Neuromyelitis Optica: Behind the Mystery of NMO

Imagine your teenager going from completely healthy one day to suddenly being threatened with blindness, paralysis, and being given four years to live. For Victoria Jackson and Bill Guthy, the devastating diagnosis that their daughter Ali received started a desperate race against the clock. Ali’s rare autoimmune disease is called Neuromyelitis Optica. In just 15 years, thanks to the Guthy-Jackson Charitable Foundation, NMO has gone from being a rare orphan disease to a community of survivors, world-renowned experts, approved therapies, and hope for all autoimmune disease patients worldwide.
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[@christyabercrombie3916]

As a patient with NMO, it's so wonderful to see so much attention being given to this disease. It was a lonely place in 2012 until I found my NMO family and The Guthyjacksonfoundation!!! 💚💚💚

[@carrilevy6266]

From one rare mom to another...Victoria Jackson, you are a super hero. This foundation that you and Bill built, is a world changer. Thank you for letting Behind the Mystery tell this story with you.

[@MK-oc6jx]

God bless you God be with everyone who has an M all my sister-in-law is fighting it right now for the last year and it’s a horrible disease. I’m so grateful you have this to give us more insight on different options and places to go and how to tell the doctors.

[@mollyheywood277]

What powerful NMO stories!

[@lindasilva0827]

My middle child 2 months before his 30th birthday, wake up paralized, been to 6 different hospitals, and no doctors can find what is wrong. All this makes sense. Do I need a neuro? What kind of specialist