How Activists Changed American Healthcare

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  • Опубликовано: 12 июн 2024
  • This is Roots of Resistance! Join Felecia for the Win, and discover how the AIDS Coalition to Unleash Power (ACT UP) revolutionized the healthcare system by challenging pharmaceutical companies, advocating for faster drug approvals, and demanding patient involvement in medical decisions in their effort to combat the AIDS crisis.
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Комментарии • 72

  • @karenstimson2683
    @karenstimson2683 Месяц назад +133

    This brings back memories! I was in my 30's during this period. In 1988 my brother-in-law Charles and his partner Joey were both diagnosed with HIV. Charles joined ACT UP and participated in many of their actions in NYC. He was arrested once and the police refused to let him have his anti-HIV meds while he was in jail. Joey got full-blown AIDS and died in 1994. He was a brilliant artist, and a beautiful human being. I still miss him. Charles has been living with HIV for for 36 years now, and his new partner has been living with AIDS for just as long. Both are now in their 60's, largely because of the work that ACTUP and other activists did.

    • @im.empimp
      @im.empimp Месяц назад +8

      💜💔💜
      I'm glad that your brother-in-law and his partner were able to actively advocate for this.
      I'm so sorry that y'all lost Joey, but am glad to hear that Charles and his partner have been able to benefit from the subsequent research.

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @prettypic444
    @prettypic444 Месяц назад +54

    Reagan once again being the Kevin Bacon of everything wrong with America

  • @samwill7259
    @samwill7259 Месяц назад +85

    Name and Shame. If you know who in power is responsible for the oppression, make sure they know it, make sure EVERYONE knows it

  • @TheSuzberry
    @TheSuzberry Месяц назад +55

    I took my little daughter to see the AIDS quilt when it was on the Mall in DC. The fact that we lost so many loved ones and the US lost so much love, talent and skill still makes me angry.

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @PokhrajRoy.
    @PokhrajRoy. Месяц назад +87

    Funny how the Ronald Reagan biopic was announced. Yeah, now try incorporating the time he flat out refused to help Rock Hudson who needed urgent care as well as the downplaying of the AIDS crisis.

    • @debrabarnhardt1103
      @debrabarnhardt1103 Месяц назад +21

      The election of Ronald Reagan was one of the saddest points in my lifetime. One man dedicated to reviving the worst of the Nixon years. I feared it would be a downward spiral from there and it has been.

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @prettypic444
    @prettypic444 Месяц назад +45

    “The people with X are the experts on the disease” SAY IT LOUDER FOR THE PEOPLE IN THE BACK!!! (But seriously, it’s SO FRUSTRATING being a disabled person and having doctors’/experts’/nondisabled’s opinion prioritized over your own experiences! I’ve had a ton of doctors, teachers, and other people INSIST I didn’t need/“deserve” accommodations because I didn’t fit their preconceived notions!)

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

    • @dragonflies6793
      @dragonflies6793 Месяц назад +1

      Yes!! We're multiply disabled and a system and the way so-called "experts" spread so much misinformation about DID, refusing to listen, insisting our reality can't possibly be real just because it's different from theirs. And in a more traditional experience of disability, we had to wait a year to get a wheelchair because no one would listen to us saying we needed it and kept saying we just had to "build back up our strength" as if we don't have lifelong chronic illnesses.

  • @MxAmericanPi
    @MxAmericanPi Месяц назад +6

    Anthony Fauci cited Kramer's letter that cursed him out directly as a major reason that he began to take the crisis more seriously. I work in HIV prevention and it's upsetting how little people know about the history.

  • @xDianaMoonx
    @xDianaMoonx Месяц назад +18

    It's sad how newer generations don't learn as much about the AIDs epidemic that we did in the 90s. But at the same time that does mean that things have changed for the better. Thank you for this video, as it's definitely still prevalent to today.
    I would also recommend this lovely French movie 120 BPM (Beats per Minute). It's about the Act Up movement in France, and of course as it's a movie has a lot of dramatization but yeah parallels a lot of what was talked about in this video. Very powerful movie.

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @davidshi451
    @davidshi451 Месяц назад +18

    "Our direct action was both on target and hilarious. NIAID would
    have these cocktail receptions, starting at five, after the regular meet-
    lings were over, and we had these custom fortune cookies made up. We
    got one of the servers at the hotel to let us have one of those silver trays,
    and we put the fortune cookies on there-right with the cheese platter,
    and whatever. The fortunes all said, "NIAID, Form a Women's Commit-
    tee." When you opened up the cookie, that's what it said. And the looks
    on the people's faces when they saw what the fortune was in those cook-
    les, really, there was nothing better."
    -Let the Record Show, a history of ACT UP New York

  • @jenniferburns2530
    @jenniferburns2530 Месяц назад +16

    It is easy to get discouraged by the amount of bureaucracy involved in developing and approving medical treatments. Thanks for highlighting the important work of ACT UP and how these activists made changes that still benefit us today.

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @Caterfree10
    @Caterfree10 Месяц назад +18

    In this house, we love and appreciate our Qu33r elders for their hard work protecting our community when the government failed us. But make no mistake, AIDS still rages on, especially in underserved communities such as black MSM.
    (I do hope they forgive the self censorship no thanks to RUclips’s comment policies tho. 😩)
    Also, everyone wanting to know more should read the book And the Band Played On. Worth it on every level.

    • @jamessteven1858
      @jamessteven1858 Месяц назад +1

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @bnthern
    @bnthern Месяц назад +11

    a warm and yey terrifing presentation which shows the remaining contenious nature of healthcare today!!

  • @PokhrajRoy.
    @PokhrajRoy. Месяц назад +25

    More than Covid itself, there was that whole monkeypox virus which then almost became a repeat of the stigma from the ‘80s.

    • @Caterfree10
      @Caterfree10 Месяц назад

      That’s bc monkeypox wasn’t airborne. Covid is but people including CDC officials downplayed this, and now we have fucktons of variants of a full body virus all throughout the world bc god forbid people think of others and wear a mask and stay home for a month.

    • @jspihlman
      @jspihlman Месяц назад +4

      It's thanks to gay men getting vaccinated so quickly and in such high numbers that Mpox didn't become a bigger outbreak.

  • @paytonpryor
    @paytonpryor Месяц назад +9

    Thank you for covering this topic.

  • @ubadahoop
    @ubadahoop Месяц назад +6

    Ann Northup was an ACT UP member arrested at those protests and she hosts a weekly newscast called GAY USA which I highly recommend.

  • @anthonybird546
    @anthonybird546 Месяц назад +3

    I was a kid and growing up, didn't know anyone affected by AIDS, but I remember as a kid going from first being aware of it, and used as kinda of a gay joke and moral panic, to becoming understood as a serious, dangerous, heartbreaking disaster, and it was thanks to all these activists coming together, even to teach kids the facts about this disease. What amazing people who took action and made change happen.

  • @BrillianceProper
    @BrillianceProper Месяц назад +2

    Congrats to Felicia, love that she got this opportunity. And this is important information for everyone. I learned a lot here.

  • @rJaune
    @rJaune Месяц назад +3

    This was fantastic! Thank you for bringing to light how ACT UP's influence and tactics are still having positive inpacts today. These people were truely courageous! Happy Pride!

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

    • @kellengold7828
      @kellengold7828 Месяц назад +1

      ACT UP NY is still around and protesting!

  • @ShenaedraTatum
    @ShenaedraTatum Месяц назад +2

    Amazing loved every minute of it!

  • @Raddiebaddie
    @Raddiebaddie 26 дней назад

    Important to remember our history and the activists who got us to where we are today

  • @kaylawatkins6528
    @kaylawatkins6528 Месяц назад

    Fantastic work, love the host, all power to the people! Love seeing the complexity of effective organizing.

  • @rosemarymcbride3419
    @rosemarymcbride3419 Месяц назад +2

    We need this kind of energy to protect trans healthcare. OUR bodily autonomy is YOUR bodily autonomy

  • @windlessoriginals1150
    @windlessoriginals1150 Месяц назад

    Thank you

  • @lorenstiteler305
    @lorenstiteler305 Месяц назад

    Thank you for sharing our history 🌈

  • @chelseashurmantine8153
    @chelseashurmantine8153 Месяц назад +3

    Badass.

  • @mrroberttrujillo
    @mrroberttrujillo Месяц назад

    Right on!!!

  • @AnthemUnanthemed
    @AnthemUnanthemed Месяц назад +10

    "what lessons from act up do you think are still applicable today"
    How about everything? The war on trauma and people suffering, by criminalizing and stigmatizing well documented a medical condition called substance use disorder makes me mad, we need to start using literally everything learned because many many more people will die from it, most likely due to downstream effects of policy decisions.

    • @wmdkitty
      @wmdkitty Месяц назад

      Using drugs is a choice, not a disease.

    • @TwisterTornado
      @TwisterTornado Месяц назад

      ​​@@wmdkitty Many people on opioids were FIRST prescribed painkillers, from a doctor.
      This has been well established; the Sackler family had to pay billions. Catch up.

    • @AnthemUnanthemed
      @AnthemUnanthemed Месяц назад +3

      @@wmdkitty substance use disorder is a well know recognized and diagnose condition. For more people than you want to admit, the choice is either, a quick end, or using for long enough so that u can find something that works and get better. People with chronic pain dont chose to be debilitated by their symptoms, same with people who have executive function issues, and if using a drug gets them through the day without ending it, why arent we trying to help these people rather than lock them in a cage?

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @softwaifu
    @softwaifu Месяц назад +7

    "Protesting never did anything" - the dumbest guy you know, probably

  • @gabriellef3351
    @gabriellef3351 Месяц назад

    I used to work with a jw. I could tell it was hard to reconcile what is and what they tried to believe

  • @denelson83
    @denelson83 Месяц назад

    Yeah, now what about the fight for universal health care in the US?

  • @sarafina6797
    @sarafina6797 Месяц назад

    If this video does one thing, I hope it makes those glasses go out of style again.

  • @dmiariana
    @dmiariana Месяц назад

    Loved thisshit

  • @jamessteven1858
    @jamessteven1858 Месяц назад

    Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

  • @curiousfirely
    @curiousfirely Месяц назад +2

    This is an amazing video, but doesn't describe citizen science.

    • @lyspaere
      @lyspaere Месяц назад +2

      My understanding is that some citizens contribute data, some citizens contribute personal experience (e.g. "those with ___ are the experts on ___", from the video), some citizens contribute enthusiasm, and some citizens contribute professional experience, and together they have, in a word, publishable scientific conclusions.

    • @pbsorigins
      @pbsorigins  Месяц назад +2

      We appreciate your comment and have tweaked the headline to more accurately reflect the storyline. Thank you

  • @EnlightenedMinarchist
    @EnlightenedMinarchist 21 день назад

    Nope. Those articles have no effect on me and dont drive me to anger.

  • @MoeMa4
    @MoeMa4 Месяц назад +2

    Its sad that you completely neglected to mention that ACT UP movement is still very active and advocating for Palestinian rights using similar strategies. But this is a PBS channel after all.

  • @TheBostricano
    @TheBostricano Месяц назад

    Manipulation at its best.YOU DONT GET TO TELL ME HOW TO FEEL!!!
    GIVE ME THE FACTS, NOT YOUR BULLYING EDITORIAL

  • @davidbrydon3124
    @davidbrydon3124 Месяц назад

    Why did the presenter stop with the glasses? Why not a fez with peacock feathers in it too? Seriously, i lost focus every time the video cut to the presenter

    • @merandahui4045
      @merandahui4045 Месяц назад +1

      Womp womp

    • @jamessteven1858
      @jamessteven1858 Месяц назад

      Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did

    • @Acidfunkish
      @Acidfunkish Месяц назад

      Why did the OP openly admit to being such a wanker? Why not go full on bigotry, while you're at it?

  • @jamessteven1858
    @jamessteven1858 Месяц назад

    Thank you #DRABIOLA for being the reason am smiling today, you gave me hope and am proud to call you my doctor for curing me from HSV1 and 2 through your medication I'm thankful for the good work you did