Luke Toki shares daughter Maddie's journey living with cystic fibrosis
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- Опубликовано: 19 мар 2022
- Survivor and Big Brother VIP star Luke Toki shares the journey he has been through with his daughter Maddie who lives with cystic fibrosis.
After winning Big Brother VIP, Luke Toki’s next move is to be the face of a national campaign launching next week to raise awareness and funds for kids with CF like his daughter. Only half of kids with CF will live past 35 - and Luke is on a mission to change that.
Partnering with the Perth Children’s Hospital Foundation, Toki hopes to raise hundreds of thousands for the cause that is inspired by his two year old daughter Maddie who battles CF every day.
Please donate what you can: bit.ly/3i7MBEJ
We are with you luke ! I lost friends in the 1990s from CF as teens. And today there is so much hope ! Including TRIKAFTA
She’s beautiful. You are wonderful caring parents.
So cute, that dad absolutely adores his little baby girl ❤
I'm so proud of any media for CF. Good job for speaking out to let us all know about CF
This has to be so hard for everyone. God Bless you all.
God bless their sweet family. He was phenominal too in "The traitors" tv show. Standing up for the truth and other people
My son, Brandon, had Cystic Frobrosis,severe C.F.He went home April 28th 1999, he was 16 years old.l miss him everday😞💔❤
God bless her and the family
Thank goodness for Trikafta and the Deford family for really publicizing CF on the 1970s and beyond. You’re what got is here Alex.
My nephew with CF and he has been through a lot but he is 25 and counting. Its a lot of up and downs but you’ll make it. God bless you all 🤗😘🙏😇
Good job Luke
I lost three nieces to CF. It's tough but stay on top of her therapies.
Legend
Hoping that this lovely girl can be helped by the new CFTR modulator drugs like Kalydeco, Orkambi or Trikafta which could restore some of the genetic malfunction and extend her health and life expectancy.
Nate toki goes to my school
Wouldn''t a transplant help? Or is there too much organ involvement?
There are wonderful drugs now available for treatment of CF, including Trikafta. If you would like to follow life long journeys of people with cystic fibrosis, there are encouraging platforms on youtube, including the Fey Life.
Transplants can longer ones life but its very risky from what I learned from Claire. She was a youtuber and she had two lung transplant. She died unfortunetly. And I remember she waited a long time to get the transplant.
@@AryaStark47 Yes, I also remember Claire I was deeply saddened to learn of her passing. I cannot emphasize enough for people to watch the Frey Life. There is hope for a brighter future with new drugs.
A transplant can extend life but it's very dangerous too and even when it's successful a lot of the time people only live for a few years, although it's hard to predict and some people live many years. So usually doctors wait until things have got very bad to suggest it. It has to be pretty bad before it's worth taking the risks. Besides that there is a huge shortage of organs so they go to the ones who don't have time to wait longer.
Won't cure it though because it's caused by an incorrect gene which causes the mucus to be thick and sticky which does the damage if not cleared out. Transplants are no walk in the park either. They leave a patient more vulnerable to illness in other ways and they have to meet strict criteria to get one and have to wait until they get a match if they're lucky enough to do so.
king of jungle
So cute, that dad absolutely adores his little baby girl ❤