Very nicely explained brad... Loved your style. I am 31 and possibly have LGMD as i haven't been able to get a good doctor to fully diagnose me. But have enlarged calf muscles and my proximal muscles have lost quite a bit of mass. No running but fortunately can walk for quite some time. That's why i walk for about 5km daily.. Iqill be checking you channel regularly.
Hello Mr Brad. Thank you for sharing your story. The goodness of your heart is evident on your face. I'm Murat Tamer and I'm writing from İstanbul Turkey. Unfortunately, I have lgmd. Type 2J. It started when I was 27 and I'm 37 now. Until last February, I could walk without support, although I had difficulty. In February, I fell and broke my ankle and kneecap. Since I could not use my legs during the treatment, the progression of the disease accelerated. I can no longer walk without support. I can only walk short distances with support. I also use a wheelchair from time to time. What type of LGMD is yours? Nice to meet you. Ps: apologize for my English.
Great video on this topic! I also have LGMD - type 2A. I was diagnosed at 15, I’m 21 now. Still walking, but I want to get a cane soon as I think that will help greatly. Love your positivity. I actually just started a RUclips channel a few days ago. It’s all about art - specifically watercolors! :)
Thanks for your comment and for sharing your experiences! There's really a lot happening research-wise in this area. And thanks for the nice compliment. I'll definitely check out your channel!!
Aw, thank you so much for your kind words, Rebecca!!! One of my coworkers has a lemon tree in her office and I put a picture of it in a presentation I gave to medical students about my experiences. So that metaphor is now stuck in my head!
I got diagnosed limb girdle. ANO5 type 2. everyone wants to help and i want to things myself. its hard to look back at the things you built and did.And cant do now.mine hit at 35 but looking back i think it was probably 25
Thank you for sharing your story!
Very nicely explained brad... Loved your style. I am 31 and possibly have LGMD as i haven't been able to get a good doctor to fully diagnose me. But have enlarged calf muscles and my proximal muscles have lost quite a bit of mass. No running but fortunately can walk for quite some time. That's why i walk for about 5km daily.. Iqill be checking you channel regularly.
Hello Mr Brad. Thank you for sharing your story. The goodness of your heart is evident on your face. I'm Murat Tamer and I'm writing from İstanbul Turkey. Unfortunately, I have lgmd. Type 2J. It started when I was 27 and I'm 37 now. Until last February, I could walk without support, although I had difficulty. In February, I fell and broke my ankle and kneecap. Since I could not use my legs during the treatment, the progression of the disease accelerated. I can no longer walk without support. I can only walk short distances with support. I also use a wheelchair from time to time. What type of LGMD is yours? Nice to meet you. Ps: apologize for my English.
Great video on this topic! I also have LGMD - type 2A. I was diagnosed at 15, I’m 21 now. Still walking, but I want to get a cane soon as I think that will help greatly. Love your positivity.
I actually just started a RUclips channel a few days ago. It’s all about art - specifically watercolors! :)
Thanks for your comment and for sharing your experiences! There's really a lot happening research-wise in this area. And thanks for the nice compliment. I'll definitely check out your channel!!
Good job, Professor! :)
Thank you, Carol!
Thank you so much for sharing your story with us, Brad! You are very brave. 😊 Way to turn the lemons into lemonade!
Aw, thank you so much for your kind words, Rebecca!!! One of my coworkers has a lemon tree in her office and I put a picture of it in a presentation I gave to medical students about my experiences. So that metaphor is now stuck in my head!
I got diagnosed limb girdle. ANO5 type 2. everyone wants to help and i want to things myself. its hard to look back at the things you built and did.And cant do now.mine hit at 35 but looking back i think it was probably 25
be thankful. mine hit and diagnosed at age 15, now 23 and barely capable of getting around.
I have diagnosed with LGMD . And i have the same symptoms . Is there any treatment for this now ....??
My name is hemantaraul my prablam is limb girdel mascular dystraphy please tritmant help
My name is hemantaraul my prablam is limb girdel mascular dystraphy please tritmant help