Learning and Thriving with a Rare Disease

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  • Опубликовано: 13 дек 2024

Комментарии • 4

  • @sweetsmiles1081
    @sweetsmiles1081 6 лет назад +1

    This is a metabolic disorder, that affects the bones, teeth, hearing, and more. Just wanted to correct that. As an XLHER I appreciate the advocacy!

  • @BeautyatAnyAge
    @BeautyatAnyAge 6 лет назад

    What this series also doesn’t mention is that some of us are spontaneous cases of XLH. No one in my family tree has ever been diagnosed with it but me. Important to note for those parents with children that have been diagnosed but don’t carry it within their genes!