Long-term effects of Ménière's disease - Online interview

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  • Опубликовано: 10 сен 2024

Комментарии • 67

  • @willp9226
    @willp9226 Год назад +17

    Meniere's disease is likely under-diagnosed. I was diagnosed with MD in the last couple of years, but now know that it started showing symptoms several years before. But the symptoms weren't the complete symptoms that are used to diagnose the disease. I now get all the symptoms.
    Previously, I'd have attacks, some vertigo, some varying hearing loss & some fullness, mostly vomiting, but very little tinnitus. I now have all four of these symptoms, with tinnitus and fullness roaring in my ear. Vomiting should be considered a major symptom as it seems to occur to most people that have MD. And it is one of the worst symptoms inline with severe vertigo.
    Many of the personal testimonies of people with MD suggest that most of the invasive therapies, including steroid injections, don't work. Or, don't work for long. This seems to be true with people that have found relief through more natural methods. They often say that they wished they never had any invasive procedures. As they were costly and didn't help much.
    If these doctors that downplay the serious impact MD has on the the lives of sufferers, had the disease themself, they'd understand much better and stop suggesting that there are easy cures. Or, that much relief is possible with medications and procedures. MD is not easily treated no matter what this guy says, especially if you are older, as you've likely had it developing in your for at least a few years.

    • @manojkumar-dm4kr
      @manojkumar-dm4kr Год назад +6

      You are right

    • @midlifebiker7424
      @midlifebiker7424 Год назад +3

      Ive only had the vertigo and vomiting for the last 6 months, however I did notice hearing problems, no low frequency, in one ear years earlier.
      Ive changed my diet, and when I feel an episode coming on just lie down in a quiet room for an hour or 2.
      At 55, I can only expect it to get worse but am trying to manage it and seek more info.

    • @manojkumar-dm4kr
      @manojkumar-dm4kr Год назад

      @@midlifebiker7424 I heard many peoples got 80-90% cure using homeopathy treatment, consult a good famous homeopath , and have patience because the treatment needs time...also homeopathy treatment is not expensive

    • @binduraju5128
      @binduraju5128 Год назад +1

      ​@@manojkumar-dm4kr Did you get any authentic treatment for this,?

    • @manojkumar-dm4kr
      @manojkumar-dm4kr Год назад +1

      @@binduraju5128 yes , before starting homeopathic medicine I consulted many ENT specialist some have also foreign degree they all give vertin tablet ,i also consulted CMC Vellore they also gave vertin tablet no improvement from allopathic treatment, wasted 80k....i started homeopathic treatment from 6 months no vertigo from last 4 months,and some relief in other symptoms also

  • @sircampbell1249
    @sircampbell1249 Год назад +6

    Living with it for over 40 years.....

  • @JohnSmith-qe6fb
    @JohnSmith-qe6fb 11 месяцев назад +4

    Just dx'd with Meniere's disease after seeing many different doctors (including Neuro and Gastro) to figure out my vertigo symptoms and nausea. I started having weird ear fullness/pain and tinnitus so I made an appointment to see ENT. They diagnosed me pretty quickly as I had all the classic symptoms. It can be debilitating and has affected my life because it is unpredictable and the vertigo can last for hours! Often times, I am left feeling sick for a good part of the day.

    • @SonsOfLore
      @SonsOfLore 7 месяцев назад

      My vertigo can last for several days

  • @juliehurst3846
    @juliehurst3846 11 месяцев назад +5

    1st stage, vomiting, not being able to move you just freeze, 2nd stage dizziness cant walk sickness having to rest sleep, 3 all of above then,, falling no warning could be crossing a road, smashing your head off the pavement, being told by dwp that you can still work,

  • @tbonemc2118
    @tbonemc2118 4 месяца назад +2

    I was diagnosed with this 60 years ago from age 10.
    All early attacks were severe and came on with virtually no warning.
    Lots of vomiting and then I'd lay down and stare at something to alleviate some of the spinning. Exhaustion would eventually let me sleep.
    Only from my own observations I think the vomiting helped get through attacks quicker.
    From about the age of 30 most attacks were just much milder dizzy spells and I learnt to recognise them in time to take a single panadol which ended attacks pretty quickly.
    I haven't had a severe attack now for at least 20 years with most just being a bit of dizziness.
    60 years ago medicine knew nothing about this disease.
    One Doctor said they could cure it by taking out the inner ear.
    That horrified me back then but with what I know today I'm sitting on the fence about the procedure.
    Sure I'd be deaf in that ear but I'm as deaf as a post anyway from the disease and having the inner ear removed would stop the tinnitus.
    I haven't had a hearing test in many years but today the tinnitus in my bad ear is so loud it's making hearing with the other ear very difficult.
    I had a few Doctors note down my use of panadol. I've heard mention that the disease could be inflamitory and I wonder if the panadol worked on that.
    I hope this was informative for someone.
    For everyone don't let it stop you living a normal life.
    Sorry this is all over the place but a definite trigger for the disease bringing on an attack for me was heat/cold. Sit side on to a bar heater or with the sun on one side of my head.

    •  Месяц назад

      if they remove your whole inner ear, it will do NOTHING for the tinnitus. you will still have the tinnitus. talk to your doctor. if he tells you the surgery will help with the tinnitus, GET ANOTHER DOCTOR. do research on it. you need to seek out a doctor that specializes in meniere's. they are hard to find and well worth it , even if you have to travel. a regular ear, nose and throat dr is not the dr to be treated by. best of luck to you.

    • @tbonemc2118
      @tbonemc2118 Месяц назад

      This is some of the best information I have ever heard.
      Pardon my ignorance of tinitus .
      It was my assumption that removing the inner ear would stop the tinitus Not a doctors.
      60 years ago I was diagnosed by an ear nose and throat specialist who was able to bring on an attack in his surgery through irrigating my affected ear with warm water.
      To be honest the diagnosis was the only useful thing I've ever got from the medical profession .
      At first doctor's would prescribe diuretics and Valium which had no effect on the disease which is why I did my own experimentation hence the panidol.
      I still suffer from slight vertigo which makes me more prone to running into the edges of doorways in particular
      I nearly make it through.
      The tinitus is the most dibillitating symptom I still have but somehow I manage to block it out unless I consciously think about it.
      Don't ask me how that works but it's saved my sanity.
      Probably once every ten years I've told doctors that I have Meneiers to see if there are any new treatments but all they want to prescribe is diruretics.
      Outside of my family I never mention the disease not even to my current doctor.
      I want to lead a normal life without people telling me what I can and can't do like driving a car.

    •  Месяц назад

      @@tbonemc2118 again, the doctors that specialize in meniere;s are few and far in between. but they are really the only ones who can treat you. there have been a few advances in treatments. one of which is trying migraine medication. it only help 3 out of 10 people , but it is worth a try. i hope you can find a meniere's specialist.. again best of luck.

  • @edwardcroghan5375
    @edwardcroghan5375 3 месяца назад

    I have recently been diagnosed with 'Secondary' Méniére's disease after first having the symptoms in 2018. Despite the medication (Serc and Cizzarizine), the vertigo attacks keep coming (on average, one a week). It's brutal.

  • @anthonydonna9772
    @anthonydonna9772 Год назад +3

    A friend of mine at work complained about ear ringing, vertigo and Meniere disease for a very long time, I told him about Dr Madida on RUclips that gave him a treatment he used. We were recently discussing at work when he told me that the treatment worked that he don’t longer experience the ringing, eye spinning and others anymore. I was so happy for him.

    • @manojkumar-dm4kr
      @manojkumar-dm4kr Год назад +2

      How to contact dr madida ?

    • @bunnycloudb.4850
      @bunnycloudb.4850 Год назад

      Fuckig !! I see Dr. Madida every pose about ear disease in RUclips channel.😅😅😅 No evidence people improve and nothing found about him. FAKE REPLY.

  • @discussdebate
    @discussdebate Год назад +6

    I've been slammed for many many years to where Meniere's has become a PTSD!! In a Capitalistic World I'm damn near broke all the time and am basically institutionalized by SSI-D (I am however very grateful as without this who knows where I'd be). FYI: I once upon a time had a $135k education and an impressive resume including was a Marine... most things for me ended in 2008.
    2008, I was 45 years old when this started for me. My life was incrementally destroyed to the point I eventually lived in Subsidized Housing with ZERO Income for years. After time, I found out how to outmaneuver some of the fears that come with severe Meniere's disease by doing stuff that worked for me (baby steps or tougher yet - dove into the deep end) - trust, there is room for some "Mind Over Matter"
    After a long fight, I recieved SSI Disability 11/2017. I am currently well enough (sigh, but it can be a battle at times) - I try being grateful for the things I have and for what I can do!!

    I tell people this... spin in circles for 10+ minutes and then try to do anything; noting, you've spun around knowingly. Then, realise this, feeling like that at any moment with minimal (at best) notice ...and having it last 1 to whatever hours!?! * my longest attack is 30 hours with a 2 day sluggish recovery period to get my equilibrium back. During an attack it is like being assaulted and then left lying on the floor for hours knowing NOTHING will be helpful nor can someone lend a hand until it corrects itself... you have to find a way (your way) to overcome the panic, spinning, screaming tinnitus and lie completely still - basically trying to achieve an emotionally calm stable state of mind - wow!! easier said than done... yet possible!!
    Menieres symptoms are oftentimes defined by how the individual reacts and or is susceptible to the intensity of the early ONSLAUGHT of the disease. As well as what support systems are available (family, friends, associates, aquaintances, doctors). Attacks are sporadic and at some point even sparse yet like a monster hiding under your bed... it will eventually get you and IT WILL DERAIL anything you had planned; hell, your morale may take a huge setback too!! This is where Meniere's can be more of an individual experience... the how it affects your mindset, ability to recover and the moving on.
    .

    • @jackieisbell7456
      @jackieisbell7456 Год назад +3

      SEMPER FI ! I was diagnosed with MD in 2018 . Just before I turned 70 , everyone said I didn't even look 50 and had the energy of a 25 year old . My sweet ( former Marine / radio repairman Vietnam 66/67) husband said it looked like he robbed the cradle . I roller skated , we danced a couple of times a month , I ice skated , could still do the back bend and splits of my cheer leader days . I say this so you know I UNDERSTAND you completely , and all you've LOST !! So sorry honey ! My late husband(as I already mentioned ) and late son were both Marines , I know they STILL looked like a Poster for USMC ! Our son passed from an undiagnosed heart defect at 42 , he was a Brig Guard , he looked 24 . My husband succumbed from Lung Cancer courtesy of AO !!! I had the surgery on the lymphatic sac , he was still with me then . I had vertigo so bad I couldn't see objects in the room as it was spinning . My husband put ice packs on me pointed 2 fans at me , while SWEAT POURED off of me like water . We had ( he) had to get towels under me , so I wouldn't soak the sheets . My love took care of me , but even with out vertigo I am always a little " off balance" ( I've always walked and moved around REALLY QUICKLY ) , have to move like I'm on the deck of a ship , in rough sea . After surgery EVERYTHING , except hearing loss , was 100% better . Then my husband was diagnosed with stage 4 cancer , after he passed ( the good from surgery lasted 2 years ) I started having same problems , just not as bad or as often . I am fortunate , my husbands pensions ( including VA ) make it so I don't have the $$ financial stress to deal with . I put everything in a trust so nothing can be touched , all bills paid , sons on Trust .
      However the stress of loosing him we didn't quite make it to 54 years . Plus we started dating when I was 14 and he was 16 . We married as soon as he got home from Vietnam I was 18 he turned 20 in Vietnam . I really believe the Stress of loosing my love started the symptoms again . Though they aren't as bad ( by a long shot ) handling them ALONE makes it HORRIBLE !!

    • @discussdebate
      @discussdebate Год назад +1

      @@jackieisbell7456 I'm am sorry to hear about this for anyone. I wish you the best my dear. :D

    • @nancynucci3604
      @nancynucci3604 Месяц назад

      Yes!! Thank you for your story. I tell people to do the same thing. Spin for a while then try and navigate the world. My problem started 7 years ago from a severe eye problem and a surgeon who applied a scleral buckle to save my left eye site. I began having symptoms about 4 months out. They got progressively worse and now I am completely disabled. Miserable.
      You inspire me.

    • @nancynucci3604
      @nancynucci3604 Месяц назад

      Oh,andsince my problem is mechanical my symptoms are constant. I now show signs of cognitive impairment, early dementia. I presume my brain will give out over the next 5 to 10 years.

  • @clairkrause6656
    @clairkrause6656 2 года назад +6

    Probably real good information, but wow this guy is hard to understand.

    • @miketheman6243
      @miketheman6243 8 месяцев назад

      Turn on closed captions, upper right hand of screen

  • @lennoxmorgan9504
    @lennoxmorgan9504 Год назад

    The healing rate of my Tinnitus the very first time I apply and use Dr Madida medicine gave me a good impression that it is gonna work and it did work because right now I don't longer experience Tinnitus Effects anymore that I use to experience because the conditions is completely gone.

    • @manojkumar-dm4kr
      @manojkumar-dm4kr Год назад

      Can u please explain how to contact dr madida? What is the price?

  • @bristephens9642
    @bristephens9642 Год назад

  • @rianasteyn5218
    @rianasteyn5218 7 месяцев назад

    That's really a terrible disease to have. My life quality drop into the drain 😢

  • @christopherwenner7786
    @christopherwenner7786 10 месяцев назад +1

    It gets worse every year

    • @pauldonohoe3646
      @pauldonohoe3646 10 месяцев назад

      No it doesn't, at least not for everyone. I have it almost 6 years now.

    • @christopherwenner7786
      @christopherwenner7786 10 месяцев назад

      I’ve had it for 15 years now

  • @keitymarley733
    @keitymarley733 Год назад

    My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on RUclips and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus🎉🎉

    • @pauldonohoe3646
      @pauldonohoe3646 10 месяцев назад

      Sorry, but Menieres is incurable. You may not have attacks for months or maybe years but you still have the disease and will hit you again eventually.

    • @preetham9139
      @preetham9139 10 месяцев назад

      Really bro, I am suffering now also, I consulted many doctors they said like it is eustachain tube dysfunction and another said infection 😢

  • @keitymarley733
    @keitymarley733 2 года назад +1

    My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on RUclips and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus

    • @vaibhavdhote1180
      @vaibhavdhote1180 Год назад

      Can you please give some more information regarding this.......or any contact no. Or any social media platform of Dr madida herbs

    • @abdou1907
      @abdou1907 Год назад

      Plase can you give me mor informations for this herbs lm from algeria l have md plase answer me

    • @keitymarley733
      @keitymarley733 Год назад

      You will find his contact info on his channel.

    • @manojkumar-dm4kr
      @manojkumar-dm4kr Год назад

      How much time had it take to cure your sister?

    • @bunnycloudb.4850
      @bunnycloudb.4850 Год назад

      Fuckig !! I see Dr. Madida every pose about ear disease in RUclips channel.😅😅😅 No evidence people improve and nothing found about him. FAKE REPLY from Herb seller.