Hi dear colleague 😊 I'm a physical therapist whose clinical interest is the rehabilitation of Parkinson's disease. I really appreciate your great endeavor! Thanks for the videos you have made so far. Hugs and love from İstanbul 🤗
Both my father and my father-in-law suffer from Parkinson's. Your channel and others like it are a wealth of helpful information - keep up the great content!
This is great advice!! I went from working 60-70 hours a week of hard physical labor, then weekends of housework - to disability within 3 years. One of the first symptoms was fatigue, where I found walking difficult. People noticed me lumbering. Once sinemet was started, I felt much better. A couple years later seligeline was added, which helped. I’m still fatigued, but my 50% energy level is still better than some peoples 100%, lol. I can still mow the yard, do car and house repairs, but now pace myself.
Whoa, that’s such a drastic change of pace since diagnosis. I’m so glad that you’re still able to “git er done” by pacing yourself and with medication management for the PD. 💪🏻
This is exactly where my husband is right now. It's very troubling and confusing for him. This was fabulous information and we will take heed of your caring and precise words. Thank you so very much! 🦋✨💪🏻🧡
"Pure vegetables, such as tomatoes, peppers, aubergines and cauliflower, etc., which contain natural nicotine are effective against Parkinson's if eaten frequently." Quote by Ptaah, talking to 'Billy' Eduard Albert Meier (BEAM), contact report 578, January 9th, 2014.
I’ve had Parkinson’s for almost 3 years now. My neurologist wanted to put me on meds, but I respectfully refused. I am doing great and am pretty much living a normal life, much to the dismay of my family and friends…and doctors! I attribute it ALL to my relationship with God. We all know God “designed” us to function best when we eat right, exercise and get adequate amounts of sleep. I do feel fatigued periodically, but taking a one or two-hour nap makes a huge difference. And if I still feel like I was hit by a bus, I say some prayers, then I’m back on my feet and start getting my chores done. I live in a wooded area and am still doing tons of yard work that blows my wife’s mind. The neurologist painted a doom and gloom picture for me, but God has different plans for me. He’s always taking great care of me! 😊
That’s amazing. I’m happy that you have been given this gift. Don’t stop what you are doing as it may be once harder over time and your lifestyle is sure to help!
Great advice! I was dealing with incredible fatigue last year. I stopped drinking alcohol 31 Dec and I've been feeling better. I'm thinking it likely wasn't mixing well with meds.
@SDWP hey, I’m open to suggestions. You reminded me too, because one of my clients with PD mentioned knowing another PwP who drinks heavily and that they suffer terribly with breakthrough symptoms and falls, etc.
Am I glad I saw this on a google search. I have been extremely fatigued for months and thought it was something else. Getting Parkinson’s care from. VA which just means seeing a neurologist every 6 months. How to I find Parkinson’s specialists?
Hi Stephen! Glad you found this too, does your VA have a movement disorder division? If not there are ways to find local specialists outside of the VA system. You can search for movement disorder specialists through the database online and for therapies I’d search for LSVT BIG and LOUD certified therapists in your area. If you’d like to jump on a call with me I’d be happy to explore options with you in your local area. clarity.fm/pdeducation
Fatigue can occur pre-PD diagnosis. I thought I had long Covid. Then I developed tremor & some other symptoms, got diagnosed, & began taking ropinirole. Feeling somewhat better overall, but the fatigue won’t go away.
I would say the absence of other Parkinson’s symptoms would be a possible clue. Fatigue is not often the first sign of Parkinson’s, though it could be among other signs and symptoms that may show up.
I’m glad you brought that up! Red light therapy can be very helpful. Our friend David has used the red light array by Rouge Care and had very promising results. ruclips.net/video/X_jptH5J7zY/видео.htmlsi=rC1_I7Y9Mw6-ZKGt
Kinda scary to me. I have all the symptoms. I’m go to physical therapy but no mention of Parkinson’s. 😬 at least I’m knowledgeable now to ask good questions. Thank you ❤
You mean you have all the symptoms of fatigue? Or Parkinson’s? Just be aware, fatigue can be caused by or associated with other issues such as chronic fatigue syndrome (the obvious), fibromyalgia, and chronic pain. But it never hurts to consider all of the possibilities. I’m glad you enjoyed the video thanks for your comment!
@@parkinsonsdiseaseeducationit’s more fatigue. I’m in therapy now and I believe it will help. Just started but I’m bound and determined to be able to walk without thinking of walking if that makes sense.
Good for you! That’s great that you’re already in therapy. Just try to keep in mind that exercise will definitely have a positive impact, though feelings of fatigue may still be present to some degree. It’s kind of a matter of inertia too, because getting started and becoming more consistent with a routine is half the battle. I wish you the best, please let us know how therapy is going. Hopefully you will notice they walking doesn’t feel so effortful as you progress. 😊
Hi dear colleague 😊 I'm a physical therapist whose clinical interest is the rehabilitation of Parkinson's disease. I really appreciate your great endeavor! Thanks for the videos you have made so far. Hugs and love from İstanbul 🤗
Wonderful Hakan! Thank you so much for your support! Keep fighting the good fight! 💪🏻
Both my father and my father-in-law suffer from Parkinson's. Your channel and others like it are a wealth of helpful information - keep up the great content!
Thank you Jason for the kind words and your support! It means a lot to me and helps to keep me motivated to keep working on this project
This is great advice!!
I went from working 60-70 hours a week of hard physical labor, then weekends of housework - to disability within 3 years. One of the first symptoms was fatigue, where I found walking difficult. People noticed me lumbering. Once sinemet was started, I felt much better. A couple years later seligeline was added, which helped.
I’m still fatigued, but my 50% energy level is still better than some peoples 100%, lol. I can still mow the yard, do car and house repairs, but now pace myself.
Whoa, that’s such a drastic change of pace since diagnosis. I’m so glad that you’re still able to “git er done” by pacing yourself and with medication management for the PD. 💪🏻
This is exactly where my husband is right now. It's very troubling and confusing for him. This was fabulous information and we will take heed of your caring and precise words. Thank you so very much! 🦋✨💪🏻🧡
I’m sorry very glad this was helpful information.
"Pure vegetables, such as tomatoes, peppers, aubergines and cauliflower, etc., which contain natural nicotine are effective against Parkinson's if eaten frequently." Quote by Ptaah, talking to 'Billy' Eduard Albert Meier (BEAM), contact report 578, January 9th, 2014.
I’ve had Parkinson’s for almost 3 years now. My neurologist wanted to put me on meds, but I respectfully refused. I am doing great and am pretty much living a normal life, much to the dismay of my family and friends…and doctors! I attribute it ALL to my relationship with God. We all know God “designed” us to function best when we eat right, exercise and get adequate amounts of sleep. I do feel fatigued periodically, but taking a one or two-hour nap makes a huge difference. And if I still feel like I was hit by a bus, I say some prayers, then I’m back on my feet and start getting my chores done. I live in a wooded area and am still doing tons of yard work that blows my wife’s mind. The neurologist painted a doom and gloom picture for me, but God has different plans for me. He’s always taking great care of me! 😊
That’s amazing. I’m happy that you have been given this gift. Don’t stop what you are doing as it may be once harder over time and your lifestyle is sure to help!
Great advice! I was dealing with incredible fatigue last year. I stopped drinking alcohol 31 Dec and I've been feeling better. I'm thinking it likely wasn't mixing well with meds.
Wow! Yes, actually alcohol and PD meds do NOT mix well. That’s actually a video I need to make!
@@parkinsonsdiseaseeducation Glad I could inspire a new video! 🙂
@SDWP hey, I’m open to suggestions. You reminded me too, because one of my clients with PD mentioned knowing another PwP who drinks heavily and that they suffer terribly with breakthrough symptoms and falls, etc.
Am I glad I saw this on a google search. I have been extremely fatigued for months and thought it was something else. Getting Parkinson’s care from. VA which just means seeing a neurologist every 6 months. How to I find Parkinson’s specialists?
Hi Stephen! Glad you found this too, does your VA have a movement disorder division? If not there are ways to find local specialists outside of the VA system. You can search for movement disorder specialists through the database online and for therapies I’d search for LSVT BIG and LOUD certified therapists in your area. If you’d like to jump on a call with me I’d be happy to explore options with you in your local area. clarity.fm/pdeducation
Fatigue can occur pre-PD diagnosis. I thought I had long Covid. Then I developed tremor & some other symptoms, got diagnosed, & began taking ropinirole. Feeling somewhat better overall, but the fatigue won’t go away.
You bring up a good point about this showing up as an early sign.
I'm have this from past 7 months🤕, how do I differentiate between parkinson's and CFS? Please help
I would say the absence of other Parkinson’s symptoms would be a possible clue. Fatigue is not often the first sign of Parkinson’s, though it could be among other signs and symptoms that may show up.
I have had excellent results in resolving fatigue through using a red light helmet
I’m glad you brought that up! Red light therapy can be very helpful. Our friend David has used the red light array by Rouge Care and had very promising results. ruclips.net/video/X_jptH5J7zY/видео.htmlsi=rC1_I7Y9Mw6-ZKGt
Excellent
Glad you thought so! Thanks for your comment Robert. 😃
Kinda scary to me. I have all the symptoms. I’m go to physical therapy but no mention of Parkinson’s. 😬 at least I’m knowledgeable now to ask good questions. Thank you ❤
You mean you have all the symptoms of fatigue? Or Parkinson’s? Just be aware, fatigue can be caused by or associated with other issues such as chronic fatigue syndrome (the obvious), fibromyalgia, and chronic pain. But it never hurts to consider all of the possibilities. I’m glad you enjoyed the video thanks for your comment!
@@parkinsonsdiseaseeducationit’s more fatigue. I’m in therapy now and I believe it will help. Just started but I’m bound and determined to be able to walk without thinking of walking if that makes sense.
Good for you! That’s great that you’re already in therapy. Just try to keep in mind that exercise will definitely have a positive impact, though feelings of fatigue may still be present to some degree. It’s kind of a matter of inertia too, because getting started and becoming more consistent with a routine is half the battle. I wish you the best, please let us know how therapy is going. Hopefully you will notice they walking doesn’t feel so effortful as you progress. 😊
.
Who is he?
He meaning the host?