My husband is inhospitable being assessed and they believe he has Parkinson’s and even a chance of Lewy body disease. He is blind.. several months ago he started walking bent over and moved so slow. We loved dancing. So my last. Two visits, I said let’s have a dance. He was delighted. Not steady but delighted. We are very concerned. He wants to come home but they are still doing tests . He’s so sweet.it break s my heart,bad enough being blind. Now this. He’s 81 and has always been physically active. Would dancing be good for him even though he’s not too steady. Thank you
As long as he has enough balance, he might be okay with it. That said, music can really help people with Parkinson's move better. He could hold on to your hand plus something else like a kitchen counter and sway to the music. He could still find joy in that.
Vitamin B1 deficiency. Everyone who has Parkinson's should look into Dr. Costantini and his work with high dose Thiamine HCL (vitamin B1) therapy. Notice how quick providers are to rush to pharmaceutical or surgical interventions? It's no fault of their own, it's how the system is set up. 1) Doctor's aren't trained heavily in nutrition let alone using high dose vitamins as if they were medicine. 2) Vitamins can't be patented so there's no great financial incentive to use them as treatment. 3) There's not a lot of double blind, placebo controlled research into high dose vitamins, again because there's no financial incentive to do those studies. And then doctors don't reach for that treatment because "there not enough research to back it up". See how everything is messed up? Vitamin B1. Look into it.
@@carlmclean5076 Wishing you the best with your health. The channel keeps deleting my comment so please just Google the doctor I mentioned and you'll find the info. :)
@@YesPlease1 thanks for the tip. I know exactly what you’re saying about vitamins and Dr’s. There is no incentive to find something that is almost free to solve a health problem. It is costly to do a drug trial and nobody is going to spend the money unless they can make money. Same problem with Covid-19 treatments
I struggle with toe curling dystonia and nail deformity very early in my PD diagnosis. I am finding some relief by wearing soft rubber toe seperators. I use to wear the 5-toes version. Thankfully, the single-toe ones work for me these days, such that I can keep them on even with my wide-toebox sneakers.
Please look into high dose vitamin B1 therapy, specifically the work of Dr. Constantini with Thiamine HCL. Parkinson's may essentially be a Thiamine deficiency/dependency.
I had the unfortunate experience of going to a neurologist when I had a pulse count of 40! The nurse of 32 years told the doctor this. The doctor came in said oh you have both of 40 I'll have to check into that and never did! Went through the whole nine yards of putting me through pushing and pulling and walking and talking and remembering and all that crap and let me out of her appointment like that! I could have died in the parking lot! 4 days later I decided I was still wasn't feeling good so I went to the ER and they said you're not going anywhere you're going to have a pacemaker put in immediately you're going to be transferred by ambulance and you better call everybody that you know that cares about you! Incompetence I will never trust a neurologist again. I actually talked to a second opinion and the young fellow said oh I wouldn't expect that a neurologist would highlight a 40 pulse! Well would you highlight a drop dead in your office for a first appointment? How stupid can you be? In all honesty I should have sued them. I am now living with the incompetence of a medical field that is absolutely out of control! The ER in the same Hospital said she should have walked you over here immediately!!!! I don't give any Credence to any of you. I don't care what your degree is I don't care what your experience is every individual has the opportunity to do what they were meant to do in the capacity that they are meant to do it. And if you fail as this neurologist did you should be hung up to dry and never practice again! Oh and at the end of the office visit this incompetent neurologist when I asked her so what do I do next? What is it I have? She indicated she didn't know she lied out right to me because her notes that I saw that were not privy to me initially that day indicated she knew precisely what was going on and she refused to tell me! Incompetence there is no lighter term that I can use for this person. I don't care if she had eight years of medical training and two years of fellowship she was completely off the Mark by her complete inability to assess who I was what I was going through. I would never listen to another neurologist I'd rather go to a natural path!
That is horrible! Glad you went to the ER. Dr have latched unto their specific field and have forgotten to observe their patients for some of the basic tenets of being a good Dr. Shame on them! You should have and still should sue her for medical malfeasance!
Yes. It is often described as a severe form of bradykinesia. It's an inability to move and gets worse as Parkinson's progresses. Or better said, a complication of Parkinson's.
I have bradykinesia I freeze in doorways , gait disorder my symptoms all match Parkinson's but diagnosed with FND I do not believe my FND diagnosis So many of my symptoms match Parkinson's more than it matches FND
Thanks for your message. Diagnosis of Parkinson's is often challenging, and some studies report that up to 30% of people diagnosed with Parkinson's have their diagnosis change. While this isn't directly relevant to a FND diagnosis, you might find this post helpful if you follow up with the person who established your diagnosis (or if you seek a second opinion): davisphinneyfoundation.org/parkinsons-differential-diagnosis/
My neurologist recommended something called Nurupatch 1 mg/24 hour in DIS Ucbp. It’s a patch that should help with the toe curling dystonia. Does anybody have any opinion on this?
Often it is visit with a movement disorder specialist for diagnosis. A good resource for finding these specialists is available here: www.movementdisorders.org/MDS/Resources/Patient-Resources/Movement-Disorders-Specialist-Directory-Listing.htm Note that that is not a complete list of all movement disorder specialists. You can also consult with your primary care provider or a local neurologist for recommendations regarding which providers in your local area have the most experience with Parkinson's.
I prefer to take the cerebellum with all its possibilities, because the movements take not in molecutar the filaments first of the muscles,because through press it goes with the information first to the tendon so no information to the cerebellum, this is without information to work.!!!!!!
My neurologist is a doppelganger for Dr. Khandhar. Has the same voice and manner of speaking as well. Very informative presentation. Thank you Dr. Khandhar.
Totally unmanageable 40 minutes today 6 days a week #kaizen. I know somebody was a marathon runner who had to have a pacemaker put in I had to have a pacemaker put in this isn't just about a neurological problem I am recovering from that first! That is insane advice.
I have fallen every day for the past 3?weeks what can be done? I have the curling toes and my neurologist is a movement disorder gives me Botox shots for it, but all of a sudden I keep falling!
I also fall very frequently I’d say between 10-15 times per week. Going to increase exercise and see if that helps. Good luck and God bless us all ❤️✝️🤞
My husband is inhospitable being assessed and they believe he has Parkinson’s and even a chance of Lewy body disease. He is blind.. several months ago he started walking bent over and moved so slow. We loved dancing. So my last. Two visits, I said let’s have a dance. He was delighted. Not steady but delighted. We are very concerned. He wants to come home but they are still doing tests . He’s so sweet.it break s my heart,bad enough being blind. Now this. He’s 81 and has always been physically active. Would dancing be good for him even though he’s not too steady. Thank you
As long as he has enough balance, he might be okay with it. That said, music can really help people with Parkinson's move better. He could hold on to your hand plus something else like a kitchen counter and sway to the music. He could still find joy in that.
Vitamin B1 deficiency. Everyone who has Parkinson's should look into Dr. Costantini and his work with high dose Thiamine HCL (vitamin B1) therapy.
Notice how quick providers are to rush to pharmaceutical or surgical interventions? It's no fault of their own, it's how the system is set up. 1) Doctor's aren't trained heavily in nutrition let alone using high dose vitamins as if they were medicine. 2) Vitamins can't be patented so there's no great financial incentive to use them as treatment. 3) There's not a lot of double blind, placebo controlled research into high dose vitamins, again because there's no financial incentive to do those studies. And then doctors don't reach for that treatment because "there not enough research to back it up".
See how everything is messed up?
Vitamin B1. Look into it.
How much B1 do I need? i have the tremor predominent Parkinsons.
@@carlmclean5076 Wishing you the best with your health. The channel keeps deleting my comment so please just Google the doctor I mentioned and you'll find the info. :)
@@YesPlease1 thanks for the tip. I know exactly what you’re saying about vitamins and Dr’s. There is no incentive to find something that is almost free to solve a health problem. It is costly to do a drug trial and nobody is going to spend the money unless they can make money. Same problem with Covid-19 treatments
In my city there is a neuro optometrist who specializes in neuro optometry. He is definitely a rare breed.
Thank you 🙏
I struggle with toe curling dystonia and nail deformity very early in my PD diagnosis. I am finding some relief by wearing soft rubber toe seperators. I use to wear the 5-toes version. Thankfully, the single-toe ones work for me these days, such that I can keep them on even with my wide-toebox sneakers.
Please look into high dose vitamin B1 therapy, specifically the work of Dr. Constantini with Thiamine HCL. Parkinson's may essentially be a Thiamine deficiency/dependency.
I had the unfortunate experience of going to a neurologist when I had a pulse count of 40! The nurse of 32 years told the doctor this. The doctor came in said oh you have both of 40 I'll have to check into that and never did! Went through the whole nine yards of putting me through pushing and pulling and walking and talking and remembering and all that crap and let me out of her appointment like that! I could have died in the parking lot! 4 days later I decided I was still wasn't feeling good so I went to the ER and they said you're not going anywhere you're going to have a pacemaker put in immediately you're going to be transferred by ambulance and you better call everybody that you know that cares about you! Incompetence I will never trust a neurologist again. I actually talked to a second opinion and the young fellow said oh I wouldn't expect that a neurologist would highlight a 40 pulse! Well would you highlight a drop dead in your office for a first appointment? How stupid can you be? In all honesty I should have sued them. I am now living with the incompetence of a medical field that is absolutely out of control! The ER in the same Hospital said she should have walked you over here immediately!!!! I don't give any Credence to any of you. I don't care what your degree is I don't care what your experience is every individual has the opportunity to do what they were meant to do in the capacity that they are meant to do it. And if you fail as this neurologist did you should be hung up to dry and never practice again! Oh and at the end of the office visit this incompetent neurologist when I asked her so what do I do next? What is it I have? She indicated she didn't know she lied out right to me because her notes that I saw that were not privy to me initially that day indicated she knew precisely what was going on and she refused to tell me! Incompetence there is no lighter term that I can use for this person. I don't care if she had eight years of medical training and two years of fellowship she was completely off the Mark by her complete inability to assess who I was what I was going through. I would never listen to another neurologist I'd rather go to a natural path!
That is horrible! Glad you went to the ER. Dr have latched unto their specific field and have forgotten to observe their patients for some of the basic tenets of being a good Dr.
Shame on them! You should have and still should sue her for medical malfeasance!
)
œ
I of 100 MG of vitamin b1 every morning ❤IMO
I have a question. Can those with Parkinson’s experience akinesia?
Yes. It is often described as a severe form of bradykinesia. It's an inability to move and gets worse as Parkinson's progresses. Or better said, a complication of Parkinson's.
I have bradykinesia I freeze in doorways , gait disorder my symptoms all match Parkinson's but diagnosed with FND I do not believe my FND diagnosis So many of my symptoms match Parkinson's more than it matches FND
Thanks for your message. Diagnosis of Parkinson's is often challenging, and some studies report that up to 30% of people diagnosed with Parkinson's have their diagnosis change. While this isn't directly relevant to a FND diagnosis, you might find this post helpful if you follow up with the person who established your diagnosis (or if you seek a second opinion): davisphinneyfoundation.org/parkinsons-differential-diagnosis/
How about flat feet and nerve damage in the legs
My neurologist recommended something called Nurupatch 1 mg/24 hour in DIS Ucbp. It’s a patch that should help with the toe curling dystonia. Does anybody have any opinion on this?
What to use for instability and freezing of gait
Where would be the best place for a proper diagnosis? ,I have strong familial ancestry of it.🧓😎😇🙏
Often it is visit with a movement disorder specialist for diagnosis. A good resource for finding these specialists is available here: www.movementdisorders.org/MDS/Resources/Patient-Resources/Movement-Disorders-Specialist-Directory-Listing.htm
Note that that is not a complete list of all movement disorder specialists. You can also consult with your primary care provider or a local neurologist for recommendations regarding which providers in your local area have the most experience with Parkinson's.
I prefer to take the cerebellum with all its possibilities, because the movements take not in molecutar the filaments first of the muscles,because through press it goes with the information first to the tendon so no information to the cerebellum, this is without information to work.!!!!!!
very informative. thank you Dr. Khandar.
THANK YOU SO MUCH for describing the different sub types!
Excellent presentation. I am recently diagnosed, this helped catch up. Thank you.
So much information for a brain that forgets 😮😅😊❤😂🎉😢😮😅😊
Yes, we get that! Some find that writing down some notes while watching our videos can help pull out the key points that are relevant to you.
My neurologist is a doppelganger for Dr. Khandhar. Has the same voice and manner of speaking as well. Very informative presentation. Thank you Dr. Khandhar.
8
Thoughts on Occupational Therapy in Parkinson’s?
You might like to hear this interview❤
Totally unmanageable 40 minutes today 6 days a week #kaizen. I know somebody was a marathon runner who had to have a pacemaker put in I had to have a pacemaker put in this isn't just about a neurological problem I am recovering from that first! That is insane advice.
S orry ? I don't know what you mean about having a pacemaker are you saying that it's part of Parkinson's?
I have fallen every day for the past 3?weeks what can be done? I have the curling toes and my neurologist is a movement disorder gives me Botox shots for it, but all of a sudden I keep falling!
I also fall very frequently I’d say between 10-15 times per week. Going to increase exercise and see if that helps. Good luck and God bless us all ❤️✝️🤞
Me to falling I cant go alone to work
@@ginahunter5913 I can’t go anywhere alone!
Isn’t there a pill for bananas?
Not bananas, balance