This was clearly a discussion relevant to YOPDs only. There are zero positives to getting the diagnosis at 64, forcing me into a retirement fraught with excruciating daily pain from dystonic feet. Unlike Robin, I can suddenly no longer ANY of my beloved hobbies (gardening, swimming, kayaking, yoga ). When your feet can no longer support your body weight, you're screwed. In 2 years, this disease had taken me down, and I can't wait for the hell to be over. The pot on the front burner got turned to full blast, and all the water has evaporated and the pot is charred 😢😢
Thanks for your comment. Parkinson's is hard and affects everyone differently. We are here for you. Regarding dystonia, we have some information about managing it here: davisphinneyfoundation.org/dystonia-and-parkinsons/ Please reach out to us at blog@dpf.org if you have any questions or if we can help in any way.
What a wonderful show thank you I’ve had my Parkinson’s for 20 something years and it is getting bad but I do have some good days now I know that my friends are there for me
I was recently diagnosed although I've had a left hand tremor for probably 5 years, but my PCP thought that it was most probably ET, and wanting to believe that, I did too! But eventually after going through a handful of tests that led to a DAT Scan, sure enough, that's where I am. I've just started on C/L and it's seems to be working well enough, but I am having problems with accepting things, although I've been involved in AA for 20 years and get that we have no control over most things, and we can only take it "one day at a time",. But I love what is being said here and it makes me think, not too much...lolol......because I can think myself into 'Dumbassness'.....but can help me navigate the initial part of this, my 'next' disease!! So, God Bless & Thanks!
Diagnose last year with Parkinson's features. Really I said. Never heard of that at all. Didn't even get a chance to retire. I'm 66 years old I was planning to work until 70. Didn't get a chance at all to plan for retirement. Now I'm diagnosed with anxiety and depression too. What the hell! Started with brain fog 4 days after my covid-19 vaccine number two and has never gone away since. Because of the brain fog my PCP recommended I see a neurologist. That neurologist diagnosed me with Parkinson's features. Did the covid-19 vaccine do this to me? My PCP believes it did. So does my movement disorder specialist. Wish I never took that vaccine.
I loved his poetry, too!
It was a pleasure listening to all of you!!!
Thanks! Happy to be here for you.
Loved the pot on stove analogy, Robyn.
This was clearly a discussion relevant to YOPDs only. There are zero positives to getting the diagnosis at 64, forcing me into a retirement fraught with excruciating daily pain from dystonic feet. Unlike Robin, I can suddenly no longer ANY of my beloved hobbies (gardening, swimming, kayaking, yoga ). When your feet can no longer support your body weight, you're screwed. In 2 years, this disease had taken me down, and I can't wait for the hell to be over. The pot on the front burner got turned to full blast, and all the water has evaporated and the pot is charred 😢😢
Thanks for your comment. Parkinson's is hard and affects everyone differently. We are here for you.
Regarding dystonia, we have some information about managing it here: davisphinneyfoundation.org/dystonia-and-parkinsons/
Please reach out to us at blog@dpf.org if you have any questions or if we can help in any way.
What a wonderful show thank you I’ve had my Parkinson’s for 20 something years and it is getting bad but I do have some good days now I know that my friends are there for me
I want people to know about my PD before i meet them. i feel much less self conscious about my PD.
I was recently diagnosed although I've had a left hand tremor for probably 5 years, but my PCP thought that it was most probably ET, and wanting to believe that, I did too! But eventually after going through a handful of tests that led to a DAT Scan, sure enough, that's where I am. I've just started on C/L and it's seems to be working well enough, but I am having problems with accepting things, although I've been involved in AA for 20 years and get that we have no control over most things, and we can only take it "one day at a time",. But I love what is being said here and it makes me think, not too much...lolol......because I can think myself into 'Dumbassness'.....but can help me navigate the initial part of this, my 'next' disease!! So, God Bless & Thanks!
Wife and I neither got vaccines. Never got Covid either.
Best advice for surviving peri menopause whilst battling PD?
Diagnose last year with Parkinson's features. Really I said. Never heard of that at all. Didn't even get a chance to retire. I'm 66 years old I was planning to work until 70. Didn't get a chance at all to plan for retirement. Now I'm diagnosed with anxiety and depression too. What the hell! Started with brain fog 4 days after my covid-19 vaccine number two and has never gone away since. Because of the brain fog my PCP recommended I see a neurologist. That neurologist diagnosed me with Parkinson's features. Did the covid-19 vaccine do this to me? My PCP believes it did. So does my movement disorder specialist. Wish I never took that vaccine.