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In this video, I talk about our special-needs son Josh age 10 with Prader Willi syndrome a.k.a. PWS a rare, genetic disorder (1 in 15.000) that is the number one cause of morbid obesity in youth and causes insatiable hunger, also known as Hyperphasia.
I discuss how it’s summertime and how I needed to advocate very hard for our special needs child Josh to get Extended School Year aka ESY summer school so that he doesn’t backslide in his developmental abilities.
I also talk about my book Living fierce on Amazon and how it has five keys to bring Hope to special needs families. 1. self-care, 2. family culture 3. assistance programs 4. medical team 5z educational plan
I hope you’ll connect with me. Check up my book, Living Fierce and please leave an Amazon review.
Find me on social media as
Lisa Greer and Instagram LisaMichelleGreer, LinkedIn, Lisa Greer, Facebook as Lisa Greer.
All my love
Lisa.
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