I have to work even if I can't, because you can't live off this amount in this age. I will lurk here for more videos, keep it up, you're so strong for doing these vids, because I've tried years back and I ended up being paranoid, so I've deleted all videos.
Oh thats low for an income! 😔 I guess i'm really lucky. Glad that you like my videos, have a nice sunday! 💚
This is relly usefull. Thanks❤
Glad it was helpful! ❤️
Very informative thank you!
thank you! 🥰
All medications have side effects, some more than others. The thing is though that you would probably be worse off without them. Also when it comes to side effects some are more common than others. For example if the numbers of people dying of a medication was too high it wouldn't be allowed on the market.
very true! 😊
good video kimberly!
thank you Robert! 😊
I've had a number of the side effects you mentioned. I'm fifty three and I believe at my age I don't need much medication. I only take two, an anti depressant and a low dose of antipsychotic. I still have dry mouth and sensitivity to sunlight but not hunger and lethargy. I experienced very bad effects going off in 1997, under doctor's care, and put up with the side effects then on. Recently I have gotten by on a relatively small dose.
glad to hear you seem to do well on a lower dose! hope to get there some day as well. I have had others telling me it gets better with time. thank you for watching! ❤️
Doctors can be so bad sometimes.. they say just take it and you will be right.. I hate it. And they don’t say anything about side effects. Sometimes your condition can become even worse after taking the medicines. It happened to me. I had to change medication lot of the times because of it. Doctors must be more thoughtful.
Yes! they need to be more cautious about things like this. sad to hear you had a bad experience with medications, doctors really need to be more mindful! ❤
Oof I feel this HARD. I was curious Kimberly, do you go to therapy as well? If so, how often do you go?
Hi! and yes I do, I go about once a month! 😊
Thank you for another great video. Some people claim to manage the illness off medication. What are your thoughts on that?
thank you! 🥰 I haven't talked or interacted with many who manage without meds, I saw that Living well with schizophrenia made an interview with someone who managed without medications. if it works for them then I don't see the harm but I don't think I would be able to handle psychosis without it. 😊
I tend to get akathisia if i take a too high dose of my antipsychotics. It really sucks tbh 🤷🏼♂️ but at least my schizophrenia is being supressed, so that's good lol. Nice channel 👍🏻
thank you! 😊
Hi Kimberly! Ugh Drs. never want to tell anybody about side effects. Its the same here in the US. I go to my pharmacist if I need to know anything, because they know more anyway than the Dr. Ive had so many issues with anti-depressants and anti-anxiety meds over many many years. I finally found one that works, but, recently I cut it back, luckily Im able to score it in the middle. I was turning into a zombie on it I was so lethargic I had to lay down every day for two hours. So now that I cut back I am doing better. Just hope it continues to help with the deprssiona nd anxiety. But I wish I could find something to help with the IBS! I hope your Dr watches your vlog! LOL I give you lots of credit for taking care of yourself when it is so challenging. God bless, hugs! 🤗💕💜🌺
thank you! 🥰 Sad to hear it's the same in the us and your struggles. Feeling like a zombie all day really takes a toll on your mood I find. thank you again and have a nice sunday! 💚
@@KimberlyHallberg 💜
@@gypsyskyy9451 💚
Very informative. Hope you find something that works for you. I have muscle stiffness from aripiprozole and am about to be tested for the beginning stages of parkonsonism- not a very nice side effect
thank you im glad you liked it! sending you my well wishes! 💖
What shocked me going on antipsychotics were the many side effects. A-typicals didn't do it for me. After trying five A-typicals, not being able to handle the side effects, I switched to the Typical antipsychotic medication Perphenazine (Trilafon) which I'm currently on. I have few and mild side effects, so I'm overall happy with it. I'm not sure how strong antipsychotic effect it has though, but so far I have kept the psychosis away and it's been 3-4 years.
glad to hear you found something that works for you! 😊
Hi Kimberly 🙂
I was wondering, have you ever tried any form od CBT (cognitive behavior therapy) for your illness? I read it can be realy helpfull if added to standard medication therapy..
i have done it in the very beginning of my illness but it was more to adress my social anxiety not schizophrenia 😊
Hi my daughter has just lost 30 kilos from ozempic. She had trouble with it at first light vomiting but that passed. It has boosted her confidence tremendously
She has severe schizophrenia as well.
Ozempic is poison
din doktor borde förvarnat dig❤
I like my meds, but I also let them shape me. The abilify made me permanently restless, energetic and jovial. This emotional pattern continued after I went off em, and the Trilafon has made me very mindful and non reactive. Unthinking even... It's not so bad if you're this way normally.
ah nice, I got very restless and shaky by Abilify, it was very uncomfortable 🙃
I'm from the United States America 🇺🇲
Geodon put me into a wheelchair for 3 years, Risperdal gave me horrible nervous system reaction, I couldn't walk forward just backward, oh, yes and the 100 pound weight gain was inevitable..I'm taking a new antiphchotic, 6 months, called Capltya..no weight gain or TD or EPS yet, Thank God😢
sad to hear! I hope you're doing better now! 😔
I am so sorry for the hell you experienced! What a shame that in our technologically advanced age so much medication still has so many horrible side effects! You are a very brave person to have it made through all this horrible ordeal.
I am so happy for you that you finally found a medication that really helps you instead of more or less killing you. Thank god you didn´t give up.
I wish you all the best! Be blessed
@@truthseeker6584 thank you! 🥰 and yes it is sad that medicine hasn't found a better alternative or better working medications yet! but we'll have to remain hopeful for the future! 😊
Will the zombie like effect fade away and for how long?im new and feels like that now,no mouivation just binge eating 😅
it usually does but how long it will take to fade away is very individual, for me it took changing meds and a few months but I still have some days where I feel zombie-like... I wish you well! 💚
My word you are looking so pretty .
oh thank you! 🥹
These drugs caused me permanent damages
so sad to hear that... ❤🩹
Wow, that's a huge list of side effects! Is there a different type of medicine available which has less side effects?
Sadly no, pharmaceuticals have yet to invent a antipsychotic with less side effects even though the newer generation are know for having slightly less side effects than the older generation, but it can of course be very individual. I have had to switch meds a lot due to side effects having to much of an impact on my health and everyday life 🙃
@@KimberlyHallberg That's such a shame! Hopefully, as research progresses, new & better drugs will be developed with fewer side effects.
I hope so too! 😊@@jamespassas9441
HI Kimberly, thanks for this video, have you tried to read the work of Dr. Palmer, a psychiatrist from Harvard Uni and has work on the Keto diet to "Heal", and lose any Weight you want ? Thanks again.
hi! thank you for watching! I currently eat a low carb diet (all though not as strict as keto) and it has helped me lose some weight recently! 🥰
@@KimberlyHallberg So happy to hear that Kimberly :) I wish you the best !
@@LANDSCAPes01 thank you and you too! 😊
vad händer om du slutar med medecinerna. Prata gärna mer om det. Jag är mycket intresserad av det.❤
ska göra en video om det! 🥰
tack gör gärna det och jag vet att fler av dina följare och nya följare är intresserade av det, nämligen hur en psykos är och upplevs!!
😍💚@@uuuuhgggyg3267
Hi. How is life in Sweden?
Hi! its fine, we have had very nice weather this week. 😊
@@KimberlyHallberg Nice to hear that. Enjoy the nice weather. 🙂
@@baymuhammedagayev4921 thank you! 😊
Have u thought about switching to abilify for example? Oh wait u are already on it my apologies
i have already tried Abilify, and I felt very unstable and jittery by it so I didnt have it for long, sadly.
@@KimberlyHallberg i had the exact same so i continued haldol
@@alterdstate is haldol working well for you? 😊
@@KimberlyHallberg yes bit sedating but i lost 17kg in total. So now i am at a healthy weight, its heavy medication but it helps
@@alterdstate glad to hear! 🥰
What country are you from?
Sweden!
Hur vet jag om jag har schizofrenia??? Tell me more about it nämligen innan du visste att du hade schizofreni.❤❤❤❤❤❤❤
oj! svår fråga! det kan se så olika ut för många men själv så tycker jag att det alltid är bäst att söka professionell hjälp om man misstänker att något är fel! En läkare vet så mycket mer än både jag och internet❤
Pseudoscience
@@KimberlyHallberg psychiatrists are joke