Видео

❤❤❤❤❤❤❤

What an amazing Lady and incredible caring Doctor.🙏

Your amazing Mary surfing and doing so well do your physio and sending love to all

I am so proud of you that your able to be so excellent at sports you a inspiration to so many I hope your dreams come true

Oh he’s so cute!! My sister had Hurlers Syndrome. As soon as I saw him I knew what he had. We decided to not do the bone marrow transplant because she had so many different things going on. She had already spent enough time in the hospital. She was diagnosed at 6 months and passed just shy of her 7th birthday.

God bless their sweet family. He was phenominal too in "The traitors" tv show. Standing up for the truth and other people

I hope maddie is now on pbs approved trikafta! The govr recently approved it for under 12s

prayers ops

prwyerw ops

Nate toki goes to my school

My nephew with CF and he has been through a lot but he is 25 and counting. Its a lot of up and downs but you’ll make it. God bless you all 🤗😘🙏😇

Legend

Your husband looks like my cousin Archie Ackerman

Did you spend time with your daughter she was like mackayla

3:27 3:28

Hope she will be happy and healthy forever with her parents

Precious little girl. I hope you stay with your parents forever. Wonderful angelic child.

Thank goodness for Trikafta and the Deford family for really publicizing CF on the 1970s and beyond. You’re what got is here Alex.

More power to you 💕 I hope your sweetheart to a merry old age and has a full life

Karen vše bude dobré

Přeji vám je šťastný další život

Jste skvělí. Děkuji

Všem vám přeji vše nej. Petr

What a precious little chap. I know this video is from 2 years ago but only watched now. Hope Benji is well. 💕 from a granny in South Africa

Thank you for sharing your family story. Hospice is truly phenomenal. 💕 from South Africa.

God bless her and the family

I hope there is a cure He is such a beautiful child. My prayers are with you and your family.

A beautiful family and Sam is adorable 💕💕💞💓💗💗💗

I lost three nieces to CF. It's tough but stay on top of her therapies.

We are with you luke ! I lost friends in the 1990s from CF as teens. And today there is so much hope ! Including TRIKAFTA

My niece passed away from Hurlers in 1995. She was 3. It makes me so happy to see how far treatments have come and how different the prognosis is now. ❤

Hoping that this lovely girl can be helped by the new CFTR modulator drugs like Kalydeco, Orkambi or Trikafta which could restore some of the genetic malfunction and extend her health and life expectancy.

Thank you for your difficult story 🙏

Now he can be of age to become a Pokémon master

Have a beautiful life little fella!!🥰😍💖💖💖💖💖

My son, Brandon, had Cystic Frobrosis,severe C.F.He went home April 28th 1999, he was 16 years old.l miss him everday😞💔❤

king of jungle

My son was diagnosed with this aged 19 months and had his right eye removed! Luckily no other treatment was required. He is now 43 years old x

Beautiful family

Best thing I ever did for my sons asthma was to get him into sport swimming was really good

What a sweetheart!

I think when the kid catch that both his parents have to be care for yours it's sad but to God be the glory

Prayers good to see him flourish and grow. Does he have a form of dwarfism like achondroplasia or psuedoachon? Or hydrocephalus

Él crecerá, será un adulto independiente y vivirá como cualquier otro adulto con algún problema de salud. su padre y su madre ya acostumbrados no sufrirán más . Dios los bendiga

Great story with a beautiful ending!

Prayers, 🙏Healings. And Blessings. Amen.

She’s beautiful. You are wonderful caring parents.

💚

This has to be so hard for everyone. God Bless you all.