Medical Malpractice Killed My Mother
HTML-код
- Опубликовано: 30 мар 2024
- In this emotional video, we hear the heart-wrenching story of Tia, who tragically lost her mother to medical malpractice due to Sepsis after having a heart attack. Tia opens up about the profound impact of her loss and the challenges she faces in coping with the aftermath as well as discussing her experience with a genetic disorder, ctla4 haploinsufficiencyshe.
Tia's Links: youtube.com/@tiamarlene505?si...
If you have a unique story you'd like to share on the podcast, please fill out this form: forms.gle/ZiHgdoK4PLRAddiB9 or send an email to wereallinsanepodcast@gmail.com
Hello, this is my story. I did spread misinformation about sepsis, it was not my intention. I said it’s not very common and it is. I am sorry. I am not a medical professional and should have stated that before I began my story. What I stated was education was my own understanding from conversations with my doctor and some research I did on my own. There are lots of things I wish I could have said differently or researched more thoroughly. I was incredibly nervous. I apologize for any harm I caused. I do think sepsis is scary but that is due to my own trauma. I understand how this is harmful and will try to do better moving forward.
❤❤❤ the way these medical professionals in the comments are talking about you is super judgmental. you went through trauma, and you did the best you could. that’s something to be proud of ❤❤❤
❤️❤️❤️ it’s okay!!
You should never be expected to apologize for stating what you have survived in your own words. Firsthand experiences of such severity are difficult to explain, and impossible to explain perfectly, but the lived experiences which are discussed here, may resonate greatly with anyone who has experienced something similar. Given the circumstances, speaking your truth to the best of your ability is incredibly helpful and positive, in my opinion. Anyone who has experienced something unjust, tragic, or entirely unacceptable, is doing a great service just by speaking to it. It should not matter if anything was misstated, the actual positive value of you speaking up is incredibly positive, necessary, and helpful to those who are also trying to find the right words. There are more people who survived and lost loved ones because of malpractice, and many of them would benefit from knowing they are not alone.
Girl you’re fine
You’re such an angel. Im sorry for the loss of your mother ❤
I just want all the "medical professionals" to know, Tia is not a professional. She is a woman who went through one of the most traumatic events anyone could experience and did her own research that must have torn her up inside reliving her worst moments. If she gets some things wrong that is okay and does not mean she is "on here to spread misinformation". Appreciate you correcting anything she may have gotten wrong but dismissing her story is just disgusting.
Thank you!!! I agree
I agree, and i find it problematic that healthcare workers could allegedly be concerned about disinformation while shouting down a person who is providing the prime evidence of their lived experience. unfortunately, these disgusting reactions are all very consistent with my lived experiences and many other peoples. When someone survives something and explains almost everything perfectly, that is informative. When alleged healthcare professionals react to malpractice, or corruption, or systemic issues which actually exist, and they choose to pretend they dont exist, deny other peoples lived experiences, try to silence people or criticise them to discourage them, that is disinformation. But again such disgusting reactions from health workers and authorities are exactly what i have learned to expect, due to both my lived experiences with something very similar and my research into other systemic discrepancies which provably exist. I think some healthcare workers are literally doing damage control by attempting to silence people who survived things, to put it lightly. I find the video as well as the expected reactions to be very informative from my perspective.
SAY IT LOUDER FOR THE PEOPLE IN THE THE BACK - THIS ISNT A RESEARCH SHOW ITS ABOUT PEOPLES EXPERIENCES
Absolutely, some of these comments are so disgusting and completely lack empathy
Shocked and disappointed reading some of these comments :/ this was an incredible episode. Not many have the bravery to share a life changing story in such a vulnerable and raw way.
hands down favorite podcast ever. It's so important to hear other people stories, thank you for sharing Tia.
1:21:40 “waiting for my mom to come”. She meant to say sister, but in the moment my heart broke for her. As someone with a deceased parent, you never forget the moment you get that news. I’m so sorry the medical field FAILED your mother and your family. This was by far one of my favorite episodes.
I caught that and wished I could hug her 😢
Medical Malpractice killed my grandfather!! He was allergic to penicillin and what did they give him in the hospitals… penicillin. He died hours later. I will never forgive them for not simply READING his chart, he could’ve lived longer. He could’ve seen me graduate.
Did your grandfather pass of anaphylactic shock?
Normally, the pharmacy will check allergies of the patient and not provide the order if a severe allergy is present. Then the doctor is made aware. Penicillin is a very common allergy and sometimes it’s not necessarily an anaphylactic allergy for some. For some, it may just cause gastro issues or a skin rash but it will still be noted on their chart.
I think some of the comments are unfortunate that people think it’s negligence of the healthcare providers. When in reality, older adults pass of ongoing deteriorating health or natural causes. Sometimes we can’t blame humans for life’s natural course. I don’t mean to sound insensitive but it’s true in ways.
Sepsis is very common (in the icu). I work with patients that have sepsis very frequently - if you have sepsis it’s a bad sign, but it is treatable in the right settings and depending on the pt. Just wanted to chime in because some of the sepsis info is wrong. I’m a medical professional.
Agree with what you're saying. I'm also a medical professional (occupational therapist - 20 years)
Came to say the same thing as a medical professional. As well as the misinformed idea that malpractice is the 3rd leading cause of death in the u.s. I would love to see her sources on this.
Sepsis is the body's reaction to an infection. Can be a UTI, Pneumonia, cellulitis or any other form of infection. You can become septic without any infective organisms spreading to your blood stream. It's the body's response (an inflammatory response) to an infection. It's pretty common we've just gotten better at catching the signs and treating it with evidence based corrective treatments early. Fluids, IV antibiotics, trending lactic acid, blood and other cultures and ICU admit if warranted.
@@allisoncharles4971 I just googled it cause I was curious too, and there’s actually a lot of credible sources stating that over 250,000 people in the US die due to malpractice every year. So technically it is the third leading cause of death. Crazy to think about
yes 1000% sepsis is very common it just typically isn’t picked up on quick enough- often you have some kind of underlying infection etc that then leads to sepsis if not monitored/treated quickly
this happened to my mom too. she went septic and into a coma during covid 2020. the dr threw her on an IV in a room alone while she was dying and not able to speak or move.
her brain stem overheated and she died.
during the investigation the other doctors said she immediately needed to be put on dialysis and antibiotics.
Because it was covid the staff refused to let us in the hospital room to advocate for my mom and she died alone in the hospital bed with no one.
my stepdad said he was going to sue and never did. he remarried a couple months later. smh
he didn’t sue when he could have, AND married months after? i’m so sorry. i hope you’re an adult and don’t have it live with him
Not only do doctors not always have the answers , which is scary to realize as an adult on its own, but as a chronically ill POC, lots of times I have to figure out what’s going on with my own body because I don’t feel heard by my doctors. And that’s an experience lots of other women in general, but black women especially have had. Not saying this is Tia & her mom’s experience, just sharing mine.
When you described how your mum made sure you took care of yourself and treated yourself after a doc appointment made me tear up. I hope my daughter one day will remind me this way ❤
Seeing your parent get weaker and weaker in front of you.. heartbreaking. I don't think you ever heal feom that :(
Thank you for sharing your story, it’s awful you and your family went through all of that. I’ve always been mostly healthy physically, and it can be easy to take that for granted and not recognize how lucky I am for that. I hope you don’t let insensitive comments get to you too much. People’s lack of empathy and compassion never fails to shock me!
❤❤❤
Tia thank you for coming on Devorah’s podcast and making us aware of all the things that can happen. You did amazing you talk so lovely and believe me your mom is very proud of you. She sure was a perfect example of a very positive strong lady. God Bless You Sweety I wish you the best❤️👌✝️👌🏻🙏🏻
I’m so sorry for your loss. I lost a parent last year and the heartbreak is unimaginable. Bringing your knowledge and this story to the podcast was insightful and a great way to honor your mother. So many people don’t have experiences with long term care and difficult illness, so it’s important that you found a platform to share the difficult story. Hope you, your sister, and your family are healing ♡
This episode made me very emotional. I want to add that there are resources available to get a medical social worker who can help advocate for you. I'm not sure the criteria, but I know that you can get one and can get assigned a case manager if you have a serious or terminal illness. I agree advocating for yourself is so important, doctors are human and do indeed make mistakes.
There are actually people whose job is to review potential malpractice cases and determine weather or not it was indeed malpractice or a very unfortunate circumstance (usually a lawyer). That is something that could be pursued if you truly believe a loved one was lost due to medical malpractice.
I'm so incredibly sorry for Tia's entire family. I'm from a medical family and the pressure they have on them every single day is so tough. Tia and her mom experiencing extremely rare, difficult and complex medical state and history, then say malpractice from a professional *killed* her mother, seems unfair. I understand the medical trauma, but they seemed to be in great hands throughout their diagnosis, surrounded by great professionals.
Cried so much hearing this episode, very moving and beautiful story ❤
I will start out by saying I love this podcast. I am so sorry for her loss but there is nothing about her story that indicates malpractice. I understand that this is a story from her perspective and again, I can’t imagine how heartbroken she must be. Making a claim of “malpractice causing death” needs to be followed by actual evidence. I am also a rheumatology patient myself and get similar infusions so I understand it’s a lot for anyone to go through. The medications are intense and dangerous which is why doctors usually will not prescribe them for uses other than what is recommended. I do agree with her point to advocate for yourself. We all know that is so important!
The doctors refusing to continue the treatment that was working for her all because they didn’t know about her condition isn’t malpractice?
@@Hannah-Lynne- From what I understand, if the medication is not meant for that particular condition, then a doctor may not be able to justify its administration.
I would venture to say that discontinuing medication that was not only improving her quality of life, but actually SAVING her life based on "not feeling comfortable prescribing a medication that isn't typically used in this scenario" is malpractice af. They didn't bother to do their research about her Mother's rare disorder, didn't bother speaking with her team of doctors in Colorado who came up with a life saving/life changing schedule of medication, and so on. It is malpractice alone for her Mother's health to have declined that significantly once her care was placed in the hands of lazy, closed minded doctors in Arizona. How is this NOT malpractice?
@@PanthORandPonAY I understand your frustration…..believe me, as a patient that has to go through american medical system to have any quality of life…..it’s hardly ever not frustrating. There are a lot of details left out of this story that could explain why the doctors made the choice they did and if it really was related to her decline. Regardless, it’s very heartbreaking and I’m very sorry for her loss 😔
@JessicaBadini so you... don't get it? you didn't lose your mom to malpractice, which is what this is. refusing lifesaving medication? yeah im pretty sure that would count as malpractice. maybe don't pretend to be sympathetic when all you're doing is being rude
Losing my mom is my worst fear I cry even thinking about it I’ve always knew my mom would pass earlier than most bc she has ms. I feel for this young lady and hope she gets threw her illness ❤
Tia, thank you for sharing your story. I’m so sorry for your tremendous loss.
She has such an adorable comforting voice. I’m only about 5 min in and haven’t heard her actual story so I’m not trying to diminish that, but had to comment on how lovely her voice and inflections are.
Thank you for sharing your story Tia! Your mom sounded amazing ❤
Thank you for sharing your story, Tia! Best of wishes to you and your loved ones. ❤
As an RT student, im very shocked and saddened by the response from some others who work in the medical field. There is a proper way to educate from a place of caring and compassionate communication. You are so brave to share your story and you are seen and heard. I can't imagine what it took for you to speak up about something so sensitive. I am honored to have been apart of your memory of your beautiful mother with you. Thank you for sharing my dear. I am certain this is helping more people than you would ever know. I hope carrying on your mother's memory helps heal some tiny part of you. We love you.
This was a great, but heartbreaking, episode. Love to Tia and her family 💜
I am so sorry 😔❤ shout out to your mom for being such a brave human and mother to you 🙏🏻
What a sweet soul, one of the best episodes yet
Im glad she got to tell her story. But, a lot of this story is her telling her story about her own illness and life. The title gives the impression this story is about the loss of her mother.
Here come the negative Nancy's to come piss on people....
I think her telling her own story is also an extension of her mom’s though. It shows how good the Colorado doctors were at their jobs. It also shows how much of a difference the treatments could have made for her mother, had the Arizona doctors not deprived her mother of it.
Your opinion or assessment is yours to share, but I'm curious what you were seeking or intending by sharing it. There's no opportunity to do it over, and most of the listeners enjoyed and prefer to have this version of it!
@@chllin22 if there’s a protocol with prescribing there’s a protocol with prescribing, to say the doctors deprive her of the medication might not be completely accurate and remember the other factors involved such as insurance and regulation etc.
It is. Did you watch it?
Tia is such a courageous human, and clearly learned it all from her mother. What a horrific experience she and her family have had. In Australia we do have advocates and they can assist with pretty much anything. Tia would make a great one!
This had me crying my fucking eyes out. I lost my dad back in 2022 and I would take care of him from the time I was 15 up until the day he passed when I was 21. He was only 55 years old and suffered horrible health problems. I would miss school days for him or have panic attacks in the middle of class cause every time I got called to the office or got a missed call I thought it was someone telling me my dad has passed. I love and miss him so much, I have so much more to say but I just am having a hard time focusing right now
these comments are sick. this podcast is amazing but i genuinely hate the audience
yes especially the “i’m a doctor…” and “im a nurse” when she’s just trying to share her personal experience that was very emotional for her
It does always help to research and participate. Doctors have a lot of patients and truth be told, even if they can't figure it out, they likely won't break out of character because it's considered by some providers "unethical" and "breaking the provider-patient code" to imply that they are lost and they also don't want the patient to become distressed. Sometimes it helps to look things up and work with them more proactively.
The massaging eye masks are also amazing for migraines. Such an amazing interview!
Some of these comments are the reason the comments get restricted on this channel. Tia shared her story wonderfully and shared that she is not a medical professional. She wasn't her to give a medical story, but to share her story, which is brave. Stop the hate please, these are real people with real feelings, and these hateful comments accomplish nothing.
Also, my grandmother died of medical malpractice, and there were no consequences for her doctors.
im only 5 minutes in so far (so keep that in mind please) but the misinformation about sepsis in this video so far is extremely frightening
agree i was shockeddd
It’s not misinformation it’s her story and everyone’s body is different so some of the medical information she’s talking about can differ with everyone (keep that in mind)
What is incorrect?
@@isabellarodriguez1545not it is because she’s giving wrong facts about sepsis being uncommon which is very incorrect because sepsis is very common its just unfortunately not picked up on quick enough - i’m a nursing student & sepsis is a major concern & hospitals have in place guidelines to try pickup on sepsis quick
@@mariahsanchez680 yes but no. She did say that if you go sepsis you likely got it from the doctor's office/ER.
So what I think she meant was that it's uncommon in the sense that you'll just be living an average, normal life and then just go sepsis.
But yes, in a hospital setting where you are cut open or have a port made on you then it's significantly more likely
Rare disease crew here! I relate to so many things she says. From doctors never hearing of your disease, to being 13 and everything going wild at that age. All the medications. Being anemic due to them taking so much blood. Being under anesthesia. The whole thing. Still a mystery to all of my doctors to this day. And I get passed from doctor to doctor as they just scratch their heads and dont know what to do with me. 🤷♀️
She is an absolute doll. I wish her the best and applaud her for being SO strong ❤️
subbed to your youtube channel Tia! can't wait for content
i love these podcast
i take orencia for my rheumatoid arthritis - i don’t hear of a lot of folks who are on it but it has changed my life. thank you for sharing your story
My father had Marfan Syndrome which led him to have multiple serious heart surgeries and I was use to being in the hospital as a kid. I was also born with this condition but his was much more severe given the time he was alive and what practices were used during these years. Although he has had amazing medical professionals, all it would ever take is one mistake. He almost died for the first time when I was in third grade because a dental hygienist did not supply him with the correct antibiotics before a procedure. This led to a serious infection in his valve replacement and he was wheelchair bound for months before they were able clear the infection. He was also overdosed after a procedure because he was given such a large dose of pain medicine, my mother had to watch him be given narcan. He had a procedure scheduled right before he passed but the doctor cancelled it because they were going on a vacation, he died shortly after. This procedure was very dangerous and he had a high chance of passing during it so who knows if it really could have saved him. I have been very fortunate that I am healthy enough to not have to have any preventative procedures yet. I will go as long as I can until they state it's a life or death situation because I truly believe that once you have medical work done, it can be a long road to death. So many complications come with serious medical procedures, and I am avoiding them at all cost. Praying for you and your family Tia!
what a lovely guest
My grandma was also killed by malpractice during surgery 😢
I love that dress the guest is wearing. Too cute.
Tia is a great story teller!
LOVE THIS PODCAST ❤❤
1:21:38 was eerie, saying that her mom was coming to pick her up. I’m sure her spirit was.
I found out late last year that I have Lynch Syndrome, which is very rare. My PCP didn’t even know what it was when I told her. It’s a genetic mutation that raises your chances of getting cancer (breast, colon, uterine) that I inherited from my mom. There’s no cure for it, it’s basically just something that I have to maintain by getting more frequent check ups and start getting colonoscopies in my 30’s
I’ve have very tiny veins, I am lucky if they get blood on the first try. I usually get sticked with the needle 3-4 times whenever I get blood drawn, and very often they move the needle in me. Every time they always have to phone a friend(nurse) for assistance. I was in the hospital and they had to use a machine to try to find a vein and still could not get an IV in. 🙃🙃
I have tiny veins too! They also used an ultrasound on me but I had 4 huge bruises when I went in for one of my surgeries and that was just from them trying to place the IV, not the surgery lol. I had to have one placed in my hand (which is very uncomfy) cause they messed up my arms so bad they couldn't see the veins anymore and blood was gushing everywhere.
0:33 - Impact of medical malpractice on patient mortality
15:32 - Mom had a genetic disorder doctors were not familiar with. Mom overcame cancer but then faced lung issues.
22:19 - Teenager's health deteriorated after severe stomach ulcer, leading to ongoing medical issues and intense pain.
29:43 - Mom diagnosed with rare infection in esophagus, prescribed antacid & dietary changes.
36:53 - Excessive blood drawn due to anemia concerns.
50:59 - Misdiagnosis worries.
1:12:20 - She gets a call from her sister letting her know their mom was suddenly put on a ventilator and she is going to look for plane tickets so they could both get to AZ asap.
1:14:08 - Overwhelmed by anxiety, she has an irresistable need to talk to her mom, who is unable to reply due to the ventilator. She tells her mom what an amazing mother she is and assures her mom that she and her sister will be ok and mom doesn't need to worry for them.
1:21:18 - Emotional breakdown at school when she receives a devastating phone call from her father.
1:29:24 -Importance of advocating for oneself in healthcare; Seek additional medical opinions; Remember that doctors aren't perfect & aren't always right.
(Summary by Tammy AI)
For anyone reading you really should get a colonoscopy much earlier than 40’s. People are getting colon cancer younger and younger! If it runs in your family please go at 25! If not please go at 25-35!
Tia keep your head High🩵
My mom died the same way 😢
Wow 🥺❤️😭
I wish these these episodes were titled more appropriately. While I’m empathetic to her story, most of this episode is about her own chronic illness and I’m struggling to see where medical malpractice occurred
Choose a different podcast.
@@PanthORandPonAYyou’re allowed to give constructive criticism.
I think her telling her own story is also an extension of her mom’s though. It shows how good the Colorado doctors were at their jobs. It also shows how much of a difference the treatments could have made for her mother, had the Arizona doctors not deprived her mother of it. The malpractice comes in when the Arizona doctors were not listening to her about the successful treatments and medications she had been on in Colorado. They were unwilling to listen to her until the Colorado doctors had continually pestered them and she was already in a significantly worse health standing.
I dont see links in description, just a unstarted youtube?
Can someone timestamp the malpractice part? 20 minutes in and still not mentioned.
I would say at 1:01:15 she starts talking about it? In the end the problem was that the insurance didnt want to cover the experimental medication.
I was also looking for this 😂 going on for ages about absolutely nothing
The whole story is important to listen to. I feel for this family ❤
@@KatharinaMoeck Thanks for this. I didn't watch the whole thing. Unfortunately, insurance not covering experimental meds is very common.
@@HollehMaeew, practice empathy
My grandma had the same issues but she was taken too soon on “accident” her leg started puffing up and it turned purple she had to get shots for it and the doctor was DRUNK and gave her a used needle and for the whole month she lost access to her legs she couldn’t walk anymore then she was paralyzed completely and sadly passed
🙏🙏🙏🙏
30 is not an old age to have a baby lol
Can’t wait to watch this from the perspective of a medical malpractice defense attorney.
I don’t think this is malpractice and I doubt you do either.
I’m 40 minutes in and all I’m hearing is a laundry list of her medical appointments and a continued reiteration that her mom was a “complex case.” Still haven’t gotten to any malpractice.
It's just a young woman sharing her grief. Have a little compassion. If you're not in the court room don't worry about it.
Yeah, this isn’t malpractice and it’s extremely irresponsible to say it is when there isn’t any type of judgment or settlement stemming from the doctors violating a standard of care. This is someone who should’ve immediately gone to a research hospital for continued treatment in Arizona since whatever genetic disorder this is is still very rare, very new, and research on studies from 2014-2020 were only just published in 2022.
This comment is very weird and insensitive. She is not in court trying to prove her case, she is a young woman who has been through a lot.
The doctor did the same to my father in law.
All professions have great workers, good workers, mediocre workers and bad workers. Not every auto mechanic has the same ability to diagnose and solve an auto issue. Same applies to the health care industry. So my advice is do anything in life at your own risk. And maybe get a multitude of opinions. Cause you may just be getting a job done with an inept individual.
Just on her misinformation on sepsis makes me questions her whole story, where did she get her source on medical malpractice. She knew what a hypochondriac is and pretended not to know the word for it
I think she was meaning to talk about people self-diagnosing themselves on WebMD. I don’t think she was pretending to not know the word. She probably had brain fog. It’s really hard to keep a clear head when talking about these traumatic events
Lol working in the pacu I see septic patients everyday
Something tells me she is probably the worst patient to have
what a cruel thing to say. if that was your only takeaway from this video, i think you should do some introspection
Are you kidding me? THAT was your takeaway from this story?
When you have chronic health conditions and are constantly dismissed and referred around it gets exhausting. You have to advocate for yourself at some point
You made it more about you than your mom? And you said your parents wanted to have you are you saying they didn’t want to have your sister?
breaks my heart to hear about the “digging in the arm”. I can assure ya’ll that that is not on purpose, and that we are not trying to hurt you.🥲