I can't imagine how you must feel and you seem to be a super strong person to be able to make this video even if you feel completely shit otherwise. I hope the correct treatment goes well
I found your channel out of nostalgia for my favorite game, Baldur's Gate 2. I can't imagine the troubles you're going through, but know you have my support! Stay strong, my friend!
As a nurse and someone who has gone through the experience of a loved one dealing with cancer, I think I can understand how shit this feels. But keep being strong dude, I'm right there with you
Do not loose hope, take this as a positive step into getting healthy and cancer free. Have faith in whatever you believe in and keep that faith to keep going! You got this, and we are here for you every step of the way!
Wow!! I can’t help but feel anger right now! It’s none of my business but damn! You have suffered for the past 10 months for nothing !!!! I just hope and pray you can stay strong during this next chapter of treatment
@@KOKOStern talk to a medical malpractice lawyer. Let your parents look into it if you don't have the energy. What happened to you isn't ok and you might prevent it happening to someone else in the future from that lab or hospital.
Hi KOKOstern, I really love yours BGEE videos !!! thanks for your sharing your knowledge and passion of the game with us. I’m just waiting to finish some DIY jobs at home to start the trilogy once again .... I now hope everything goes on the right direction regarding your health and that you can enjoy your time with wife and family. Be strong and keep smiling mate. Your inner energy is a precious gift. Keep fighting!!!
Hi KokoStern. What a news. You are such a great guy. A beautiful person. I really hope the proper treatment will be very effective. You are a fighter. Great news about your liver and putting on weight. Looking forward to your next video. XXX ...
I've never commented but i've followed your videos on this since day 1. On one side, I'm happy they detected the real type of cancer you had all this time, but on the other side i'm a bit sad and angry because you lost all this time treating something completely different and that makes you not be earlier on the treatments. Hope you can beat this thing! Hugs from me and my friends who follows your channel from Chile and Argentina!
Yeah that's part of the weirdness from all this. Angiosarcoma usually comes as a side effect of radiation treatment for another cancer. I never had another cancer and only had 1 short course of very targeted radiation. It's weird.
hi KOKOStern congratulations for not having Lung Cancer, good to see you are getting better,hope they get you cure for the right Cancer. good luck with your treatment, see your in the next update video. Regards Johnny.
@@KOKOSternhappy to be back , I'm watch your baldur's gate videos again ,and they are still really good, it made me think of the first time I saw them,and follow you through all the videos and then it was over, I thought what now, thanks for a good entertainment and many happy hours in your company. all the best from here Regards Johnny.
@@jlaplaable I'm very very glad to hear that. I'm glad to know even if I'm gone they will stay up and sorta be my legacy. I hope many people can enjoy them in the future. :)
Not much to say except "assbutts." "Assbutts" always puts a smile on my face. It's positive, it's negative, it's whatever you want it to mean. Maybe it'll provide you that extra 2% you need right now. Assbutts!!
@@KOKOStern Yes you're correct. Chemo does make you feel bad in the short term because it is wrestling the cancer in your body! i like chemo. it saved my life. i had a 7.5cm tumor which was basically obliterated by chemo. Before the surgery i underwent to remove the body part the cancer had invaded, the surgeon examined me and said i can feel nothing. i think the tumour is gone. but he still insisted on the surgery. They inspected the tissue afterwards and said not one spec of cancer was found. So yes - i think chemo rocks! We had a love/hate relationship. I learned to think positively about my treatment and was left with no lingering effects after 6 months of mainlining the stuff. You rock KOKO! We love you in Toronto like a ton of bricks!! xoxo
@@denisepaulsenful Awesome story man, very glad to hear that. My experience with chemo has been pretty different but now we know why. Hopefully the correct stuff for the correct cancer will have a similar effect to what you went through. Also have no idea what side effects I'll experience. Guess we'll see! :)
I was in the same situation in 2016-2017. They thought I had a metastatic carcinoma in my lungs and many other places. Turned out I had a crazy rare metastatic melanoma with no skin involvement. I was like you as to being both angry, and frustrated, till I found out a brand new double immunotherapy treatment that actually kept me stable for 17 months. Well, that was till I was diagnosed with more melanoma throught my lungs, and a brand new 3rd cancer in March 2019. My daughter found a new chest wall, and a new tumor and in my scull and sturnem, along with some of the lung tumors also being this new type of cancer. I still was, and am fighting the metastic melanoma,but I now have a 2nd type of breast cancer. In 2010 to 2013, it was stage 3b er/or, positive her2 negative ductive breast cancer. I beat that. Now I have stage metastatic triple negative breast cancer that is much more aggressive, and has spread all over. Yes, I still have some anger since I have no more treatments left. But so glad my daughter found it. I'm not ready to give up yet, at all! I will keep u in my prayers!!!
I have been following you and checked tonight on you. I am so happy no lung cancer I have a feeling strong that you will survive and beat this cancer 🙏 I just know it God bless you in his arms eat and follow research
Wow, this is pretty incredible. Some upsides and some downsides to the news. I’m sure that your new doctors will act quickly to get you going on the new drugs. It’s really tough and you have every right to be frustrated and angry but ultimately that just wastes precious energy. Hang onto the good sides. Good luck on Friday.
Holy shit. That's nuts indeed. It's definetly a hurray for no lung cancer, but it is also shitty to hear that you have been treated wrongly and that you have a different and much rarer type of cancer. May I ask, does this being a different type of cancer mean that you are on a different stage, or is it still 4? Good to see you keeping the fight going, never give up. Warm wishes from Denmark and a hug THIIIIIIS big!
at least this Koko, I'm with you bro. However you are not ugly, just try to eat a little more. Your beard and hair has also grown back a little, I'm happy about that
In the course of my lifetime I have had deal with death to and almost serial killer degree. I'm not as serial killer, nor am I aware that I know one, which means having a familiarity with death from so early on, one could look at the evidentiary circumstances and see myself as a logical suspect on account of frequency and ignoring that I was 3 when the began. So I was really kind of surprised to think of you yesterday evening an I was suddenly overcome with an almost alien instinct to openly sak what ever might listen to ensure that you survive this ordeal, I even said please. A strange action for a self serving atheist to ask any diety on behalf of a what by any interpretation would be a stranger. I have every confidence that you can and that you will.
W!T!F!! ... Dude. ... This is un-fkn-believable. I/We/Everyone wants you to get on the right track and to keep gaining weight and feeling better! Like immediately. And the steroids are great for gaining weight!! i was on them when i had the big 'C' 13-yrs ago almost i hasten to add when i sported a 7.5cm tumour we nicknamed Guido. But yes the steroids make you crave tasty savoury stuff that's not necessarily good for you. i wasn't allowed to go grocery shopping for i would arrive home with basically candy like a tray of iced cinammon buns for dinner. Huh!?! Anyhoo, so glad to hear you're feeling good! You actually look really good! And you sound amazing! ... Greetings from Toronto dear lad where we love you like a ton of bricks!! xoxo
I can't help but see God's hand in this and I believe it's meant to help you. What are the odds you'd get that tonsil nodule at this point that you kinda were at game over and now you know your real opponent. It sucks that you just found out but it's a true miracle you found out at all. I think it gives you a chance now, a real chance. This miracle was either to give you alot more time imo OR and hope this doesn't anger you but it could be to give Ellie a huge chunk of money from a lawsuit so she's taken care of if you don't make it. As understandable a mistake that was made its unacceptable and may have directly caused the death of a young man because they misdiagnosed AND mistreated you with the wrong chemo that only harmed your liver and never gave you a fighting chance. I'm hoping your miracle is meant for you to live and not about the money though, but please realize this revelation is truly astounding and you're blessed with options now that could do amazing things for you and Ellie.
Well that's one approach. I'm still unsure if it's a positive or a negative but we'll know more on Friday. In terms of suing them, not sure it's possible and no energy to pursue at the moment. As mentioned it's a very understandable mistake and we can't fault them too much, but it is a pretty big blunder. I'm unsure, guess we need to speak to a lawyer that knows these type of things but again we have no energy to pursue such a thing at the moment. Thanks for the kind words.
I miss you and your videos I hardly knew you but I followed you and your wife till you passed away. Your a Lovely man ❤️
Love you bro, my all time dream is to play D&D with you and play the tomb of horrors.
Hehe, that sounds like fun. If I survive this - you're on.
@@KOKOStern of course you survive
I can't imagine how you must feel and you seem to be a super strong person to be able to make this video even if you feel completely shit otherwise. I hope the correct treatment goes well
Thanks so much man. I hope so too! :)
I found your channel out of nostalgia for my favorite game, Baldur's Gate 2. I can't imagine the troubles you're going through, but know you have my support! Stay strong, my friend!
Thank you very much! Hope you can enjoy the BG2 content :)
Baldurs gate 3 is waiting for ya
Hehe, you're god damn right! :)
I miss you friend ❤
Bg 3 is coming out this August and I will play it for you…
Oh man what a rough situation! But very glad they are going to be able to target it with the right sarcoma treatment.
Hopefully it works out. We'll find out next week.
Keep strong man ! We're in it with you. It's your body, but our hearts are with you.
Feels great to read up all the support whenever I can. Thank you so much!
As a nurse and someone who has gone through the experience of a loved one dealing with cancer, I think I can understand how shit this feels. But keep being strong dude, I'm right there with you
Cancer no doubt sucks. Thanks for the support! :)
Hugs from Nicaragua!!! Your fight inspires me a lot...Thank you for sharing.
Thanks for the hugs! :)
Do not loose hope, take this as a positive step into getting healthy and cancer free. Have faith in whatever you believe in and keep that faith to keep going! You got this, and we are here for you every step of the way!
Hell yeah! :)
Now they can focus on your proper treatment instead of treating it as lung cancer
Yep! :)
Wow!! I can’t help but feel anger right now! It’s none of my business but damn! You have suffered for the past 10 months for nothing !!!! I just hope and pray you can stay strong during this next chapter of treatment
Working on it, hard but working on it, and yeah we have a lot of anger, not sure what we can do about it...
@@KOKOStern talk to a medical malpractice lawyer. Let your parents look into it if you don't have the energy. What happened to you isn't ok and you might prevent it happening to someone else in the future from that lab or hospital.
Hi KOKOstern, I really love yours BGEE videos !!! thanks for your sharing your knowledge and passion of the game with us. I’m just waiting to finish some DIY jobs at home to start the trilogy once again .... I now hope everything goes on the right direction regarding your health and that you can enjoy your time with wife and family. Be strong and keep smiling mate. Your inner energy is a precious gift. Keep fighting!!!
Thank you so much! Glad you're enjoying the vids! :)
Hi KokoStern. What a news. You are such a great guy. A beautiful person. I really hope the proper treatment will be very effective. You are a fighter. Great news about your liver and putting on weight. Looking forward to your next video. XXX ...
Thanks so much for the support! :)
I've never commented but i've followed your videos on this since day 1.
On one side, I'm happy they detected the real type of cancer you had all this time, but on the other side i'm a bit sad and angry because you lost all this time treating something completely different and that makes you not be earlier on the treatments.
Hope you can beat this thing!
Hugs from me and my friends who follows your channel from Chile and Argentina!
Thank you so much for putting out a comment man! Means a lot. I'll keep fighting! :)
❤️ I am 3 1/2 yrs remission from breast cancer and my doctors are now watching for angiosarcoma due to a reaction I had from radiation.
Yeah that's part of the weirdness from all this. Angiosarcoma usually comes as a side effect of radiation treatment for another cancer. I never had another cancer and only had 1 short course of very targeted radiation. It's weird.
hi
KOKOStern
congratulations for not having Lung Cancer, good to see you are getting better,hope they get you cure for the right Cancer.
good luck with your treatment, see your in the next update video.
Regards Johnny.
Cheers man, great to hear from you again. :)
@@KOKOSternhappy to be back , I'm watch your baldur's gate videos again ,and they are still really good, it made me think of the first time I saw them,and follow you through all
the videos and then it was over, I thought what now, thanks for a good entertainment and many happy hours in your company.
all the best from here Regards Johnny.
@@jlaplaable I'm very very glad to hear that. I'm glad to know even if I'm gone they will stay up and sorta be my legacy. I hope many people can enjoy them in the future. :)
Keep strong friend, never lose hope.
Trying our best over here!
Not much to say except "assbutts."
"Assbutts" always puts a smile on my face. It's positive, it's negative, it's whatever you want it to mean. Maybe it'll provide you that extra 2% you need right now.
Assbutts!!
100% legit response right there man! XD
Stay strong man. Keep fighting never give up. Maybe it's a blessing in disguise. My mom had lung cancer. And the chemo actually made her worse.
Chemo makes everyone worse in the short term, question is does it actually help. I'm currently in bad enough shape that I might need it.
@@KOKOStern Yes you're correct. Chemo does make you feel bad in the short term because it is wrestling the cancer in your body! i like chemo. it saved my life. i had a 7.5cm tumor which was basically obliterated by chemo. Before the surgery i underwent to remove the body part the cancer had invaded, the surgeon examined me and said i can feel nothing. i think the tumour is gone. but he still insisted on the surgery. They inspected the tissue afterwards and said not one spec of cancer was found. So yes - i think chemo rocks! We had a love/hate relationship. I learned to think positively about my treatment and was left with no lingering effects after 6 months of mainlining the stuff. You rock KOKO! We love you in Toronto like a ton of bricks!! xoxo
@@denisepaulsenful Awesome story man, very glad to hear that. My experience with chemo has been pretty different but now we know why. Hopefully the correct stuff for the correct cancer will have a similar effect to what you went through. Also have no idea what side effects I'll experience. Guess we'll see! :)
I was in the same situation in 2016-2017. They thought I had a metastatic carcinoma in my lungs and many other places. Turned out I had a crazy rare metastatic melanoma with no skin involvement. I was like you as to being both angry, and frustrated, till I found out a brand new double immunotherapy treatment that actually kept me stable for 17 months. Well, that was till I was diagnosed with more melanoma throught my lungs, and a brand new 3rd cancer in March 2019. My daughter found a new chest wall, and a new tumor and in my scull and sturnem, along with some of the lung tumors also being this new type of cancer. I still was, and am fighting the metastic melanoma,but I now have a 2nd type of breast cancer. In 2010 to 2013, it was stage 3b er/or, positive her2 negative ductive breast cancer. I beat that. Now I have stage metastatic triple negative breast cancer that is much more aggressive, and has spread all over. Yes, I still have some anger since I have no more treatments left. But so glad my daughter found it. I'm not ready to give up yet, at all! I will keep u in my prayers!!!
Wow what a story. Guess the world is filled with crazy stuff like that. You're awesome! Keep fighting! Thank you for telling your story!
I have been following you and checked tonight on you. I am so happy no lung cancer I have a feeling strong that you will survive and beat this cancer 🙏 I just know it God bless you in his arms eat and follow research
Thanks for the kind words, we'll try. We're tracking what I eat in cronometer and we seem to be doing well :)
Wow, this is pretty incredible. Some upsides and some downsides to the news. I’m sure that your new doctors will act quickly to get you going on the new drugs. It’s really tough and you have every right to be frustrated and angry but ultimately that just wastes precious energy. Hang onto the good sides. Good luck on Friday.
Thank you so much! They're gonna have a conference on Monday and decide on the best course of action for me. Crazy stuff. :)
I'm really hopeful this new treatment will help you. Sending good wishes and hope
Thank you!
Holy shit. That's nuts indeed. It's definetly a hurray for no lung cancer, but it is also shitty to hear that you have been treated wrongly and that you have a different and much rarer type of cancer.
May I ask, does this being a different type of cancer mean that you are on a different stage, or is it still 4?
Good to see you keeping the fight going, never give up. Warm wishes from Denmark and a hug THIIIIIIS big!
Hi KOKOStern any updates?, hope you're ok.
Still alive, not exactly ok but alive. Update video should come in the next few days now that I'm home.
at least this Koko, I'm with you bro. However you are not ugly, just try to eat a little more.
Your beard and hair has also grown back a little, I'm happy about that
Hehe thank you. It's less about looking good or bad and more about me feeling like myself and recognizing myself in the mirror.
@@KOKOStern you're right, but I don't find you so different. You will come back as strong as a rock, I'm sure. I'm near you bro
@@gabrielevanzati1378 Thanks a lot! :)
In the course of my lifetime I have had deal with death to and almost serial killer degree. I'm not as serial killer, nor am I aware that I know one, which means having a familiarity with death from so early on, one could look at the evidentiary circumstances and see myself as a logical suspect on account of frequency and ignoring that I was 3 when the began. So I was really kind of surprised to think of you yesterday evening an I was suddenly overcome with an almost alien instinct to openly sak what ever might listen to ensure that you survive this ordeal, I even said please. A strange action for a self serving atheist to ask any diety on behalf of a what by any interpretation would be a stranger. I have every confidence that you can and that you will.
Thank you so much for your kind words and thoughts. It's very nice to hear and makes me feel stronger. Thank you!
Mass gainer shakes
I have high caloric drinks man, no worries.
Hello, was thinking of you and wondering how you doing today
Still alive. Video will come in the next few days I hope.
W!T!F!! ... Dude. ... This is un-fkn-believable. I/We/Everyone wants you to get on the right track and to keep gaining weight and feeling better! Like immediately. And the steroids are great for gaining weight!! i was on them when i had the big 'C' 13-yrs ago almost i hasten to add when i sported a 7.5cm tumour we nicknamed Guido. But yes the steroids make you crave tasty savoury stuff that's not necessarily good for you. i wasn't allowed to go grocery shopping for i would arrive home with basically candy like a tray of iced cinammon buns for dinner. Huh!?! Anyhoo, so glad to hear you're feeling good! You actually look really good! And you sound amazing! ... Greetings from Toronto dear lad where we love you like a ton of bricks!! xoxo
Well, that is insane. You're super cute by the way. It had to be said.
Yes it is. Thank you very much for making me blush! :)
That's crazy man. Still hoping for the best for you. They are giving you shots of testosterone and a strong opiate like oxycodone?
Shots of testosterone why? I'm ok on painkillers for now, no need for oxy, that's insane strong.
@@KOKOStern yeah it is, very strong. You said steroids when I hear that I think test injections cause I used to body build.
@@sarevokanchev3616 No I'm taking very low dose steroids because they help me have an appetite, no other reason.
@@KOKOStern oh ok. Glad to hear you've already gained a little back
I can't help but see God's hand in this and I believe it's meant to help you. What are the odds you'd get that tonsil nodule at this point that you kinda were at game over and now you know your real opponent. It sucks that you just found out but it's a true miracle you found out at all. I think it gives you a chance now, a real chance. This miracle was either to give you alot more time imo OR and hope this doesn't anger you but it could be to give Ellie a huge chunk of money from a lawsuit so she's taken care of if you don't make it. As understandable a mistake that was made its unacceptable and may have directly caused the death of a young man because they misdiagnosed AND mistreated you with the wrong chemo that only harmed your liver and never gave you a fighting chance. I'm hoping your miracle is meant for you to live and not about the money though, but please realize this revelation is truly astounding and you're blessed with options now that could do amazing things for you and Ellie.
Well that's one approach. I'm still unsure if it's a positive or a negative but we'll know more on Friday. In terms of suing them, not sure it's possible and no energy to pursue at the moment. As mentioned it's a very understandable mistake and we can't fault them too much, but it is a pretty big blunder. I'm unsure, guess we need to speak to a lawyer that knows these type of things but again we have no energy to pursue such a thing at the moment. Thanks for the kind words.